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Jerry Brown, the United Cannabis Business Association said the changes would further unsettle the struggling legal marketplace that launched Jan. 1, potentially forcing businesses to close their doors.\u003c/p>\n\u003cp>The trade group that represents cannabis companies said there are too few labs to handle the testing, and retailers would have to destroy vast amounts of unsold cannabis that does not meet the new standards.\u003c/p>\n\u003cp>Association president Jerred Kiloh estimated that businesses could face nearly $400 million in losses if those unsold supplies are destroyed.\u003c/p>\n\u003cp>“Forcing the industry into compliance ... will further cripple the already struggling regulated market,” the letter said.\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>In a statement, the state Bureau of Cannabis Control gave no indication it would consider rolling back the deadline.\u003c/p>\n\u003cp>“We issued our emergency regulations back in November, and at that time we were pretty clear about the fact that there would be a six-month transition period for retailers to use up their existing supply. We felt that was a sufficient amount of time to deplete stock on hand and adapt to California’s new rules,” agency spokesman Alex Traverso said in an email.[contextly_sidebar id=\"024mYCqF9Xv8Y0Ohhnf1BPJQ8spoTbMY\"]\u003c/p>\n\u003cp>The regulations are being phased in six months after the state broadly legalized marijuana and required that pot sold after Saturday meets strict quality standards. With the deadline approaching, retailers have been unloading untested inventory at bargain-basement prices.\u003c/p>\n\u003cp>The rollout of the nation’s largest legal pot market has been bumpy at best. The black market is still flourishing, and the industry complains about taxes that can approach 50 percent in some areas.\u003c/p>\n\u003cp>Others fear a shortage of retailers for both adult-use and medicinal marijuana could shut down the supply chain, stranding growers with mountains of unsold pot.\u003c/p>\n\u003cp>California is operating under temporary regulations, while the largest city, Los Angeles, has been slow to issue licenses.\u003c/p>\n\u003cp>The change in rules was part of the state’s decision to allow the industry to get a running start at the beginning of the year. Shops were given six months to burn through supplies of cannabis and edibles produced without strict testing requirements.\u003c/p>\n\u003cp>Any marijuana harvested this year, or for sale July 1, must meet quality and safety standards or be destroyed.\u003c/p>\n\u003cp>The letter depicted an emerging industry that is struggling to find its footing.\u003c/p>\n\u003cp>The group said the 30 licensed labs that would test pot would be unable to handle demand, resulting in a shortage of products on shelves. A system intended to track plants from seed to sale has been delayed. And packaging companies are not ready to meet the new rules.\u003c/p>\n\u003cp>“Customers and patients will turn to illicit market retailers and delivery services who will still have an abundance of products for sale. Licensed retailers will be forced to shut down,” the letter said.\u003c/p>\n\u003cp>The businesses and advocacy groups that signed the letter represent a fraction of the state’s legal marketplace. For example, over 3,300 cultivation licenses have been issued, and there are more than 400 licensed retailers.\u003c/p>\n\u003cp>___\u003c/p>\n\u003cp>\u003c/p>\n\u003cp>Associated Press writer Brian Melley contributed to this report.\u003c/p>\n\n","blocks":[],"excerpt":"The trade group that represents cannabis companies said there are too few labs to handle the testing, and retailers would have to destroy vast amounts of unsold cannabis.","status":"publish","parent":0,"modified":1530546445,"stats":{"hasAudio":false,"hasVideo":false,"hasChartOrMap":false,"iframeSrcs":[],"hasGoogleForm":false,"hasGallery":false,"hasHearkenModule":false,"hasPolis":false,"paragraphCount":21,"wordCount":559},"headData":{"title":"Pot Businesses Urge California to Delay Strict Testing Rules | KQED","description":"The trade group that represents cannabis companies said there are too few labs to handle the testing, and retailers would have to destroy vast amounts of unsold cannabis.","ogTitle":"","ogDescription":"","ogImgId":"","twTitle":"","twDescription":"","twImgId":"","schema":{"@context":"http://schema.org","@type":"Article","headline":"Pot Businesses Urge California to Delay Strict Testing Rules","datePublished":"2018-07-02T15:45:14.000Z","dateModified":"2018-07-02T15:47:25.000Z","image":"https://cdn.kqed.org/wp-content/uploads/2020/02/KQED-OG-Image@1x.png"}},"disqusIdentifier":"443119 https://ww2.kqed.org/futureofyou/?p=443119","disqusUrl":"https://ww2.kqed.org/futureofyou/2018/07/02/pot-businesses-urge-california-to-delay-strict-testing-rules/","disqusTitle":"Pot Businesses Urge California to Delay Strict Testing Rules","source":"Health","nprByline":"Michael R. Blood\u003cbr />The Associated Press","path":"/futureofyou/443119/pot-businesses-urge-california-to-delay-strict-testing-rules","audioTrackLength":null,"parsedContent":[{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003cp>Nearly 150 marijuana businesses in California warned Friday that they could face crippling financial losses unless the state extends a July 1 deadline imposing strict standards for pot testing and packaging.\u003c/p>\u003cp>\u003c/p>\u003cp>\u003c/p>\n\u003cp>In a letter to Gov. Jerry Brown, the United Cannabis Business Association said the changes would further unsettle the struggling legal marketplace that launched Jan. 1, potentially forcing businesses to close their doors.\u003c/p>\n\u003cp>The trade group that represents cannabis companies said there are too few labs to handle the testing, and retailers would have to destroy vast amounts of unsold cannabis that does not meet the new standards.\u003c/p>\n\u003cp>Association president Jerred Kiloh estimated that businesses could face nearly $400 million in losses if those unsold supplies are destroyed.\u003c/p>\n\u003cp>“Forcing the industry into compliance ... will further cripple the already struggling regulated market,” the letter said.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"ad","attributes":{"named":{"label":"fullwidth"},"numeric":["fullwidth"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>In a statement, the state Bureau of Cannabis Control gave no indication it would consider rolling back the deadline.\u003c/p>\n\u003cp>“We issued our emergency regulations back in November, and at that time we were pretty clear about the fact that there would be a six-month transition period for retailers to use up their existing supply. We felt that was a sufficient amount of time to deplete stock on hand and adapt to California’s new rules,” agency spokesman Alex Traverso said in an email.\u003c/p>\u003cp>\u003c/p>\u003cp>\u003c/p>\n\u003cp>The regulations are being phased in six months after the state broadly legalized marijuana and required that pot sold after Saturday meets strict quality standards. With the deadline approaching, retailers have been unloading untested inventory at bargain-basement prices.\u003c/p>\n\u003cp>The rollout of the nation’s largest legal pot market has been bumpy at best. The black market is still flourishing, and the industry complains about taxes that can approach 50 percent in some areas.\u003c/p>\n\u003cp>Others fear a shortage of retailers for both adult-use and medicinal marijuana could shut down the supply chain, stranding growers with mountains of unsold pot.\u003c/p>\n\u003cp>California is operating under temporary regulations, while the largest city, Los Angeles, has been slow to issue licenses.\u003c/p>\n\u003cp>The change in rules was part of the state’s decision to allow the industry to get a running start at the beginning of the year. Shops were given six months to burn through supplies of cannabis and edibles produced without strict testing requirements.\u003c/p>\n\u003cp>Any marijuana harvested this year, or for sale July 1, must meet quality and safety standards or be destroyed.\u003c/p>\n\u003cp>The letter depicted an emerging industry that is struggling to find its footing.\u003c/p>\n\u003cp>The group said the 30 licensed labs that would test pot would be unable to handle demand, resulting in a shortage of products on shelves. A system intended to track plants from seed to sale has been delayed. And packaging companies are not ready to meet the new rules.\u003c/p>\n\u003cp>“Customers and patients will turn to illicit market retailers and delivery services who will still have an abundance of products for sale. Licensed retailers will be forced to shut down,” the letter said.\u003c/p>\n\u003cp>The businesses and advocacy groups that signed the letter represent a fraction of the state’s legal marketplace. For example, over 3,300 cultivation licenses have been issued, and there are more than 400 licensed retailers.\u003c/p>\n\u003cp>___\u003c/p>\n\u003cp>\u003c/p>\n\u003cp>Associated Press writer Brian Melley contributed to this report.\u003c/p>\n\n\u003c/div>\u003c/p>","attributes":{"named":{},"numeric":[]}}],"link":"/futureofyou/443119/pot-businesses-urge-california-to-delay-strict-testing-rules","authors":["byline_futureofyou_443119"],"categories":["futureofyou_1060","futureofyou_73"],"tags":["futureofyou_972","futureofyou_1562","futureofyou_952","futureofyou_61","futureofyou_1041","futureofyou_1568"],"collections":["futureofyou_1093"],"featImg":"futureofyou_443051","label":"source_futureofyou_443119"},"futureofyou_437938":{"type":"posts","id":"futureofyou_437938","meta":{"index":"posts_1591205157","site":"futureofyou","id":"437938","score":null,"sort":[1513952611000]},"guestAuthors":[],"slug":"fda-to-target-high-risk-homeopathic-remedies","title":"FDA to Target High-Risk Homeopathic Remedies","publishDate":1513952611,"format":"standard","headTitle":"KQED Future of You | KQED Science","labelTerm":{"site":"futureofyou"},"content":"\u003cp>U.S. health officials plan to crack down on a growing number of unproven alternative remedies, focusing on products containing dangerous ingredients that have occasionally been linked to serious injury and death.H\u003c/p>\n\u003cp>The Food and Drug Administration on Monday issued a new proposal for regulating homeopathic medicines that have long been on the fringe of mainstream medicine. The agency plans to target products that pose the biggest safety risks, including those marketed for children or for serious diseases.\u003c/p>\n\u003caside class=\"pullquote alignright\">'People may be putting their trust and money in therapies that bring little or no benefit in combating their ailments, or worse — in products that may cause serious and even irreparable harm.'\u003ccite>Dr. Scott Gottlieb,FDA Commissioner \u003c/cite>\u003c/aside>\n\u003cp>But under the government's framework, the vast majority of low-risk products would remain on the market. Popular homeopathic brands include Zicam Allergy Relief and Cold-Eeze.\u003c/p>\n\u003cp>Long regarded by scientists as a form of modern-day snake oil, homeopathic products are treated as drugs under law, but not supported by modern science. Most remedies contain heavily diluted drugs, vitamins and minerals.\u003c/p>\n\u003cp>\"People may be putting their trust and money in therapies that bring little or no benefit in combating their ailments, or worse — in products that may cause serious and even irreparable harm,\" FDA Commissioner Dr. Scott Gottlieb said Monday on a call with reporters.\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>Once a niche market, homeopathy products have grown into a $3 billion industry, according to FDA figures.\u003c/p>\n\u003cp>[contextly_sidebar id=\"Q9e3dS7jG2DTfAP33rG2lSzTZoSCLrmc\"]Homeopathic products are similar to dietary supplements, in that the FDA does not review their safety or effectiveness before they are sold. But unlike supplements, homeopathic medicines can state that they are intended for specific medical symptoms and conditions, similar to drugs.\u003c/p>\n\u003cp>A handful of products in recent years have been subject to major safety problems, usually involving potentially toxic ingredients.\u003c/p>\n\u003cp>Last year, the FDA warned consumers about the risks of teething tablets marketed by Hyland's Homeopathic after they were tied to seizures and deaths in infants and children. FDA testing later confirmed the products contained high levels of belladonna, also called nightshade, a poisonous herb that has long been used at low dosages in homeopathic medicine. The products were recalled in April.\u003c/p>\n\u003cp>In 2009, the FDA ordered Zicam to stop marketing three products that contained zinc gluconate after more than 100 users reported losing their sense of smell. Other dangerous ingredients used in homeopathy products include nux vomica, which contains strychnine. Regulators have issued five warning letters this year to companies selling products with nightshade or nux vomica.\u003c/p>\n\u003cp>[contextly_sidebar id=\"OurndJopkYzHm3JfeuY4ygYnj1JktcTX\"]The FDA said its proposal also targets products that claim to treat serious diseases like cancer, or are administered via unconventional routes such as injection or eye drops. Regulators can issue warning letters, seize products or pursue criminal action against companies that disregard federal guidelines.\u003c/p>\n\u003cp>The agency will take comments on its proposal for 90 days before beginning to finalize the plan.\u003c/p>\n\u003cp>Consumer advocates said the FDA plan makes sense for products that are mostly harmless, but can be dangerous if manufacturers stray from traditional ingredients, dosing and manufacturing.\u003c/p>\n\u003cp>\"I think the rules do a good job of going after the things that are most problematic,\" said Dr. Adriane Fugh-Berman, an associate professor at Georgetown University Medical Center.\u003c/p>\n\u003cp>The FDA hasn't updated its regulations for homeopathic medicine since 1988, when it essentially exempted the industry from basic production standards that are mandatory for traditional drugs, like listing ingredients on product labels.\u003c/p>\n\u003cp>\u003c/p>\n\u003cp>Hundreds of homeopathic remedies today are sold alongside over-the-counter drugs like Tylenol and aspirin at pharmacies across the U.S. The National Institutes of Health has said there's little evidence that homeopathic medicine is effective for treating any specific condition.\u003c/p>\n\n","blocks":[],"excerpt":"Health officials plan to crack down on a growing number of unproven alternative remedies, focusing on products containing dangerous ingredients occasionally linked to serious injury and death.","status":"publish","parent":0,"modified":1513961069,"stats":{"hasAudio":false,"hasVideo":false,"hasChartOrMap":false,"iframeSrcs":[],"hasGoogleForm":false,"hasGallery":false,"hasHearkenModule":false,"hasPolis":false,"paragraphCount":18,"wordCount":626},"headData":{"title":"FDA to Target High-Risk Homeopathic Remedies | KQED","description":"Health officials plan to crack down on a growing number of unproven alternative remedies, focusing on products containing dangerous ingredients occasionally linked to serious injury and death.","ogTitle":"","ogDescription":"","ogImgId":"","twTitle":"","twDescription":"","twImgId":"","schema":{"@context":"http://schema.org","@type":"Article","headline":"FDA to Target High-Risk Homeopathic Remedies","datePublished":"2017-12-22T14:23:31.000Z","dateModified":"2017-12-22T16:44:29.000Z","image":"https://cdn.kqed.org/wp-content/uploads/2020/02/KQED-OG-Image@1x.png"}},"disqusIdentifier":"437938 https://ww2.kqed.org/futureofyou/?p=437938","disqusUrl":"https://ww2.kqed.org/futureofyou/2017/12/22/fda-to-target-high-risk-homeopathic-remedies/","disqusTitle":"FDA to Target High-Risk Homeopathic Remedies","nprByline":"Matthew Perrone\u003c/br>Associated Press","path":"/futureofyou/437938/fda-to-target-high-risk-homeopathic-remedies","audioTrackLength":null,"parsedContent":[{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003cp>U.S. health officials plan to crack down on a growing number of unproven alternative remedies, focusing on products containing dangerous ingredients that have occasionally been linked to serious injury and death.H\u003c/p>\n\u003cp>The Food and Drug Administration on Monday issued a new proposal for regulating homeopathic medicines that have long been on the fringe of mainstream medicine. The agency plans to target products that pose the biggest safety risks, including those marketed for children or for serious diseases.\u003c/p>\n\u003caside class=\"pullquote alignright\">'People may be putting their trust and money in therapies that bring little or no benefit in combating their ailments, or worse — in products that may cause serious and even irreparable harm.'\u003ccite>Dr. Scott Gottlieb,FDA Commissioner \u003c/cite>\u003c/aside>\n\u003cp>But under the government's framework, the vast majority of low-risk products would remain on the market. Popular homeopathic brands include Zicam Allergy Relief and Cold-Eeze.\u003c/p>\n\u003cp>Long regarded by scientists as a form of modern-day snake oil, homeopathic products are treated as drugs under law, but not supported by modern science. Most remedies contain heavily diluted drugs, vitamins and minerals.\u003c/p>\n\u003cp>\"People may be putting their trust and money in therapies that bring little or no benefit in combating their ailments, or worse — in products that may cause serious and even irreparable harm,\" FDA Commissioner Dr. Scott Gottlieb said Monday on a call with reporters.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"ad","attributes":{"named":{"label":"fullwidth"},"numeric":["fullwidth"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>Once a niche market, homeopathy products have grown into a $3 billion industry, according to FDA figures.\u003c/p>\n\u003cp>\u003c/p>\u003cp>\u003c/p>\u003cp>Homeopathic products are similar to dietary supplements, in that the FDA does not review their safety or effectiveness before they are sold. But unlike supplements, homeopathic medicines can state that they are intended for specific medical symptoms and conditions, similar to drugs.\u003c/p>\n\u003cp>A handful of products in recent years have been subject to major safety problems, usually involving potentially toxic ingredients.\u003c/p>\n\u003cp>Last year, the FDA warned consumers about the risks of teething tablets marketed by Hyland's Homeopathic after they were tied to seizures and deaths in infants and children. FDA testing later confirmed the products contained high levels of belladonna, also called nightshade, a poisonous herb that has long been used at low dosages in homeopathic medicine. The products were recalled in April.\u003c/p>\n\u003cp>In 2009, the FDA ordered Zicam to stop marketing three products that contained zinc gluconate after more than 100 users reported losing their sense of smell. Other dangerous ingredients used in homeopathy products include nux vomica, which contains strychnine. Regulators have issued five warning letters this year to companies selling products with nightshade or nux vomica.\u003c/p>\n\u003cp>\u003c/p>\u003cp>\u003c/p>\u003cp>The FDA said its proposal also targets products that claim to treat serious diseases like cancer, or are administered via unconventional routes such as injection or eye drops. Regulators can issue warning letters, seize products or pursue criminal action against companies that disregard federal guidelines.\u003c/p>\n\u003cp>The agency will take comments on its proposal for 90 days before beginning to finalize the plan.\u003c/p>\n\u003cp>Consumer advocates said the FDA plan makes sense for products that are mostly harmless, but can be dangerous if manufacturers stray from traditional ingredients, dosing and manufacturing.\u003c/p>\n\u003cp>\"I think the rules do a good job of going after the things that are most problematic,\" said Dr. Adriane Fugh-Berman, an associate professor at Georgetown University Medical Center.\u003c/p>\n\u003cp>The FDA hasn't updated its regulations for homeopathic medicine since 1988, when it essentially exempted the industry from basic production standards that are mandatory for traditional drugs, like listing ingredients on product labels.\u003c/p>\n\u003cp>\u003c/p>\n\u003cp>Hundreds of homeopathic remedies today are sold alongside over-the-counter drugs like Tylenol and aspirin at pharmacies across the U.S. The National Institutes of Health has said there's little evidence that homeopathic medicine is effective for treating any specific condition.\u003c/p>\n\n\u003c/div>\u003c/p>","attributes":{"named":{},"numeric":[]}}],"link":"/futureofyou/437938/fda-to-target-high-risk-homeopathic-remedies","authors":["byline_futureofyou_437938"],"categories":["futureofyou_452","futureofyou_1062"],"tags":["futureofyou_972","futureofyou_38","futureofyou_1192"],"featImg":"futureofyou_437939","label":"futureofyou"},"futureofyou_435338":{"type":"posts","id":"futureofyou_435338","meta":{"index":"posts_1591205157","site":"futureofyou","id":"435338","score":null,"sort":[1504877416000]},"guestAuthors":[],"slug":"unproven-intravenous-hydrogen-peroxide-treatment-offered-by-naturopaths","title":"Intravenous Hydrogen Peroxide: Unproven Treatment Offered by Naturopaths","publishDate":1504877416,"format":"standard","headTitle":"KQED Future of You | KQED Science","labelTerm":{},"content":"\u003cp>Many a parent has applied hydrogen peroxide to a child's cut or scrape to prevent infections. But a number of Southern California naturopathic doctors are using the mild antiseptic in an unconventional way: They intravenously infuse a saline solution with 3 percent hydrogen peroxide straight into a patient's bloodstream.\u003c/p>\n\u003caside class=\"pullquote alignright\">'When you have something that has never been shown to be of value and has the potential to do a lot of harm, it shouldn’t be used.'\u003ccite>Dr. Paul Offit, University of Pennsylvania medical school\u003c/cite>\u003c/aside>\n\u003cp>Montrose osteopath Dr. Yoshi Rahm says this treatment, called IV hydrogen peroxide, does the same thing inside your body as it does on the outside. It's \"killing things,\" such as \"the infection that you currently have, or those unhealthy cancer cells you currently have,\" he says.There's no proof this treatment works. On top of that, IV hydrogen peroxide can be expensive and potentially dangerous. Yet it's not hard to find naturopaths in Southern California who offer it.\u003c/p>\n\u003cp>Some naturopaths promote it online. In this YouTube video, a doctor in Georgia says there are \"30 to 50 maladies\" that IV hydrogen peroxide can help fight, including colds, flus and bacterial and viral infections.\u003c/p>\n\u003cp>\"When you have one compound that someone's telling you can treat a wide variety of unrelated conditions, that's a red flag,\" says Dr. David Gorski, a professor at Wayne State University's medical school and editor of the website Science-Based Medicine.