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"title": "South Bay Lawmaker Slams Trump Admin’s $1.6 Million Hepatitis B Study in West Africa",
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"content": "\u003cp>A \u003ca href=\"https://www.kqed.org/news/tag/zoe-lofgren\">Bay Area lawmaker\u003c/a> slammed a Trump administration plan to conduct research on the Hepatitis B vaccine on infants in Guinea-Bissau, where nearly one in five adults lives with the virus.\u003c/p>\n\u003cp> The grant, awarded to a group of Danish scientists with ties to the anti-vaccine movement, will fund a five-year randomized control trial in the West African nation. According to the House Science, Space, and Technology Committee, 14,000 newborns will either receive the vaccine at birth or after a six-week delay to compare health outcomes.\u003c/p>\n\u003cp>South Bay Rep. Zoe Lofgren (D-San José) called the decision to approve the $1.6 million dollar study — which followed the Centers for Disease Control and Prevention rollback of newborn Hepatitis B vaccine recommendations last week — “deplorable” and a “new low.” \u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>In a statement released Friday, Lofgren alleged the study is being used to promote U.S. Health Secretary Robert F. Kennedy Jr.’s “anti-vaccine agenda.”\u003c/p>\n\u003cp>“To withhold a lifesaving vaccine from babies across the globe to promote your anti-vaccine agenda at home is deplorable,” Lofgren said. “How has it come to this? RFK Jr. must be stopped.”\u003c/p>\n\u003cp>Since 1991, the CDC recommended newborns receive the Hepatitis B vaccine within 24 hours of birth. \u003c/p>\n\u003cfigure id=\"attachment_11901022\" class=\"wp-caption aligncenter\" style=\"max-width: 1024px\">\u003ca href=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2022/01/GettyImages-1341705981.jpg\">\u003cimg loading=\"lazy\" decoding=\"async\" src=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2022/01/GettyImages-1341705981.jpg\" alt=\"\" width=\"1024\" height=\"683\" class=\"size-full wp-image-11901022\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2022/01/GettyImages-1341705981.jpg 1024w, https://cdn.kqed.org/wp-content/uploads/sites/10/2022/01/GettyImages-1341705981-800x534.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/10/2022/01/GettyImages-1341705981-1020x680.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/10/2022/01/GettyImages-1341705981-160x107.jpg 160w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\">\u003c/a>\u003cfigcaption class=\"wp-caption-text\">Rep. Zoe Lofgren (D-CA) speaks at a news conference at the U.S. Capitol on Sept. 21, 2021 in Washington, DC. \u003ccite>(Kevin Dietsch/Getty Images)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>In an email, U.S. Department of Health and Human Services spokesperson Emily G. Hilliard defended the award as an independent study designed to fill “evidence gaps” regarding the “broader health effects” of the vaccine. Hilliard noted that because Guinea-Bissau does not plan to officially introduce the birth dose until 2027, the infants not receiving the shot are still receiving the “current standard of care.”\u003c/p>\n\u003cp>Local medical experts, however, say the science behind the birth dose is already settled. Dr. Jake Scott, an infectious disease specialist at Stanford University, said waiting six weeks to vaccinate newborns in a region where Hepatitis B is common will lead to “preventable infections.”\u003c/p>\n\u003cp>According to Scott, infants infected at birth have about a 90% chance of developing chronic hepatitis, which can lead to liver failure and cancer. He said the administration is attempting to “manufacture doubt” to justify the recent rollbacks.[aside postID=news_12068383 hero='https://ww2.kqed.org/app/uploads/sites/10/2020/04/001_KQED_Oakland_HighlandHospital_041152020-1020x680.jpg']“They’re doing that to generate evidence for a policy they have already implemented,” Scott said. “It’s clearly going to cause far more harm than any benefits.”\u003c/p>\n\u003cp>Scott estimated that if the birth dose is successfully rolled back on a larger scale, it could lead to 1,400 additional chronic pediatric infections and nearly 500 preventable deaths annually.\u003c/p>\n\u003cp>According to background information from the House Science Committee staff, the research group did not apply for an award through a standard competitive process; instead, staff said Kennedy specifically sought out the researchers.\u003c/p>\n\u003cp>“The typical way of going about it is to put out a request for proposal … and fund the most rigorous study,” Arthur Reingold, a former professor of epidemiology at UC Berkeley and a former Chief of the Respiratory Diseases Branch at the CDC, said. “Obviously, that was not done in this case.”\u003c/p>\n\u003cp>Reingold added that without a detailed study protocol, it is impossible to know if the trial can actually measure the “broader health effects” HHS claims to be looking for. He warned that if a study lacks the statistical power to answer important questions, it is a “waste of money.”\u003c/p>\n\u003cp>The House Science Committee stated it is considering all oversight options, though staff noted their authority is currently limited by their status in the Minority.\u003c/p>\n\u003cp>\u003c/p>\n",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003cp>A \u003ca href=\"https://www.kqed.org/news/tag/zoe-lofgren\">Bay Area lawmaker\u003c/a> slammed a Trump administration plan to conduct research on the Hepatitis B vaccine on infants in Guinea-Bissau, where nearly one in five adults lives with the virus.\u003c/p>\n\u003cp> The grant, awarded to a group of Danish scientists with ties to the anti-vaccine movement, will fund a five-year randomized control trial in the West African nation. According to the House Science, Space, and Technology Committee, 14,000 newborns will either receive the vaccine at birth or after a six-week delay to compare health outcomes.\u003c/p>\n\u003cp>South Bay Rep. Zoe Lofgren (D-San José) called the decision to approve the $1.6 million dollar study — which followed the Centers for Disease Control and Prevention rollback of newborn Hepatitis B vaccine recommendations last week — “deplorable” and a “new low.” \u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>In a statement released Friday, Lofgren alleged the study is being used to promote U.S. Health Secretary Robert F. Kennedy Jr.’s “anti-vaccine agenda.”\u003c/p>\n\u003cp>“To withhold a lifesaving vaccine from babies across the globe to promote your anti-vaccine agenda at home is deplorable,” Lofgren said. “How has it come to this? RFK Jr. must be stopped.”\u003c/p>\n\u003cp>Since 1991, the CDC recommended newborns receive the Hepatitis B vaccine within 24 hours of birth. \u003c/p>\n\u003cfigure id=\"attachment_11901022\" class=\"wp-caption aligncenter\" style=\"max-width: 1024px\">\u003ca href=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2022/01/GettyImages-1341705981.jpg\">\u003cimg loading=\"lazy\" decoding=\"async\" src=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2022/01/GettyImages-1341705981.jpg\" alt=\"\" width=\"1024\" height=\"683\" class=\"size-full wp-image-11901022\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2022/01/GettyImages-1341705981.jpg 1024w, https://cdn.kqed.org/wp-content/uploads/sites/10/2022/01/GettyImages-1341705981-800x534.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/10/2022/01/GettyImages-1341705981-1020x680.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/10/2022/01/GettyImages-1341705981-160x107.jpg 160w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\">\u003c/a>\u003cfigcaption class=\"wp-caption-text\">Rep. Zoe Lofgren (D-CA) speaks at a news conference at the U.S. Capitol on Sept. 21, 2021 in Washington, DC. \u003ccite>(Kevin Dietsch/Getty Images)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>In an email, U.S. Department of Health and Human Services spokesperson Emily G. Hilliard defended the award as an independent study designed to fill “evidence gaps” regarding the “broader health effects” of the vaccine. Hilliard noted that because Guinea-Bissau does not plan to officially introduce the birth dose until 2027, the infants not receiving the shot are still receiving the “current standard of care.”\u003c/p>\n\u003cp>Local medical experts, however, say the science behind the birth dose is already settled. Dr. Jake Scott, an infectious disease specialist at Stanford University, said waiting six weeks to vaccinate newborns in a region where Hepatitis B is common will lead to “preventable infections.”\u003c/p>\n\u003cp>According to Scott, infants infected at birth have about a 90% chance of developing chronic hepatitis, which can lead to liver failure and cancer. He said the administration is attempting to “manufacture doubt” to justify the recent rollbacks.\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>“They’re doing that to generate evidence for a policy they have already implemented,” Scott said. “It’s clearly going to cause far more harm than any benefits.”\u003c/p>\n\u003cp>Scott estimated that if the birth dose is successfully rolled back on a larger scale, it could lead to 1,400 additional chronic pediatric infections and nearly 500 preventable deaths annually.\u003c/p>\n\u003cp>According to background information from the House Science Committee staff, the research group did not apply for an award through a standard competitive process; instead, staff said Kennedy specifically sought out the researchers.\u003c/p>\n\u003cp>“The typical way of going about it is to put out a request for proposal … and fund the most rigorous study,” Arthur Reingold, a former professor of epidemiology at UC Berkeley and a former Chief of the Respiratory Diseases Branch at the CDC, said. “Obviously, that was not done in this case.”\u003c/p>\n\u003cp>Reingold added that without a detailed study protocol, it is impossible to know if the trial can actually measure the “broader health effects” HHS claims to be looking for. He warned that if a study lacks the statistical power to answer important questions, it is a “waste of money.”\u003c/p>\n\u003cp>The House Science Committee stated it is considering all oversight options, though staff noted their authority is currently limited by their status in the Minority.\u003c/p>\n\u003cp>\u003c/p>\n\u003c/div>\u003c/p>",
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"title": "Alameda Health System to Lay Off Hundreds in January After Massive Federal Cuts",
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"content": "\u003cp>In anticipation of the Trump administration’s \u003ca href=\"https://www.kqed.org/news/12047647/trumps-health-law-spurs-big-medi-cal-changes-what-californians-need-to-know\">major cuts to Medicaid\u003c/a>, \u003ca href=\"https://www.kqed.org/healthnews\">the Alameda Health System\u003c/a>, which runs public hospitals and clinics throughout the East Bay, is planning to lay off nearly 300 people in January.\u003c/p>\n\u003cp>It’s one of many healthcare systems around the state and nation threatened as a result of significant expected losses in revenue from Medicaid, the nation’s insurance system for lower-income people, known as Medi-Cal in California. \u003c/p>\n\u003cp>However, some union employees of the health system have said layoff notices, which are expected on Jan. 6, are premature, as the financial impacts of the cuts have yet to be felt. \u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>“I think they’re bowing to pressures before those pressures have actually come into play,” Reilly Gardine, a clinical dietitian at Wilma Chan Highland Hospital Campus in Oakland, told KQED on Monday. “And I think they’re not being creative enough in figuring out alternative ways for funding.”\u003c/p>\n\u003cp>The health system, in an emailed statement to KQED, said it expects to lose “more than $100 million annually by 2030,” due to H.R. 1, the tax and spending bill President Donald Trump refers to as “Big” and “Beautiful.”\u003c/p>\n\u003cfigure id=\"attachment_11891411\" class=\"wp-caption aligncenter\" style=\"max-width: 1920px\">\u003ca href=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2021/10/RS51824_066_Oakland_HighlandHospitalBridgeProgram_10062021-qut-1.jpg\">\u003cimg loading=\"lazy\" decoding=\"async\" src=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2021/10/RS51824_066_Oakland_HighlandHospitalBridgeProgram_10062021-qut-1.jpg\" alt=\"\" width=\"1920\" height=\"1280\" class=\"size-full wp-image-11891411\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2021/10/RS51824_066_Oakland_HighlandHospitalBridgeProgram_10062021-qut-1.jpg 1920w, https://cdn.kqed.org/wp-content/uploads/sites/10/2021/10/RS51824_066_Oakland_HighlandHospitalBridgeProgram_10062021-qut-1-800x533.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/10/2021/10/RS51824_066_Oakland_HighlandHospitalBridgeProgram_10062021-qut-1-1020x680.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/10/2021/10/RS51824_066_Oakland_HighlandHospitalBridgeProgram_10062021-qut-1-160x107.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2021/10/RS51824_066_Oakland_HighlandHospitalBridgeProgram_10062021-qut-1-1536x1024.jpg 1536w\" sizes=\"auto, (max-width: 1920px) 100vw, 1920px\">\u003c/a>\u003cfigcaption class=\"wp-caption-text\">Dr. Monish Ullal speaks with patient Jay Flohr at Highland Hospital in Oakland on Oct. 6, 2021. \u003ccite>(Beth LaBerge/KQED)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>The total annual budget for AHS is roughly $1.4 billion, according to its budget documents. The system could face an additional potential $60 million in cuts annually in the coming years due to cuts to federal funding that allows states to pay hospitals who treat a large share of Medi-Cal patients, officials said. \u003c/p>\n\u003cp>“AHS projects that cash will run out by approximately August of 2026 without immediate action,” the statement said. “In order to be proactive and ensure that AHS can continue to provide a range of emergency and comprehensive care, AHS has made the painful decision to reduce some services, reduce its workforce, and eliminate certain programs.”