\u003c/p>\n\u003cp>\u003cstrong>Unproven and Untracked\u003c/strong>\u003c/p>\n\u003cfigure id=\"attachment_435349\" class=\"wp-caption aligncenter\" style=\"max-width: 640px\">\u003ca href=\"https://ww2.kqed.org/futureofyou/wp-content/uploads/sites/13/2017/09/hydrogperoxdoc.jpg\">\u003cimg class=\"size-large wp-image-435349\" src=\"https://ww2.kqed.org/futureofyou/wp-content/uploads/sites/13/2017/09/hydrogperoxdoc-1020x851.jpg\" alt=\"\" width=\"640\" height=\"534\" srcset=\"https://ww2.kqed.org/app/uploads/sites/13/2017/09/hydrogperoxdoc-1020x851.jpg 1020w, https://ww2.kqed.org/app/uploads/sites/13/2017/09/hydrogperoxdoc-160x133.jpg 160w, https://ww2.kqed.org/app/uploads/sites/13/2017/09/hydrogperoxdoc-800x667.jpg 800w, https://ww2.kqed.org/app/uploads/sites/13/2017/09/hydrogperoxdoc-768x641.jpg 768w, https://ww2.kqed.org/app/uploads/sites/13/2017/09/hydrogperoxdoc-960x801.jpg 960w, https://ww2.kqed.org/app/uploads/sites/13/2017/09/hydrogperoxdoc-240x200.jpg 240w, https://ww2.kqed.org/app/uploads/sites/13/2017/09/hydrogperoxdoc-375x313.jpg 375w, https://ww2.kqed.org/app/uploads/sites/13/2017/09/hydrogperoxdoc-520x434.jpg 520w, https://ww2.kqed.org/app/uploads/sites/13/2017/09/hydrogperoxdoc.jpg 1024w\" sizes=\"(max-width: 640px) 100vw, 640px\">\u003c/a>\u003cfigcaption class=\"wp-caption-text\">Dr. Yoshi Rahm estimates he's provided about 100 IV hydrogen peroxide treatments over the past four years. He acknowledges there's no scientific proof that it works. \u003ccite>(Rebecca Plevin/KPCC)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>IV hydrogen peroxide has never been studied in a clinical trial, and the U.S. Food and Drug Administration hasn't approved any IV drugs that contain hydrogen peroxide as an active ingredient.\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>\"When you have something that has never been shown to be of value and has the potential to do a lot of harm, it shouldn't be used,\" says Dr. Paul Offit, a professor at the University of Pennsylvania medical school and author of a book about alternative medicine.\u003c/p>\n\u003cp>The U.S. Centers for Disease Control and Prevention doesn't track adverse events from IV hydrogen peroxide. But according to news reports, one woman died in South Carolina in 2004 after a doctor administered it as a treatment for multiple sclerosis.\u003c/p>\n\u003cp>The coroner concluded the hydrogen peroxide produced bubbles in the woman's blood, which led to multiple organ failure and cardiac arrest.\u003c/p>\n\u003cp>IV hydrogen peroxide has a lot of risk and no proven benefits, Offit says.\u003c/p>\n\u003cp>\"If you're going to do placebo medicine, which is what I think this is, then use a placebo, because hydrogen peroxide can kill you,\" he says.\u003c/p>\n\u003cp>It's also expensive: In Southern California, treatments often cost more than a $100 per session.\u003c/p>\n\u003cp>\u003cstrong>No 'Solid Medical Evidence'\u003c/strong>\u003c/p>\n\u003cp>The California Naturopathic Doctors Association says it doesn't track how many people have gotten IV hydrogen peroxide or how many providers offer it, but the group referred KPCC to a naturopath in Grass Valley who says she's trained thousands on how to administer the treatment.\u003c/p>\n\u003cp>Dr. Rahm estimates he's provided about 100 treatments of IV hydrogen peroxide over the past four years. He says he's mainly used it on sinus infections and on cancer, as long as patients are also getting standard treatments like chemotherapy.\u003c/p>\n\u003cp>Rahm acknowledges there's no scientific proof that it works.\u003c/p>\n\u003cp>\"Honestly, I would say no, there's not like solid medical evidence behind it,\" Rahm says. \"Those studies haven't been done.\"\u003c/p>\n\u003cp>He defends the treatment by pointing to one patient's story as proof that it works.\u003c/p>\n\u003cp>Mercedes Curran, a 28-year-old from Beverly Glen Canyon, has MS, an unpredictable, degenerative disease of the central nervous system.\u003c/p>\n\u003cp>At one point, she couldn't control the right side of her body.\u003c/p>\n\u003cp>\"It felt like the right side of my body had 30 extra pounds on all of it,\" Curran recalls. \"Essentially, it would feel like that part of my body was dead.\"\u003c/p>\n\u003cp>Her neurologist recommended five rounds of steroids and physical therapy. Alongside that treatment, Rahm recommended 10 IV hydrogen peroxide sessions over two weeks.\u003c/p>\n\u003cp>Curran says she was skeptical, but willing to try it.\u003c/p>\n\u003cp>\"I wouldn't say I was desperate, but at the same time, of course I wanted to walk without having to drag my leg and I love to travel and all those other things,\" she says.\u003c/p>\n\u003cp>Dr. Offit says he has \"enormous sympathy\" for Curran's situation. He says she, like many others, turned to alternative medicine after coming up against the limits of Western medicine.\u003c/p>\n\u003cp>Still, \"there's just no reason to put people at this kind of risk,\" he says. \"I think these are very vulnerable people and it's just disheartening to see that there are clinicians who are willing to step into the breach and take advantage of these patients.\"\u003c/p>\n\u003cp>Curran estimates she’s spent about $2,000 altogether on her treatments. Each time, she would relax in a lounge chair in Rahm's office, as a saline solution with 3 percent hydrogen peroxide was infused into her bloodstream.\u003c/p>\n\u003cp>\"I felt better after the first session,\" Curran recalls. \"I just felt like I had more energy and my body wasn't as heavy. It could've been even after two or three sessions was the first time I could flex my foot.\"\u003c/p>\n\u003cp>\u003cstrong>Anecdotes Not Scientific Evidence\u003c/strong>\u003c/p>\n\u003cp>Experts say it's impossible to know why Curran started feeling better.\u003c/p>\n\u003cp>MS symptoms sometimes improve on their own. It could've been the steroids Curran's neurologist prescribed, which can take a few weeks to kick in. Or it could've been the placebo effect.\u003c/p>\n\u003cp>\"With one single case, we should be very careful and definitely not jump to the conclusions, especially when it comes to intravenous administration of a substance that can be toxic,\" says Dr. Regina Berkovich, a neurologist who specializes in MS at USC.\u003c/p>\n\u003cp>If naturopathic doctors like Rahm think IV hydrogen peroxide can help treat MS and other conditions, they should prove it, says Dr. Robert Califf, who served as FDA commissioner until January.\u003c/p>\n\u003cp>\"If the treatment works, he would be doing the world a favor to show it using good scientific principles,\" he says, while predicting that it wouldn't be proven to work.\u003c/p>\n\u003cp>[ad floatright]\u003c/p>\n\u003cp>\"Even in the mainstream drug industry, over 90 percent of drugs that get into human clinical trials end up not being safe and effective,\" says Califf.\u003c/p>\n\n","blocks":[],"excerpt":"Naturopaths in Southern California are treating patients intravenously with the antiseptic hydrogen peroxide. But this treatment can be expensive and possibly dangerous, and there's no evidence that it actually works.","status":"publish","parent":0,"modified":1504883621,"stats":{"hasAudio":false,"hasVideo":false,"hasChartOrMap":false,"iframeSrcs":[],"hasGoogleForm":false,"hasGallery":false,"hasHearkenModule":false,"hasPolis":false,"paragraphCount":37,"wordCount":1105},"headData":{"title":"Intravenous Hydrogen Peroxide: Unproven Treatment Offered by Naturopaths | KQED","description":"Naturopaths in Southern California are treating patients intravenously with the antiseptic hydrogen peroxide. But this treatment can be expensive and possibly dangerous, and there's no evidence that it actually works.","ogTitle":"","ogDescription":"","ogImgId":"","twTitle":"","twDescription":"","twImgId":"","schema":{"@context":"http://schema.org","@type":"Article","headline":"Intravenous Hydrogen Peroxide: Unproven Treatment Offered by Naturopaths","datePublished":"2017-09-08T13:30:16.000Z","dateModified":"2017-09-08T15:13:41.000Z","image":"https://cdn.kqed.org/wp-content/uploads/2020/02/KQED-OG-Image@1x.png"}},"disqusIdentifier":"435338 https://ww2.kqed.org/futureofyou/?p=435338","disqusUrl":"https://ww2.kqed.org/futureofyou/2017/09/08/unproven-intravenous-hydrogen-peroxide-treatment-offered-by-naturopaths/","disqusTitle":"Intravenous Hydrogen Peroxide: Unproven Treatment Offered by Naturopaths","source":"Future of You","nprByline":"Rebecca Plevin\u003cbr/>KPCC","path":"/futureofyou/435338/unproven-intravenous-hydrogen-peroxide-treatment-offered-by-naturopaths","audioTrackLength":null,"parsedContent":[{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003cp>Many a parent has applied hydrogen peroxide to a child's cut or scrape to prevent infections. But a number of Southern California naturopathic doctors are using the mild antiseptic in an unconventional way: They intravenously infuse a saline solution with 3 percent hydrogen peroxide straight into a patient's bloodstream.\u003c/p>\n\u003caside class=\"pullquote alignright\">'When you have something that has never been shown to be of value and has the potential to do a lot of harm, it shouldn’t be used.'\u003ccite>Dr. Paul Offit, University of Pennsylvania medical school\u003c/cite>\u003c/aside>\n\u003cp>Montrose osteopath Dr. Yoshi Rahm says this treatment, called IV hydrogen peroxide, does the same thing inside your body as it does on the outside. It's \"killing things,\" such as \"the infection that you currently have, or those unhealthy cancer cells you currently have,\" he says.There's no proof this treatment works. On top of that, IV hydrogen peroxide can be expensive and potentially dangerous. Yet it's not hard to find naturopaths in Southern California who offer it.\u003c/p>\n\u003cp>Some naturopaths promote it online. In this YouTube video, a doctor in Georgia says there are \"30 to 50 maladies\" that IV hydrogen peroxide can help fight, including colds, flus and bacterial and viral infections.\u003c/p>\n\u003cp>\"When you have one compound that someone's telling you can treat a wide variety of unrelated conditions, that's a red flag,\" says Dr. David Gorski, a professor at Wayne State University's medical school and editor of the website Science-Based Medicine.\u003c/p>\n\u003cp>\u003cstrong>Unproven and Untracked\u003c/strong>\u003c/p>\n\u003cfigure id=\"attachment_435349\" class=\"wp-caption aligncenter\" style=\"max-width: 640px\">\u003ca href=\"https://ww2.kqed.org/futureofyou/wp-content/uploads/sites/13/2017/09/hydrogperoxdoc.jpg\">\u003cimg class=\"size-large wp-image-435349\" src=\"https://ww2.kqed.org/futureofyou/wp-content/uploads/sites/13/2017/09/hydrogperoxdoc-1020x851.jpg\" alt=\"\" width=\"640\" height=\"534\" srcset=\"https://ww2.kqed.org/app/uploads/sites/13/2017/09/hydrogperoxdoc-1020x851.jpg 1020w, https://ww2.kqed.org/app/uploads/sites/13/2017/09/hydrogperoxdoc-160x133.jpg 160w, https://ww2.kqed.org/app/uploads/sites/13/2017/09/hydrogperoxdoc-800x667.jpg 800w, https://ww2.kqed.org/app/uploads/sites/13/2017/09/hydrogperoxdoc-768x641.jpg 768w, https://ww2.kqed.org/app/uploads/sites/13/2017/09/hydrogperoxdoc-960x801.jpg 960w, https://ww2.kqed.org/app/uploads/sites/13/2017/09/hydrogperoxdoc-240x200.jpg 240w, https://ww2.kqed.org/app/uploads/sites/13/2017/09/hydrogperoxdoc-375x313.jpg 375w, https://ww2.kqed.org/app/uploads/sites/13/2017/09/hydrogperoxdoc-520x434.jpg 520w, https://ww2.kqed.org/app/uploads/sites/13/2017/09/hydrogperoxdoc.jpg 1024w\" sizes=\"(max-width: 640px) 100vw, 640px\">\u003c/a>\u003cfigcaption class=\"wp-caption-text\">Dr. Yoshi Rahm estimates he's provided about 100 IV hydrogen peroxide treatments over the past four years. He acknowledges there's no scientific proof that it works. \u003ccite>(Rebecca Plevin/KPCC)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>IV hydrogen peroxide has never been studied in a clinical trial, and the U.S. Food and Drug Administration hasn't approved any IV drugs that contain hydrogen peroxide as an active ingredient.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"ad","attributes":{"named":{"label":"fullwidth"},"numeric":["fullwidth"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>\"When you have something that has never been shown to be of value and has the potential to do a lot of harm, it shouldn't be used,\" says Dr. Paul Offit, a professor at the University of Pennsylvania medical school and author of a book about alternative medicine.\u003c/p>\n\u003cp>The U.S. Centers for Disease Control and Prevention doesn't track adverse events from IV hydrogen peroxide. But according to news reports, one woman died in South Carolina in 2004 after a doctor administered it as a treatment for multiple sclerosis.\u003c/p>\n\u003cp>The coroner concluded the hydrogen peroxide produced bubbles in the woman's blood, which led to multiple organ failure and cardiac arrest.\u003c/p>\n\u003cp>IV hydrogen peroxide has a lot of risk and no proven benefits, Offit says.\u003c/p>\n\u003cp>\"If you're going to do placebo medicine, which is what I think this is, then use a placebo, because hydrogen peroxide can kill you,\" he says.\u003c/p>\n\u003cp>It's also expensive: In Southern California, treatments often cost more than a $100 per session.\u003c/p>\n\u003cp>\u003cstrong>No 'Solid Medical Evidence'\u003c/strong>\u003c/p>\n\u003cp>The California Naturopathic Doctors Association says it doesn't track how many people have gotten IV hydrogen peroxide or how many providers offer it, but the group referred KPCC to a naturopath in Grass Valley who says she's trained thousands on how to administer the treatment.\u003c/p>\n\u003cp>Dr. Rahm estimates he's provided about 100 treatments of IV hydrogen peroxide over the past four years. He says he's mainly used it on sinus infections and on cancer, as long as patients are also getting standard treatments like chemotherapy.\u003c/p>\n\u003cp>Rahm acknowledges there's no scientific proof that it works.\u003c/p>\n\u003cp>\"Honestly, I would say no, there's not like solid medical evidence behind it,\" Rahm says. \"Those studies haven't been done.\"\u003c/p>\n\u003cp>He defends the treatment by pointing to one patient's story as proof that it works.\u003c/p>\n\u003cp>Mercedes Curran, a 28-year-old from Beverly Glen Canyon, has MS, an unpredictable, degenerative disease of the central nervous system.\u003c/p>\n\u003cp>At one point, she couldn't control the right side of her body.\u003c/p>\n\u003cp>\"It felt like the right side of my body had 30 extra pounds on all of it,\" Curran recalls. \"Essentially, it would feel like that part of my body was dead.\"\u003c/p>\n\u003cp>Her neurologist recommended five rounds of steroids and physical therapy. Alongside that treatment, Rahm recommended 10 IV hydrogen peroxide sessions over two weeks.\u003c/p>\n\u003cp>Curran says she was skeptical, but willing to try it.\u003c/p>\n\u003cp>\"I wouldn't say I was desperate, but at the same time, of course I wanted to walk without having to drag my leg and I love to travel and all those other things,\" she says.\u003c/p>\n\u003cp>Dr. Offit says he has \"enormous sympathy\" for Curran's situation. He says she, like many others, turned to alternative medicine after coming up against the limits of Western medicine.\u003c/p>\n\u003cp>Still, \"there's just no reason to put people at this kind of risk,\" he says. \"I think these are very vulnerable people and it's just disheartening to see that there are clinicians who are willing to step into the breach and take advantage of these patients.\"\u003c/p>\n\u003cp>Curran estimates she’s spent about $2,000 altogether on her treatments. Each time, she would relax in a lounge chair in Rahm's office, as a saline solution with 3 percent hydrogen peroxide was infused into her bloodstream.\u003c/p>\n\u003cp>\"I felt better after the first session,\" Curran recalls. \"I just felt like I had more energy and my body wasn't as heavy. It could've been even after two or three sessions was the first time I could flex my foot.\"\u003c/p>\n\u003cp>\u003cstrong>Anecdotes Not Scientific Evidence\u003c/strong>\u003c/p>\n\u003cp>Experts say it's impossible to know why Curran started feeling better.\u003c/p>\n\u003cp>MS symptoms sometimes improve on their own. It could've been the steroids Curran's neurologist prescribed, which can take a few weeks to kick in. Or it could've been the placebo effect.\u003c/p>\n\u003cp>\"With one single case, we should be very careful and definitely not jump to the conclusions, especially when it comes to intravenous administration of a substance that can be toxic,\" says Dr. Regina Berkovich, a neurologist who specializes in MS at USC.\u003c/p>\n\u003cp>If naturopathic doctors like Rahm think IV hydrogen peroxide can help treat MS and other conditions, they should prove it, says Dr. Robert Califf, who served as FDA commissioner until January.\u003c/p>\n\u003cp>\"If the treatment works, he would be doing the world a favor to show it using good scientific principles,\" he says, while predicting that it wouldn't be proven to work.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"ad","attributes":{"named":{"label":"floatright"},"numeric":["floatright"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>\"Even in the mainstream drug industry, over 90 percent of drugs that get into human clinical trials end up not being safe and effective,\" says Califf.\u003c/p>\n\n\u003c/div>\u003c/p>","attributes":{"named":{},"numeric":[]}}],"link":"/futureofyou/435338/unproven-intravenous-hydrogen-peroxide-treatment-offered-by-naturopaths","authors":["byline_futureofyou_435338"],"categories":["futureofyou_452","futureofyou_1062","futureofyou_1","futureofyou_73"],"tags":["futureofyou_972","futureofyou_1352"],"featImg":"futureofyou_435346","label":"source_futureofyou_435338"},"futureofyou_435189":{"type":"posts","id":"futureofyou_435189","meta":{"index":"posts_1591205157","site":"futureofyou","id":"435189","score":null,"sort":[1504681305000]},"guestAuthors":[],"slug":"pets-deserve-evidence-based-medicine-too-says-the-skeptvet","title":"Pets Deserve Evidence-Based Medicine, Too, Says The SkeptVet","publishDate":1504681305,"format":"standard","headTitle":"KQED Future of You | KQED Science","labelTerm":{"term":1097,"site":"futureofyou"},"content":"\u003cp>Hunting for good medical advice for your ailing kitty or pup? You'll find no shortage of ardent testimonials and ads for sketchy or unproven treatments on the Web.\u003c/p>\n\u003cp>Silicon Valley veterinarian Brennen McKenzie worries that some of the same pseudoscience that is \u003ca href=\"http://www.npr.org/sections/health-shots/2017/07/17/537711453/seeking-online-medical-advice-googles-top-results-arent-always-on-target\">rampant in human medicine\u003c/a> is leading pet owners astray.\u003c/p>\n\u003cp>McKenzie's blog, \u003ca href=\"http://skeptvet.com/Blog/\">The SkeptVet\u003c/a>, aims to bring a calm voice of evidence-based skepticism in analyzing medical options for dogs and cats. McKenzie works at the Adobe Animal Hospital in Los Altos, Calif., and is a past president of the \u003ca href=\"https://ebvma.org/\">Evidence-Based Veterinary Medicine Association\u003c/a>. Once a researcher who studied monkey behavior, he earned his veterinary medicine degree from the University of Pennsylvania in 2001.\u003c/p>\n\u003cp>The SkeptVet is a labor of love; McKenzie gets no outside funding for it. I recently spoke with him about blogging, pseudoscience and his 19-year-old pet corn snake. The interview has been edited for length and clarity.\u003c/p>\n\u003cp>\u003cstrong>Why does the world need skeptical veterinarians?\u003c/strong>\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>Pet owners need to know the pros and cons of health care options for their pets to make good decisions. \"Skeptic\" doesn't mean someone who automatically rejects new or unfamiliar ideas. It's someone who refrains from judging a claim until they have examined the evidence dispassionately — someone who gives preference to scientific evidence over personal experience, anecdote, tradition or history.\u003c/p>\n\u003caside class=\"pullquote alignright\">'I think the biggest misconception is that there is a simple, across-the-board, right answer to if and when you should neuter your pet. That's not the case, because biology is too complex for that.'\u003ccite>Brennen McKenzie, Veterinarian and author of The SkeptVet blog\u003c/cite>\u003c/aside>\n\u003cp>That's particularly critical on the Internet, where information about alternative therapies is most often marketing information. Or it's provided by people who obviously believe in these therapies and don't necessarily want to disclose their limitations. Pet owners who have a negative experience with a therapy rarely bother to tell anybody else about it.\u003c/p>\n\u003cp>\u003cstrong>In your writings, you speak out a lot against veterinary pseudoscience. What are some examples?\u003c/strong>\u003c/p>\n\u003cp>Pseudoscience takes the form both of recommending things that are not helpful and discouraging the use of things that are. There are certain therapies that we know are not helpful because there's been adequate research and study showing that. A classic example is \u003ca href=\"http://www.npr.org/sections/health-shots/2016/12/02/504004506/time-for-homeopathic-remedies-to-prove-that-they-work\">homeopathic remedies\u003c/a>, which true believers will argue can cure cancer, autoimmune disease or almost any illness, in both pets and in people.\u003c/p>\n\u003cp>\u003ca href=\"https://nccih.nih.gov/health/homeopathy\">Homeopathy\u003c/a> makes the claim that administering a substance that triggers disease symptoms can have curative powers, if it's diluted in water or alcohol to the point where none of it actually remains. The substance can be nearly anything — from a plant or animal to moonlight or a piece of the Berlin Wall. Homeopathy has never been shown to be useful in good-quality scientific studies.\u003c/p>\n\u003cp>These homeopathic products are available over the counter in most pharmacies despite being useless, because they are generally considered harmless (except, of course, when used as a substitute for effective medical treatment). Any direct harm of homeopathic remedies typically comes from improper production, which leads to biologically significant levels of the original material or to contaminants. That is uncommon, although of course it does occur.\u003c/p>\n\u003cp>On the flip side is pseudoscience that undermines what we know about science-based medicine. Take anti-vaccine activism: Some people claim that \u003ca href=\"http://skeptvet.com/Blog/2014/11/rabies-vaccines-aggression-in-dogs-pure-pseudoscientific-fear-mongering/\">veterinary vaccines\u003c/a> should be avoided because their risks are greater than their benefits and they cause all sorts of horrible diseases. But there's no evidence that vaccines actually do that.