\u003c/p>\n\u003cp>Veronica Palacios, an eligibility specialist, and a chapter leader with labor union SEIU 1021, said workers have not been given a clear reason why the cuts need to be made now. \u003c/p>\n\u003cp>“Because if it’s being done right now and it’s not necessarily needed at this point, it sounds like you’re purposely cutting services to the community. Why do that?” Palacios said.[aside postID=news_12067733 hero='https://cdn.kqed.org/wp-content/uploads/sites/10/2022/12/GettyImages-1262848052-1020x680.jpg']The cuts were initially planned to go out on Dec. 24, which Gardine called “insulting,” and which Palacios said sows chaos among workers when they should be spending time with family during the holidays. \u003c/p>\n\u003cp>In what appeared to be a response to pressure from union members, the health system said late Monday it would delay the notices until Jan. 6. \u003c/p>\n\u003cp>Palacios said the layoff notices will send workers into “damage-control” mode. \u003c/p>\n\u003cp>“How am I going to support my family, how am I going to survive? Can I get another job if this is happening with our health care system? Is this happening throughout the state of California?” she said, reflecting her colleagues’ concerns. “They’re stressed out, they’re worried, they’re afraid of what the what ifs.” \u003c/p>\n\u003cp>The health system said the 296 people it needs to lay off will be from “departments and disciplines across the system including management, support and administrative services, and clinical care,” and that those that are affected will have access to job search assistance and resume writing guidance. Some will receive severance packages. \u003c/p>\n\u003cp>“AHS leadership continues to pursue multiple strategies to restore funding and strengthen sustainability,” the agency’s statement said. “We are working in partnership with federal, state and county leaders to hopefully mitigate these adverse conditions.”\u003c/p>\n\u003cp>Gardine said before resorting to layoffs, executives at AHS should take pay cuts, and explore other options, such as ending leases at pricey office buildings in downtown and the Jack London areas of Oakland. The system should also consider hiring more permanent staff instead of relying on traveling contractors. \u003c/p>\n\u003cp>“The resources are there, the state of California is an incredibly wealthy state. So, the fact that we are cutting essential services for our most vulnerable communities is completely outrageous,” Gardine said. “I think we have a huge fight ahead and that I think there’s a lot of us who are ready to start fighting.” \u003c/p>\n\u003cp>\u003c/p>\n",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003cp>In anticipation of the Trump administration’s \u003ca href=\"https://www.kqed.org/news/12047647/trumps-health-law-spurs-big-medi-cal-changes-what-californians-need-to-know\">major cuts to Medicaid\u003c/a>, \u003ca href=\"https://www.kqed.org/healthnews\">the Alameda Health System\u003c/a>, which runs public hospitals and clinics throughout the East Bay, is planning to lay off nearly 300 people in January.\u003c/p>\n\u003cp>It’s one of many healthcare systems around the state and nation threatened as a result of significant expected losses in revenue from Medicaid, the nation’s insurance system for lower-income people, known as Medi-Cal in California. \u003c/p>\n\u003cp>However, some union employees of the health system have said layoff notices, which are expected on Jan. 6, are premature, as the financial impacts of the cuts have yet to be felt. \u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>“I think they’re bowing to pressures before those pressures have actually come into play,” Reilly Gardine, a clinical dietitian at Wilma Chan Highland Hospital Campus in Oakland, told KQED on Monday. “And I think they’re not being creative enough in figuring out alternative ways for funding.”\u003c/p>\n\u003cp>The health system, in an emailed statement to KQED, said it expects to lose “more than $100 million annually by 2030,” due to H.R. 1, the tax and spending bill President Donald Trump refers to as “Big” and “Beautiful.”\u003c/p>\n\u003cfigure id=\"attachment_11891411\" class=\"wp-caption aligncenter\" style=\"max-width: 1920px\">\u003ca href=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2021/10/RS51824_066_Oakland_HighlandHospitalBridgeProgram_10062021-qut-1.jpg\">\u003cimg loading=\"lazy\" decoding=\"async\" src=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2021/10/RS51824_066_Oakland_HighlandHospitalBridgeProgram_10062021-qut-1.jpg\" alt=\"\" width=\"1920\" height=\"1280\" class=\"size-full wp-image-11891411\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2021/10/RS51824_066_Oakland_HighlandHospitalBridgeProgram_10062021-qut-1.jpg 1920w, https://cdn.kqed.org/wp-content/uploads/sites/10/2021/10/RS51824_066_Oakland_HighlandHospitalBridgeProgram_10062021-qut-1-800x533.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/10/2021/10/RS51824_066_Oakland_HighlandHospitalBridgeProgram_10062021-qut-1-1020x680.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/10/2021/10/RS51824_066_Oakland_HighlandHospitalBridgeProgram_10062021-qut-1-160x107.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2021/10/RS51824_066_Oakland_HighlandHospitalBridgeProgram_10062021-qut-1-1536x1024.jpg 1536w\" sizes=\"auto, (max-width: 1920px) 100vw, 1920px\">\u003c/a>\u003cfigcaption class=\"wp-caption-text\">Dr. Monish Ullal speaks with patient Jay Flohr at Highland Hospital in Oakland on Oct. 6, 2021. \u003ccite>(Beth LaBerge/KQED)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>The total annual budget for AHS is roughly $1.4 billion, according to its budget documents. The system could face an additional potential $60 million in cuts annually in the coming years due to cuts to federal funding that allows states to pay hospitals who treat a large share of Medi-Cal patients, officials said. \u003c/p>\n\u003cp>“AHS projects that cash will run out by approximately August of 2026 without immediate action,” the statement said. “In order to be proactive and ensure that AHS can continue to provide a range of emergency and comprehensive care, AHS has made the painful decision to reduce some services, reduce its workforce, and eliminate certain programs.”\u003c/p>\n\u003cp>Veronica Palacios, an eligibility specialist, and a chapter leader with labor union SEIU 1021, said workers have not been given a clear reason why the cuts need to be made now. \u003c/p>\n\u003cp>“Because if it’s being done right now and it’s not necessarily needed at this point, it sounds like you’re purposely cutting services to the community. Why do that?” Palacios said.\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>The cuts were initially planned to go out on Dec. 24, which Gardine called “insulting,” and which Palacios said sows chaos among workers when they should be spending time with family during the holidays. \u003c/p>\n\u003cp>In what appeared to be a response to pressure from union members, the health system said late Monday it would delay the notices until Jan. 6. \u003c/p>\n\u003cp>Palacios said the layoff notices will send workers into “damage-control” mode. \u003c/p>\n\u003cp>“How am I going to support my family, how am I going to survive? Can I get another job if this is happening with our health care system? Is this happening throughout the state of California?” she said, reflecting her colleagues’ concerns. “They’re stressed out, they’re worried, they’re afraid of what the what ifs.” \u003c/p>\n\u003cp>The health system said the 296 people it needs to lay off will be from “departments and disciplines across the system including management, support and administrative services, and clinical care,” and that those that are affected will have access to job search assistance and resume writing guidance. Some will receive severance packages. \u003c/p>\n\u003cp>“AHS leadership continues to pursue multiple strategies to restore funding and strengthen sustainability,” the agency’s statement said. “We are working in partnership with federal, state and county leaders to hopefully mitigate these adverse conditions.”\u003c/p>\n\u003cp>Gardine said before resorting to layoffs, executives at AHS should take pay cuts, and explore other options, such as ending leases at pricey office buildings in downtown and the Jack London areas of Oakland. The system should also consider hiring more permanent staff instead of relying on traveling contractors. \u003c/p>\n\u003cp>“The resources are there, the state of California is an incredibly wealthy state. So, the fact that we are cutting essential services for our most vulnerable communities is completely outrageous,” Gardine said. “I think we have a huge fight ahead and that I think there’s a lot of us who are ready to start fighting.” \u003c/p>\n\u003cp>\u003c/p>\n\u003c/div>\u003c/p>",
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"content": "\u003cp>\u003ca href=\"https://www.kqed.org/news/tag/flu\">Flu\u003c/a> season is back in \u003ca href=\"https://www.kqed.org/news/tag/san-francisco\">San Francisco\u003c/a>.\u003c/p>\n\u003cp>According to data released Wednesday by the city’s Department of Public Health, the rate of tests positive for influenza reached 5% as of Dec. 6.\u003c/p>\n\u003cp>Though cases are still low overall, they are on the rise — and the state’s respiratory virus dashboard indicates hospitalizations are “expected to increase.” Dr. Farrell Tobolowsky, an infectious disease physician for the city’s Public Health Department, said the holidays are prime time for gathering with loved ones and sharing germs.\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>“We suspect that this is definitely a time where there will be risk of transmission. We also know that people gather with people from other parts of the country where flu activity may actually be higher than it is in California at this time,” Tobolowsky said.\u003c/p>\n\u003cp>Earlier this year, the state \u003ca href=\"https://www.kqed.org/news/12028312/californias-worst-flu-season-years-may-finally-easing\">recorded one of its worst flu seasons\u003c/a> on record. Early mild symptoms can include a fever, runny nose, cough, body aches, sore throat or fatigue. More severe symptoms include vomiting and diarrhea.\u003c/p>\n\u003cp>Historically, these seasonal upticks of the flu can last for weeks to months. According to Dr. Tobolowsky, cases are lower than they’ve been at this time of year in the past, meaning the winter flu season could simply be beginning later than expected.[aside postID=news_12027283 hero='https://cdn.kqed.org/wp-content/uploads/sites/10/2025/02/GettyImages-1720991107-1020x680.jpg']Older adults, infants and toddlers, and people with chronic medical conditions are most at-risk for complications associated with the illness.\u003c/p>\n\u003cp>SFDPH recommended the 2025-2026 shot for anyone over six months old who has not already received it. Experts usually suggest that \u003ca href=\"https://www.kqed.org/news/12027283/forgot-your-flu-vaccine-with-historic-infections-its-not-too-late-for-a-shot\">people get their shot in the fall,\u003c/a> ahead of the coming season’s peak. You can find \u003ca href=\"https://www.sf.gov/get-vaccinated-against-covid-19-flu-and-rsv\">access \u003c/a>to a vaccine here, and many local pharmacies accommodate walk-ins.\u003c/p>\n\u003cp>SFDPH also suggests the use of high-quality masks — especially if you’re sick — but also beneficial even when you’re not. KN95 masks have been proven to lower the risk of spreading respiratory illnesses, and all mask types are especially recommended in crowded indoor spaces.\u003c/p>\n\u003cp>And as usual, the SFDPH urges good hygiene practices such as washing your hands frequently with soap and water, and using alcohol-based hand sanitizers.\u003c/p>\n\u003cp>While sick, it’s important to stay home from school or work until symptoms resolve. Being fever-free for 24 hours without fever-reducing medication is a good indicator of when to return to ease back into your typical routine.\u003c/p>\n\u003cp>\u003c/p>\n",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003cp>\u003ca href=\"https://www.kqed.org/news/tag/flu\">Flu\u003c/a> season is back in \u003ca href=\"https://www.kqed.org/news/tag/san-francisco\">San Francisco\u003c/a>.\u003c/p>\n\u003cp>According to data released Wednesday by the city’s Department of Public Health, the rate of tests positive for influenza reached 5% as of Dec. 6.\u003c/p>\n\u003cp>Though cases are still low overall, they are on the rise — and the state’s respiratory virus dashboard indicates hospitalizations are “expected to increase.” Dr. Farrell Tobolowsky, an infectious disease physician for the city’s Public Health Department, said the holidays are prime time for gathering with loved ones and sharing germs.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>“We suspect that this is definitely a time where there will be risk of transmission. We also know that people gather with people from other parts of the country where flu activity may actually be higher than it is in California at this time,” Tobolowsky said.\u003c/p>\n\u003cp>Earlier this year, the state \u003ca href=\"https://www.kqed.org/news/12028312/californias-worst-flu-season-years-may-finally-easing\">recorded one of its worst flu seasons\u003c/a> on record. Early mild symptoms can include a fever, runny nose, cough, body aches, sore throat or fatigue. More severe symptoms include vomiting and diarrhea.\u003c/p>\n\u003cp>Historically, these seasonal upticks of the flu can last for weeks to months. According to Dr. Tobolowsky, cases are lower than they’ve been at this time of year in the past, meaning the winter flu season could simply be beginning later than expected.\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>Older adults, infants and toddlers, and people with chronic medical conditions are most at-risk for complications associated with the illness.\u003c/p>\n\u003cp>SFDPH recommended the 2025-2026 shot for anyone over six months old who has not already received it. Experts usually suggest that \u003ca href=\"https://www.kqed.org/news/12027283/forgot-your-flu-vaccine-with-historic-infections-its-not-too-late-for-a-shot\">people get their shot in the fall,\u003c/a> ahead of the coming season’s peak. You can find \u003ca href=\"https://www.sf.gov/get-vaccinated-against-covid-19-flu-and-rsv\">access \u003c/a>to a vaccine here, and many local pharmacies accommodate walk-ins.\u003c/p>\n\u003cp>SFDPH also suggests the use of high-quality masks — especially if you’re sick — but also beneficial even when you’re not. KN95 masks have been proven to lower the risk of spreading respiratory illnesses, and all mask types are especially recommended in crowded indoor spaces.\u003c/p>\n\u003cp>And as usual, the SFDPH urges good hygiene practices such as washing your hands frequently with soap and water, and using alcohol-based hand sanitizers.\u003c/p>\n\u003cp>While sick, it’s important to stay home from school or work until symptoms resolve. Being fever-free for 24 hours without fever-reducing medication is a good indicator of when to return to ease back into your typical routine.\u003c/p>\n\u003cp>\u003c/p>\n\u003c/div>\u003c/p>",
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"slug": "sutter-healths-trans-youth-care-hasnt-stopped-parents-say-but-trump-wants-a-ban",
"title": "Sutter Health’s Trans Youth Care Hasn’t Stopped, Parents Say, but Trump Wants a Ban",
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"headTitle": "Sutter Health’s Trans Youth Care Hasn’t Stopped, Parents Say, but Trump Wants a Ban | KQED",
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"content": "\u003cp>After families were informed last month that Sutter Health planned to join a growing list of health care providers \u003ca href=\"https://www.kqed.org/news/12065480/its-just-cruel-bay-area-parents-say-sutter-health-is-set-to-halt-trans-youth-care\">limiting gender-affirming care for minors\u003c/a>, some say the Northern California-based network is reversing course, despite mounting pressure from the federal government.\u003c/p>\n\u003cp>But the temporary reprieve is shaky, according to East Bay mother Nikki, whose 14-year-old son relies on a Sutter doctor for frequent, steady care. The Trump administration on Thursday announced funding restrictions that could effectively \u003ca href=\"https://www.npr.org/sections/shots-health-news/2025/12/18/nx-s1-5647789/transgender-gender-affirming-care-rfk-jr-dr-oz-trump\">halt all pediatric gender-affirming care\u003c/a>, and Nikki worries the move could push Sutter to backtrack — and make it nearly impossible to find a provider.\u003c/p>\n\u003cp>“I’m trying really hard to hold on to the victory of this last week and a half or so that this care has not stopped,” she told KQED. “But that unforeseeable future weighs heavily on my husband and I. We do our best to shelter our children, but this is the world intruding upon our lives and the government trying to make decisions for us.”\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>In November, Nikki, who asked to be identified by only her first name for fear of retribution against her and her son’s caregiver, was informed that his care would be discontinued just weeks later, on Dec. 10. Several other families with transgender children said their doctors had relayed similar messages.\u003c/p>\n\u003cp>But last week, according to Nikki, her son’s doctor said the hospital network appeared to reverse course and would no longer stop offering treatments on that date.\u003c/p>\n\u003cp>In a statement, Sutter said it was working to ensure compliance with recent federal actions affecting gender-affirming care for patients under 19.\u003c/p>\n\u003cfigure id=\"attachment_11980957\" class=\"wp-caption aligncenter\" style=\"max-width: 1920px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-11980957\" src=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2024/03/240208-HospitalViolence-11-BL_qut.jpg\" alt=\"\" width=\"1920\" height=\"1280\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2024/03/240208-HospitalViolence-11-BL_qut.jpg 1920w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/03/240208-HospitalViolence-11-BL_qut-800x533.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/03/240208-HospitalViolence-11-BL_qut-1020x680.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/03/240208-HospitalViolence-11-BL_qut-160x107.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/03/240208-HospitalViolence-11-BL_qut-1536x1024.jpg 1536w\" sizes=\"auto, (max-width: 1920px) 100vw, 1920px\">\u003cfigcaption class=\"wp-caption-text\">The Sutter Health CPMC Davies Campus in San Francisco on Feb. 8, 2024. \u003ccite>(Beth LaBerge/KQED)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>“Sutter-aligned physicians are engaging directly with their patients to have open and thoughtful conversations and to determine individual care plans that will meet anticipated requirements,” the nonprofit hospital network said, adding that gender-affirming surgeries for young patients had previously ceased. “We continue to support careful, patient-centered discussions with appropriate resources and guidance.”\u003c/p>\n\u003cp>Nikki said she’s still waiting for her son’s future appointments to be rescheduled after they were canceled last month, but she’s heard from other families that they’ve been able to get back on their caregivers’ calendars.\u003c/p>\n\u003cp>Still, she said, the last few weeks have been extremely nerve-wracking as she and other families awaited pending federal policy moves that would essentially ban gender-affirming care for youth, even in states where it’s legal.\u003c/p>\n\u003cp>That came Thursday morning, when Health Secretary Robert F. Kennedy Jr. and Medicaid Administrator Dr. Mehmet Oz announced two new rules.[aside postID=news_12065480 hero='https://cdn.kqed.org/wp-content/uploads/sites/10/2025/08/20250725_KaiserTransProtest_GC-1_qed.jpg']The first would prevent hospitals and doctors from receiving Medicaid reimbursements for gender-affirming care for children. Medicaid offers health coverage to millions of low-income Americans. The second would go further, blocking all funding from Medicaid and Medicare, which covers older people and those with disabilities, for medical centers that provide gender-affirming care to youth.\u003c/p>\n\u003cp>Hospitals rely heavily on Medicaid and Medicare funding to operate — combined, the two federal programs covered about 45% of spending on hospital care in 2023, \u003ca href=\"https://www.kff.org/health-costs/key-facts-about-hospitals/?entry=national-hospital-spending-spending-by-payer\">according to the health policy research organization KFF\u003c/a>.\u003c/p>\n\u003cp>The proposed rules have to go through a 60-day period during which the public can weigh in, and they are likely to face legal challenges; the American Civil Liberties Union has already said it plans to sue.\u003c/p>\n\u003cp>If they’re finalized, though, Nikki worries that it will become nearly impossible to find a doctor who offers the care her son needs.\u003c/p>\n\u003cp>“Then what am I going to do to find a physician? Who are those physicians?” Nikki asked.\u003c/p>\n\u003cp>That’s because other major networks have already moved to limit gender-affirming care in light of the Trump administration’s crackdown. In June, Stanford Medicine paused gender-affirming surgeries and stopped providing prescriptions for puberty blockers to young people, and Kaiser Permanente halted surgical care in July.\u003c/p>\n\u003cfigure id=\"attachment_12049926\" class=\"wp-caption aligncenter\" style=\"max-width: 2000px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-12049926\" src=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2025/07/20250725_KaiserTransProtest_GC-31_qed.jpg\" alt=\"\" width=\"2000\" height=\"1333\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2025/07/20250725_KaiserTransProtest_GC-31_qed.jpg 2000w, https://cdn.kqed.org/wp-content/uploads/sites/10/2025/07/20250725_KaiserTransProtest_GC-31_qed-160x107.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2025/07/20250725_KaiserTransProtest_GC-31_qed-1536x1024.jpg 1536w\" sizes=\"auto, (max-width: 2000px) 100vw, 2000px\">\u003cfigcaption class=\"wp-caption-text\">Calder Storm waves a transgender flag at a rally and vigil, honoring transgender patients affected by Kaiser’s decision to halt gender-affirming care to minors, outside of Kaiser Permanente on July 25, 2025. \u003ccite>(Gina Castro/KQED)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>Nikki called the president’s efforts to withhold funding from caregivers who provide gender affirming care “financial sabotage.”\u003c/p>\n\u003cp>“It’s terrifying,” she said. “It feels completely helpless and hopeless.”\u003c/p>\n\u003cp>She’s been searching for a new provider who doesn’t rely on federal funding since the initial word last month from her Sutter doctor, but she hasn’t found one yet. The threat that her son’s care could be stopped with just days or weeks of notice is especially worrisome, she said, because of how time sensitive it is.\u003c/p>\n\u003cp>He takes a weekly testosterone shot, which has to be picked up one dose at a time, and re-prescribed every six months, due to their insurance coverage.\u003c/p>\n\u003cp>Right now, he’s out of refills. He’s still within his normal dose cycle, Nikki said, but if he’s unable to get a new prescription within days and falls behind, the effects will be pretty immediately noticeable.\u003c/p>\n\u003cp>While she thinks he’ll be able to see his Sutter caregiver for a prescription this time, if that option goes away in the future, “I’m, for lack of a word, shit out of luck,” Nikki said.\u003c/p>\n\u003cp>\u003cem>KQED’s \u003c/em>\u003ca href=\"https://www.kqed.org/author/nnavarro\">\u003cem>Natalia Navarro\u003c/em>\u003c/a>\u003cem> contributed to this report.\u003c/em>\u003c/p>\n\u003cp>\u003c/p>\n",
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"excerpt": "While Bay Area families said Sutter Health reversed course on halting gender-affirming care for minors, the Trump administration on Thursday announced rules that could effectively ban it. ",
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"title": "Sutter Health’s Trans Youth Care Hasn’t Stopped, Parents Say, but Trump Wants a Ban | KQED",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003cp>After families were informed last month that Sutter Health planned to join a growing list of health care providers \u003ca href=\"https://www.kqed.org/news/12065480/its-just-cruel-bay-area-parents-say-sutter-health-is-set-to-halt-trans-youth-care\">limiting gender-affirming care for minors\u003c/a>, some say the Northern California-based network is reversing course, despite mounting pressure from the federal government.\u003c/p>\n\u003cp>But the temporary reprieve is shaky, according to East Bay mother Nikki, whose 14-year-old son relies on a Sutter doctor for frequent, steady care. The Trump administration on Thursday announced funding restrictions that could effectively \u003ca href=\"https://www.npr.org/sections/shots-health-news/2025/12/18/nx-s1-5647789/transgender-gender-affirming-care-rfk-jr-dr-oz-trump\">halt all pediatric gender-affirming care\u003c/a>, and Nikki worries the move could push Sutter to backtrack — and make it nearly impossible to find a provider.\u003c/p>\n\u003cp>“I’m trying really hard to hold on to the victory of this last week and a half or so that this care has not stopped,” she told KQED. “But that unforeseeable future weighs heavily on my husband and I. We do our best to shelter our children, but this is the world intruding upon our lives and the government trying to make decisions for us.”\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>In November, Nikki, who asked to be identified by only her first name for fear of retribution against her and her son’s caregiver, was informed that his care would be discontinued just weeks later, on Dec. 10. Several other families with transgender children said their doctors had relayed similar messages.\u003c/p>\n\u003cp>But last week, according to Nikki, her son’s doctor said the hospital network appeared to reverse course and would no longer stop offering treatments on that date.\u003c/p>\n\u003cp>In a statement, Sutter said it was working to ensure compliance with recent federal actions affecting gender-affirming care for patients under 19.\u003c/p>\n\u003cfigure id=\"attachment_11980957\" class=\"wp-caption aligncenter\" style=\"max-width: 1920px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-11980957\" src=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2024/03/240208-HospitalViolence-11-BL_qut.jpg\" alt=\"\" width=\"1920\" height=\"1280\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2024/03/240208-HospitalViolence-11-BL_qut.jpg 1920w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/03/240208-HospitalViolence-11-BL_qut-800x533.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/03/240208-HospitalViolence-11-BL_qut-1020x680.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/03/240208-HospitalViolence-11-BL_qut-160x107.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/03/240208-HospitalViolence-11-BL_qut-1536x1024.jpg 1536w\" sizes=\"auto, (max-width: 1920px) 100vw, 1920px\">\u003cfigcaption class=\"wp-caption-text\">The Sutter Health CPMC Davies Campus in San Francisco on Feb. 8, 2024. \u003ccite>(Beth LaBerge/KQED)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>“Sutter-aligned physicians are engaging directly with their patients to have open and thoughtful conversations and to determine individual care plans that will meet anticipated requirements,” the nonprofit hospital network said, adding that gender-affirming surgeries for young patients had previously ceased. “We continue to support careful, patient-centered discussions with appropriate resources and guidance.”\u003c/p>\n\u003cp>Nikki said she’s still waiting for her son’s future appointments to be rescheduled after they were canceled last month, but she’s heard from other families that they’ve been able to get back on their caregivers’ calendars.\u003c/p>\n\u003cp>Still, she said, the last few weeks have been extremely nerve-wracking as she and other families awaited pending federal policy moves that would essentially ban gender-affirming care for youth, even in states where it’s legal.\u003c/p>\n\u003cp>That came Thursday morning, when Health Secretary Robert F. Kennedy Jr. and Medicaid Administrator Dr. Mehmet Oz announced two new rules.\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>The first would prevent hospitals and doctors from receiving Medicaid reimbursements for gender-affirming care for children. Medicaid offers health coverage to millions of low-income Americans. The second would go further, blocking all funding from Medicaid and Medicare, which covers older people and those with disabilities, for medical centers that provide gender-affirming care to youth.