\u003c/p>\n\u003cp>\u003cstrong>What about widely used conventional treatments in veterinary medicine? Are there any that you think aren't warranted?\u003c/strong>\u003c/p>\n\u003cp>[contextly_sidebar id=\"Dg10cOLAGl70eg0BwDQjnHscBwgbn3wB\"]Sure. I mean, the beauty and frustration of science is that it progresses over time and that things that we believe at one point may not turn out to be true later. Or that as we refine our knowledge, we have to give up things that we believe in. There are definitely practices like that in conventional, science-based medicine.\u003c/p>\n\u003cp>One example is annual boosters of core veterinary vaccines for animals. Science has shown for quite a while that yearly boosters for certain specific diseases, such as distemper and parvovirus, are unproductive. It's not clear that it's harmful, but it's certainly not needed. I think that conventional veterinarians have been slow to give that up.\u003c/p>\n\u003cp>\u003cstrong>You've blogged about how there are a lot of misconceptions about the pros and cons of \u003c/strong>\u003ca href=\"http://skeptvet.com/Blog/2013/04/benefits-and-risks-of-neutering-an-evidence-based-approach/\">\u003cstrong>neutering a pet\u003c/strong>\u003c/a>\u003cstrong>. Where do people go wrong there?\u003c/strong>\u003c/p>\n\u003cp>I think the biggest misconception is that there is a simple, across-the-board, right answer to if and when you should neuter your pet. That's not the case, because biology is too complex for that. Broad rules such as \"every dog should be neutered at six months,\" or \"no pet should be neutered at all\" — none of those are justifiable because the answer is, frustratingly, \"It depends.\" It depends on the breed, on the age, on the particular balance of risks and benefits that you're talking about. The reality is that you should have a lengthy, nuanced discussion with your veterinarian about that.\u003c/p>\n\u003cp>\u003cstrong>Lots of pet owners will swear that their animals benefited from an alternative therapy, whether it's turmeric or \u003c/strong>\u003ca href=\"http://www.npr.org/sections/health-shots/2017/07/04/535060331/some-marijuana-derived-treatments-aim-to-soothe-skittish-pets\">\u003cstrong>cannabis-based extracts\u003c/strong>\u003c/a>\u003cstrong>. What's the trouble with relying on these anecdotes?\u003c/strong>\u003c/p>\n\u003cp>It's totally understandable why those kinds of experiences are compelling. But things that look to us like simple, straightforward relationships may not be. You know, the classic example is, every time I wash my car, it rains. We know that that is not a reasonable cause-and-effect relationship, because we understand how the weather works. But there were times in history when people believed that your personal actions could influence the weather.\u003c/p>\n\u003cp>Medicine is incredibly complex, and it is very difficult to identify a true response to a treatment simply by watching to see what happens, based only on our personal observations. Because there are so many factors involved in what happens next. And that's the reason why we have research studies that make an effort to control for sources of error. We know that science works better, because our own individual judgment and \u003ca href=\"http://skeptvet.com/Blog/2015/02/dont-believe-your-eyes-or-your-brain/\">observations are not reliable\u003c/a>.\u003c/p>\n\u003cp>\u003cstrong>What feedback do you get from readers?\u003c/strong>\u003c/p>\n\u003cp>With any controversial topic, I get a ton of \u003ca href=\"http://skeptvet.com/Blog/2015/05/skeptvet-gets-hate-mail-update-2015/\">hate mail\u003c/a>. A regular stream of \"How dare you — this worked for me and you're just awful\" or \"You're a tool of the pharmaceutical industry.\" But I also get a lot of people who write, \"Oh, thank God, finally, somebody is willing to ask questions or be critical of these things,\" because it's often so unpopular to do so.\u003c/p>\n\u003cp>\u003cstrong>Do you have pets?\u003c/strong>\u003c/p>\n\u003cp>I have two dogs: Max, a 10-year-old Boston terrier, and Brodie, a 4-year-old mutt from the shelter. And I have a 19-year-old corn snake named Tess. My wife, who is both afraid of snakes and a wonderfully supportive person, bought me a snake when I was in vet school because I wanted to learn more about exotic pets. I don't think she realized that corn snakes can live well into their 20s.\u003c/p>\n\u003cp>\u003cstrong>Have you ever tried a therapy for your pets that didn't have much scientific evidence behind it?\u003c/strong>\u003c/p>\n\u003cp>I previously had some dogs who were older and had arthritis, around when I first started practicing veterinary medicine. I put one of them on glucosamine because more experienced colleagues said it was helpful. I hadn't yet started looking at evidence-based medicine. I did not perceive any change in my dog, and overall, the scientific evidence of meaningful benefit from glucosamine is very weak.\u003c/p>\n\u003cp>[ad floatright]\u003c/p>\n\u003cp>But being a skeptic doesn't mean that I'm saying people should never use these kinds of things. There are definitely circumstances where trying something for which there is very little evidence is totally appropriate. I'm simply saying that pet owners need to be fully informed about the uncertainty and risks and benefits involved.\u003c/p>\n\u003cdiv class=\"fullattribution\">Copyright 2017 NPR. To see more, visit http://www.npr.org/.\u003cimg src=\"https://www.google-analytics.com/__utm.gif?utmac=UA-5828686-4&utmdt=Pets+Deserve+Evidence-Based+Medicine%2C+Too%2C+Says+The+SkeptVet&utme=8(APIKey)9(MDAxOTAwOTE4MDEyMTkxMDAzNjczZDljZA004)\">\u003c/div>\n\n","blocks":[],"excerpt":"Veterinarian Brennen McKenzie writes The SkeptVet, a blog that pushes for evidence-based medicine instead of relying on tradition, anecdotes or pseudoscience in the treatment of cats and dogs.","status":"publish","parent":0,"modified":1504645258,"stats":{"hasAudio":false,"hasVideo":false,"hasChartOrMap":false,"iframeSrcs":[],"hasGoogleForm":false,"hasGallery":false,"hasHearkenModule":false,"hasPolis":false,"paragraphCount":29,"wordCount":1367},"headData":{"title":"Pets Deserve Evidence-Based Medicine, Too, Says The SkeptVet | KQED","description":"Veterinarian Brennen McKenzie writes The SkeptVet, a blog that pushes for evidence-based medicine instead of relying on tradition, anecdotes or pseudoscience in the treatment of cats and dogs.","ogTitle":"","ogDescription":"","ogImgId":"","twTitle":"","twDescription":"","twImgId":"","schema":{"@context":"http://schema.org","@type":"Article","headline":"Pets Deserve Evidence-Based Medicine, Too, Says The SkeptVet","datePublished":"2017-09-06T07:01:45.000Z","dateModified":"2017-09-05T21:00:58.000Z","image":"https://cdn.kqed.org/wp-content/uploads/2020/02/KQED-OG-Image@1x.png"}},"disqusIdentifier":"435189 https://ww2.kqed.org/futureofyou/?p=435189","disqusUrl":"https://ww2.kqed.org/futureofyou/2017/09/06/pets-deserve-evidence-based-medicine-too-says-the-skeptvet/","disqusTitle":"Pets Deserve Evidence-Based Medicine, Too, Says The SkeptVet","nprImageCredit":"katoosha","nprByline":"Ingfei Chen\u003c/br>NPR Shots","nprImageAgency":"iStockphoto/Getty Images","nprStoryId":"547420275","nprApiLink":"http://api.npr.org/query?id=547420275&apiKey=MDAxOTAwOTE4MDEyMTkxMDAzNjczZDljZA004","nprHtmlLink":"http://www.npr.org/sections/health-shots/2017/09/03/547420275/pets-deserve-evidence-based-medicine-too-says-the-skeptvet?ft=nprml&f=547420275","nprRetrievedStory":"1","nprPubDate":"Sun, 03 Sep 2017 07:37:00 -0400","nprStoryDate":"Sun, 03 Sep 2017 06:00:22 -0400","nprLastModifiedDate":"Sun, 03 Sep 2017 07:37:06 -0400","path":"/futureofyou/435189/pets-deserve-evidence-based-medicine-too-says-the-skeptvet","audioTrackLength":null,"parsedContent":[{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003cp>Hunting for good medical advice for your ailing kitty or pup? You'll find no shortage of ardent testimonials and ads for sketchy or unproven treatments on the Web.\u003c/p>\n\u003cp>Silicon Valley veterinarian Brennen McKenzie worries that some of the same pseudoscience that is \u003ca href=\"http://www.npr.org/sections/health-shots/2017/07/17/537711453/seeking-online-medical-advice-googles-top-results-arent-always-on-target\">rampant in human medicine\u003c/a> is leading pet owners astray.\u003c/p>\n\u003cp>McKenzie's blog, \u003ca href=\"http://skeptvet.com/Blog/\">The SkeptVet\u003c/a>, aims to bring a calm voice of evidence-based skepticism in analyzing medical options for dogs and cats. McKenzie works at the Adobe Animal Hospital in Los Altos, Calif., and is a past president of the \u003ca href=\"https://ebvma.org/\">Evidence-Based Veterinary Medicine Association\u003c/a>. Once a researcher who studied monkey behavior, he earned his veterinary medicine degree from the University of Pennsylvania in 2001.\u003c/p>\n\u003cp>The SkeptVet is a labor of love; McKenzie gets no outside funding for it. I recently spoke with him about blogging, pseudoscience and his 19-year-old pet corn snake. The interview has been edited for length and clarity.\u003c/p>\n\u003cp>\u003cstrong>Why does the world need skeptical veterinarians?\u003c/strong>\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"ad","attributes":{"named":{"label":"fullwidth"},"numeric":["fullwidth"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>Pet owners need to know the pros and cons of health care options for their pets to make good decisions. \"Skeptic\" doesn't mean someone who automatically rejects new or unfamiliar ideas. It's someone who refrains from judging a claim until they have examined the evidence dispassionately — someone who gives preference to scientific evidence over personal experience, anecdote, tradition or history.\u003c/p>\n\u003caside class=\"pullquote alignright\">'I think the biggest misconception is that there is a simple, across-the-board, right answer to if and when you should neuter your pet. That's not the case, because biology is too complex for that.'\u003ccite>Brennen McKenzie, Veterinarian and author of The SkeptVet blog\u003c/cite>\u003c/aside>\n\u003cp>That's particularly critical on the Internet, where information about alternative therapies is most often marketing information. Or it's provided by people who obviously believe in these therapies and don't necessarily want to disclose their limitations. Pet owners who have a negative experience with a therapy rarely bother to tell anybody else about it.\u003c/p>\n\u003cp>\u003cstrong>In your writings, you speak out a lot against veterinary pseudoscience. What are some examples?\u003c/strong>\u003c/p>\n\u003cp>Pseudoscience takes the form both of recommending things that are not helpful and discouraging the use of things that are. There are certain therapies that we know are not helpful because there's been adequate research and study showing that. A classic example is \u003ca href=\"http://www.npr.org/sections/health-shots/2016/12/02/504004506/time-for-homeopathic-remedies-to-prove-that-they-work\">homeopathic remedies\u003c/a>, which true believers will argue can cure cancer, autoimmune disease or almost any illness, in both pets and in people.\u003c/p>\n\u003cp>\u003ca href=\"https://nccih.nih.gov/health/homeopathy\">Homeopathy\u003c/a> makes the claim that administering a substance that triggers disease symptoms can have curative powers, if it's diluted in water or alcohol to the point where none of it actually remains. The substance can be nearly anything — from a plant or animal to moonlight or a piece of the Berlin Wall. Homeopathy has never been shown to be useful in good-quality scientific studies.\u003c/p>\n\u003cp>These homeopathic products are available over the counter in most pharmacies despite being useless, because they are generally considered harmless (except, of course, when used as a substitute for effective medical treatment). Any direct harm of homeopathic remedies typically comes from improper production, which leads to biologically significant levels of the original material or to contaminants. That is uncommon, although of course it does occur.\u003c/p>\n\u003cp>On the flip side is pseudoscience that undermines what we know about science-based medicine. Take anti-vaccine activism: Some people claim that \u003ca href=\"http://skeptvet.com/Blog/2014/11/rabies-vaccines-aggression-in-dogs-pure-pseudoscientific-fear-mongering/\">veterinary vaccines\u003c/a> should be avoided because their risks are greater than their benefits and they cause all sorts of horrible diseases. But there's no evidence that vaccines actually do that.\u003c/p>\n\u003cp>\u003cstrong>What about widely used conventional treatments in veterinary medicine? Are there any that you think aren't warranted?\u003c/strong>\u003c/p>\n\u003cp>\u003c/p>\u003cp>\u003c/p>\u003cp>Sure. I mean, the beauty and frustration of science is that it progresses over time and that things that we believe at one point may not turn out to be true later. Or that as we refine our knowledge, we have to give up things that we believe in. There are definitely practices like that in conventional, science-based medicine.\u003c/p>\n\u003cp>One example is annual boosters of core veterinary vaccines for animals. Science has shown for quite a while that yearly boosters for certain specific diseases, such as distemper and parvovirus, are unproductive. It's not clear that it's harmful, but it's certainly not needed. I think that conventional veterinarians have been slow to give that up.\u003c/p>\n\u003cp>\u003cstrong>You've blogged about how there are a lot of misconceptions about the pros and cons of \u003c/strong>\u003ca href=\"http://skeptvet.com/Blog/2013/04/benefits-and-risks-of-neutering-an-evidence-based-approach/\">\u003cstrong>neutering a pet\u003c/strong>\u003c/a>\u003cstrong>. Where do people go wrong there?\u003c/strong>\u003c/p>\n\u003cp>I think the biggest misconception is that there is a simple, across-the-board, right answer to if and when you should neuter your pet. That's not the case, because biology is too complex for that. Broad rules such as \"every dog should be neutered at six months,\" or \"no pet should be neutered at all\" — none of those are justifiable because the answer is, frustratingly, \"It depends.\" It depends on the breed, on the age, on the particular balance of risks and benefits that you're talking about. The reality is that you should have a lengthy, nuanced discussion with your veterinarian about that.\u003c/p>\n\u003cp>\u003cstrong>Lots of pet owners will swear that their animals benefited from an alternative therapy, whether it's turmeric or \u003c/strong>\u003ca href=\"http://www.npr.org/sections/health-shots/2017/07/04/535060331/some-marijuana-derived-treatments-aim-to-soothe-skittish-pets\">\u003cstrong>cannabis-based extracts\u003c/strong>\u003c/a>\u003cstrong>. What's the trouble with relying on these anecdotes?\u003c/strong>\u003c/p>\n\u003cp>It's totally understandable why those kinds of experiences are compelling. But things that look to us like simple, straightforward relationships may not be. You know, the classic example is, every time I wash my car, it rains. We know that that is not a reasonable cause-and-effect relationship, because we understand how the weather works. But there were times in history when people believed that your personal actions could influence the weather.\u003c/p>\n\u003cp>Medicine is incredibly complex, and it is very difficult to identify a true response to a treatment simply by watching to see what happens, based only on our personal observations. Because there are so many factors involved in what happens next. And that's the reason why we have research studies that make an effort to control for sources of error. We know that science works better, because our own individual judgment and \u003ca href=\"http://skeptvet.com/Blog/2015/02/dont-believe-your-eyes-or-your-brain/\">observations are not reliable\u003c/a>.\u003c/p>\n\u003cp>\u003cstrong>What feedback do you get from readers?\u003c/strong>\u003c/p>\n\u003cp>With any controversial topic, I get a ton of \u003ca href=\"http://skeptvet.com/Blog/2015/05/skeptvet-gets-hate-mail-update-2015/\">hate mail\u003c/a>. A regular stream of \"How dare you — this worked for me and you're just awful\" or \"You're a tool of the pharmaceutical industry.\" But I also get a lot of people who write, \"Oh, thank God, finally, somebody is willing to ask questions or be critical of these things,\" because it's often so unpopular to do so.\u003c/p>\n\u003cp>\u003cstrong>Do you have pets?\u003c/strong>\u003c/p>\n\u003cp>I have two dogs: Max, a 10-year-old Boston terrier, and Brodie, a 4-year-old mutt from the shelter. And I have a 19-year-old corn snake named Tess. My wife, who is both afraid of snakes and a wonderfully supportive person, bought me a snake when I was in vet school because I wanted to learn more about exotic pets. I don't think she realized that corn snakes can live well into their 20s.\u003c/p>\n\u003cp>\u003cstrong>Have you ever tried a therapy for your pets that didn't have much scientific evidence behind it?\u003c/strong>\u003c/p>\n\u003cp>I previously had some dogs who were older and had arthritis, around when I first started practicing veterinary medicine. I put one of them on glucosamine because more experienced colleagues said it was helpful. I hadn't yet started looking at evidence-based medicine. I did not perceive any change in my dog, and overall, the scientific evidence of meaningful benefit from glucosamine is very weak.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"ad","attributes":{"named":{"label":"floatright"},"numeric":["floatright"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>But being a skeptic doesn't mean that I'm saying people should never use these kinds of things. There are definitely circumstances where trying something for which there is very little evidence is totally appropriate. I'm simply saying that pet owners need to be fully informed about the uncertainty and risks and benefits involved.\u003c/p>\n\u003cdiv class=\"fullattribution\">Copyright 2017 NPR. To see more, visit http://www.npr.org/.\u003cimg src=\"https://www.google-analytics.com/__utm.gif?utmac=UA-5828686-4&utmdt=Pets+Deserve+Evidence-Based+Medicine%2C+Too%2C+Says+The+SkeptVet&utme=8(APIKey)9(MDAxOTAwOTE4MDEyMTkxMDAzNjczZDljZA004)\">\u003c/div>\n\n\u003c/div>\u003c/p>","attributes":{"named":{},"numeric":[]}}],"link":"/futureofyou/435189/pets-deserve-evidence-based-medicine-too-says-the-skeptvet","authors":["byline_futureofyou_435189"],"categories":["futureofyou_1"],"tags":["futureofyou_972","futureofyou_1275","futureofyou_1192","futureofyou_1147","futureofyou_1351"],"collections":["futureofyou_1097"],"featImg":"futureofyou_435190","label":"futureofyou_1097"},"futureofyou_350496":{"type":"posts","id":"futureofyou_350496","meta":{"index":"posts_1591205157","site":"futureofyou","id":"350496","score":null,"sort":[1489103007000]},"guestAuthors":[],"slug":"premier-hospitals-are-promoting-unproven-alternative-therapies","title":"Premier U.S. Hospitals Are Selling Unproven Alternative Therapies","publishDate":1489103007,"format":"standard","headTitle":"KQED Future of You | KQED Science","labelTerm":{},"content":"\u003cp>They’re among the nation’s premier medical centers, at the leading edge of scientific research.\u003c/p>\n\u003cp>Yet hospitals affiliated with Yale, Duke, Johns Hopkins, and other top medical research centers also aggressively promote alternative therapies with little or no scientific backing. They offer “energy healing” to help treat multiple sclerosis, acupuncture for infertility, and homeopathic bee venom for fibromyalgia. A public forum hosted by the University of Florida’s hospital even promises to explain how herbal therapy can reverse Alzheimer’s. (It can’t.)\u003c/p>\n\u003cp>This embrace of alternative medicine has been building for years. But a STAT examination of 15 academic research centers across the U.S. underscores just how deeply these therapies have become embedded in prestigious hospitals and medical schools.\u003c/p>\n\u003caside class=\"pullquote alignright\">'We've become witch doctors ... [forfeiting] any claim that we had to be a science-based profession.'\u003ccite>Dr. Steven Novella, Yale School of Medicine \u003c/cite>\u003c/aside>\n\u003cp>Some hospitals have built luxurious, spa-like wellness centers to draw patients for spiritual healing, homeopathy and more. And they’re promoting such treatments for a wide array of conditions, including depression, heart disease, cancer, and chronic pain. Duke even markets a pediatric program that suggests on its website that alternative medicine, including “detoxification programs” and “botanical medicines,” can help children with conditions ranging from autism to asthma to ADHD.\u003c/p>\n\u003cp>“We’ve become witch doctors,” said Dr. Steven Novella, a professor of neurology at the Yale School of Medicine and a longtime critic of alternative medicine.\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>STAT’s examination found a booming market for such therapies: The clinic at the University of California, San Francisco, is growing so fast, it’s bursting out of its space.\u003c/p>\n\u003cp>Just in the past year, the teaching hospital connected to the University of Florida began offering cancer patients consultations in homeopathy and traditional Chinese herbal medicine. Thomas Jefferson University in Philadelphia launched an institute whose offerings include \u003ca href=\"https://www.statnews.com/2017/02/23/vitamin-iv-infusion/\" target=\"_blank\">intravenous vitamin and mineral therapies\u003c/a>. And the University of Arizona, a pioneer in the field, received a $1 million gift to boost practitioner training in natural and spiritual healing techniques.\u003c/p>\n\u003cp>Even as they count on these programs to bring in patients and revenue, several hospitals were reluctant to talk to STAT about why they’re lending their distinguished names to unproven therapies.\u003c/p>\n\u003cp>Duke Health declined repeated requests for interviews about its rapidly growing integrative medicine center, which \u003ca href=\"https://www.dukeintegrativemedicine.org/wp-content/uploads/2016/02/primarycare-brochure-web.pdf\" target=\"_blank\">charges patients $1,800 a year\u003c/a> just for a basic membership, with acupuncture and other treatments billed separately.\u003c/p>\n\u003cp>MedStar Georgetown quietly edited its website, citing changes to its clinical offerings, after a reporter asked why it listed the energy healing practice of reiki as a therapy for blood cancer. Cleveland Clinic struggled to find anyone on its staff to defend the hospital’s energy medicine program, ultimately issuing a statement that it’s “responding to the needs of our patients and patient demand.”\u003c/p>\n\u003cp>And the director of an alternative medicine program at another prestigious hospital declined to speak on the record — out of fear, he said, that his remarks would be construed as “fake news” and stir a backlash.