\u003c/p>\n\u003cp>Hospitals rely heavily on Medicaid and Medicare funding to operate — combined, the two federal programs covered about 45% of spending on hospital care in 2023, \u003ca href=\"https://www.kff.org/health-costs/key-facts-about-hospitals/?entry=national-hospital-spending-spending-by-payer\">according to the health policy research organization KFF\u003c/a>.\u003c/p>\n\u003cp>The proposed rules have to go through a 60-day period during which the public can weigh in, and they are likely to face legal challenges; the American Civil Liberties Union has already said it plans to sue.\u003c/p>\n\u003cp>If they’re finalized, though, Nikki worries that it will become nearly impossible to find a doctor who offers the care her son needs.\u003c/p>\n\u003cp>“Then what am I going to do to find a physician? Who are those physicians?” Nikki asked.\u003c/p>\n\u003cp>That’s because other major networks have already moved to limit gender-affirming care in light of the Trump administration’s crackdown. In June, Stanford Medicine paused gender-affirming surgeries and stopped providing prescriptions for puberty blockers to young people, and Kaiser Permanente halted surgical care in July.\u003c/p>\n\u003cfigure id=\"attachment_12049926\" class=\"wp-caption aligncenter\" style=\"max-width: 2000px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-12049926\" src=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2025/07/20250725_KaiserTransProtest_GC-31_qed.jpg\" alt=\"\" width=\"2000\" height=\"1333\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2025/07/20250725_KaiserTransProtest_GC-31_qed.jpg 2000w, https://cdn.kqed.org/wp-content/uploads/sites/10/2025/07/20250725_KaiserTransProtest_GC-31_qed-160x107.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2025/07/20250725_KaiserTransProtest_GC-31_qed-1536x1024.jpg 1536w\" sizes=\"auto, (max-width: 2000px) 100vw, 2000px\">\u003cfigcaption class=\"wp-caption-text\">Calder Storm waves a transgender flag at a rally and vigil, honoring transgender patients affected by Kaiser’s decision to halt gender-affirming care to minors, outside of Kaiser Permanente on July 25, 2025. \u003ccite>(Gina Castro/KQED)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>Nikki called the president’s efforts to withhold funding from caregivers who provide gender affirming care “financial sabotage.”\u003c/p>\n\u003cp>“It’s terrifying,” she said. “It feels completely helpless and hopeless.”\u003c/p>\n\u003cp>She’s been searching for a new provider who doesn’t rely on federal funding since the initial word last month from her Sutter doctor, but she hasn’t found one yet. The threat that her son’s care could be stopped with just days or weeks of notice is especially worrisome, she said, because of how time sensitive it is.\u003c/p>\n\u003cp>He takes a weekly testosterone shot, which has to be picked up one dose at a time, and re-prescribed every six months, due to their insurance coverage.\u003c/p>\n\u003cp>Right now, he’s out of refills. He’s still within his normal dose cycle, Nikki said, but if he’s unable to get a new prescription within days and falls behind, the effects will be pretty immediately noticeable.\u003c/p>\n\u003cp>While she thinks he’ll be able to see his Sutter caregiver for a prescription this time, if that option goes away in the future, “I’m, for lack of a word, shit out of luck,” Nikki said.\u003c/p>\n\u003cp>\u003cem>KQED’s \u003c/em>\u003ca href=\"https://www.kqed.org/author/nnavarro\">\u003cem>Natalia Navarro\u003c/em>\u003c/a>\u003cem> contributed to this report.\u003c/em>\u003c/p>\n\u003cp>\u003c/p>\n\u003c/div>\u003c/p>",
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"title": "San Francisco Supervisor Calls for Changes at General Hospital After Killing of Social Worker",
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"content": "\u003cp>A \u003ca href=\"https://www.kqed.org/news/tag/san-francisco\">San Francisco\u003c/a> supervisor is calling for better security at San Francisco General Hospital after a patient there allegedly \u003ca href=\"https://www.kqed.org/news/12066248/stabbing-at-san-francisco-general-hospital-leaves-social-worker-in-critical-condition\">stabbed and killed a social worker\u003c/a>.\u003c/p>\n\u003cp>Supervisor Shamann Walton’s district includes the hospital, where 51-year-old Alberto Rangel was attacked Friday in the long-term HIV clinic. Wilfredo Tortolero Arriechi, 34, was arrested at the hospital and charged with murder by San Francisco prosecutors on Monday.\u003c/p>\n\u003cp>Rangel died Saturday.\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>Walton called the incident a “devastating tragedy” that never should have occurred. He said he’s asking the two city agencies responsible for hospital safety — the San Francisco Sheriff’s Office and Department of Public Health — for detailed information on current safety protocols for the hospital and what changes will happen after the stabbing.\u003c/p>\n\u003cp>“I am waiting to see what happens as a result of investigations in terms of what actually took place,” he said. “After we see the investigation … we have to come up with policies and the protocols that are going to protect employees.”\u003c/p>\n\u003cfigure id=\"attachment_11927447\" class=\"wp-caption aligncenter\" style=\"max-width: 1920px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"wp-image-11927447 size-full\" src=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2022/10/RS50006_047_SanFrancisco_JuneteenthKickoffRally_06172021-qut.jpg\" alt=\"A man in a suit with a blue tie speaks at a rally in front of a microphone.\" width=\"1920\" height=\"1278\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2022/10/RS50006_047_SanFrancisco_JuneteenthKickoffRally_06172021-qut.jpg 1920w, https://cdn.kqed.org/wp-content/uploads/sites/10/2022/10/RS50006_047_SanFrancisco_JuneteenthKickoffRally_06172021-qut-800x533.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/10/2022/10/RS50006_047_SanFrancisco_JuneteenthKickoffRally_06172021-qut-1020x679.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/10/2022/10/RS50006_047_SanFrancisco_JuneteenthKickoffRally_06172021-qut-160x107.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2022/10/RS50006_047_SanFrancisco_JuneteenthKickoffRally_06172021-qut-1536x1022.jpg 1536w\" sizes=\"auto, (max-width: 1920px) 100vw, 1920px\">\u003cfigcaption class=\"wp-caption-text\">District 10 Supervisor, Shamann Walton, at San Francisco City Hall on June 17, 2021. \u003ccite>(Beth LaBerge/KQED)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>Walton said those policies could include ensuring there are metal detectors and other security protocols to prevent people from getting inside the facility with a weapon. He noted that he’s heard complaints from hospital staff about safety issues at San Francisco General.\u003c/p>\n\u003cp>Sheriff’s officials said that Arreichi had threatened a doctor who works at the HIV clinic before the attack.\u003c/p>\n\u003cp>“I want to make sure that every single employee and every single city and county facility is protected regardless of what your position is or what your profession is,” Walton said. “Our responsibility is to protect everyone at the hospital. And that goes for the employees, patients, and everyone who comes through the door. So that’s my focus.”[aside postID=science_1996726 hero='https://cdn.kqed.org/wp-content/uploads/sites/35/2025/03/20250310_DANI-GOLOMB_DMB_00070-KQED-1020x680.jpg']In a statement, the Department of Public Health thanked the staff who “acted bravely” during the attack and said the entire community is mourning this “devastating loss.”\u003c/p>\n\u003cp>“This tragedy has deeply impacted our workforce. We have witnessed an extraordinary outpouring of love and kindness from staff, patients, and community members. Hundreds of people have come forward over the past several days to offer support, reflecting the profound impact our colleague had as a caregiver, friend, family member, and human being. Their dedication to serving others was evident in every aspect of their work, and they will be deeply missed,” the statement read.\u003c/p>\n\u003cp>Prosecutors charged Arriechi on Monday with one count of murder, with an allegation that he used a deadly weapon in the commission of the murder. He will be arraigned on Tuesday.\u003c/p>\n\u003cp>Investigators are asking for the public’s help — anyone with information can call the San Francisco Police Department Tip Line at 1-415-575-4444 or Text a Tip to TIP411 and begin the text message with SFPD.\u003c/p>\n\u003cp>\u003c/p>\n",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003cp>A \u003ca href=\"https://www.kqed.org/news/tag/san-francisco\">San Francisco\u003c/a> supervisor is calling for better security at San Francisco General Hospital after a patient there allegedly \u003ca href=\"https://www.kqed.org/news/12066248/stabbing-at-san-francisco-general-hospital-leaves-social-worker-in-critical-condition\">stabbed and killed a social worker\u003c/a>.\u003c/p>\n\u003cp>Supervisor Shamann Walton’s district includes the hospital, where 51-year-old Alberto Rangel was attacked Friday in the long-term HIV clinic. Wilfredo Tortolero Arriechi, 34, was arrested at the hospital and charged with murder by San Francisco prosecutors on Monday.\u003c/p>\n\u003cp>Rangel died Saturday.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>Walton called the incident a “devastating tragedy” that never should have occurred. He said he’s asking the two city agencies responsible for hospital safety — the San Francisco Sheriff’s Office and Department of Public Health — for detailed information on current safety protocols for the hospital and what changes will happen after the stabbing.\u003c/p>\n\u003cp>“I am waiting to see what happens as a result of investigations in terms of what actually took place,” he said. “After we see the investigation … we have to come up with policies and the protocols that are going to protect employees.”\u003c/p>\n\u003cfigure id=\"attachment_11927447\" class=\"wp-caption aligncenter\" style=\"max-width: 1920px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"wp-image-11927447 size-full\" src=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2022/10/RS50006_047_SanFrancisco_JuneteenthKickoffRally_06172021-qut.jpg\" alt=\"A man in a suit with a blue tie speaks at a rally in front of a microphone.\" width=\"1920\" height=\"1278\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2022/10/RS50006_047_SanFrancisco_JuneteenthKickoffRally_06172021-qut.jpg 1920w, https://cdn.kqed.org/wp-content/uploads/sites/10/2022/10/RS50006_047_SanFrancisco_JuneteenthKickoffRally_06172021-qut-800x533.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/10/2022/10/RS50006_047_SanFrancisco_JuneteenthKickoffRally_06172021-qut-1020x679.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/10/2022/10/RS50006_047_SanFrancisco_JuneteenthKickoffRally_06172021-qut-160x107.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2022/10/RS50006_047_SanFrancisco_JuneteenthKickoffRally_06172021-qut-1536x1022.jpg 1536w\" sizes=\"auto, (max-width: 1920px) 100vw, 1920px\">\u003cfigcaption class=\"wp-caption-text\">District 10 Supervisor, Shamann Walton, at San Francisco City Hall on June 17, 2021. \u003ccite>(Beth LaBerge/KQED)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>Walton said those policies could include ensuring there are metal detectors and other security protocols to prevent people from getting inside the facility with a weapon. He noted that he’s heard complaints from hospital staff about safety issues at San Francisco General.\u003c/p>\n\u003cp>Sheriff’s officials said that Arreichi had threatened a doctor who works at the HIV clinic before the attack.\u003c/p>\n\u003cp>“I want to make sure that every single employee and every single city and county facility is protected regardless of what your position is or what your profession is,” Walton said. “Our responsibility is to protect everyone at the hospital. And that goes for the employees, patients, and everyone who comes through the door. So that’s my focus.”\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>In a statement, the Department of Public Health thanked the staff who “acted bravely” during the attack and said the entire community is mourning this “devastating loss.”\u003c/p>\n\u003cp>“This tragedy has deeply impacted our workforce. We have witnessed an extraordinary outpouring of love and kindness from staff, patients, and community members. Hundreds of people have come forward over the past several days to offer support, reflecting the profound impact our colleague had as a caregiver, friend, family member, and human being. Their dedication to serving others was evident in every aspect of their work, and they will be deeply missed,” the statement read.\u003c/p>\n\u003cp>Prosecutors charged Arriechi on Monday with one count of murder, with an allegation that he used a deadly weapon in the commission of the murder. He will be arraigned on Tuesday.\u003c/p>\n\u003cp>Investigators are asking for the public’s help — anyone with information can call the San Francisco Police Department Tip Line at 1-415-575-4444 or Text a Tip to TIP411 and begin the text message with SFPD.\u003c/p>\n\u003cp>\u003c/p>\n\u003c/div>\u003c/p>",
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"title": "After Alice Wong’s Death, Her Friends Vow to Keep Fighting for Disability Justice",