\u003c/p>\n\u003cp>The rise of alternative therapies has sparked tension in some hospitals, with doctors openly accusing their peers of peddling snake oil and undermining the credibility of their institutions.\u003c/p>\n\u003cp>By promoting such therapies, Novella said, physicians are forfeiting “any claim that we had to being a science-based profession.”\u003c/p>\n\u003cp>As for patients? They’re “being snookered,” he said.\u003c/p>\n\u003caside class=\"pullquote alignright\">'Yes, as scientists, we want to be rigid. But me, as a physician, I want to find what's best for a patient. Who am I to say that's hogwash?' \u003ccite>Dr. Linda Lee, Johns Hopkins gastroenterologist\u003c/cite>\u003c/aside>\n\u003cp>The counterargument: Modern medicine clearly can’t cure everyone. It fails a great many patients. So why not encourage them to try an ancient Indian remedy or a spiritual healing technique that’s unlikely to cause harm — and may provide some relief, if only from the placebo effect?\u003c/p>\n\u003cp>“Yes, as scientists, we want to be rigid. But me, as a physician, I want to find what’s best for a patient. Who am I to say that’s hogwash?” said Dr. Linda Lee.\u003c/p>\n\u003cp>A gastroenterologist, Lee runs the Johns Hopkins Integrative Medicine and Digestive Center, which offers acupuncture, massage therapy, and reiki — a therapy that the center’s website describes as laying on hands \u003ca href=\"http://www.hopkinsmedicine.org/integrative_medicine_digestive_center/services/reiki.html\" target=\"_blank\">“to transmit Universal Life Energy”\u003c/a> to the patient.\u003c/p>\n\u003cp>Lee and others who promote alternative therapies are careful to say that they can supplement — but can’t replace — conventional treatments. And they make a point of coordinating care with other doctors so that, for instance, patients don’t get prescribed herbal supplements that might interact badly with their chemotherapy.\u003c/p>\n\u003cp>“Here at UF, we do not have alternative medicine. We do not have complementary medicine. We have integrative medicine,” said Dr. Irene Estores, medical director of the integrative medicine program at the University of Florida Shands Hospital in Gainesville, Fla.\u003c/p>\n\u003cp>\u003cstrong>Online Promotions Offer Scant Evidence\u003c/strong>\u003c/p>\n\u003cp>But while those cautions may come through in the clinic, the hospitals also promote alternative medicine online — often, without any nuance.\u003c/p>\n\u003cp>Duke’s Integrative Medicine store, for instance, sells \u003ca href=\"https://shopprovisions.dukestores.duke.edu/index.php?main_page=product_info&cPath=37_1&products_id=196\" target=\"_blank\">“Po Chai Pills”\u003c/a> that are touted on the hospital’s website as a cure for everything from belching to hangovers to headaches. The site explains that taking a pill “harmonizes the stomach, stems counterflow ascent of stomach qi, dispels damp, dispels pathogenic factors, subdues yang, relieves pain.” None of that makes sense in modern biomedical terms.\u003c/p>\n\u003cp>Thomas Jefferson University Hospital’s website touts \u003ca href=\"http://hospitals.jefferson.edu/tests-and-treatments/homeopathic-medicine.html\" target=\"_blank\">homeopathic bee venom\u003c/a> as useful to relieve symptoms for arthritis, nerve pain, and other conditions. The site does tell patients that the biological mechanism for the treatment is “unexplained” but asserts that studies “have been published in medical journals showing homeopathic medicines may provide clinical benefit.”\u003c/p>\n\u003cp>Asked about the therapy, Dr. Daniel Monti, who directs the integrative health center, acknowledged that the data is “largely anecdotal,” and said the hospital offers the treatment only rarely, “when there are few other options.” But those caveats don’t come through on the website.\u003c/p>\n\u003cp>Novella gets alarmed when he sees top-tier hospitals backing therapies with scant evidence behind them. “Patients only want [alternative medicine] because they’re being told they should want it. They see a prestigious hospital is offering it, so they think it’s legitimate,” said Novella.\u003c/p>\n\u003cp>“The perpetuation of these practices is a victory of marketing over truth,” said Steven Salzberg, a biomedical engineer at Johns Hopkins who lectures in the medical school. If a hospital is “offering treatment that’s based on fantasy, it undermines the credibility of the institution.”\u003c/p>\n\u003cp>The debate burst into the public view earlier this year when the medical director of the Cleveland Clinic’s Wellness Institute — which markets a variety of alternative therapies — \u003ca href=\"https://www.statnews.com/2017/01/07/anti-vaccine-claims-cleveland-clinic/\" target=\"_blank\">published an article\u003c/a> raising discredited theories linking vaccines to autism.\u003c/p>\n\u003cp>Cleveland Clinic’s chief executive, Dr. Toby Cosgrove, disavowed the article. And the clinic told STAT last week that it will take down its online wellness store and stop selling homeopathy kits.\u003c/p>\n\u003cp>But Cosgrove has stood up for the general principle of offering alternative treatments.\u003c/p>\n\u003cp>“The old way of combating chronic disease hasn’t worked,” Cosgrove wrote in a column posted on the hospital’s website. “… We have heard from our patients that they want more than conventional medicine can offer.”\u003c/p>\n\u003cfigure id=\"attachment_351821\" class=\"wp-caption aligncenter\" style=\"max-width: 800px\">\u003cimg src=\"https://ww2.kqed.org/futureofyou/wp-content/uploads/sites/13/2017/03/bee-venom-800x530.jpg\">\u003cfigcaption class=\"wp-caption-text\">Thomas Jefferson University Hospital’s website touts homeopathic bee venom as useful to relieve symptoms for arthritis, nerve pain, and other conditions. The site tells patients that the biological mechanism for the treatment is “unexplained.” \u003ccite>(erierika/iStock)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>\u003cstrong>A Booming Market for ‘Natural’ Therapies\u003c/strong>\u003c/p>\n\u003cp>There’s no question that patients want alternative medicine. It’s a $37 billion-a-year business.\u003c/p>\n\u003cp>The typical American adult spent about $800 out of pocket in 2012 on dietary supplements and visits to alternative providers, such as naturopaths and acupuncturists, according to the federal Centers for Disease Control and Prevention.\u003c/p>\n\u003cp>Hospitals have taken note. A national consortium to promote integrative health now counts more than 70 academic centers and health systems as members, up from eight in 1999. Each year, four or five new programs join, said Dr. Leslie Mendoza Temple, the chair of the consortium’s policy working group.\u003c/p>\n\u003cp>In most cases, insurers won’t cover alternative therapies — there’s simply not enough evidence that they actually work — so patients pay out of pocket: $85 for acupuncture, $100 for reiki, $38 for pills made from thyme and oregano oils that promise to “harmonize digestive and respiratory function.”\u003c/p>\n\u003caside class=\"pullquote alignright\">'The people running the hospitals are doctors, but they also have MBAs. They talk of patients as customers. ... Your job is to sell them what they want.' \u003ccite>Arthur Caplan, New York University bioethicist\u003c/cite>\u003c/aside>\n\u003cp>To be sure, not all such integrative medicine clinics are big profit centers. Many are funded by philanthropists, and some hospitals say their programs operate at a loss — but are nonetheless essential to woo patients in a highly competitive marketplace. If they failed to offer “natural” therapies, some hospital executives fear they would lose a chance to attract patients who need more lucrative care, such as orthopedic surgeries or cancer treatments.\u003c/p>\n\u003cp>The integrative medicine center at Thomas Jefferson, for instance, is part of an “enterprise strategy for growth and development,” Monti said.\u003c/p>\n\u003cp>“The people running the hospitals are doctors, but they also have MBAs. They talk of patients as customers. Customers have demands. Your job is to sell them what they want,” said Arthur Caplan, a bioethicist at New York University’s medical school. Too often, he said, the attitude is, “We’re damn well going to do it if the guys down the street are doing it.”\u003c/p>\n\u003cp>While most hospitals declined to give specific revenue figures, STAT found indications of rapid growth.\u003c/p>\n\u003cp>“We’re literally bursting. We have to convert office space to clinic exam rooms,” said Shelley Adler, who runs the Osher Center for Integrative Medicine at the University of California, San Francisco. It offers a wide range of services, including Chinese herbal medicine, massage therapy, and Ayurveda, an ancient healing system from India based on the belief that health results from a balance between the mind, body, and spirit.\u003c/p>\n\u003cp>The center is on pace to get more than 10,300 patient visits this fiscal year, up 37 percent from 2012. It’s expanding its clinical staff by a third.\u003c/p>\n\u003cp>Duke University’s integrative medicine clinic, a stunning space with arching wood ceilings and an indoor garden, has seen strong growth: Total visits jumped 50 percent in 2015, to more than 14,000, Dr. Adam Perlman, the executive director, told IntegrativePractitioner.com. (He declined to talk to STAT.)\u003c/p>\n\u003cp>The center’s membership count also jumped, up 25 percent to 885, Perlman said. If all members paid the list price, that would bring in more than $1 million a year just for primary care.\u003c/p>\n\u003cp>At the University of Pittsburgh’s Center for Integrative Medicine, meanwhile, “our volume pretty much has increased steadily, even when we’ve had recessions and financial downturns,” said Dr. Ronald Glick, the medical director. The center now treats about 8,000 patients a year.\u003c/p>\n\u003cp>Many hospitals have also expanded into more general “wellness” offerings, with classes in healthy cooking, tai chi, meditation, and art therapy. UCSF offers a $375 class on “cultivating emotional balance” (and a free class on “laughter yoga”). Mayo Clinic sells a $2,900 “signature experience,” which includes consultations with a wellness coach.\u003c/p>\n\u003cp>And the Benson-Henry Institute for Mind Body Medicine at Massachusetts General Hospital offers specialized stress management services to help patients deal with conditions including cancer, infertility, and menopause. John Henry, the owner of STAT, has contributed funding to the Benson-Henry Institute.\u003c/p>\n\u003cp>Wellness programs — which are designed to ease stress and encourage healthy behaviors — are seen by many clinicians and hospitals as key to slowing America’s epidemic of chronic disease. They don’t tend to draw sharp criticism, except for their cost.\u003c/p>\n\u003cp>It’s the alternative therapies promoted as a way to treat disease that raise eyebrows.\u003c/p>\n\u003cp>\u003cstrong>‘Energy Healing’ Takes Root\u003c/strong>\u003c/p>\n\u003cp>Despite their deep wells of medical expertise, many top hospitals are offering to help treat serious medical problems with reiki — a practice based on the belief that lightly touching patients can unleash a cosmic energy flow that will heal them naturally.\u003c/p>\n\u003cp>STAT found that it is widely used by academic medical centers, including Johns Hopkins, Yale, the University of Pennsylvania, and Spaulding Rehabilitation Hospital, part of Partners HealthCare in Boston.\u003c/p>\n\u003cp>So, where’s the evidence supporting it?\u003c/p>\n\u003caside class=\"pullquote alignright\">'If it doesn't work, I don't know that you've lost anything. If it does, you do get to a better place.' \u003ccite>Dr. Richard Lang, Cleveland Clinic\u003c/cite>\u003c/aside>\n\u003cp>There is none, according to a division of the National Institutes of Health that funds research into alternative medicines. It says the practice has not been shown to be useful for “any health-related purpose” — and adds that there is no scientific evidence that the “natural healing energy” it’s based on even exists.\u003c/p>\n\u003cp>Asked about the Cleveland Clinic’s promotion of reiki, Dr. Richard Lang, the recently named interim director of the clinic’s Wellness Institute, said he hadn’t had a chance to think about it. “I don’t know that I could give you a plus or minus on that,” he said. Lang served as a vice chair of the Wellness Institute for nearly a decade before taking the top post.\u003c/p>\n\u003cp>Pressed for a more substantive answer, the clinic sent a statement saying it offers energy medicine as a complementary therapy, not as a replacement solution. But its website only briefly alludes to a patient’s broader “care team” in describing a “full range of emotional and physical issues” that can be treated with energy therapies, including autoimmune diseases, migraines, hormonal imbalances, and “cancer treatment support and recovery.”\u003c/p>\n\u003cp>Academic medical centers often boast that they’re more rigorous in evaluating alternative therapies — and weeding out scams — than a for-profit wellness center might be.\u003c/p>\n\u003cp>“The important thing about practicing in an academic center is that we must hold ourselves to certain standards,” said Estores, the medical director at the University of Florida’s integrative medicine clinic.\u003c/p>\n\u003cp>At the University of Pittsburgh, Glick echoed that sentiment: “We’re an academic institution … [so] we’re offering services that have greater evidence basis [and] scientific explanation.”\u003c/p>\n\u003cp>But that evidence isn’t always rigorous.\u003c/p>\n\u003cp>The University of Florida, for instance, is using Facebook to advertise an herbal medicine workshop for providers and the public that promises to answer questions including, “How can we stabilize or reverse Alzheimer’s disease?”\u003c/p>\n\u003cp>Asked about the evidence for that statement, Susan Marynowski, the herbalist presenting the workshop, cited several papers and a book chapter that she said showed herbs, in conjunction with lifestyle adjustments, could reverse Alzheimer’s-associated memory loss. However, at least two of those papers were small collections of case studies published in a journal with a reputation for less-than-rigorous review. (Marynowski said she knew the studies’ size and design limited the strength of their conclusions, but that she was not aware of the journal’s reputation.)\u003c/p>\n\u003cp>At Pittsburgh, the integrative medical center does take care to note on its website that alternative therapies “generally have not been subjected to the same level of research as standard medical approaches.”\u003c/p>\n\u003cp>But the site then goes on to promote dozens of treatments for everything from ADHD to whiplash, saying they have “appeared to be beneficial in this and other complementary medicine clinics.” (Glick noted that the body of research had grown since he wrote the caveat on the website in 2003.)\u003c/p>\n\u003cp>\u003cstrong>‘It’s not Black and White’\u003c/strong>\u003c/p>\n\u003cp>Perhaps the most prevalent alternative treatment STAT found on offer is acupuncture. It’s promoted for more than a dozen conditions, including high blood pressure, sinus problems, infertility, migraines, and digestive irregularities.\u003c/p>\n\u003cp>A 3,000-year-old Chinese therapy, acupuncture is based on the belief that by stimulating certain points on the body, most often with needles, practitioners can unlock a natural healing energy that flows through the body’s “meridians.” Research suggests it helps with certain pain conditions and might help prevent migraine headaches — but it also suggests that the placebo effect may play an important role.\u003c/p>\n\u003cp>Its value in treating other conditions is uncertain, according to the NIH’s center on integrative medicine.\u003c/p>\n\u003cp>Several major insurers, including Aetna, Anthem, and regional Blue Cross Blue Shield affiliates, cover acupuncture as a treatment for chronic pain and nausea. But the Centers for Medicare and Medicaid Services won’t pay for acupuncture, dismissing the scientific evidence as insufficient.\u003c/p>\n\u003cp>Still, it’s important for physicians to keep an open mind, said Lang, the interim director of the Cleveland Clinic Wellness Institute.\u003c/p>\n\u003cp>He said, for example, that he used to avoid referring patients for acupuncture, until he saw the benefit it provided to some of them. “I have seen it work in some chronic pain situations,” said Lang. “It can be very helpful. If it doesn’t work, I don’t know that you’ve lost anything. If it does, you do get to a better place.”\u003c/p>\n\u003cp>And while the evidence of its efficacy is not ironclad, neither is the evidence for various pharmaceutical therapies that are routinely provided by hospitals and covered by insurance. Some of those solutions, such as opioids to treat pain, have resulted in addiction and harm to patients.\u003c/p>\n\u003cp>Advocates of alternative medicine say it’s difficult to test some alternative therapies through rigorous clinical trials, primarily because treatment techniques vary from patient to patient. (The federal government does, however, spend roughly $120 million a year to fund research through the NIH National Center for Complementary and Integrative Health.)\u003c/p>\n\u003cp>They note, too, that traditional doctors sometimes stray from proven treatments, for instance when they prescribe medicines off-label for conditions the drugs have not been approved to treat.\u003c/p>\n\u003cp>“We do use things that aren’t necessarily 100 percent evidence-based, but I would argue that’s also true within all of medicine,” said Dr. Jill Schneiderhan, co-director of the University of Michigan’s integrative family medicine program. “I feel like it’s not black and white.”\u003c/p>\n\u003cp>[ad floatright]\u003c/p>\n\u003cp>\u003cem>\u003cspan style=\"font-weight: 400\">This \u003ca href=\"https://www.statnews.com/2017/03/07/alternative-medicine-hospitals-promote/\" target=\"_blank\">story\u003c/a> was originally published by STAT, an online publication of Boston Globe Media that covers health, medicine, and scientific discovery. \u003c/span>\u003c/em>\u003c/p>\n\n","blocks":[],"excerpt":"Some of the country's top hospitals are promoting dubious therapies and products like reiki and homeopathic bee venom.","status":"publish","parent":0,"modified":1489106464,"stats":{"hasAudio":false,"hasVideo":false,"hasChartOrMap":false,"iframeSrcs":[],"hasGoogleForm":false,"hasGallery":false,"hasHearkenModule":false,"hasPolis":false,"paragraphCount":77,"wordCount":3238},"headData":{"title":"Premier U.S. Hospitals Are Selling Unproven Alternative Therapies | KQED","description":"Some of the country's top hospitals are promoting dubious therapies and products like reiki and homeopathic bee venom.","ogTitle":"","ogDescription":"","ogImgId":"","twTitle":"","twDescription":"","twImgId":"","schema":{"@context":"http://schema.org","@type":"Article","headline":"Premier U.S. Hospitals Are Selling Unproven Alternative Therapies","datePublished":"2017-03-09T23:43:27.000Z","dateModified":"2017-03-10T00:41:04.000Z","image":"https://cdn.kqed.org/wp-content/uploads/2020/02/KQED-OG-Image@1x.png"}},"disqusIdentifier":"350496 https://ww2.kqed.org/futureofyou/?p=350496","disqusUrl":"https://ww2.kqed.org/futureofyou/2017/03/09/premier-hospitals-are-promoting-unproven-alternative-therapies/","disqusTitle":"Premier U.S. Hospitals Are Selling Unproven Alternative Therapies","source":"KQED Future of You","nprByline":"Casey Ross, Max Blau and Kate Sheridan\u003cbr />\u003ca href=\"https://www.statnews.com/\">STAT\u003c/a>","path":"/futureofyou/350496/premier-hospitals-are-promoting-unproven-alternative-therapies","audioTrackLength":null,"parsedContent":[{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003cp>They’re among the nation’s premier medical centers, at the leading edge of scientific research.\u003c/p>\n\u003cp>Yet hospitals affiliated with Yale, Duke, Johns Hopkins, and other top medical research centers also aggressively promote alternative therapies with little or no scientific backing. They offer “energy healing” to help treat multiple sclerosis, acupuncture for infertility, and homeopathic bee venom for fibromyalgia. A public forum hosted by the University of Florida’s hospital even promises to explain how herbal therapy can reverse Alzheimer’s. (It can’t.)\u003c/p>\n\u003cp>This embrace of alternative medicine has been building for years. But a STAT examination of 15 academic research centers across the U.S. underscores just how deeply these therapies have become embedded in prestigious hospitals and medical schools.\u003c/p>\n\u003caside class=\"pullquote alignright\">'We've become witch doctors ... [forfeiting] any claim that we had to be a science-based profession.'\u003ccite>Dr. Steven Novella, Yale School of Medicine \u003c/cite>\u003c/aside>\n\u003cp>Some hospitals have built luxurious, spa-like wellness centers to draw patients for spiritual healing, homeopathy and more. And they’re promoting such treatments for a wide array of conditions, including depression, heart disease, cancer, and chronic pain. Duke even markets a pediatric program that suggests on its website that alternative medicine, including “detoxification programs” and “botanical medicines,” can help children with conditions ranging from autism to asthma to ADHD.\u003c/p>\n\u003cp>“We’ve become witch doctors,” said Dr. Steven Novella, a professor of neurology at the Yale School of Medicine and a longtime critic of alternative medicine.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"ad","attributes":{"named":{"label":"fullwidth"},"numeric":["fullwidth"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>STAT’s examination found a booming market for such therapies: The clinic at the University of California, San Francisco, is growing so fast, it’s bursting out of its space.\u003c/p>\n\u003cp>Just in the past year, the teaching hospital connected to the University of Florida began offering cancer patients consultations in homeopathy and traditional Chinese herbal medicine. Thomas Jefferson University in Philadelphia launched an institute whose offerings include \u003ca href=\"https://www.statnews.com/2017/02/23/vitamin-iv-infusion/\" target=\"_blank\">intravenous vitamin and mineral therapies\u003c/a>. And the University of Arizona, a pioneer in the field, received a $1 million gift to boost practitioner training in natural and spiritual healing techniques.\u003c/p>\n\u003cp>Even as they count on these programs to bring in patients and revenue, several hospitals were reluctant to talk to STAT about why they’re lending their distinguished names to unproven therapies.\u003c/p>\n\u003cp>Duke Health declined repeated requests for interviews about its rapidly growing integrative medicine center, which \u003ca href=\"https://www.dukeintegrativemedicine.org/wp-content/uploads/2016/02/primarycare-brochure-web.pdf\" target=\"_blank\">charges patients $1,800 a year\u003c/a> just for a basic membership, with acupuncture and other treatments billed separately.