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"content": "\u003cp>With a smile, Brittanie Hernandez-Wilson, 38, closes her eyes when she says her friend’s name. She pauses. A tear rolls down her cheek.\u003c/p>\n\u003cp>“There’s a real level of rage that I feel around Alice’s death,” she said.\u003c/p>\n\u003cp>It’s been \u003ca href=\"https://www.kqed.org/arts/13983848/alice-wong-disability-rights-activist-obituary\"> a month\u003c/a> since disability activist and author \u003ca href=\"https://www.kqed.org/forum/2010101912041/remembering-disability-activist-alice-wong\">Alice Wong\u003c/a> died in San Francisco. Since her passing, KQED has spoken with many of Wong’s friends and collaborators in the Bay Area to better understand what motivated her decades of organizing.\u003c/p>\n\u003cp>In her writings and public appearances, Wong spoke of the need for disabled people to advocate loudly for their health needs. This mission brought together a bold and effective network of advocates living with different disabilities. But now, folks are preparing for the biggest challenge yet: more than a trillion dollars in cuts to Medicaid and other social services in the coming decade, \u003ca href=\"https://www.kqed.org/news/12058930/medicaid-cuts-could-put-services-for-disabled-californians-at-risk\">slashing a lifeline\u003c/a> for disabled people nationwide.\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>“Alice fought like hell to exist in her body and mind every day,” said Hernandez-Wilson, who works for a nonprofit that advocates for domestic workers and caretakers. “There is a larger system at play that dictates if we are worthy enough of getting care.”\u003c/p>\n\u003cp>Raised in rural Minnesota, Hernandez-Wilson was the only student with a disability in her class and one of the few students of color in her entire school. “I was afraid that if I was labeled as a certain type of disabled person, I would be locked away in a classroom … that deep internalized ableism can really mess with your mind,” she said.\u003c/p>\n\u003cp>As an adult, she picked up \u003ca href=\"https://www.penguinrandomhouse.com/books/617802/disability-visibility-by-alice-wong/\">\u003cem>Disability Visibility: First-Person Stories from the Twenty-First Century\u003c/em>\u003c/a>, an anthology edited by Wong.\u003c/p>\n\u003cfigure id=\"attachment_12065500\" class=\"wp-caption aligncenter\" style=\"max-width: 2000px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-12065500\" src=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2025/11/251124-DISABILITYJUSTICELEADERS00424_TV-KQED.jpg\" alt=\"\" width=\"2000\" height=\"1333\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2025/11/251124-DISABILITYJUSTICELEADERS00424_TV-KQED.jpg 2000w, https://cdn.kqed.org/wp-content/uploads/sites/10/2025/11/251124-DISABILITYJUSTICELEADERS00424_TV-KQED-160x107.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2025/11/251124-DISABILITYJUSTICELEADERS00424_TV-KQED-1536x1024.jpg 1536w\" sizes=\"auto, (max-width: 2000px) 100vw, 2000px\">\u003cfigcaption class=\"wp-caption-text\">Sandy Ho, left, and Brittanie Hernandez-Wilson, right, hold hands at Lake Merritt in Oakland on Nov. 24, 2025. Hernandez-Wilson and Ho, who both worked closely with disability justice leader Alice Wong, are mourning their loss, yet continuing their fight for disability justice. \u003ccite>(Tâm Vũ/KQED)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>“It was the first time in my entire life that I really saw disabled people who looked like me embody self-love, embracing their body and mind,” she said. “It was like a hug from the universe.”\u003c/p>\n\u003cp>After Hernandez-Wilson moved to the Bay Area last year, Wong became her mentor and friend. They shared jokes, stories of old crushes and how each managed their health. Born with spinal muscular atrophy, Wong dealt with chronic health issues throughout her life. After a series of medical emergencies in 2022, she began communicating \u003ca href=\"https://www.kqed.org/perspectives/201601143471/alice-wong-i-still-have-a-voice-2\">through text-to-speech technology\u003c/a> and her family confirmed that her death was due to an infection.\u003c/p>\n\u003cp>“If the systems weren’t the way they are, many of our people would still be here,” said Hernandez-Wilson. But even after Wong’s passing, she said, a generation of activists mentored by her is ready to push forward a bolder vision of liberation for all disabled people.\u003c/p>\n\u003ch2>Centering the most marginalized\u003c/h2>\n\u003cp>Gifted with radiant charm and a disarming sense of humor, Wong, who was 51, built coalitions between different disabled communities. Cross-disability solidarity is \u003ca href=\"https://sinsinvalid.org/10-principles-of-disability-justice/\">a core principle of disability justice\u003c/a>, a framework developed over the last decade by queer and trans disabled activists of color in California.\u003c/p>\n\u003cp>In the 20th century, the primary objective for many disabled activists was securing equal employment, political participation and economic self-sufficiency — as outlined in the Americans with Disabilities Act of 1980.\u003c/p>\n\u003cfigure id=\"attachment_12065194\" class=\"wp-caption aligncenter\" style=\"max-width: 2000px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-12065194\" src=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2025/11/250813-DisabilityCulturalCenter-10_qed.jpg\" alt=\"\" width=\"2000\" height=\"1333\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2025/11/250813-DisabilityCulturalCenter-10_qed.jpg 2000w, https://cdn.kqed.org/wp-content/uploads/sites/10/2025/11/250813-DisabilityCulturalCenter-10_qed-160x107.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2025/11/250813-DisabilityCulturalCenter-10_qed-1536x1024.jpg 1536w\" sizes=\"auto, (max-width: 2000px) 100vw, 2000px\">\u003cfigcaption class=\"wp-caption-text\">Alice Wong, a disability rights activist and founder of the Disability Visibility Project, sits in the courtyard at the Disability Cultural Center on Aug. 13, 2025. \u003ccite>(Beth LaBerge/KQED)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>This organizing was rooted in the Bay Area: the independent living movement \u003ca href=\"https://www.kalw.org/news/2017-04-05/berkeley-disability-activists-took-cues-from-the-civil-rights-era-and-sparked-a-national-movement\">took off here in the 1970s\u003c/a>; activists in Berkeley created the state’s \u003ca href=\"https://www.pbs.org/wgbh/americanexperience/features/they-took-sledgehammers-sidewalks-heres-why-curb-cut-effect/\">first sidewalk curb cuts\u003c/a>; and in 1977, \u003ca href=\"https://www.kqed.org/arts/13966861/judith-heumann-disability-rights-uc-berkeley-center-independent-living\">more than 100 disabled protesters\u003c/a> occupied the San Francisco Federal Building to demand implementation of the rule that prohibited discrimination based on disability in federally funded programs.\u003c/p>\n\u003cp>Proponents of disability justice maintain that ableism affects everyone — particularly those living with disabilities — and call for a future free of all systems that oppress disabled people. This fight, Wong said in \u003ca href=\"https://www.buzzsprout.com/2003809/episodes/10799918-making-the-world-brighter-sassier-and-more-colorful-alice-wong-on-disability-justice\">a 2022 podcast\u003c/a>, “must center on the most marginalized.” Nowhere is this more necessary, she added, than in a post-COVID world.\u003c/p>\n\u003cp>While cities and states rushed to loosen pandemic restrictions, Wong pushed back and demanded hospitals — including her own care provider, UCSF — continue \u003ca href=\"https://disabilityvisibilityproject.com/2024/01/25/n95s4ucsf-call-to-action/\">requiring face masks\u003c/a> and expand \u003ca href=\"https://nursing.ucsf.edu/news/disability-and-health-care-conversation-activist-alice-wong\">research into treatments\u003c/a> for those living with long COVID.[aside postID=news_11984990 hero='https://cdn.kqed.org/wp-content/uploads/sites/10/2023/12/Featured-photo-horizontal-Alice-Wong-1020x574.png']That’s how she met Charlie McCone.\u003c/p>\n\u003cp>Before contracting COVID in 2020, McCone, 35, said he had never experienced a serious health problem before.\u003c/p>\n\u003cp>“When you go from biking 10 miles a day to work to being housebound indefinitely, losing your job and not having any answers from the medical system, it is absolutely devastating,” he said.\u003c/p>\n\u003cp>\u003ca href=\"https://www.kqed.org/news/tag/long-covid\">Long COVID\u003c/a> — a chronic condition that follows many coronavirus infections and still confounds researchers — permanently altered McCone’s life.\u003c/p>\n\u003cp>Searching for answers to his condition, he joined Twitter (now known as X). From his San Francisco home, he shared his experiences online, hoping more people would take long COVID seriously. But after two years, “I came to the realization that otherwise good and reasonable people are still completely unfazed by the fact that their next COVID infection could cause extreme harm to them or their family,” he said.\u003c/p>\n\u003cp>He started to feel rage at the injustices he saw.\u003c/p>\n\u003cp>“People disabled by this virus and those already disabled prior to the pandemic are being completely disregarded and considered disposable by the general public,” he said.\u003c/p>\n\u003ch2>Preparing for cuts\u003c/h2>\n\u003cp>While others recommended he temper his emotions online, Wong encouraged McCone to lean into them. They met in person for the first time in 2023 over tea and soon got to work: over the next year, their online network launched \u003ca href=\"https://disabilityvisibilityproject.com/2024/01/02/disabled-outrage-and-podsavejon/\">a massive social media campaign\u003c/a> to pressure federal lawmakers to address the needs of those with long COVID.\u003c/p>\n\u003cp>Their efforts would bear fruit in January 2024 when Sen. Bernie Sanders (I-Vermont) held the \u003ca href=\"https://www.npr.org/2024/01/20/1225862790/advocates-push-for-greater-investment-in-long-covid-research-at-senate-hearing\">first Congressional hearing\u003c/a> on long COVID. Patients and doctors testified and called for long-term investments in research. Democrats \u003ca href=\"https://www.kqed.org/news/12006894/bay-areas-long-covid-community-celebrates-moonshot-bill-for-10-billion-in-funding\">later proposed $10 billion\u003c/a> in funding for research, treatment and education.\u003c/p>\n\u003cfigure id=\"attachment_12052187\" class=\"wp-caption aligncenter\" style=\"max-width: 2000px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-12052187\" src=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2025/08/250813-DISABILITYCULTURALCENTER-05-KQED.jpg\" alt=\"\" width=\"2000\" height=\"1333\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2025/08/250813-DISABILITYCULTURALCENTER-05-KQED.jpg 2000w, https://cdn.kqed.org/wp-content/uploads/sites/10/2025/08/250813-DISABILITYCULTURALCENTER-05-KQED-160x107.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2025/08/250813-DISABILITYCULTURALCENTER-05-KQED-1536x1024.jpg 1536w\" sizes=\"auto, (max-width: 2000px) 100vw, 2000px\">\u003cfigcaption class=\"wp-caption-text\">(From left) Eli Gelardin, Director of the Mayor’s Office on Disability, speaks with Alice Wong, a disability rights activist, and Debbie Kaplan, Deputy Director of Programmatic Access, at the Disability Cultural Center on Aug. 13, 2025. \u003ccite>(Beth LaBerge/KQED)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>“Alice could make incredibly meaningful change through media,” McCone said, adding that folks living with long COVID need to keep sharing their stories — now more than ever.\u003c/p>\n\u003cp>Legislation to fund long COVID research has stalled since Republicans took control of Congress, but the Trump administration is moving quickly to implement \u003ca href=\"https://www.kqed.org/science/1997707/how-will-trumps-mega-bill-impact-health-care-in-california\">major health care reforms\u003c/a> outlined in the sweeping legislation known as the One Big Beautiful Bill.\u003c/p>\n\u003cp>The bill establishes \u003ca href=\"https://www.kqed.org/news/12047647/trumps-health-law-spurs-big-medi-cal-changes-what-californians-need-to-know\">new eligibility rules for Medi-Cal\u003c/a>, the state’s Medicaid program that covers over 15 million low-income Californians. State health officials predict that up to 3.4 million Medi-Cal recipients could lose their coverage in the coming years under new rules that include more frequent eligibility screenings and work requirements for certain groups. While the White House \u003ca href=\"https://www.whitehouse.gov/articles/2025/06/myth-vs-fact-the-one-big-beautiful-bill/\">insists\u003c/a> that the bill will not take coverage away from Americans with disabilities, \u003ca href=\"https://www.kqed.org/news/12058930/medicaid-cuts-could-put-services-for-disabled-californians-at-risk\">independent policy experts note\u003c/a> that California will lose matching federal funds as residents lose their Medi-Cal coverage.\u003c/p>\n\u003cp>State lawmakers could respond by \u003ca href=\"https://www.healthaffairs.org/content/forefront/history-repeats-faced-medicaid-cuts-states-reduced-support-older-adults-and-disabled\">cutting home and community-based services\u003c/a>, which allow people with disabilities to receive treatment, care and job training in their own communities rather than in institutions like nursing homes.\u003c/p>\n\u003cp>“If you really want people with disabilities to get jobs, then you don’t cut the health care that allows people to stay well enough to work,” said Silvia Yee, public policy director at the Berkeley-based Disability Rights Education and Defense Fund. “You don’t cut the services that help people with disabilities navigate hiring and settling into a job.”\u003c/p>\n\u003cp>Besides Medicaid changes, Yee noted that the One Big Beautiful Bill also failed to extend subsidies for people who bought health insurance through Affordable Care Act marketplaces like Covered California. Many people with a disability or chronic illness have an ACA insurance plan and will have to pay more to receive necessary care.\u003c/p>\n\u003cp>“These all seem like different cuts, but they affect the same pool of people,” Yee said. “All of this together makes it incredibly hard for people with disabilities to participate and live as part of the community.”\u003c/p>\n\u003ch2>‘The weight of carrying out disability justice’\u003c/h2>\n\u003cp>The future can quite often feel precarious when you’re disabled, said Sandy Ho, one of Wong’s closest friends and executive director of the Disability and Philanthropy Forum. Ho, originally from Boston, met Wong 15 years ago online. They didn’t meet in person until Ho moved to Oakland, but the bond of their friendship endured.\u003c/p>\n\u003cp>“There are always forces trying to take away our health care, and Alice understood that on a level that emboldened her to just say, ‘F— it all, either you’re with me, or you’re not,’” said Ho, who Wong tasked with carrying forward some of her unfinished projects, including her next book.