\u003c/p>\n\u003cp>MedStar Georgetown quietly edited its website, citing changes to its clinical offerings, after a reporter asked why it listed the energy healing practice of reiki as a therapy for blood cancer. Cleveland Clinic struggled to find anyone on its staff to defend the hospital’s energy medicine program, ultimately issuing a statement that it’s “responding to the needs of our patients and patient demand.”\u003c/p>\n\u003cp>And the director of an alternative medicine program at another prestigious hospital declined to speak on the record — out of fear, he said, that his remarks would be construed as “fake news” and stir a backlash.\u003c/p>\n\u003cp>The rise of alternative therapies has sparked tension in some hospitals, with doctors openly accusing their peers of peddling snake oil and undermining the credibility of their institutions.\u003c/p>\n\u003cp>By promoting such therapies, Novella said, physicians are forfeiting “any claim that we had to being a science-based profession.”\u003c/p>\n\u003cp>As for patients? They’re “being snookered,” he said.\u003c/p>\n\u003caside class=\"pullquote alignright\">'Yes, as scientists, we want to be rigid. But me, as a physician, I want to find what's best for a patient. Who am I to say that's hogwash?' \u003ccite>Dr. Linda Lee, Johns Hopkins gastroenterologist\u003c/cite>\u003c/aside>\n\u003cp>The counterargument: Modern medicine clearly can’t cure everyone. It fails a great many patients. So why not encourage them to try an ancient Indian remedy or a spiritual healing technique that’s unlikely to cause harm — and may provide some relief, if only from the placebo effect?\u003c/p>\n\u003cp>“Yes, as scientists, we want to be rigid. But me, as a physician, I want to find what’s best for a patient. Who am I to say that’s hogwash?” said Dr. Linda Lee.\u003c/p>\n\u003cp>A gastroenterologist, Lee runs the Johns Hopkins Integrative Medicine and Digestive Center, which offers acupuncture, massage therapy, and reiki — a therapy that the center’s website describes as laying on hands \u003ca href=\"http://www.hopkinsmedicine.org/integrative_medicine_digestive_center/services/reiki.html\" target=\"_blank\">“to transmit Universal Life Energy”\u003c/a> to the patient.\u003c/p>\n\u003cp>Lee and others who promote alternative therapies are careful to say that they can supplement — but can’t replace — conventional treatments. And they make a point of coordinating care with other doctors so that, for instance, patients don’t get prescribed herbal supplements that might interact badly with their chemotherapy.\u003c/p>\n\u003cp>“Here at UF, we do not have alternative medicine. We do not have complementary medicine. We have integrative medicine,” said Dr. Irene Estores, medical director of the integrative medicine program at the University of Florida Shands Hospital in Gainesville, Fla.\u003c/p>\n\u003cp>\u003cstrong>Online Promotions Offer Scant Evidence\u003c/strong>\u003c/p>\n\u003cp>But while those cautions may come through in the clinic, the hospitals also promote alternative medicine online — often, without any nuance.\u003c/p>\n\u003cp>Duke’s Integrative Medicine store, for instance, sells \u003ca href=\"https://shopprovisions.dukestores.duke.edu/index.php?main_page=product_info&cPath=37_1&products_id=196\" target=\"_blank\">“Po Chai Pills”\u003c/a> that are touted on the hospital’s website as a cure for everything from belching to hangovers to headaches. The site explains that taking a pill “harmonizes the stomach, stems counterflow ascent of stomach qi, dispels damp, dispels pathogenic factors, subdues yang, relieves pain.” None of that makes sense in modern biomedical terms.\u003c/p>\n\u003cp>Thomas Jefferson University Hospital’s website touts \u003ca href=\"http://hospitals.jefferson.edu/tests-and-treatments/homeopathic-medicine.html\" target=\"_blank\">homeopathic bee venom\u003c/a> as useful to relieve symptoms for arthritis, nerve pain, and other conditions. The site does tell patients that the biological mechanism for the treatment is “unexplained” but asserts that studies “have been published in medical journals showing homeopathic medicines may provide clinical benefit.”\u003c/p>\n\u003cp>Asked about the therapy, Dr. Daniel Monti, who directs the integrative health center, acknowledged that the data is “largely anecdotal,” and said the hospital offers the treatment only rarely, “when there are few other options.” But those caveats don’t come through on the website.\u003c/p>\n\u003cp>Novella gets alarmed when he sees top-tier hospitals backing therapies with scant evidence behind them. “Patients only want [alternative medicine] because they’re being told they should want it. They see a prestigious hospital is offering it, so they think it’s legitimate,” said Novella.\u003c/p>\n\u003cp>“The perpetuation of these practices is a victory of marketing over truth,” said Steven Salzberg, a biomedical engineer at Johns Hopkins who lectures in the medical school. If a hospital is “offering treatment that’s based on fantasy, it undermines the credibility of the institution.”\u003c/p>\n\u003cp>The debate burst into the public view earlier this year when the medical director of the Cleveland Clinic’s Wellness Institute — which markets a variety of alternative therapies — \u003ca href=\"https://www.statnews.com/2017/01/07/anti-vaccine-claims-cleveland-clinic/\" target=\"_blank\">published an article\u003c/a> raising discredited theories linking vaccines to autism.\u003c/p>\n\u003cp>Cleveland Clinic’s chief executive, Dr. Toby Cosgrove, disavowed the article. And the clinic told STAT last week that it will take down its online wellness store and stop selling homeopathy kits.\u003c/p>\n\u003cp>But Cosgrove has stood up for the general principle of offering alternative treatments.\u003c/p>\n\u003cp>“The old way of combating chronic disease hasn’t worked,” Cosgrove wrote in a column posted on the hospital’s website. “… We have heard from our patients that they want more than conventional medicine can offer.”\u003c/p>\n\u003cfigure id=\"attachment_351821\" class=\"wp-caption aligncenter\" style=\"max-width: 800px\">\u003cimg src=\"https://ww2.kqed.org/futureofyou/wp-content/uploads/sites/13/2017/03/bee-venom-800x530.jpg\">\u003cfigcaption class=\"wp-caption-text\">Thomas Jefferson University Hospital’s website touts homeopathic bee venom as useful to relieve symptoms for arthritis, nerve pain, and other conditions. The site tells patients that the biological mechanism for the treatment is “unexplained.” \u003ccite>(erierika/iStock)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>\u003cstrong>A Booming Market for ‘Natural’ Therapies\u003c/strong>\u003c/p>\n\u003cp>There’s no question that patients want alternative medicine. It’s a $37 billion-a-year business.\u003c/p>\n\u003cp>The typical American adult spent about $800 out of pocket in 2012 on dietary supplements and visits to alternative providers, such as naturopaths and acupuncturists, according to the federal Centers for Disease Control and Prevention.\u003c/p>\n\u003cp>Hospitals have taken note. A national consortium to promote integrative health now counts more than 70 academic centers and health systems as members, up from eight in 1999. Each year, four or five new programs join, said Dr. Leslie Mendoza Temple, the chair of the consortium’s policy working group.\u003c/p>\n\u003cp>In most cases, insurers won’t cover alternative therapies — there’s simply not enough evidence that they actually work — so patients pay out of pocket: $85 for acupuncture, $100 for reiki, $38 for pills made from thyme and oregano oils that promise to “harmonize digestive and respiratory function.”\u003c/p>\n\u003caside class=\"pullquote alignright\">'The people running the hospitals are doctors, but they also have MBAs. They talk of patients as customers. ... Your job is to sell them what they want.' \u003ccite>Arthur Caplan, New York University bioethicist\u003c/cite>\u003c/aside>\n\u003cp>To be sure, not all such integrative medicine clinics are big profit centers. Many are funded by philanthropists, and some hospitals say their programs operate at a loss — but are nonetheless essential to woo patients in a highly competitive marketplace. If they failed to offer “natural” therapies, some hospital executives fear they would lose a chance to attract patients who need more lucrative care, such as orthopedic surgeries or cancer treatments.\u003c/p>\n\u003cp>The integrative medicine center at Thomas Jefferson, for instance, is part of an “enterprise strategy for growth and development,” Monti said.\u003c/p>\n\u003cp>“The people running the hospitals are doctors, but they also have MBAs. They talk of patients as customers. Customers have demands. Your job is to sell them what they want,” said Arthur Caplan, a bioethicist at New York University’s medical school. Too often, he said, the attitude is, “We’re damn well going to do it if the guys down the street are doing it.”\u003c/p>\n\u003cp>While most hospitals declined to give specific revenue figures, STAT found indications of rapid growth.\u003c/p>\n\u003cp>“We’re literally bursting. We have to convert office space to clinic exam rooms,” said Shelley Adler, who runs the Osher Center for Integrative Medicine at the University of California, San Francisco. It offers a wide range of services, including Chinese herbal medicine, massage therapy, and Ayurveda, an ancient healing system from India based on the belief that health results from a balance between the mind, body, and spirit.\u003c/p>\n\u003cp>The center is on pace to get more than 10,300 patient visits this fiscal year, up 37 percent from 2012. It’s expanding its clinical staff by a third.\u003c/p>\n\u003cp>Duke University’s integrative medicine clinic, a stunning space with arching wood ceilings and an indoor garden, has seen strong growth: Total visits jumped 50 percent in 2015, to more than 14,000, Dr. Adam Perlman, the executive director, told IntegrativePractitioner.com. (He declined to talk to STAT.)\u003c/p>\n\u003cp>The center’s membership count also jumped, up 25 percent to 885, Perlman said. If all members paid the list price, that would bring in more than $1 million a year just for primary care.\u003c/p>\n\u003cp>At the University of Pittsburgh’s Center for Integrative Medicine, meanwhile, “our volume pretty much has increased steadily, even when we’ve had recessions and financial downturns,” said Dr. Ronald Glick, the medical director. The center now treats about 8,000 patients a year.\u003c/p>\n\u003cp>Many hospitals have also expanded into more general “wellness” offerings, with classes in healthy cooking, tai chi, meditation, and art therapy. UCSF offers a $375 class on “cultivating emotional balance” (and a free class on “laughter yoga”). Mayo Clinic sells a $2,900 “signature experience,” which includes consultations with a wellness coach.\u003c/p>\n\u003cp>And the Benson-Henry Institute for Mind Body Medicine at Massachusetts General Hospital offers specialized stress management services to help patients deal with conditions including cancer, infertility, and menopause. John Henry, the owner of STAT, has contributed funding to the Benson-Henry Institute.\u003c/p>\n\u003cp>Wellness programs — which are designed to ease stress and encourage healthy behaviors — are seen by many clinicians and hospitals as key to slowing America’s epidemic of chronic disease. They don’t tend to draw sharp criticism, except for their cost.\u003c/p>\n\u003cp>It’s the alternative therapies promoted as a way to treat disease that raise eyebrows.\u003c/p>\n\u003cp>\u003cstrong>‘Energy Healing’ Takes Root\u003c/strong>\u003c/p>\n\u003cp>Despite their deep wells of medical expertise, many top hospitals are offering to help treat serious medical problems with reiki — a practice based on the belief that lightly touching patients can unleash a cosmic energy flow that will heal them naturally.\u003c/p>\n\u003cp>STAT found that it is widely used by academic medical centers, including Johns Hopkins, Yale, the University of Pennsylvania, and Spaulding Rehabilitation Hospital, part of Partners HealthCare in Boston.\u003c/p>\n\u003cp>So, where’s the evidence supporting it?\u003c/p>\n\u003caside class=\"pullquote alignright\">'If it doesn't work, I don't know that you've lost anything. If it does, you do get to a better place.' \u003ccite>Dr. Richard Lang, Cleveland Clinic\u003c/cite>\u003c/aside>\n\u003cp>There is none, according to a division of the National Institutes of Health that funds research into alternative medicines. It says the practice has not been shown to be useful for “any health-related purpose” — and adds that there is no scientific evidence that the “natural healing energy” it’s based on even exists.\u003c/p>\n\u003cp>Asked about the Cleveland Clinic’s promotion of reiki, Dr. Richard Lang, the recently named interim director of the clinic’s Wellness Institute, said he hadn’t had a chance to think about it. “I don’t know that I could give you a plus or minus on that,” he said. Lang served as a vice chair of the Wellness Institute for nearly a decade before taking the top post.\u003c/p>\n\u003cp>Pressed for a more substantive answer, the clinic sent a statement saying it offers energy medicine as a complementary therapy, not as a replacement solution. But its website only briefly alludes to a patient’s broader “care team” in describing a “full range of emotional and physical issues” that can be treated with energy therapies, including autoimmune diseases, migraines, hormonal imbalances, and “cancer treatment support and recovery.”\u003c/p>\n\u003cp>Academic medical centers often boast that they’re more rigorous in evaluating alternative therapies — and weeding out scams — than a for-profit wellness center might be.\u003c/p>\n\u003cp>“The important thing about practicing in an academic center is that we must hold ourselves to certain standards,” said Estores, the medical director at the University of Florida’s integrative medicine clinic.\u003c/p>\n\u003cp>At the University of Pittsburgh, Glick echoed that sentiment: “We’re an academic institution … [so] we’re offering services that have greater evidence basis [and] scientific explanation.”\u003c/p>\n\u003cp>But that evidence isn’t always rigorous.\u003c/p>\n\u003cp>The University of Florida, for instance, is using Facebook to advertise an herbal medicine workshop for providers and the public that promises to answer questions including, “How can we stabilize or reverse Alzheimer’s disease?”\u003c/p>\n\u003cp>Asked about the evidence for that statement, Susan Marynowski, the herbalist presenting the workshop, cited several papers and a book chapter that she said showed herbs, in conjunction with lifestyle adjustments, could reverse Alzheimer’s-associated memory loss. However, at least two of those papers were small collections of case studies published in a journal with a reputation for less-than-rigorous review. (Marynowski said she knew the studies’ size and design limited the strength of their conclusions, but that she was not aware of the journal’s reputation.)\u003c/p>\n\u003cp>At Pittsburgh, the integrative medical center does take care to note on its website that alternative therapies “generally have not been subjected to the same level of research as standard medical approaches.”\u003c/p>\n\u003cp>But the site then goes on to promote dozens of treatments for everything from ADHD to whiplash, saying they have “appeared to be beneficial in this and other complementary medicine clinics.” (Glick noted that the body of research had grown since he wrote the caveat on the website in 2003.)\u003c/p>\n\u003cp>\u003cstrong>‘It’s not Black and White’\u003c/strong>\u003c/p>\n\u003cp>Perhaps the most prevalent alternative treatment STAT found on offer is acupuncture. It’s promoted for more than a dozen conditions, including high blood pressure, sinus problems, infertility, migraines, and digestive irregularities.\u003c/p>\n\u003cp>A 3,000-year-old Chinese therapy, acupuncture is based on the belief that by stimulating certain points on the body, most often with needles, practitioners can unlock a natural healing energy that flows through the body’s “meridians.” Research suggests it helps with certain pain conditions and might help prevent migraine headaches — but it also suggests that the placebo effect may play an important role.\u003c/p>\n\u003cp>Its value in treating other conditions is uncertain, according to the NIH’s center on integrative medicine.\u003c/p>\n\u003cp>Several major insurers, including Aetna, Anthem, and regional Blue Cross Blue Shield affiliates, cover acupuncture as a treatment for chronic pain and nausea. But the Centers for Medicare and Medicaid Services won’t pay for acupuncture, dismissing the scientific evidence as insufficient.\u003c/p>\n\u003cp>Still, it’s important for physicians to keep an open mind, said Lang, the interim director of the Cleveland Clinic Wellness Institute.\u003c/p>\n\u003cp>He said, for example, that he used to avoid referring patients for acupuncture, until he saw the benefit it provided to some of them. “I have seen it work in some chronic pain situations,” said Lang. “It can be very helpful. If it doesn’t work, I don’t know that you’ve lost anything. If it does, you do get to a better place.”\u003c/p>\n\u003cp>And while the evidence of its efficacy is not ironclad, neither is the evidence for various pharmaceutical therapies that are routinely provided by hospitals and covered by insurance. Some of those solutions, such as opioids to treat pain, have resulted in addiction and harm to patients.\u003c/p>\n\u003cp>Advocates of alternative medicine say it’s difficult to test some alternative therapies through rigorous clinical trials, primarily because treatment techniques vary from patient to patient. (The federal government does, however, spend roughly $120 million a year to fund research through the NIH National Center for Complementary and Integrative Health.)\u003c/p>\n\u003cp>They note, too, that traditional doctors sometimes stray from proven treatments, for instance when they prescribe medicines off-label for conditions the drugs have not been approved to treat.\u003c/p>\n\u003cp>“We do use things that aren’t necessarily 100 percent evidence-based, but I would argue that’s also true within all of medicine,” said Dr. Jill Schneiderhan, co-director of the University of Michigan’s integrative family medicine program. “I feel like it’s not black and white.”\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"ad","attributes":{"named":{"label":"floatright"},"numeric":["floatright"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>\u003cem>\u003cspan style=\"font-weight: 400\">This \u003ca href=\"https://www.statnews.com/2017/03/07/alternative-medicine-hospitals-promote/\" target=\"_blank\">story\u003c/a> was originally published by STAT, an online publication of Boston Globe Media that covers health, medicine, and scientific discovery. \u003c/span>\u003c/em>\u003c/p>\n\n\u003c/div>\u003c/p>","attributes":{"named":{},"numeric":[]}}],"link":"/futureofyou/350496/premier-hospitals-are-promoting-unproven-alternative-therapies","authors":["byline_futureofyou_350496"],"categories":["futureofyou_452","futureofyou_1062","futureofyou_1","futureofyou_73"],"tags":["futureofyou_1203","futureofyou_972","futureofyou_177","futureofyou_1202"],"featImg":"futureofyou_351128","label":"source_futureofyou_350496"},"futureofyou_338935":{"type":"posts","id":"futureofyou_338935","meta":{"index":"posts_1591205157","site":"futureofyou","id":"338935","score":null,"sort":[1487961866000]},"guestAuthors":[],"slug":"hundreds-of-babies-reported-harmed-by-homeopathic-product","title":"Hundreds of Babies Reported Harmed by Homeopathic Product","publishDate":1487961866,"format":"aside","headTitle":"KQED Future of You | KQED Science","labelTerm":{},"content":"\u003cp>Case 7682299: Aug. 1, 2010. A mother gives her toddler three homeopathic pills to relieve her teething pain. Within minutes, the baby stops breathing.\u003c/p>\n\u003cp>“My daughter had a seizure, lost consciousness, and stopped breathing about 30 minutes after I gave her three Hyland’s Teething Tablets,” the mother later told the Food and Drug Administration. “She had to receive mouth-to-mouth CPR to resume breathing and was brought to the hospital.”\u003c/p>\n\u003cp>The company, \u003ca href=\"https://www.hylands.com/\" target=\"_blank\">Hyland’s\u003c/a>, promotes “safe, effective, and natural health solutions” that appeal to parents seeking alternative treatments. But the agency would soon hear much more about Hyland’s teething products. Staff at the FDA would come to consider Case 7682299 one of the luckier outcomes.\u003c/p>\n\u003cfigure id=\"attachment_341968\" class=\"wp-caption alignright\" style=\"max-width: 800px\">\u003cimg class=\"wp-image-341968 size-medium\" src=\"https://ww2.kqed.org/futureofyou/wp-content/uploads/sites/13/2017/02/homeopathic-800x800.jpg\" alt=\"A review of FDA records shows that some babies who were given Hyland’s teething products had repeated seizures, became delirious or turned blue and died. \" width=\"800\" height=\"800\" srcset=\"https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeopathic-800x800.jpg 800w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeopathic-160x160.jpg 160w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeopathic-768x768.jpg 768w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeopathic-1020x1020.jpg 1020w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeopathic-1180x1180.jpg 1180w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeopathic-960x960.jpg 960w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeopathic-240x240.jpg 240w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeopathic-375x375.jpg 375w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeopathic-520x520.jpg 520w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeopathic-32x32.jpg 32w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeopathic-50x50.jpg 50w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeopathic-64x64.jpg 64w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeopathic-96x96.jpg 96w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeopathic-128x128.jpg 128w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeopathic-150x150.jpg 150w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeopathic.jpg 1600w\" sizes=\"(max-width: 800px) 100vw, 800px\">\u003cfigcaption class=\"wp-caption-text\">A review of FDA records shows that some babies who were given Hyland’s teething products had repeated seizures, became delirious or turned blue and died. \u003ccite>(Photo from FDA)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>A review of FDA records obtained by STAT under the Freedom of Information Act paints a far grimmer picture: Babies who were given Hyland’s teething products turned blue and died. Babies had repeated seizures. Babies became delirious. Babies were airlifted to the hospital, where emergency room staff tried to figure out what had caused their legs and arms to start twitching.