\u003c/p>\n\u003cfigure id=\"attachment_12065498\" class=\"wp-caption aligncenter\" style=\"max-width: 2000px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-12065498\" src=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2025/11/251124-DISABILITYJUSTICELEADERS00080_TV-KQED.jpg\" alt=\"\" width=\"2000\" height=\"1333\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2025/11/251124-DISABILITYJUSTICELEADERS00080_TV-KQED.jpg 2000w, https://cdn.kqed.org/wp-content/uploads/sites/10/2025/11/251124-DISABILITYJUSTICELEADERS00080_TV-KQED-160x107.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2025/11/251124-DISABILITYJUSTICELEADERS00080_TV-KQED-1536x1024.jpg 1536w\" sizes=\"auto, (max-width: 2000px) 100vw, 2000px\">\u003cfigcaption class=\"wp-caption-text\">Sandy Ho, a disability justice activist, poses for a portrait at Lake Merritt in Oakland on Nov. 24, 2025. Ho worked closely with Alice Wong, a disability justice leader who died in November. \u003ccite>(Tâm Vũ/KQED)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>“So many of us got to witness her life and be a part of it on so many different levels,” she said, adding that Wong loved organizing dinner parties for her friends, bringing together artists, organizers, researchers and health care workers. “She is our future — the future looks like getting fed really well because disabled people deserve delicious things. Disabled people deserve joy, to have fun and create.”\u003c/p>\n\u003cp>This year also saw the death of another leader in the disabled community: Patty Berne — co-founder of the Bay Area-based performance group \u003ca href=\"https://sinsinvalid.org/about-sins/\">Sins Invalid\u003c/a> and one of the minds behind the disability justice framework — \u003ca href=\"https://19thnews.org/2025/08/patty-berne-obituary-disability-justice-movement/\">died last May in Berkeley\u003c/a>.\u003c/p>\n\u003cp>“One of the things that I have unfortunately experienced a lot in the disability community is grief,” said Rosemary McDonnell-Horita, a Berkeley-based writer who was a friend to Wong and Berne. “The depths of love also come with the depths of grief.”\u003c/p>\n\u003cp>Campaigns both online and in Sacramento \u003ca href=\"https://dredf.org/oppose-cuts-to-medi-cal/\">are already underway\u003c/a> to protect Medi-Cal funding that serves disabled Californians. Other friends of Wong are \u003ca href=\"https://llps.substack.com/p/alice-wong-was-crips-for-esims-for\">continuing her call\u003c/a> to help provide disabled Palestinians in Gaza with cellular data. And McDonnell-Horita plans to keep working on a project that Wong loudly cheered: a cookbook for disabled people by disabled people.\u003c/p>\n\u003cp>“We all now bear the weight of carrying out disability justice to the best of our ability,” she said.\u003c/p>\n\u003cp>[ad floatright]\u003c/p>\n",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003cp>With a smile, Brittanie Hernandez-Wilson, 38, closes her eyes when she says her friend’s name. She pauses. A tear rolls down her cheek.\u003c/p>\n\u003cp>“There’s a real level of rage that I feel around Alice’s death,” she said.\u003c/p>\n\u003cp>It’s been \u003ca href=\"https://www.kqed.org/arts/13983848/alice-wong-disability-rights-activist-obituary\"> a month\u003c/a> since disability activist and author \u003ca href=\"https://www.kqed.org/forum/2010101912041/remembering-disability-activist-alice-wong\">Alice Wong\u003c/a> died in San Francisco. Since her passing, KQED has spoken with many of Wong’s friends and collaborators in the Bay Area to better understand what motivated her decades of organizing.\u003c/p>\n\u003cp>In her writings and public appearances, Wong spoke of the need for disabled people to advocate loudly for their health needs. This mission brought together a bold and effective network of advocates living with different disabilities. But now, folks are preparing for the biggest challenge yet: more than a trillion dollars in cuts to Medicaid and other social services in the coming decade, \u003ca href=\"https://www.kqed.org/news/12058930/medicaid-cuts-could-put-services-for-disabled-californians-at-risk\">slashing a lifeline\u003c/a> for disabled people nationwide.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>“Alice fought like hell to exist in her body and mind every day,” said Hernandez-Wilson, who works for a nonprofit that advocates for domestic workers and caretakers. “There is a larger system at play that dictates if we are worthy enough of getting care.”\u003c/p>\n\u003cp>Raised in rural Minnesota, Hernandez-Wilson was the only student with a disability in her class and one of the few students of color in her entire school. “I was afraid that if I was labeled as a certain type of disabled person, I would be locked away in a classroom … that deep internalized ableism can really mess with your mind,” she said.\u003c/p>\n\u003cp>As an adult, she picked up \u003ca href=\"https://www.penguinrandomhouse.com/books/617802/disability-visibility-by-alice-wong/\">\u003cem>Disability Visibility: First-Person Stories from the Twenty-First Century\u003c/em>\u003c/a>, an anthology edited by Wong.\u003c/p>\n\u003cfigure id=\"attachment_12065500\" class=\"wp-caption aligncenter\" style=\"max-width: 2000px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-12065500\" src=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2025/11/251124-DISABILITYJUSTICELEADERS00424_TV-KQED.jpg\" alt=\"\" width=\"2000\" height=\"1333\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2025/11/251124-DISABILITYJUSTICELEADERS00424_TV-KQED.jpg 2000w, https://cdn.kqed.org/wp-content/uploads/sites/10/2025/11/251124-DISABILITYJUSTICELEADERS00424_TV-KQED-160x107.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2025/11/251124-DISABILITYJUSTICELEADERS00424_TV-KQED-1536x1024.jpg 1536w\" sizes=\"auto, (max-width: 2000px) 100vw, 2000px\">\u003cfigcaption class=\"wp-caption-text\">Sandy Ho, left, and Brittanie Hernandez-Wilson, right, hold hands at Lake Merritt in Oakland on Nov. 24, 2025. Hernandez-Wilson and Ho, who both worked closely with disability justice leader Alice Wong, are mourning their loss, yet continuing their fight for disability justice. \u003ccite>(Tâm Vũ/KQED)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>“It was the first time in my entire life that I really saw disabled people who looked like me embody self-love, embracing their body and mind,” she said. “It was like a hug from the universe.”\u003c/p>\n\u003cp>After Hernandez-Wilson moved to the Bay Area last year, Wong became her mentor and friend. They shared jokes, stories of old crushes and how each managed their health. Born with spinal muscular atrophy, Wong dealt with chronic health issues throughout her life. After a series of medical emergencies in 2022, she began communicating \u003ca href=\"https://www.kqed.org/perspectives/201601143471/alice-wong-i-still-have-a-voice-2\">through text-to-speech technology\u003c/a> and her family confirmed that her death was due to an infection.\u003c/p>\n\u003cp>“If the systems weren’t the way they are, many of our people would still be here,” said Hernandez-Wilson. But even after Wong’s passing, she said, a generation of activists mentored by her is ready to push forward a bolder vision of liberation for all disabled people.\u003c/p>\n\u003ch2>Centering the most marginalized\u003c/h2>\n\u003cp>Gifted with radiant charm and a disarming sense of humor, Wong, who was 51, built coalitions between different disabled communities. Cross-disability solidarity is \u003ca href=\"https://sinsinvalid.org/10-principles-of-disability-justice/\">a core principle of disability justice\u003c/a>, a framework developed over the last decade by queer and trans disabled activists of color in California.\u003c/p>\n\u003cp>In the 20th century, the primary objective for many disabled activists was securing equal employment, political participation and economic self-sufficiency — as outlined in the Americans with Disabilities Act of 1980.\u003c/p>\n\u003cfigure id=\"attachment_12065194\" class=\"wp-caption aligncenter\" style=\"max-width: 2000px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-12065194\" src=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2025/11/250813-DisabilityCulturalCenter-10_qed.jpg\" alt=\"\" width=\"2000\" height=\"1333\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2025/11/250813-DisabilityCulturalCenter-10_qed.jpg 2000w, https://cdn.kqed.org/wp-content/uploads/sites/10/2025/11/250813-DisabilityCulturalCenter-10_qed-160x107.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2025/11/250813-DisabilityCulturalCenter-10_qed-1536x1024.jpg 1536w\" sizes=\"auto, (max-width: 2000px) 100vw, 2000px\">\u003cfigcaption class=\"wp-caption-text\">Alice Wong, a disability rights activist and founder of the Disability Visibility Project, sits in the courtyard at the Disability Cultural Center on Aug. 13, 2025. \u003ccite>(Beth LaBerge/KQED)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>This organizing was rooted in the Bay Area: the independent living movement \u003ca href=\"https://www.kalw.org/news/2017-04-05/berkeley-disability-activists-took-cues-from-the-civil-rights-era-and-sparked-a-national-movement\">took off here in the 1970s\u003c/a>; activists in Berkeley created the state’s \u003ca href=\"https://www.pbs.org/wgbh/americanexperience/features/they-took-sledgehammers-sidewalks-heres-why-curb-cut-effect/\">first sidewalk curb cuts\u003c/a>; and in 1977, \u003ca href=\"https://www.kqed.org/arts/13966861/judith-heumann-disability-rights-uc-berkeley-center-independent-living\">more than 100 disabled protesters\u003c/a> occupied the San Francisco Federal Building to demand implementation of the rule that prohibited discrimination based on disability in federally funded programs.\u003c/p>\n\u003cp>Proponents of disability justice maintain that ableism affects everyone — particularly those living with disabilities — and call for a future free of all systems that oppress disabled people. This fight, Wong said in \u003ca href=\"https://www.buzzsprout.com/2003809/episodes/10799918-making-the-world-brighter-sassier-and-more-colorful-alice-wong-on-disability-justice\">a 2022 podcast\u003c/a>, “must center on the most marginalized.” Nowhere is this more necessary, she added, than in a post-COVID world.\u003c/p>\n\u003cp>While cities and states rushed to loosen pandemic restrictions, Wong pushed back and demanded hospitals — including her own care provider, UCSF — continue \u003ca href=\"https://disabilityvisibilityproject.com/2024/01/25/n95s4ucsf-call-to-action/\">requiring face masks\u003c/a> and expand \u003ca href=\"https://nursing.ucsf.edu/news/disability-and-health-care-conversation-activist-alice-wong\">research into treatments\u003c/a> for those living with long COVID.\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>That’s how she met Charlie McCone.\u003c/p>\n\u003cp>Before contracting COVID in 2020, McCone, 35, said he had never experienced a serious health problem before.\u003c/p>\n\u003cp>“When you go from biking 10 miles a day to work to being housebound indefinitely, losing your job and not having any answers from the medical system, it is absolutely devastating,” he said.\u003c/p>\n\u003cp>\u003ca href=\"https://www.kqed.org/news/tag/long-covid\">Long COVID\u003c/a> — a chronic condition that follows many coronavirus infections and still confounds researchers — permanently altered McCone’s life.\u003c/p>\n\u003cp>Searching for answers to his condition, he joined Twitter (now known as X). From his San Francisco home, he shared his experiences online, hoping more people would take long COVID seriously. But after two years, “I came to the realization that otherwise good and reasonable people are still completely unfazed by the fact that their next COVID infection could cause extreme harm to them or their family,” he said.\u003c/p>\n\u003cp>He started to feel rage at the injustices he saw.\u003c/p>\n\u003cp>“People disabled by this virus and those already disabled prior to the pandemic are being completely disregarded and considered disposable by the general public,” he said.\u003c/p>\n\u003ch2>Preparing for cuts\u003c/h2>\n\u003cp>While others recommended he temper his emotions online, Wong encouraged McCone to lean into them. They met in person for the first time in 2023 over tea and soon got to work: over the next year, their online network launched \u003ca href=\"https://disabilityvisibilityproject.com/2024/01/02/disabled-outrage-and-podsavejon/\">a massive social media campaign\u003c/a> to pressure federal lawmakers to address the needs of those with long COVID.\u003c/p>\n\u003cp>Their efforts would bear fruit in January 2024 when Sen. Bernie Sanders (I-Vermont) held the \u003ca href=\"https://www.npr.org/2024/01/20/1225862790/advocates-push-for-greater-investment-in-long-covid-research-at-senate-hearing\">first Congressional hearing\u003c/a> on long COVID. Patients and doctors testified and called for long-term investments in research. Democrats \u003ca href=\"https://www.kqed.org/news/12006894/bay-areas-long-covid-community-celebrates-moonshot-bill-for-10-billion-in-funding\">later proposed $10 billion\u003c/a> in funding for research, treatment and education.\u003c/p>\n\u003cfigure id=\"attachment_12052187\" class=\"wp-caption aligncenter\" style=\"max-width: 2000px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-12052187\" src=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2025/08/250813-DISABILITYCULTURALCENTER-05-KQED.jpg\" alt=\"\" width=\"2000\" height=\"1333\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2025/08/250813-DISABILITYCULTURALCENTER-05-KQED.jpg 2000w, https://cdn.kqed.org/wp-content/uploads/sites/10/2025/08/250813-DISABILITYCULTURALCENTER-05-KQED-160x107.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2025/08/250813-DISABILITYCULTURALCENTER-05-KQED-1536x1024.jpg 1536w\" sizes=\"auto, (max-width: 2000px) 100vw, 2000px\">\u003cfigcaption class=\"wp-caption-text\">(From left) Eli Gelardin, Director of the Mayor’s Office on Disability, speaks with Alice Wong, a disability rights activist, and Debbie Kaplan, Deputy Director of Programmatic Access, at the Disability Cultural Center on Aug. 13, 2025. \u003ccite>(Beth LaBerge/KQED)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>“Alice could make incredibly meaningful change through media,” McCone said, adding that folks living with long COVID need to keep sharing their stories — now more than ever.\u003c/p>\n\u003cp>Legislation to fund long COVID research has stalled since Republicans took control of Congress, but the Trump administration is moving quickly to implement \u003ca href=\"https://www.kqed.org/science/1997707/how-will-trumps-mega-bill-impact-health-care-in-california\">major health care reforms\u003c/a> outlined in the sweeping legislation known as the One Big Beautiful Bill.\u003c/p>\n\u003cp>The bill establishes \u003ca href=\"https://www.kqed.org/news/12047647/trumps-health-law-spurs-big-medi-cal-changes-what-californians-need-to-know\">new eligibility rules for Medi-Cal\u003c/a>, the state’s Medicaid program that covers over 15 million low-income Californians. State health officials predict that up to 3.4 million Medi-Cal recipients could lose their coverage in the coming years under new rules that include more frequent eligibility screenings and work requirements for certain groups. While the White House \u003ca href=\"https://www.whitehouse.gov/articles/2025/06/myth-vs-fact-the-one-big-beautiful-bill/\">insists\u003c/a> that the bill will not take coverage away from Americans with disabilities, \u003ca href=\"https://www.kqed.org/news/12058930/medicaid-cuts-could-put-services-for-disabled-californians-at-risk\">independent policy experts note\u003c/a> that California will lose matching federal funds as residents lose their Medi-Cal coverage.\u003c/p>\n\u003cp>State lawmakers could respond by \u003ca href=\"https://www.healthaffairs.org/content/forefront/history-repeats-faced-medicaid-cuts-states-reduced-support-older-adults-and-disabled\">cutting home and community-based services\u003c/a>, which allow people with disabilities to receive treatment, care and job training in their own communities rather than in institutions like nursing homes.\u003c/p>\n\u003cp>“If you really want people with disabilities to get jobs, then you don’t cut the health care that allows people to stay well enough to work,” said Silvia Yee, public policy director at the Berkeley-based Disability Rights Education and Defense Fund. “You don’t cut the services that help people with disabilities navigate hiring and settling into a job.”\u003c/p>\n\u003cp>Besides Medicaid changes, Yee noted that the One Big Beautiful Bill also failed to extend subsidies for people who bought health insurance through Affordable Care Act marketplaces like Covered California. Many people with a disability or chronic illness have an ACA insurance plan and will have to pay more to receive necessary care.\u003c/p>\n\u003cp>“These all seem like different cuts, but they affect the same pool of people,” Yee said. “All of this together makes it incredibly hard for people with disabilities to participate and live as part of the community.”\u003c/p>\n\u003ch2>‘The weight of carrying out disability justice’\u003c/h2>\n\u003cp>The future can quite often feel precarious when you’re disabled, said Sandy Ho, one of Wong’s closest friends and executive director of the Disability and Philanthropy Forum. Ho, originally from Boston, met Wong 15 years ago online. They didn’t meet in person until Ho moved to Oakland, but the bond of their friendship endured.\u003c/p>\n\u003cp>“There are always forces trying to take away our health care, and Alice understood that on a level that emboldened her to just say, ‘F— it all, either you’re with me, or you’re not,’” said Ho, who Wong tasked with carrying forward some of her unfinished projects, including her next book.\u003c/p>\n\u003cfigure id=\"attachment_12065498\" class=\"wp-caption aligncenter\" style=\"max-width: 2000px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-12065498\" src=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2025/11/251124-DISABILITYJUSTICELEADERS00080_TV-KQED.jpg\" alt=\"\" width=\"2000\" height=\"1333\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2025/11/251124-DISABILITYJUSTICELEADERS00080_TV-KQED.jpg 2000w, https://cdn.kqed.org/wp-content/uploads/sites/10/2025/11/251124-DISABILITYJUSTICELEADERS00080_TV-KQED-160x107.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2025/11/251124-DISABILITYJUSTICELEADERS00080_TV-KQED-1536x1024.jpg 1536w\" sizes=\"auto, (max-width: 2000px) 100vw, 2000px\">\u003cfigcaption class=\"wp-caption-text\">Sandy Ho, a disability justice activist, poses for a portrait at Lake Merritt in Oakland on Nov. 24, 2025. Ho worked closely with Alice Wong, a disability justice leader who died in November. \u003ccite>(Tâm Vũ/KQED)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>“So many of us got to witness her life and be a part of it on so many different levels,” she said, adding that Wong loved organizing dinner parties for her friends, bringing together artists, organizers, researchers and health care workers. “She is our future — the future looks like getting fed really well because disabled people deserve delicious things. Disabled people deserve joy, to have fun and create.”\u003c/p>\n\u003cp>This year also saw the death of another leader in the disabled community: Patty Berne — co-founder of the Bay Area-based performance group \u003ca href=\"https://sinsinvalid.org/about-sins/\">Sins Invalid\u003c/a> and one of the minds behind the disability justice framework — \u003ca href=\"https://19thnews.org/2025/08/patty-berne-obituary-disability-justice-movement/\">died last May in Berkeley\u003c/a>.\u003c/p>\n\u003cp>“One of the things that I have unfortunately experienced a lot in the disability community is grief,” said Rosemary McDonnell-Horita, a Berkeley-based writer who was a friend to Wong and Berne. “The depths of love also come with the depths of grief.”\u003c/p>\n\u003cp>Campaigns both online and in Sacramento \u003ca href=\"https://dredf.org/oppose-cuts-to-medi-cal/\">are already underway\u003c/a> to protect Medi-Cal funding that serves disabled Californians. Other friends of Wong are \u003ca href=\"https://llps.substack.com/p/alice-wong-was-crips-for-esims-for\">continuing her call\u003c/a> to help provide disabled Palestinians in Gaza with cellular data. And McDonnell-Horita plans to keep working on a project that Wong loudly cheered: a cookbook for disabled people by disabled people.\u003c/p>\n\u003cp>“We all now bear the weight of carrying out disability justice to the best of our ability,” she said.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"slug": "its-just-cruel-bay-area-parents-say-sutter-health-is-set-to-halt-trans-youth-care",
"title": "‘It’s Just Cruel’: Bay Area Parents Say Sutter Health Is Set to Halt Trans Youth Care",
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"headTitle": "‘It’s Just Cruel’: Bay Area Parents Say Sutter Health Is Set to Halt Trans Youth Care | KQED",
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"content": "\u003cp>After six months of \u003ca href=\"https://www.kqed.org/news/12050618/california-sues-trump-administration-over-efforts-to-deny-gender-affirming-health-care\">gender-affirming care\u003c/a> and a first puberty blocker shot for her 10-year-old son in September, Julie noticed him carrying himself differently. His back was straight, he was no longer hiding his body, and he was confident with eye contact.\u003c/p>\n\u003cp>But last Friday, the East Bay parent received a call and an email from a \u003ca href=\"https://www.kqed.org/news/tag/sutter-health\">Sutter Health\u003c/a> caregiver that she’s afraid to tell her son about. She asked KQED to use only her first name because she is afraid of retribution against her and her son’s caregiver.\u003c/p>\n\u003cp>The day prior, on Transgender Day of Remembrance, hospital higher-ups informed Julie’s son’s caregiver that they would no longer offer gender-affirming care to patients younger than 19. That care could stop as soon as Dec. 10, they said, according to the caregiver’s messages.\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>That left Julie with just over two weeks, including a major holiday, to find a new physician for her son.\u003c/p>\n\u003cp>“It’s just cruel, and I continue to be heartbroken, overwhelmed and livid,” Julie said. “It’s the week of Thanksgiving. Everyone’s gone, and they knew that that was going to be the case.”\u003c/p>\n\u003cfigure id=\"attachment_12030056\" class=\"wp-caption aligncenter\" style=\"max-width: 2000px\">\u003ca href=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2025/03/240208-HospitalViolence-11-BL_qed.jpg\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-12030056\" src=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2025/03/240208-HospitalViolence-11-BL_qed.jpg\" alt=\"\" width=\"2000\" height=\"1333\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2025/03/240208-HospitalViolence-11-BL_qed.jpg 2000w, https://cdn.kqed.org/wp-content/uploads/sites/10/2025/03/240208-HospitalViolence-11-BL_qed-800x533.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/10/2025/03/240208-HospitalViolence-11-BL_qed-1020x680.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/10/2025/03/240208-HospitalViolence-11-BL_qed-160x107.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2025/03/240208-HospitalViolence-11-BL_qed-1536x1024.jpg 1536w, https://cdn.kqed.org/wp-content/uploads/sites/10/2025/03/240208-HospitalViolence-11-BL_qed-1920x1280.jpg 1920w\" sizes=\"auto, (max-width: 2000px) 100vw, 2000px\">\u003c/a>\u003cfigcaption class=\"wp-caption-text\">The Sutter Health CPMC Davies Campus in San Francisco on Feb. 8, 2024. \u003ccite>(Beth LaBerge/KQED)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>Julie isn’t the only parent gutted by the potential decision. At least 10 families are working through the emotions and the looming reality of finding new care for their kids, according to \u003ca href=\"https://www.rainbowfamiliesaction.org/about\">Rainbow Families Action\u003c/a>, a group made up of parents and allies of trans youth. More than a dozen advocacy groups are pressuring Sutter Health, a nonprofit health care system serving more than 3.5 million Californians, to provide more details about the information their children’s physicians relayed to them.\u003c/p>\n\u003cp>Sutter Health would not confirm or deny what parents told KQED. In a statement on Tuesday, a spokesperson wrote that the hospital network is “working to ensure compliance with recent federal actions” and remains “committed to approaching this with compassion, physician guidance, and compliance with applicable requirements.”\u003c/p>\n\u003cp>Like other hospital groups, the network had already halted gender-affirming surgeries for patients under 19, and officials are now prioritizing “open and thoughtful conversations between physicians and their patients to determine the best path forward for individual care plans,” the statement said.\u003c/p>\n\u003cp>If the decision is true, Sutter Health would join a growing list of health care providers moving to limit care for trans youth under building pressure from the Trump administration. In June, Stanford Medicine \u003ca href=\"https://www.kqed.org/science/1997491/stanford-scales-back-trans-care-for-minors-amid-federal-crackdown\">paused gender-affirming surgeries\u003c/a> and stopped prescribing puberty blockers to youth. In July, Oakland-based Kaiser Permanente, which serves more than 12 million people across eight states, announced it \u003ca href=\"https://www.kqed.org/news/12049666/nowhere-else-to-go-sf-families-protest-kaisers-new-limits-on-gender-affirming-care\">stopped offering surgical gender-affirming treatments\u003c/a> for trans minors.\u003c/p>\n\u003cp>Advocacy groups sent a \u003ca href=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2025/11/Rainbow-Families-Action-Letter-to-Sutter-Health.pdf\">letter on \u003c/a>\u003ca href=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2025/11/Rainbow-Families-Action-Letter-to-Sutter-Health.pdf\">Tuesday to Sutter Health\u003c/a>, demanding that the network “reverse course on this decision immediately” and provide a meeting between leaders and families, a commitment to “not pre-capitulate before it’s legally necessary,” as well as a formal plan if the network ends gender-affirming care for youth.[aside postID=news_12053773 hero='https://cdn.kqed.org/wp-content/uploads/sites/10/2025/08/20250725_KaiserTransProtest_GC-14_qed.jpg']\u003c/p>\n\u003cp>“We refuse to stand by while Sutter pre-emptively bows to political pressure instead of standing up for our kids,” Rainbow Families Action wrote.\u003c/p>\n\u003cp>Arne Johnson, a lead advocate with the group, said parents and allies are planning a series of actions to protest the potential cessation and have asked Sutter Health leadership “to clarify before this becomes a much bigger thing.”\u003c/p>\n\u003cp>“We are offering to have those conversations because they are saying we’re going to do this in thoughtful consideration, but they have not actually done that,” Johnson said. “We are going to consider that an invitation, and assume that they are in fact going to meet with patients and families and make a real plan for their care.”\u003c/p>\n\u003cp>Johnson said the group has also reached out to California Attorney General Rob Bonta over the legality of the potential decision. State law prohibits health care discrimination on the basis of sexual orientation or gender identity, and earlier this month, the attorney general’s office \u003ca href=\"https://oag.ca.gov/news/press-releases/know-your-rights-attorney-general-bonta-issues-guidance-gender-affirming-care\">issued a guidance\u003c/a> reminding Californians that they “have the right to receive medically necessary gender-affirming care or any other medically necessary healthcare without discrimination.”\u003c/p>\n\u003cp>Another mother, Nikki, also from the East Bay, found out on her 14-year-old son’s birthday that his care could end. A caregiver said they would return from vacation early to ensure Julie’s son had at least one more visit before the cutoff. She also asked KQED to only use her first name.\u003c/p>\n\u003cp>“It’s terrifying, and I haven’t told my son because the news came on his birthday,” Nikki said. “Psychologically, it makes you not trust your doctors. It makes you not trust the government.”