\u003cstrong> \u003c/strong>\u003c/p>\n\u003cp>Over a 10-year period, from 2006 to 2016, the FDA collected reports of “adverse events” in more than 370 children who had used Hyland’s homeopathic teething tablets or gel, a similar product that is applied directly to a baby’s gums. Agency records show eight cases in which babies were reported to have died after taking Hyland’s products, though the FDA says the question of whether those products caused the deaths is still under review.\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>(The agency is also investigating two other deaths tied to teething remedies but declined to confirm the manufacturer of the products or provide the case reports.)\u003c/p>\n\u003cp>Following an \u003ca href=\"http://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm523468.htm\" target=\"_blank\">FDA warning in September\u003c/a>, Hyland’s said that it \u003ca href=\"https://www.hylands.com/hylands-discontinues-teething-tablets-and-gels\" target=\"_blank\">would no longer manufacture\u003c/a> the teething products. But they remained on some store shelves for months, and are still available on the internet. They likely continue to be used in homes nationwide.\u003c/p>\n\u003cp>Hyland’s, a 114-year-old private company based in Los Angeles, is the nation’s largest homeopathic business. It insists its products are safe and says the FDA has failed to show there is a scientific link between them and infant seizures or other complications.\u003c/p>\n\u003cp>“That doesn’t mean that children don’t have a sensitivity to a product. There is a lot of sensitivity on kids’ parts and we have to watch carefully,” said a spokeswoman, Mary Borneman. “It’s not something that condemns the entire product line.”\u003c/p>\n\u003cp>Behind each of the FDA case numbers are angry and, in some cases, heartbroken parents. But a STAT examination — and the first detailed look at the case reports — also raises questions over the response of regulators.\u003c/p>\n\u003cp>It took four years until the FDA pushed Hyland’s to reformulate its remedies, in 2010. In the seven years since then, there has been a steady stream of reports of adverse events tied to Hyland’s homeopathic teething products.\u003c/p>\n\u003cp>“The FDA could bring the hammer down on them,” said Sarah Sorscher, an attorney for the nonprofit Public Citizen Health Research Group. “But it doesn’t. At the point where you have infants being hospitalized and deaths reported, it’s simply not acceptable for the agency to delay in taking action.”\u003c/p>\n\u003cp>An FDA spokeswoman defended the agency’s handling of the matter.\u003c/p>\n\u003cp>“It is important to note that while adverse event reports give us some information about a product and serious injuries or deaths related to use of a particular product, they often indicate situations that require additional analysis and do not constitute conclusive evidence of a problem with the product,” the spokeswoman, Lyndsay Meyer, said in a statement.\u003c/p>\n\u003cp>Despite the FDA’s difficulty in proving Hyland’s products harmed children, some doctors had no doubt.\u003c/p>\n\u003cp>In case 462749, dated Sept. 15, 2011, a physician sent Hyland’s a handwritten note, stating his patient, a 5-month-old girl, was unresponsive for 45 minutes after taking its teething tablets.\u003c/p>\n\u003cp>“I am sure this was not an allergic reaction,” he wrote. “I would like you to report it, find a contact at the FDA, so we can start an investigation and pull this dangerous, unregulated product from the shelves.”\u003c/p>\n\u003cp>One mother wrote the company to say her son’s pupils dilated “like marbles with big black eyes.” Another described seizures her daughter continued to have after taking the tablets and told the company, “I hate hate hate u for this.”\u003c/p>\n\u003cfigure id=\"attachment_342003\" class=\"wp-caption aligncenter\" style=\"max-width: 800px\">\u003cimg class=\"wp-image-342003 size-medium\" src=\"https://ww2.kqed.org/futureofyou/wp-content/uploads/sites/13/2017/02/homeophathadverse-800x450.jpg\" alt=\"homeophathadverse\" width=\"800\" height=\"450\" srcset=\"https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeophathadverse-800x450.jpg 800w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeophathadverse-160x90.jpg 160w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeophathadverse-768x432.jpg 768w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeophathadverse-1020x574.jpg 1020w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeophathadverse.jpg 1920w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeophathadverse-1180x664.jpg 1180w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeophathadverse-960x540.jpg 960w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeophathadverse-240x135.jpg 240w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeophathadverse-375x211.jpg 375w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeophathadverse-520x293.jpg 520w\" sizes=\"(max-width: 800px) 100vw, 800px\">\u003cfigcaption class=\"wp-caption-text\">Adverse event report on Hyland' teething tablets, sent to FDA. \u003ccite>(Photo by STAT)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>\u003cstrong>An Industry Giant in a Giant Industry\u003c/strong>\u003c/p>\n\u003cp>Hyland’s and its parent company, Standard Homeopathy Co., are considered major players in the homeopathic market. CEO \u003ca href=\"https://www.hylands.com/meet-the-team/jay-borneman\" target=\"_blank\">John P. Borneman\u003c/a> comes from a family that has been in the business for generations, and is president of the industry group that publishes the Homeopathic Pharmacopeia, a compendium that serves as the bible of the industry.\u003c/p>\n\u003cp>The company sells dozens of products for pain relief, stress, sleep problems, allergies, flu, and other maladies.\u003c/p>\n\u003cp>As with all homeopathic treatments, Hyland’s products are based on a theory that patients can benefit from highly diluted natural substances that, in their original form, might make people sick.\u003c/p>\n\u003cp>Despite a lack of scientific evidence that homeopathic remedies work, they are ubiquitous.\u003c/p>\n\u003cp>Homeopathy has become a multibillion-dollar industry. Its products are big sellers around the world, and popular with adherents from Cher to Prince Charles. The industry also has political clout: It has been able to exempt itself from many rules proposed by Congress and the FDA over the years.\u003c/p>\n\u003cp>Unlike pharmaceutical company-produced drugs, homeopathic products don’t have to prove that they are effective at treating anything in particular before going on the market. It is left to the FDA’s drug division to determine whether they are unsafe after they are on the market — a difficult task since the adverse event reports are generally considered to represent only a fraction of the actual incidents and may lack sufficient information to allow for thorough investigations.\u003c/p>\n\u003cp>“If I’m working in the emergency room and I have a family that comes in with a seizing infant, I may not have the wherewithal to get the history of homeopathic use,” said Dr. Edward W. Boyer, a toxicologist in Harvard Medical School’s emergency medicine department.\u003c/p>\n\u003cp>In some cases, parents assume that products described as natural remedies, as is the case with Hyland’s tablets and gels, could not possibly result in complications, and never mention their use to a doctor. Without sufficient evidence of a problem, the FDA lacks what it needs to use the enforcement tools it does have.\u003c/p>\n\u003cp>For Karinna Talbott, a 26-year-old mother in Colorado Springs, the fact that Hyland’s teething products were labeled “natural” made her lower her guard.\u003c/p>\n\u003cp>“When our fourth kiddo comes around and starts teething at three months, we were like, ‘OK, what can we do to give him some relief?’” Talbott said. “Someone told us about the teething tablets and we thought, ‘give them a try.' ’’\u003c/p>\n\u003cp>Shortly after her son began taking the tablets, she said, his hands began twitching.\u003c/p>\n\u003cp>“We didn’t correlate it to the teething tablets,” Talbott said. “And his symptoms got worse, went to his arms and his feet. Sometimes they all happened together.”\u003c/p>\n\u003cp>Talbott said her doctor was at first uncertain as to the cause. But when they stopped giving him the tablets, the seizures also stopped.\u003c/p>\n\u003cp>“The neurologist said, maybe he was a little sensitive to the products in the teething tablet.”\u003c/p>\n\u003cp>\u003cstrong>‘Deadly nightshade’\u003c/strong>\u003c/p>\n\u003cp>In investigating Hyland’s teething products, the FDA focused on an ingredient known as atropa belladonna, an herb known colloquially as “deadly nightshade.”\u003c/p>\n\u003cp>In diluted form, the substance is not expected to pose any health risk. In 2010, however, FDA inspectors who examined Hyland’s facilities criticized the company for substandard manufacturing practices and found inconsistent levels of atropa belladonna in its products.\u003c/p>\n\u003cp>The agency issued a public warning, noting “reports of serious adverse events in children taking this product that are consistent with belladonna toxicity.”\u003c/p>\n\u003cp>It also noted that “infants are very susceptible to the neurotoxicity of drugs” because of how the body distributes and responds to drugs, and noted that “absorption of belladonna from the skin and mouth was fairly rapid.”\u003c/p>\n\u003cp>The company voluntarily took the products off shelves and agreed to reformulate them, although it insisted they were safe.\u003c/p>\n\u003cp>“We felt it was the right thing to do so that parents didn’t have to be concerned about the product,” said Borneman, the spokeswoman.\u003c/p>\n\u003cp>But the number of serious adverse events tied by the FDA to the products kept climbing. Some pediatricians and neurologists concluded the tablets and gels were the cause. Many parents wrote to the FDA, accusingly, asking why the pills were still on the market.\u003c/p>\n\u003cp>“My son had 3 of Hyland’s Teething Tablets,” a mother told FDA on Feb. 13, 2012, noting that the product appeared to have caused several seizures. “I am shocked at the popularity of this product, which is growing, and the lack of knowledge among parents, as well as the lack of warnings on the labels. Parents desperately need to be warned about this product if it is going to stay on the shelves!!!! Please do something!”\u003c/p>\n\u003cp>In September 2016, the \u003ca href=\"http://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm523468.htm\" target=\"_blank\">FDA announced\u003c/a> that it was investigating more adverse events reports and recommended that consumers stop using Hyland’s and other homeopathic teething products and dispose of any in their possession. Some stores, including Target and CVS, which sold Hyland’s and other homeopathic teething products, pulled them in response.\u003c/p>\n\u003cp>The FDA also asked Hyland’s to recall its products again. But this time Hyland’s stood its ground, and the agency has no authority to enforce a recall of homeopathic products.\u003c/p>\n\u003cp>Borneman said the company’s “pharmacovigilance program,” a product safety review system launched after 2010, offers proof that the treatments are safe.\u003c/p>\n\u003cp>“Homeopathic medicine has a very large margin of safety,” she said. “Our testing ensures there’s not too much belladonna in any bottle” of tablets.\u003c/p>\n\u003cp>At the same time, the company decided to stop manufacturing the teething tablets. In an \u003ca href=\"https://www.hylands.com/hylands-discontinues-teething-tablets-and-gels\" target=\"_blank\">open letter to customers\u003c/a>, Hyland’s said the FDA warning had “created confusion among parents.”\u003c/p>\n\u003cp>“Putting you in a position of having to choose who to trust in the face of contradictory information is burdensome and undermines the FDA,” the company said, while insisting Hyland’s products, “including those you already have, are safe for use.”\u003c/p>\n\u003cp>Several weeks ago, on Jan. 27, the FDA \u003ca href=\"http://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm538684.htm\" target=\"_blank\">issued another warning\u003c/a>, saying that laboratory analysis of Hyland’s teething tablets found levels of belladonna “sometimes far exceeding the amount claimed on the label.” The agency warned consumers not to use the products and to seek medical care immediately if their child has seizures, difficulty breathing, lethargy, muscle weakness, or other problems after using homeopathic teething products.\u003c/p>\n\u003cp>The FDA also said there was no evidence that they actually worked.\u003c/p>\n\u003cfigure id=\"attachment_342006\" class=\"wp-caption aligncenter\" style=\"max-width: 768px\">\u003cimg class=\"wp-image-342006 size-full\" src=\"https://ww2.kqed.org/futureofyou/wp-content/uploads/sites/13/2017/02/homeopathicevent.jpg\" alt=\"homeopathicevent\" width=\"768\" height=\"432\" srcset=\"https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeopathicevent.jpg 768w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeopathicevent-160x90.jpg 160w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeopathicevent-240x135.jpg 240w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeopathicevent-375x211.jpg 375w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeopathicevent-520x293.jpg 520w\" sizes=\"(max-width: 768px) 100vw, 768px\">\u003cfigcaption class=\"wp-caption-text\">Report sent to FDA by a physician. \u003ccite>(Photo by STAT)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>\u003cstrong>Cracks in the FDA’s Authority\u003c/strong>\u003c/p>\n\u003cp>With concerns about toxic levels of belladonna, and the sheer number of cases of adverse events, some critics — and parents — say the FDA should have moved faster in the case of Hyland’s.\u003c/p>\n\u003cp>But they also acknowledge that the episode underlines the cracks in the agency’s regulatory power when it comes to homeopathic products. There is no set mathematical formula or official standard that spells out how many sick or deceased children must be reported before the FDA seizes a company’s inventory or levies fines or shuts it down.\u003c/p>\n\u003cp>Critics say the fact that homeopathic products are generally highly diluted has kept them on the FDA’s back burner.\u003c/p>\n\u003cp>“It’s low on their priority list,” said Dr. Aaron S. Kesselheim, who \u003ca href=\"http://www.nejm.org/doi/full/10.1056/NEJMp1513393#t=article\" target=\"_blank\">coauthored a paper\u003c/a> in the New England Journal of Medicine last year on the subject. “FDA for a long time just kind of deferred on homeopathic products because they are mostly inert and so diluted. The harm comes from people wasting their money, or diverting them from things that do work.”\u003c/p>\n\u003cp>In the case of some of Hyland’s products, however, Kesselheim believes that the toxic levels of belladonna show a substantial safety problem, putting a responsibility on FDA to respond.\u003c/p>\n\u003cp>One problem the FDA has in doing so is a matter of staffing: The agency has a medical officer review each report from manufacturers, but it doesn’t have someone who can routinely follow up with the patient, the patient’s family, or physician for missing records necessary to take a serious enforcement action.\u003c/p>\n\u003cp>“Is it fair to criticize FDA for the time lag between 2010 and now?” says Patricia Zettler, a former FDA counsel and associate law professor at Georgia State University. “I think the agency is in a tough position, with these kinds of products and with adverse event reports in general. They are not necessarily a perfect indication of something happening with a drug.”\u003c/p>\n\u003cp>“That said,” Zettler added, “it does sound like this is a product the agency was concerned about. It’s tough to parse out whether two reports of seizures should have been enough, or three or 10. There’s a balance the agency has to strike between acting quickly on safety information and not overreacting to something that may not actually be caused by the product.”\u003c/p>\n\u003cp>Public Citizen’s Sorscher said criminal cases take years to pursue, so the FDA would much prefer voluntary compliance.\u003c/p>\n\u003cp>“They don’t have a mechanism to say, ‘this ingredient is unsafe, nobody should sell it,’” she said. “It might be time for Congress to give FDA a standard and say, you can issue a regulation saying no one can make it anymore.”\u003c/p>\n\u003cp>Outraged by the standoff between FDA and Hyland’s, Connecticut Democratic Representative Rosa DeLauro \u003ca href=\"https://delauro.house.gov/media-center/press-releases/delauro-introduces-bill-give-fda-mandatory-recall-authority-over-drugs\" target=\"_blank\">introduced a bill last week\u003c/a> called the Recall Unsafe Drugs Act. The proposal would give the FDA mandatory recall authority over homeopathic products and drugs.\u003c/p>\n\u003cp>“Hyland’s refusal to recall its teething tablets, despite numerous health and safety warnings from the FDA, is downright shameful,” DeLauro said, adding that the company “is choosing instead to prioritize the company’s profits and reputation before the safety of our children.”\u003c/p>\n\u003cp>“As it stands the FDA would have to go through an arduous legal process to take action against manufacturers such as Hyland’s. This is unacceptable and threatens the health and safety of American families.’’\u003c/p>\n\u003cp>For the parents of Case 10723317, any action would come too late. A mother reported that on July 9, 2014, her 9-month-old daughter died after being given two teething tablets, crushed, for the first time. She gave her infant the tablets, then a bottle, and then left her to sleep. When she checked on her 45 minutes later, she was dead in her crib, beside a puddle of vomit.\u003c/p>\n\u003cp>Five months later, after reading online reports suggesting babies may experience seizures after taking belladonna, she contacted Hyland’s.\u003c/p>\n\u003cp>“Customer did not request a refund or replacement,” noted the Hyland’s staffer who filed the report with the FDA. Hyland’s also noted that it was not able to test the bottle, because the customer threw it away.\u003c/p>\n\u003cp>“Due to the limited information provided by the reporter no further investigation is possible at this time of this incident,” the company concluded.\u003c/p>\n\u003cp>\u003cem>Ike Swetlitz contributed reporting.\u003c/em>\u003c/p>\n\u003cp>[ad floatright]\u003c/p>\n\u003cp>\u003cem>This \u003ca href=\"https://www.statnews.com/2017/02/21/hylands-homeopathic-teething-fda/\" target=\"_blank\">story\u003c/a> was originally published by STAT, an online publication of Boston Globe Media that covers health, medicine, and scientific discovery.\u003c/em>\u003c/p>\n\n","blocks":[],"excerpt":"The FDA has collected reports of 'adverse events' in over 370 children who used Hyland’s homeopathic teething products, and the agency is investigating whether the products caused the deaths of eight babies. ","status":"publish","parent":0,"modified":1488214874,"stats":{"hasAudio":false,"hasVideo":false,"hasChartOrMap":false,"iframeSrcs":[],"hasGoogleForm":false,"hasGallery":false,"hasHearkenModule":false,"hasPolis":false,"paragraphCount":72,"wordCount":2799},"headData":{"title":"Hundreds of Babies Reported Harmed by Homeopathic Product | KQED","description":"The FDA has collected reports of 'adverse events' in over 370 children who used Hyland’s homeopathic teething products, and the agency is investigating whether the products caused the deaths of eight babies. ","ogTitle":"","ogDescription":"","ogImgId":"","twTitle":"","twDescription":"","twImgId":"","schema":{"@context":"http://schema.org","@type":"Article","headline":"Hundreds of Babies Reported Harmed by Homeopathic Product","datePublished":"2017-02-24T18:44:26.000Z","dateModified":"2017-02-27T17:01:14.000Z","image":"https://cdn.kqed.org/wp-content/uploads/2020/02/KQED-OG-Image@1x.png"}},"disqusIdentifier":"338935 https://ww2.kqed.org/futureofyou/?p=338935","disqusUrl":"https://ww2.kqed.org/futureofyou/2017/02/24/hundreds-of-babies-reported-harmed-by-homeopathic-product/","disqusTitle":"Hundreds of Babies Reported Harmed by Homeopathic Product","source":"STAT","nprByline":"Sheila Kaplan\u003cbr />\u003ca href=\"https://www.statnews.com/\">STAT\u003c/a>","path":"/futureofyou/338935/hundreds-of-babies-reported-harmed-by-homeopathic-product","audioTrackLength":null,"parsedContent":[{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003cp>Case 7682299: Aug. 1, 2010. A mother gives her toddler three homeopathic pills to relieve her teething pain. Within minutes, the baby stops breathing.\u003c/p>\n\u003cp>“My daughter had a seizure, lost consciousness, and stopped breathing about 30 minutes after I gave her three Hyland’s Teething Tablets,” the mother later told the Food and Drug Administration. “She had to receive mouth-to-mouth CPR to resume breathing and was brought to the hospital.”\u003c/p>\n\u003cp>The company, \u003ca href=\"https://www.hylands.com/\" target=\"_blank\">Hyland’s\u003c/a>, promotes “safe, effective, and natural health solutions” that appeal to parents seeking alternative treatments. But the agency would soon hear much more about Hyland’s teething products. Staff at the FDA would come to consider Case 7682299 one of the luckier outcomes.\u003c/p>\n\u003cfigure id=\"attachment_341968\" class=\"wp-caption alignright\" style=\"max-width: 800px\">\u003cimg class=\"wp-image-341968 size-medium\" src=\"https://ww2.kqed.org/futureofyou/wp-content/uploads/sites/13/2017/02/homeopathic-800x800.jpg\" alt=\"A review of FDA records shows that some babies who were given Hyland’s teething products had repeated seizures, became delirious or turned blue and died. \" width=\"800\" height=\"800\" srcset=\"https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeopathic-800x800.jpg 800w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeopathic-160x160.jpg 160w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeopathic-768x768.jpg 768w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeopathic-1020x1020.jpg 1020w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeopathic-1180x1180.jpg 1180w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeopathic-960x960.jpg 960w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeopathic-240x240.jpg 240w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeopathic-375x375.jpg 375w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeopathic-520x520.jpg 520w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeopathic-32x32.jpg 32w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeopathic-50x50.jpg 50w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeopathic-64x64.jpg 64w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeopathic-96x96.jpg 96w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeopathic-128x128.jpg 128w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeopathic-150x150.jpg 150w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeopathic.jpg 1600w\" sizes=\"(max-width: 800px) 100vw, 800px\">\u003cfigcaption class=\"wp-caption-text\">A review of FDA records shows that some babies who were given Hyland’s teething products had repeated seizures, became delirious or turned blue and died. \u003ccite>(Photo from FDA)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>A review of FDA records obtained by STAT under the Freedom of Information Act paints a far grimmer picture: Babies who were given Hyland’s teething products turned blue and died. Babies had repeated seizures. Babies became delirious. Babies were airlifted to the hospital, where emergency room staff tried to figure out what had caused their legs and arms to start twitching.\u003cstrong> \u003c/strong>\u003c/p>\n\u003cp>Over a 10-year period, from 2006 to 2016, the FDA collected reports of “adverse events” in more than 370 children who had used Hyland’s homeopathic teething tablets or gel, a similar product that is applied directly to a baby’s gums. Agency records show eight cases in which babies were reported to have died after taking Hyland’s products, though the FDA says the question of whether those products caused the deaths is still under review.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"ad","attributes":{"named":{"label":"fullwidth"},"numeric":["fullwidth"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>(The agency is also investigating two other deaths tied to teething remedies but declined to confirm the manufacturer of the products or provide the case reports.)\u003c/p>\n\u003cp>Following an \u003ca href=\"http://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm523468.htm\" target=\"_blank\">FDA warning in September\u003c/a>, Hyland’s said that it \u003ca href=\"https://www.hylands.com/hylands-discontinues-teething-tablets-and-gels\" target=\"_blank\">would no longer manufacture\u003c/a> the teething products. But they remained on some store shelves for months, and are still available on the internet. They likely continue to be used in homes nationwide.\u003c/p>\n\u003cp>Hyland’s, a 114-year-old private company based in Los Angeles, is the nation’s largest homeopathic business. It insists its products are safe and says the FDA has failed to show there is a scientific link between them and infant seizures or other complications.\u003c/p>\n\u003cp>“That doesn’t mean that children don’t have a sensitivity to a product. There is a lot of sensitivity on kids’ parts and we have to watch carefully,” said a spokeswoman, Mary Borneman. “It’s not something that condemns the entire product line.”\u003c/p>\n\u003cp>Behind each of the FDA case numbers are angry and, in some cases, heartbroken parents. But a STAT examination — and the first detailed look at the case reports — also raises questions over the response of regulators.\u003c/p>\n\u003cp>It took four years until the FDA pushed Hyland’s to reformulate its remedies, in 2010. In the seven years since then, there has been a steady stream of reports of adverse events tied to Hyland’s homeopathic teething products.\u003c/p>\n\u003cp>“The FDA could bring the hammer down on them,” said Sarah Sorscher, an attorney for the nonprofit Public Citizen Health Research Group. “But it doesn’t. At the point where you have infants being hospitalized and deaths reported, it’s simply not acceptable for the agency to delay in taking action.”\u003c/p>\n\u003cp>An FDA spokeswoman defended the agency’s handling of the matter.\u003c/p>\n\u003cp>“It is important to note that while adverse event reports give us some information about a product and serious injuries or deaths related to use of a particular product, they often indicate situations that require additional analysis and do not constitute conclusive evidence of a problem with the product,” the spokeswoman, Lyndsay Meyer, said in a statement.\u003c/p>\n\u003cp>Despite the FDA’s difficulty in proving Hyland’s products harmed children, some doctors had no doubt.\u003c/p>\n\u003cp>In case 462749, dated Sept. 15, 2011, a physician sent Hyland’s a handwritten note, stating his patient, a 5-month-old girl, was unresponsive for 45 minutes after taking its teething tablets.\u003c/p>\n\u003cp>“I am sure this was not an allergic reaction,” he wrote. “I would like you to report it, find a contact at the FDA, so we can start an investigation and pull this dangerous, unregulated product from the shelves.”\u003c/p>\n\u003cp>One mother wrote the company to say her son’s pupils dilated “like marbles with big black eyes.” Another described seizures her daughter continued to have after taking the tablets and told the company, “I hate hate hate u for this.”\u003c/p>\n\u003cfigure id=\"attachment_342003\" class=\"wp-caption aligncenter\" style=\"max-width: 800px\">\u003cimg class=\"wp-image-342003 size-medium\" src=\"https://ww2.kqed.org/futureofyou/wp-content/uploads/sites/13/2017/02/homeophathadverse-800x450.jpg\" alt=\"homeophathadverse\" width=\"800\" height=\"450\" srcset=\"https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeophathadverse-800x450.jpg 800w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeophathadverse-160x90.jpg 160w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeophathadverse-768x432.jpg 768w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeophathadverse-1020x574.jpg 1020w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeophathadverse.jpg 1920w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeophathadverse-1180x664.jpg 1180w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeophathadverse-960x540.jpg 960w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeophathadverse-240x135.jpg 240w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeophathadverse-375x211.jpg 375w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeophathadverse-520x293.jpg 520w\" sizes=\"(max-width: 800px) 100vw, 800px\">\u003cfigcaption class=\"wp-caption-text\">Adverse event report on Hyland' teething tablets, sent to FDA. \u003ccite>(Photo by STAT)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>\u003cstrong>An Industry Giant in a Giant Industry\u003c/strong>\u003c/p>\n\u003cp>Hyland’s and its parent company, Standard Homeopathy Co., are considered major players in the homeopathic market. CEO \u003ca href=\"https://www.hylands.com/meet-the-team/jay-borneman\" target=\"_blank\">John P. Borneman\u003c/a> comes from a family that has been in the business for generations, and is president of the industry group that publishes the Homeopathic Pharmacopeia, a compendium that serves as the bible of the industry.\u003c/p>\n\u003cp>The company sells dozens of products for pain relief, stress, sleep problems, allergies, flu, and other maladies.\u003c/p>\n\u003cp>As with all homeopathic treatments, Hyland’s products are based on a theory that patients can benefit from highly diluted natural substances that, in their original form, might make people sick.\u003c/p>\n\u003cp>Despite a lack of scientific evidence that homeopathic remedies work, they are ubiquitous.\u003c/p>\n\u003cp>Homeopathy has become a multibillion-dollar industry. Its products are big sellers around the world, and popular with adherents from Cher to Prince Charles. The industry also has political clout: It has been able to exempt itself from many rules proposed by Congress and the FDA over the years.\u003c/p>\n\u003cp>Unlike pharmaceutical company-produced drugs, homeopathic products don’t have to prove that they are effective at treating anything in particular before going on the market. It is left to the FDA’s drug division to determine whether they are unsafe after they are on the market — a difficult task since the adverse event reports are generally considered to represent only a fraction of the actual incidents and may lack sufficient information to allow for thorough investigations.\u003c/p>\n\u003cp>“If I’m working in the emergency room and I have a family that comes in with a seizing infant, I may not have the wherewithal to get the history of homeopathic use,” said Dr. Edward W. Boyer, a toxicologist in Harvard Medical School’s emergency medicine department.\u003c/p>\n\u003cp>In some cases, parents assume that products described as natural remedies, as is the case with Hyland’s tablets and gels, could not possibly result in complications, and never mention their use to a doctor. Without sufficient evidence of a problem, the FDA lacks what it needs to use the enforcement tools it does have.\u003c/p>\n\u003cp>For Karinna Talbott, a 26-year-old mother in Colorado Springs, the fact that Hyland’s teething products were labeled “natural” made her lower her guard.\u003c/p>\n\u003cp>“When our fourth kiddo comes around and starts teething at three months, we were like, ‘OK, what can we do to give him some relief?’” Talbott said. “Someone told us about the teething tablets and we thought, ‘give them a try.' ’’\u003c/p>\n\u003cp>Shortly after her son began taking the tablets, she said, his hands began twitching.\u003c/p>\n\u003cp>“We didn’t correlate it to the teething tablets,” Talbott said. “And his symptoms got worse, went to his arms and his feet. Sometimes they all happened together.”\u003c/p>\n\u003cp>Talbott said her doctor was at first uncertain as to the cause. But when they stopped giving him the tablets, the seizures also stopped.\u003c/p>\n\u003cp>“The neurologist said, maybe he was a little sensitive to the products in the teething tablet.”\u003c/p>\n\u003cp>\u003cstrong>‘Deadly nightshade’\u003c/strong>\u003c/p>\n\u003cp>In investigating Hyland’s teething products, the FDA focused on an ingredient known as atropa belladonna, an herb known colloquially as “deadly nightshade.”\u003c/p>\n\u003cp>In diluted form, the substance is not expected to pose any health risk. In 2010, however, FDA inspectors who examined Hyland’s facilities criticized the company for substandard manufacturing practices and found inconsistent levels of atropa belladonna in its products.\u003c/p>\n\u003cp>The agency issued a public warning, noting “reports of serious adverse events in children taking this product that are consistent with belladonna toxicity.”\u003c/p>\n\u003cp>It also noted that “infants are very susceptible to the neurotoxicity of drugs” because of how the body distributes and responds to drugs, and noted that “absorption of belladonna from the skin and mouth was fairly rapid.”\u003c/p>\n\u003cp>The company voluntarily took the products off shelves and agreed to reformulate them, although it insisted they were safe.\u003c/p>\n\u003cp>“We felt it was the right thing to do so that parents didn’t have to be concerned about the product,” said Borneman, the spokeswoman.\u003c/p>\n\u003cp>But the number of serious adverse events tied by the FDA to the products kept climbing. Some pediatricians and neurologists concluded the tablets and gels were the cause. Many parents wrote to the FDA, accusingly, asking why the pills were still on the market.\u003c/p>\n\u003cp>“My son had 3 of Hyland’s Teething Tablets,” a mother told FDA on Feb. 13, 2012, noting that the product appeared to have caused several seizures. “I am shocked at the popularity of this product, which is growing, and the lack of knowledge among parents, as well as the lack of warnings on the labels. Parents desperately need to be warned about this product if it is going to stay on the shelves!!!! Please do something!”\u003c/p>\n\u003cp>In September 2016, the \u003ca href=\"http://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm523468.htm\" target=\"_blank\">FDA announced\u003c/a> that it was investigating more adverse events reports and recommended that consumers stop using Hyland’s and other homeopathic teething products and dispose of any in their possession. Some stores, including Target and CVS, which sold Hyland’s and other homeopathic teething products, pulled them in response.\u003c/p>\n\u003cp>The FDA also asked Hyland’s to recall its products again. But this time Hyland’s stood its ground, and the agency has no authority to enforce a recall of homeopathic products.\u003c/p>\n\u003cp>Borneman said the company’s “pharmacovigilance program,” a product safety review system launched after 2010, offers proof that the treatments are safe.\u003c/p>\n\u003cp>“Homeopathic medicine has a very large margin of safety,” she said. “Our testing ensures there’s not too much belladonna in any bottle” of tablets.\u003c/p>\n\u003cp>At the same time, the company decided to stop manufacturing the teething tablets. In an \u003ca href=\"https://www.hylands.com/hylands-discontinues-teething-tablets-and-gels\" target=\"_blank\">open letter to customers\u003c/a>, Hyland’s said the FDA warning had “created confusion among parents.”\u003c/p>\n\u003cp>“Putting you in a position of having to choose who to trust in the face of contradictory information is burdensome and undermines the FDA,” the company said, while insisting Hyland’s products, “including those you already have, are safe for use.”\u003c/p>\n\u003cp>Several weeks ago, on Jan. 27, the FDA \u003ca href=\"http://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm538684.htm\" target=\"_blank\">issued another warning\u003c/a>, saying that laboratory analysis of Hyland’s teething tablets found levels of belladonna “sometimes far exceeding the amount claimed on the label.” The agency warned consumers not to use the products and to seek medical care immediately if their child has seizures, difficulty breathing, lethargy, muscle weakness, or other problems after using homeopathic teething products.\u003c/p>\n\u003cp>The FDA also said there was no evidence that they actually worked.\u003c/p>\n\u003cfigure id=\"attachment_342006\" class=\"wp-caption aligncenter\" style=\"max-width: 768px\">\u003cimg class=\"wp-image-342006 size-full\" src=\"https://ww2.kqed.org/futureofyou/wp-content/uploads/sites/13/2017/02/homeopathicevent.jpg\" alt=\"homeopathicevent\" width=\"768\" height=\"432\" srcset=\"https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeopathicevent.jpg 768w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeopathicevent-160x90.jpg 160w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeopathicevent-240x135.jpg 240w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeopathicevent-375x211.jpg 375w, https://ww2.kqed.org/app/uploads/sites/13/2017/02/homeopathicevent-520x293.jpg 520w\" sizes=\"(max-width: 768px) 100vw, 768px\">\u003cfigcaption class=\"wp-caption-text\">Report sent to FDA by a physician. \u003ccite>(Photo by STAT)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>\u003cstrong>Cracks in the FDA’s Authority\u003c/strong>\u003c/p>\n\u003cp>With concerns about toxic levels of belladonna, and the sheer number of cases of adverse events, some critics — and parents — say the FDA should have moved faster in the case of Hyland’s.\u003c/p>\n\u003cp>But they also acknowledge that the episode underlines the cracks in the agency’s regulatory power when it comes to homeopathic products. There is no set mathematical formula or official standard that spells out how many sick or deceased children must be reported before the FDA seizes a company’s inventory or levies fines or shuts it down.\u003c/p>\n\u003cp>Critics say the fact that homeopathic products are generally highly diluted has kept them on the FDA’s back burner.\u003c/p>\n\u003cp>“It’s low on their priority list,” said Dr. Aaron S. Kesselheim, who \u003ca href=\"http://www.nejm.org/doi/full/10.1056/NEJMp1513393#t=article\" target=\"_blank\">coauthored a paper\u003c/a> in the New England Journal of Medicine last year on the subject. “FDA for a long time just kind of deferred on homeopathic products because they are mostly inert and so diluted. The harm comes from people wasting their money, or diverting them from things that do work.”\u003c/p>\n\u003cp>In the case of some of Hyland’s products, however, Kesselheim believes that the toxic levels of belladonna show a substantial safety problem, putting a responsibility on FDA to respond.\u003c/p>\n\u003cp>One problem the FDA has in doing so is a matter of staffing: The agency has a medical officer review each report from manufacturers, but it doesn’t have someone who can routinely follow up with the patient, the patient’s family, or physician for missing records necessary to take a serious enforcement action.\u003c/p>\n\u003cp>“Is it fair to criticize FDA for the time lag between 2010 and now?” says Patricia Zettler, a former FDA counsel and associate law professor at Georgia State University. “I think the agency is in a tough position, with these kinds of products and with adverse event reports in general. They are not necessarily a perfect indication of something happening with a drug.”\u003c/p>\n\u003cp>“That said,” Zettler added, “it does sound like this is a product the agency was concerned about. It’s tough to parse out whether two reports of seizures should have been enough, or three or 10. There’s a balance the agency has to strike between acting quickly on safety information and not overreacting to something that may not actually be caused by the product.”\u003c/p>\n\u003cp>Public Citizen’s Sorscher said criminal cases take years to pursue, so the FDA would much prefer voluntary compliance.\u003c/p>\n\u003cp>“They don’t have a mechanism to say, ‘this ingredient is unsafe, nobody should sell it,’” she said. “It might be time for Congress to give FDA a standard and say, you can issue a regulation saying no one can make it anymore.”\u003c/p>\n\u003cp>Outraged by the standoff between FDA and Hyland’s, Connecticut Democratic Representative Rosa DeLauro \u003ca href=\"https://delauro.house.gov/media-center/press-releases/delauro-introduces-bill-give-fda-mandatory-recall-authority-over-drugs\" target=\"_blank\">introduced a bill last week\u003c/a> called the Recall Unsafe Drugs Act. The proposal would give the FDA mandatory recall authority over homeopathic products and drugs.\u003c/p>\n\u003cp>“Hyland’s refusal to recall its teething tablets, despite numerous health and safety warnings from the FDA, is downright shameful,” DeLauro said, adding that the company “is choosing instead to prioritize the company’s profits and reputation before the safety of our children.”\u003c/p>\n\u003cp>“As it stands the FDA would have to go through an arduous legal process to take action against manufacturers such as Hyland’s. This is unacceptable and threatens the health and safety of American families.’’\u003c/p>\n\u003cp>For the parents of Case 10723317, any action would come too late. A mother reported that on July 9, 2014, her 9-month-old daughter died after being given two teething tablets, crushed, for the first time. She gave her infant the tablets, then a bottle, and then left her to sleep. When she checked on her 45 minutes later, she was dead in her crib, beside a puddle of vomit.\u003c/p>\n\u003cp>Five months later, after reading online reports suggesting babies may experience seizures after taking belladonna, she contacted Hyland’s.\u003c/p>\n\u003cp>“Customer did not request a refund or replacement,” noted the Hyland’s staffer who filed the report with the FDA. Hyland’s also noted that it was not able to test the bottle, because the customer threw it away.\u003c/p>\n\u003cp>“Due to the limited information provided by the reporter no further investigation is possible at this time of this incident,” the company concluded.\u003c/p>\n\u003cp>\u003cem>Ike Swetlitz contributed reporting.\u003c/em>\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"ad","attributes":{"named":{"label":"floatright"},"numeric":["floatright"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>\u003cem>This \u003ca href=\"https://www.statnews.com/2017/02/21/hylands-homeopathic-teething-fda/\" target=\"_blank\">story\u003c/a> was originally published by STAT, an online publication of Boston Globe Media that covers health, medicine, and scientific discovery.\u003c/em>\u003c/p>\n\n\u003c/div>\u003c/p>","attributes":{"named":{},"numeric":[]}}],"link":"/futureofyou/338935/hundreds-of-babies-reported-harmed-by-homeopathic-product","authors":["byline_futureofyou_338935"],"categories":["futureofyou_452","futureofyou_1062","futureofyou_1","futureofyou_73"],"tags":["futureofyou_972","futureofyou_1193","futureofyou_38","futureofyou_1192","futureofyou_1191"],"featImg":"futureofyou_341968","label":"source_futureofyou_338935"},"futureofyou_198676":{"type":"posts","id":"futureofyou_198676","meta":{"index":"posts_1591205157","site":"futureofyou","id":"198676","score":null,"sort":[1468242039000]},"guestAuthors":[],"slug":"do-alternative-treatments-for-autism-work","title":"Do Alternative Treatments for Autism Work?","publishDate":1468242039,"format":"audio","headTitle":"KQED Future of You | KQED Science","labelTerm":{"site":"futureofyou"},"content":"\u003cp>A huge majority of parents who have a child with autism have tried some sort of unorthodox treatment to alleviate core symptoms and improve skills like communication or social behavior. A 2015 \u003ca href=\"http://www.ncbi.nlm.nih.gov/pubmed/26366192\" target=\"_blank\">study\u003c/a> found 88 percent of parents (1,084 respondents) had tried some form of complementary or alternative medicine for their child.\u003c/p>\n\u003cp>The treatments range from special diets and supplements — two of the most frequently tried interventions — to music or animal therapy. But parents have little guidance from medical science, because the evidence for alternatives is thin, if it exists at all.\u003c/p>\n\u003cp>That said, there is some evidence suggesting children may benefit from simple treatments like vitamin B12, omega-3 fatty acids, and vitamin D, says UCSF psychiatrist \u003ca href=\"http://profiles.ucsf.edu/robert.hendren\" target=\"_blank\">Dr. Robert Hendren\u003c/a>, who specializes in autism. Hendren's studies of small patient populations have found these supplements produced some positive results in improving social behavior and reducing hyperactivity.\u003c/p>\n\u003cp>\u003c!-- iframe plugin v.4.3 wordpress.org/plugins/iframe/ -->\u003cbr>\n\u003ciframe id=\"datawrapper-chart-WAKDD\" src=\"//datawrapper.dwcdn.net/WAKDD/3/\" frameborder=\"0\" allowtransparency=\"true\" allowfullscreen=\"allowfullscreen\" webkitallowfullscreen=\"webkitallowfullscreen\" mozallowfullscreen=\"mozallowfullscreen\" oallowfullscreen=\"oallowfullscreen\" msallowfullscreen=\"msallowfullscreen\" width=\"100%\" height=\"680\" scrolling=\"yes\" class=\"iframe-class\">\u003c/iframe>\u003c/p>\n\u003cp>“It’s not quite like they’re cured, that they no longer have any evidence of ever having had autism,\" says Dr. Hendren. \"But certainly people do a lot better.”\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>Autism can lead to chronic issues like intestinal inflammation and anxiety. Hendren says supplements can improve a child's overall health. When the immune system is stronger, a child has more resources to handle stress; this, in turn, may reduce tantrums or self-injuries.\u003c/p>\n\u003cp>\u003cstrong>Alternatives Don't Work for Everyone\u003c/strong>\u003c/p>\n\u003cp>I didn’t have to look far to find a family who had experimented with alternative therapies. In fact, a colleague of mine at KQED has a 15-year-old son with autism, named Leo Rosa.\u003c/p>\n\u003cp>When Leo was diagnosed as a toddler, his mother, Shannon Des Roches Rosa, was heartbroken, but after reading fervently about the disorder she learned a cure might be possible through a nontraditional approach.\u003c/p>\n\u003caside class=\"pullquote alignright\">'I would caution people about saying, 'Well, if a little bit is good, then why don't you take a walloping dose and maybe that would be better.' '\u003ccite>Dr. Robert Hendren, UCSF\u003c/cite>\u003c/aside>\n\u003cp>Shannon saw a doctor who specializes in integrative medicine, and says he told her that treating Leo’s disorder was a matter of boosting his immune system and cleansing his body.\u003c/p>\n\u003cp>The doctor tested his blood, allergies, urine, hair and saliva.\u003c/p>\n\u003cp>\"The tests came back and said that he was allergic to everything,\" Shannon exclaims, \"from, like, chocolate to milk to dairy to asparagus — all these really weird things!\"\u003c/p>\n\u003cp>A yeast overgrowth was also identified. So the doctor prescribed numerous supplements and restricted sugar, dairy, gluten and soy in Leo's diet.\u003c/p>\n\u003cp>Shannon created a color-coded Excel chart to keep track of the pills, shots and creams.\u003c/p>\n\u003cp>Then the doctor added \u003ca href=\"http://cornerstoneintegrativecare.com/bioset/bioset-and-autism/\" target=\"_blank\">Bioset\u003c/a> to the mix — a combination of acupressure, plus muscle testing for the immune system. In muscle testing, practitioners often ask patients to extend their arm and resist downward pressure. The practitioner uses the level of resistance to check energy blockages, test the function of organs or uncover nutritional deficiencies.\u003c/p>\n\u003cp>Shannon was not convinced.\u003c/p>\n\u003cp>\"It’s like laying hands on you,\" says Shannon. \"What rational person could ever think that could be useful? It’s like getting your aura read.\"\u003c/p>\n\u003cfigure id=\"attachment_199268\" class=\"wp-caption aligncenter\" style=\"max-width: 800px\">\u003cimg class=\"wp-image-199268 size-medium\" src=\"http://ww2.kqed.org/futureofyou/wp-content/uploads/sites/13/2016/07/IMG_0532-800x600.jpg\" alt=\"Leo Rosa uses an electronic talker to help him communicate that he wants a snack to his mom, Shannon De Roche Rosa. \" width=\"800\" height=\"600\" srcset=\"https://ww2.kqed.org/app/uploads/sites/13/2016/07/IMG_0532-800x600.jpg 800w, https://ww2.kqed.org/app/uploads/sites/13/2016/07/IMG_0532-400x300.jpg 400w, https://ww2.kqed.org/app/uploads/sites/13/2016/07/IMG_0532-768x576.jpg 768w, https://ww2.kqed.org/app/uploads/sites/13/2016/07/IMG_0532-1180x885.jpg 1180w, https://ww2.kqed.org/app/uploads/sites/13/2016/07/IMG_0532-1920x1440.jpg 1920w, https://ww2.kqed.org/app/uploads/sites/13/2016/07/IMG_0532-960x720.jpg 960w\" sizes=\"(max-width: 800px) 100vw, 800px\">\u003cfigcaption class=\"wp-caption-text\">Leo Rosa uses and electronic talker to communicate that he wants a snack to his mom, Shannon Des Roches Rosa. \u003ccite>(Lesley McClurg/KQED)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>Shannon says she wasn't seeing any improvement in Leo's condition, but the doctor told her not to worry because the treatments were preparation for the final step, chelation, a detox therapy intended to remove heavy metals from the body.\u003c/p>\n\u003cp>But the Rosas were skeptical about the idea, after digging around on the internet and learning about potential dangers from the process. So they decided to draw the line on alternative treatments.\u003c/p>\n\u003cp>\u003cstrong>What Does Research Say?\u003cbr>\n\u003c/strong>\u003c/p>\n\u003cp>The Food and Drug Administration now \u003ca href=\"http://www.fda.gov/Drugs/ResourcesForYou/Consumers/BuyingUsingMedicineSafely/MedicationHealthFraud/ucm229313.htm\" target=\"_blank\">warns\u003c/a> that chelation products sold over the counter can lead to serious mineral deficiencies by stripping the body of crucial elements, which can \"cause serious harm, including dehydration, kidney failure, and death.\"\u003c/p>\n\u003cp>As for dietary changes and nutritional supplements, it's difficult to study them. Trials are often too short to track dietary changes adequately; blind studies are often challenging to conduct; and the research doesn’t offer the reward of a patent.\u003c/p>\n\u003cp>Dr. Hendren has led a handful of studies on popular options, including methyl B12, omega-3 fatty acids, and vitamin D, all of which he may prescribe based on slightly positive data and witnessing patient improvement in his practice. He's also reviewed the \u003ca href=\"http://www.hindawi.com/journals/aurt/2012/870391/\" target=\"_blank\">science\u003c/a> on more than 90 alternative therapies.\u003c/p>\n\u003cp>\"But I would caution people about saying, 'Well, if a little bit is good, then why don't you take a walloping dose and maybe that would be better,'\" Dr. Hendren says.\u003c/p>\n\u003cp>He's continuing to look at alternative treatments, including three current studies on pancreatic digestive enzymes; vasopressin (a neurohormone similar to oxytocin); and sulforaphane (concentrated broccoli extract).\u003c/p>\n\u003cp>The supplement with the most \u003ca href=\"http://link.springer.com/article/10.1007%2Fs10803-011-1418-3\" target=\"_blank\">evidence\u003c/a> to support its use is the natural hormone melatonin.\u003c/p>\n\u003cp>People with autism often struggle with insomnia and melatonin helps patients sleep better, which seems to improve their social interactions, says Dr. Hendren.\u003c/p>\n\u003cp>“Their eyes seemed clearer, their face or interactions seemed brighter,\" he says. \"They looked at me or at others as though they were just fully realizing that those people were there.”\u003c/p>\n\u003cp>\u003cstrong>What About Dietary Changes?\u003c/strong>\u003c/p>\n\u003cp>One of the most popular things parents try is eliminating gluten or casein from their child's diet. Gluten is found in wheat, barley and rye; casein is in dairy products.\u003c/p>\n\u003cp>Dr. Hendren says he doesn’t generally suggest special diets because there is insufficient evidence to demonstrate a clear benefit.\u003c/p>\n\u003cp>\"I would try and encourage people to stay within the range of things that have been studied and are within the range of things that are known and effective,\" says Hendren.\u003cb> \u003ci>\u003cbr>\n\u003c/i>\u003c/b>\u003c/p>\n\u003cp>If parents are interested in going gluten or dairy free, he suggests they work with a nutrition expert.\u003c/p>\n\u003cfigure id=\"attachment_199270\" class=\"wp-caption aligncenter\" style=\"max-width: 735px\">\u003cimg class=\"wp-image-199270 size-full\" src=\"http://ww2.kqed.org/futureofyou/wp-content/uploads/sites/13/2016/07/Leo-and-Shannon-e1467927955144.jpg\" alt=\"Leo and Shannon Rosa riding BART together. \" width=\"735\" height=\"575\" srcset=\"https://ww2.kqed.org/app/uploads/sites/13/2016/07/Leo-and-Shannon-e1467927955144.jpg 735w, https://ww2.kqed.org/app/uploads/sites/13/2016/07/Leo-and-Shannon-e1467927955144-400x313.jpg 400w\" sizes=\"(max-width: 735px) 100vw, 735px\">\u003cfigcaption class=\"wp-caption-text\">Leo and Shannon Rosa riding Muni together in San Francisco. \u003ccite>(Susan Etlinger/ KQED)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>Restricting Leo Rosa's diet was a costly experiment that turned into a nightmare, says his mother, Shannon.\u003c/p>\n\u003cp>\"He still ate, but he wasn’t happy about it,\" she says. \"He was such a little sad, hollowed-eyed Oliver Twist-looking dude at this time. It was so sad.\"\u003c/p>\n\u003cp>Shannon Des Roches Rosa is no longer experimenting with Leo’s diet. In fact, she says she'd like to go back to the moment Leo was diagnosed and give herself advice.\u003cstrong>\u003cem>\u003cbr>\n\u003c/em>\u003c/strong>\u003c/p>\n\u003cp>“Your son is a great kid,\" she says. \"He’s going to be okay. Don't think about trying to turn him into someone he isn’t.”\u003c/p>\n\u003cp>Shannon says the \u003cem>real\u003c/em> miracle cure is acceptance and love.\u003c/p>\n\u003cp>[ad floatright]\u003c/p>\n\u003cp>\u003cem>Editor's Note: This post has been updated to reflect that autism is a disorder, not a disease.\u003c/em>\u003c/p>\n\n","blocks":[],"excerpt":"There is some evidence showing unorthodox treatments like diets and supplements help, but the science is thin. ","status":"publish","parent":0,"modified":1468629671,"stats":{"hasAudio":false,"hasVideo":false,"hasChartOrMap":false,"iframeSrcs":[],"hasGoogleForm":false,"hasGallery":false,"hasHearkenModule":false,"hasPolis":false,"paragraphCount":41,"wordCount":1178},"headData":{"title":"Do Alternative Treatments for Autism Work? | KQED","description":"There is some evidence showing unorthodox treatments like diets and supplements help, but the science is thin. ","ogTitle":"","ogDescription":"","ogImgId":"","twTitle":"","twDescription":"","twImgId":"","schema":{"@context":"http://schema.org","@type":"Article","headline":"Do Alternative Treatments for Autism Work?","datePublished":"2016-07-11T13:00:39.000Z","dateModified":"2016-07-16T00:41:11.000Z","image":"https://cdn.kqed.org/wp-content/uploads/2020/02/KQED-OG-Image@1x.png"}},"disqusIdentifier":"198676 http://ww2.kqed.org/futureofyou/?p=198676","disqusUrl":"https://ww2.kqed.org/futureofyou/2016/07/11/do-alternative-treatments-for-autism-work/","disqusTitle":"Do Alternative Treatments for Autism Work?","audioUrl":"http://www.kqed.org/.stream/anon/radio/science/2016/07/WEBAutismMcClurg160718.mp3","path":"/futureofyou/198676/do-alternative-treatments-for-autism-work","audioTrackLength":null,"parsedContent":[{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003cp>A huge majority of parents who have a child with autism have tried some sort of unorthodox treatment to alleviate core symptoms and improve skills like communication or social behavior. A 2015 \u003ca href=\"http://www.ncbi.nlm.nih.gov/pubmed/26366192\" target=\"_blank\">study\u003c/a> found 88 percent of parents (1,084 respondents) had tried some form of complementary or alternative medicine for their child.\u003c/p>\n\u003cp>The treatments range from special diets and supplements — two of the most frequently tried interventions — to music or animal therapy. But parents have little guidance from medical science, because the evidence for alternatives is thin, if it exists at all.\u003c/p>\n\u003cp>That said, there is some evidence suggesting children may benefit from simple treatments like vitamin B12, omega-3 fatty acids, and vitamin D, says UCSF psychiatrist \u003ca href=\"http://profiles.ucsf.edu/robert.hendren\" target=\"_blank\">Dr. Robert Hendren\u003c/a>, who specializes in autism. Hendren's studies of small patient populations have found these supplements produced some positive results in improving social behavior and reducing hyperactivity.\u003c/p>\n\u003cp>\u003c!-- iframe plugin v.4.3 wordpress.org/plugins/iframe/ -->\u003cbr>\n\u003ciframe id=\"datawrapper-chart-WAKDD\" src=\"//datawrapper.dwcdn.net/WAKDD/3/\" frameborder=\"0\" allowtransparency=\"true\" allowfullscreen=\"allowfullscreen\" webkitallowfullscreen=\"webkitallowfullscreen\" mozallowfullscreen=\"mozallowfullscreen\" oallowfullscreen=\"oallowfullscreen\" msallowfullscreen=\"msallowfullscreen\" width=\"100%\" height=\"680\" scrolling=\"yes\" class=\"iframe-class\">\u003c/iframe>\u003c/p>\n\u003cp>“It’s not quite like they’re cured, that they no longer have any evidence of ever having had autism,\" says Dr. Hendren. \"But certainly people do a lot better.”\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"ad","attributes":{"named":{"label":"fullwidth"},"numeric":["fullwidth"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>Autism can lead to chronic issues like intestinal inflammation and anxiety. Hendren says supplements can improve a child's overall health. When the immune system is stronger, a child has more resources to handle stress; this, in turn, may reduce tantrums or self-injuries.\u003c/p>\n\u003cp>\u003cstrong>Alternatives Don't Work for Everyone\u003c/strong>\u003c/p>\n\u003cp>I didn’t have to look far to find a family who had experimented with alternative therapies. In fact, a colleague of mine at KQED has a 15-year-old son with autism, named Leo Rosa.\u003c/p>\n\u003cp>When Leo was diagnosed as a toddler, his mother, Shannon Des Roches Rosa, was heartbroken, but after reading fervently about the disorder she learned a cure might be possible through a nontraditional approach.\u003c/p>\n\u003caside class=\"pullquote alignright\">'I would caution people about saying, 'Well, if a little bit is good, then why don't you take a walloping dose and maybe that would be better.' '\u003ccite>Dr. Robert Hendren, UCSF\u003c/cite>\u003c/aside>\n\u003cp>Shannon saw a doctor who specializes in integrative medicine, and says he told her that treating Leo’s disorder was a matter of boosting his immune system and cleansing his body.\u003c/p>\n\u003cp>The doctor tested his blood, allergies, urine, hair and saliva.\u003c/p>\n\u003cp>\"The tests came back and said that he was allergic to everything,\" Shannon exclaims, \"from, like, chocolate to milk to dairy to asparagus — all these really weird things!\"\u003c/p>\n\u003cp>A yeast overgrowth was also identified. So the doctor prescribed numerous supplements and restricted sugar, dairy, gluten and soy in Leo's diet.\u003c/p>\n\u003cp>Shannon created a color-coded Excel chart to keep track of the pills, shots and creams.\u003c/p>\n\u003cp>Then the doctor added \u003ca href=\"http://cornerstoneintegrativecare.com/bioset/bioset-and-autism/\" target=\"_blank\">Bioset\u003c/a> to the mix — a combination of acupressure, plus muscle testing for the immune system. In muscle testing, practitioners often ask patients to extend their arm and resist downward pressure. The practitioner uses the level of resistance to check energy blockages, test the function of organs or uncover nutritional deficiencies.\u003c/p>\n\u003cp>Shannon was not convinced.\u003c/p>\n\u003cp>\"It’s like laying hands on you,\" says Shannon. \"What rational person could ever think that could be useful? It’s like getting your aura read.\"\u003c/p>\n\u003cfigure id=\"attachment_199268\" class=\"wp-caption aligncenter\" style=\"max-width: 800px\">\u003cimg class=\"wp-image-199268 size-medium\" src=\"http://ww2.kqed.org/futureofyou/wp-content/uploads/sites/13/2016/07/IMG_0532-800x600.jpg\" alt=\"Leo Rosa uses an electronic talker to help him communicate that he wants a snack to his mom, Shannon De Roche Rosa. \" width=\"800\" height=\"600\" srcset=\"https://ww2.kqed.org/app/uploads/sites/13/2016/07/IMG_0532-800x600.jpg 800w, https://ww2.kqed.org/app/uploads/sites/13/2016/07/IMG_0532-400x300.jpg 400w, https://ww2.kqed.org/app/uploads/sites/13/2016/07/IMG_0532-768x576.jpg 768w, https://ww2.kqed.org/app/uploads/sites/13/2016/07/IMG_0532-1180x885.jpg 1180w, https://ww2.kqed.org/app/uploads/sites/13/2016/07/IMG_0532-1920x1440.jpg 1920w, https://ww2.kqed.org/app/uploads/sites/13/2016/07/IMG_0532-960x720.jpg 960w\" sizes=\"(max-width: 800px) 100vw, 800px\">\u003cfigcaption class=\"wp-caption-text\">Leo Rosa uses and electronic talker to communicate that he wants a snack to his mom, Shannon Des Roches Rosa. \u003ccite>(Lesley McClurg/KQED)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>Shannon says she wasn't seeing any improvement in Leo's condition, but the doctor told her not to worry because the treatments were preparation for the final step, chelation, a detox therapy intended to remove heavy metals from the body.\u003c/p>\n\u003cp>But the Rosas were skeptical about the idea, after digging around on the internet and learning about potential dangers from the process. So they decided to draw the line on alternative treatments.\u003c/p>\n\u003cp>\u003cstrong>What Does Research Say?\u003cbr>\n\u003c/strong>\u003c/p>\n\u003cp>The Food and Drug Administration now \u003ca href=\"http://www.fda.gov/Drugs/ResourcesForYou/Consumers/BuyingUsingMedicineSafely/MedicationHealthFraud/ucm229313.htm\" target=\"_blank\">warns\u003c/a> that chelation products sold over the counter can lead to serious mineral deficiencies by stripping the body of crucial elements, which can \"cause serious harm, including dehydration, kidney failure, and death.\"\u003c/p>\n\u003cp>As for dietary changes and nutritional supplements, it's difficult to study them. Trials are often too short to track dietary changes adequately; blind studies are often challenging to conduct; and the research doesn’t offer the reward of a patent.\u003c/p>\n\u003cp>Dr. Hendren has led a handful of studies on popular options, including methyl B12, omega-3 fatty acids, and vitamin D, all of which he may prescribe based on slightly positive data and witnessing patient improvement in his practice. He's also reviewed the \u003ca href=\"http://www.hindawi.com/journals/aurt/2012/870391/\" target=\"_blank\">science\u003c/a> on more than 90 alternative therapies.\u003c/p>\n\u003cp>\"But I would caution people about saying, 'Well, if a little bit is good, then why don't you take a walloping dose and maybe that would be better,'\" Dr. Hendren says.\u003c/p>\n\u003cp>He's continuing to look at alternative treatments, including three current studies on pancreatic digestive enzymes; vasopressin (a neurohormone similar to oxytocin); and sulforaphane (concentrated broccoli extract).\u003c/p>\n\u003cp>The supplement with the most \u003ca href=\"http://link.springer.com/article/10.1007%2Fs10803-011-1418-3\" target=\"_blank\">evidence\u003c/a> to support its use is the natural hormone melatonin.\u003c/p>\n\u003cp>People with autism often struggle with insomnia and melatonin helps patients sleep better, which seems to improve their social interactions, says Dr. Hendren.\u003c/p>\n\u003cp>“Their eyes seemed clearer, their face or interactions seemed brighter,\" he says. \"They looked at me or at others as though they were just fully realizing that those people were there.”\u003c/p>\n\u003cp>\u003cstrong>What About Dietary Changes?\u003c/strong>\u003c/p>\n\u003cp>One of the most popular things parents try is eliminating gluten or casein from their child's diet. Gluten is found in wheat, barley and rye; casein is in dairy products.\u003c/p>\n\u003cp>Dr. Hendren says he doesn’t generally suggest special diets because there is insufficient evidence to demonstrate a clear benefit.\u003c/p>\n\u003cp>\"I would try and encourage people to stay within the range of things that have been studied and are within the range of things that are known and effective,\" says Hendren.\u003cb> \u003ci>\u003cbr>\n\u003c/i>\u003c/b>\u003c/p>\n\u003cp>If parents are interested in going gluten or dairy free, he suggests they work with a nutrition expert.\u003c/p>\n\u003cfigure id=\"attachment_199270\" class=\"wp-caption aligncenter\" style=\"max-width: 735px\">\u003cimg class=\"wp-image-199270 size-full\" src=\"http://ww2.kqed.org/futureofyou/wp-content/uploads/sites/13/2016/07/Leo-and-Shannon-e1467927955144.jpg\" alt=\"Leo and Shannon Rosa riding BART together. \" width=\"735\" height=\"575\" srcset=\"https://ww2.kqed.org/app/uploads/sites/13/2016/07/Leo-and-Shannon-e1467927955144.jpg 735w, https://ww2.kqed.org/app/uploads/sites/13/2016/07/Leo-and-Shannon-e1467927955144-400x313.jpg 400w\" sizes=\"(max-width: 735px) 100vw, 735px\">\u003cfigcaption class=\"wp-caption-text\">Leo and Shannon Rosa riding Muni together in San Francisco. \u003ccite>(Susan Etlinger/ KQED)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>Restricting Leo Rosa's diet was a costly experiment that turned into a nightmare, says his mother, Shannon.\u003c/p>\n\u003cp>\"He still ate, but he wasn’t happy about it,\" she says. \"He was such a little sad, hollowed-eyed Oliver Twist-looking dude at this time. It was so sad.\"\u003c/p>\n\u003cp>Shannon Des Roches Rosa is no longer experimenting with Leo’s diet. In fact, she says she'd like to go back to the moment Leo was diagnosed and give herself advice.\u003cstrong>\u003cem>\u003cbr>\n\u003c/em>\u003c/strong>\u003c/p>\n\u003cp>“Your son is a great kid,\" she says. \"He’s going to be okay. Don't think about trying to turn him into someone he isn’t.”\u003c/p>\n\u003cp>Shannon says the \u003cem>real\u003c/em> miracle cure is acceptance and love.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"ad","attributes":{"named":{"label":"floatright"},"numeric":["floatright"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>\u003cem>Editor's Note: This post has been updated to reflect that autism is a disorder, not a disease.\u003c/em>\u003c/p>\n\n\u003c/div>\u003c/p>","attributes":{"named":{},"numeric":[]}}],"link":"/futureofyou/198676/do-alternative-treatments-for-autism-work","authors":["11229"],"categories":["futureofyou_452","futureofyou_1","futureofyou_73"],"tags":["futureofyou_972","futureofyou_555","futureofyou_80","futureofyou_973"],"featImg":"futureofyou_198679","label":"futureofyou"}},"programsReducer":{"possible":{"id":"possible","title":"Possible","info":"Possible is hosted by entrepreneur Reid Hoffman and writer Aria Finger. Together in Possible, Hoffman and Finger lead enlightening discussions about building a brighter collective future. The show features interviews with visionary guests like Trevor Noah, Sam Altman and Janette Sadik-Khan. Possible paints an optimistic portrait of the world we can create through science, policy, business, art and our shared humanity. It asks: What if everything goes right for once? How can we get there? 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You can also visit the MindShift website for episodes and supplemental blog posts or tweet us \u003ca href=\"https://twitter.com/MindShiftKQED\">@MindShiftKQED\u003c/a> or visit us at \u003ca href=\"/mindshift\">MindShift.KQED.org\u003c/a>","imageSrc":"https://cdn.kqed.org/wp-content/uploads/2024/04/Mindshift-Podcast-Tile-703x703-1.jpg","imageAlt":"KQED MindShift: How We Will Learn","officialWebsiteLink":"/mindshift/","meta":{"site":"news","source":"kqed","order":"2"},"link":"/podcasts/mindshift","subscribe":{"apple":"https://podcasts.apple.com/us/podcast/mindshift-podcast/id1078765985","google":"https://podcasts.google.com/feed/aHR0cHM6Ly9mZWVkcy5tZWdhcGhvbmUuZm0vS1FJTkM1NzY0NjAwNDI5","npr":"https://www.npr.org/podcasts/464615685/mind-shift-podcast","stitcher":"https://www.stitcher.com/podcast/kqed/stories-teachers-share","spotify":"https://open.spotify.com/show/0MxSpNYZKNprFLCl7eEtyx"}},"morning-edition":{"id":"morning-edition","title":"Morning Edition","info":"\u003cem>Morning Edition\u003c/em> takes listeners around the country and the world with multi-faceted stories and commentaries every weekday. 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