\u003c/p>\n\u003cp>Nikki is angry that the move would come after open enrollment, when the family could have joined another health care network to ensure her son could continue to receive his weekly medication.\u003c/p>\n\u003cp>As a queer person who sought the Bay Area more than two decades ago as a place of refuge, Nikki said she is flabbergasted by the potential decision.\u003c/p>\n\u003cp>“I’m kind of frozen,” she said. “I don’t know that I’m moving forward other than making some phone calls right before the holidays, just [to] desperately see what doctors can help us.”\u003c/p>\n\u003cp>Julie said she hasn’t been able to reach any new doctors yet in her search for a new care team for her son.\u003c/p>\n\u003cp>“They have taken away our ability to have care that goes in alignment with my doctor’s recommendation,” Julie said. “I have to move forward. We have to find another doctor, and who is that going to be with? I don’t know of anyone who is going to take this kid. And that sucks.”\u003c/p>\n\u003cp>She sees this as a sign that other care for the general public could be next on the chopping block.\u003c/p>\n\u003cp>“If they can take evidence-based care that is legal in the state of California and is medically necessary, lifesaving care for my child, what the f— is next?” Julie said. “It’s just a slippery slope.”\u003c/p>\n\u003cp>[ad floatright]\u003c/p>\n",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003cp>After six months of \u003ca href=\"https://www.kqed.org/news/12050618/california-sues-trump-administration-over-efforts-to-deny-gender-affirming-health-care\">gender-affirming care\u003c/a> and a first puberty blocker shot for her 10-year-old son in September, Julie noticed him carrying himself differently. His back was straight, he was no longer hiding his body, and he was confident with eye contact.\u003c/p>\n\u003cp>But last Friday, the East Bay parent received a call and an email from a \u003ca href=\"https://www.kqed.org/news/tag/sutter-health\">Sutter Health\u003c/a> caregiver that she’s afraid to tell her son about. She asked KQED to use only her first name because she is afraid of retribution against her and her son’s caregiver.\u003c/p>\n\u003cp>The day prior, on Transgender Day of Remembrance, hospital higher-ups informed Julie’s son’s caregiver that they would no longer offer gender-affirming care to patients younger than 19. That care could stop as soon as Dec. 10, they said, according to the caregiver’s messages.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>That left Julie with just over two weeks, including a major holiday, to find a new physician for her son.\u003c/p>\n\u003cp>“It’s just cruel, and I continue to be heartbroken, overwhelmed and livid,” Julie said. “It’s the week of Thanksgiving. Everyone’s gone, and they knew that that was going to be the case.”\u003c/p>\n\u003cfigure id=\"attachment_12030056\" class=\"wp-caption aligncenter\" style=\"max-width: 2000px\">\u003ca href=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2025/03/240208-HospitalViolence-11-BL_qed.jpg\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-12030056\" src=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2025/03/240208-HospitalViolence-11-BL_qed.jpg\" alt=\"\" width=\"2000\" height=\"1333\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2025/03/240208-HospitalViolence-11-BL_qed.jpg 2000w, https://cdn.kqed.org/wp-content/uploads/sites/10/2025/03/240208-HospitalViolence-11-BL_qed-800x533.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/10/2025/03/240208-HospitalViolence-11-BL_qed-1020x680.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/10/2025/03/240208-HospitalViolence-11-BL_qed-160x107.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2025/03/240208-HospitalViolence-11-BL_qed-1536x1024.jpg 1536w, https://cdn.kqed.org/wp-content/uploads/sites/10/2025/03/240208-HospitalViolence-11-BL_qed-1920x1280.jpg 1920w\" sizes=\"auto, (max-width: 2000px) 100vw, 2000px\">\u003c/a>\u003cfigcaption class=\"wp-caption-text\">The Sutter Health CPMC Davies Campus in San Francisco on Feb. 8, 2024. \u003ccite>(Beth LaBerge/KQED)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>Julie isn’t the only parent gutted by the potential decision. At least 10 families are working through the emotions and the looming reality of finding new care for their kids, according to \u003ca href=\"https://www.rainbowfamiliesaction.org/about\">Rainbow Families Action\u003c/a>, a group made up of parents and allies of trans youth. More than a dozen advocacy groups are pressuring Sutter Health, a nonprofit health care system serving more than 3.5 million Californians, to provide more details about the information their children’s physicians relayed to them.\u003c/p>\n\u003cp>Sutter Health would not confirm or deny what parents told KQED. In a statement on Tuesday, a spokesperson wrote that the hospital network is “working to ensure compliance with recent federal actions” and remains “committed to approaching this with compassion, physician guidance, and compliance with applicable requirements.”\u003c/p>\n\u003cp>Like other hospital groups, the network had already halted gender-affirming surgeries for patients under 19, and officials are now prioritizing “open and thoughtful conversations between physicians and their patients to determine the best path forward for individual care plans,” the statement said.\u003c/p>\n\u003cp>If the decision is true, Sutter Health would join a growing list of health care providers moving to limit care for trans youth under building pressure from the Trump administration. In June, Stanford Medicine \u003ca href=\"https://www.kqed.org/science/1997491/stanford-scales-back-trans-care-for-minors-amid-federal-crackdown\">paused gender-affirming surgeries\u003c/a> and stopped prescribing puberty blockers to youth. In July, Oakland-based Kaiser Permanente, which serves more than 12 million people across eight states, announced it \u003ca href=\"https://www.kqed.org/news/12049666/nowhere-else-to-go-sf-families-protest-kaisers-new-limits-on-gender-affirming-care\">stopped offering surgical gender-affirming treatments\u003c/a> for trans minors.\u003c/p>\n\u003cp>Advocacy groups sent a \u003ca href=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2025/11/Rainbow-Families-Action-Letter-to-Sutter-Health.pdf\">letter on \u003c/a>\u003ca href=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2025/11/Rainbow-Families-Action-Letter-to-Sutter-Health.pdf\">Tuesday to Sutter Health\u003c/a>, demanding that the network “reverse course on this decision immediately” and provide a meeting between leaders and families, a commitment to “not pre-capitulate before it’s legally necessary,” as well as a formal plan if the network ends gender-affirming care for youth.\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>“We refuse to stand by while Sutter pre-emptively bows to political pressure instead of standing up for our kids,” Rainbow Families Action wrote.\u003c/p>\n\u003cp>Arne Johnson, a lead advocate with the group, said parents and allies are planning a series of actions to protest the potential cessation and have asked Sutter Health leadership “to clarify before this becomes a much bigger thing.”\u003c/p>\n\u003cp>“We are offering to have those conversations because they are saying we’re going to do this in thoughtful consideration, but they have not actually done that,” Johnson said. “We are going to consider that an invitation, and assume that they are in fact going to meet with patients and families and make a real plan for their care.”\u003c/p>\n\u003cp>Johnson said the group has also reached out to California Attorney General Rob Bonta over the legality of the potential decision. State law prohibits health care discrimination on the basis of sexual orientation or gender identity, and earlier this month, the attorney general’s office \u003ca href=\"https://oag.ca.gov/news/press-releases/know-your-rights-attorney-general-bonta-issues-guidance-gender-affirming-care\">issued a guidance\u003c/a> reminding Californians that they “have the right to receive medically necessary gender-affirming care or any other medically necessary healthcare without discrimination.”\u003c/p>\n\u003cp>Another mother, Nikki, also from the East Bay, found out on her 14-year-old son’s birthday that his care could end. A caregiver said they would return from vacation early to ensure Julie’s son had at least one more visit before the cutoff. She also asked KQED to only use her first name.\u003c/p>\n\u003cp>“It’s terrifying, and I haven’t told my son because the news came on his birthday,” Nikki said. “Psychologically, it makes you not trust your doctors. It makes you not trust the government.”\u003c/p>\n\u003cp>Nikki is angry that the move would come after open enrollment, when the family could have joined another health care network to ensure her son could continue to receive his weekly medication.\u003c/p>\n\u003cp>As a queer person who sought the Bay Area more than two decades ago as a place of refuge, Nikki said she is flabbergasted by the potential decision.\u003c/p>\n\u003cp>“I’m kind of frozen,” she said. “I don’t know that I’m moving forward other than making some phone calls right before the holidays, just [to] desperately see what doctors can help us.”\u003c/p>\n\u003cp>Julie said she hasn’t been able to reach any new doctors yet in her search for a new care team for her son.\u003c/p>\n\u003cp>“They have taken away our ability to have care that goes in alignment with my doctor’s recommendation,” Julie said. “I have to move forward. We have to find another doctor, and who is that going to be with? I don’t know of anyone who is going to take this kid. And that sucks.”\u003c/p>\n\u003cp>She sees this as a sign that other care for the general public could be next on the chopping block.\u003c/p>\n\u003cp>“If they can take evidence-based care that is legal in the state of California and is medically necessary, lifesaving care for my child, what the f— is next?” Julie said. “It’s just a slippery slope.”\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cp>President \u003ca href=\"https://www.kqed.org/news/tag/donald-trump\">Donald Trump\u003c/a>’s One Big Beautiful Bill Act is expected to cut hundreds of millions of dollars annually from \u003ca href=\"https://www.kqed.org/news/tag/san-francisco\">San Francisco\u003c/a>’s budget, with up to 50,000 people potentially losing access to public benefits.\u003c/p>\n\u003cp>That’s according to a new report from the San Francisco Department of Public Health and Human Services, which estimates the federal budget could cost the city up to $400 million annually once fully implemented in 2038.\u003c/p>\n\u003cp>“Our economy is recovering, and we made real progress eliminating hundreds of millions of dollars every year from our structural deficit,” Mayor Daniel Lurie said in a statement. “But these changes at the state and federal level represent a real threat to San Francisco, to our residents and to our budget.”\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>Signed into law on July 4, the Big Beautiful Bill, as it’s officially known, strips federal funding for a variety of public healthcare programs and the Supplemental Nutrition Assistance Program, while cutting taxes for the wealthiest Americans by tens of thousands of dollars.\u003c/p>\n\u003cp>The Department of Public Health stands to lose $315 million in 2027–28 alone, and the city’s Department of Human Services, which administers CalFresh, the state’s food stamp program, estimates it will lose $81 million annually. Around 21,000 San Franciscans could lose food benefits by 2027 if they do not have an income, largely due to newly imposed work requirements.\u003c/p>\n\u003cp>About 112,000 San Franciscans receive food assistance through CalFresh, according to the report.[aside postID=news_12064551 hero='https://cdn.kqed.org/wp-content/uploads/sites/10/2025/11/GettyImages-1352132356-2000x1333.jpg']“The strict work and paperwork requirements are really about layering on a whole lot of red tape,” said Tanis Crosby, executive director of the San Francisco-Marin Food Bank, adding that CalFresh and other SNAP programs already have income limits and work requirements. “This will all make a big administrative entanglement and create more burden and disinventive for people who need and deserve benefits to even apply.”\u003c/p>\n\u003cp>Between 25,000 and 50,000 San Franciscans are also projected to lose access to Medi-Cal, the report shows. Undocumented residents are particularly vulnerable to the cuts, and starting in January, Medi-Cal recipients will have more hurdles to jump through for benefits, including verifying their eligibility every six months rather than once per year.\u003c/p>\n\u003cp>The city is already charting out mitigation strategies, including keeping residents enrolled in benefits programs. It is also looking to expand programs like Healthy San Francisco, a city program that provides health coverage for residents who are not eligible for Medi-Cal and Medicare.\u003c/p>\n\u003cp>“Despite these actions, the City and County will face difficult financial decisions, and we will need to prioritize programs, services and staffing,” the report reads.\u003c/p>\n\u003cp>The dramatic projections come after the city earlier this year cut millions from its own budget in order to balance an $800 million shortfall.\u003c/p>\n\u003cp>“We are really concerned about what this means for people who are just struggling to make ends meet,” Crosby said. “We have among the highest rates of food insecurity … There is a lot of opportunity for bold change that we can make within our state.”\u003c/p>\n\u003cp>Lurie’s budget, passed earlier this year, anticipated federal cuts and included $400 million in reserves to help combat future shortfalls. The city is now preparing to start developing its next annual budget.\u003c/p>\n\u003cp>“Over the next several months, I will work with the Board of Supervisors, community leaders, and residents across the city to ensure we take care of San Franciscans and deliver another responsible budget that supports our residents and strengthens our recovery,” Lurie said.\u003c/p>\n\u003cp>\u003c/p>\n",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003cp>President \u003ca href=\"https://www.kqed.org/news/tag/donald-trump\">Donald Trump\u003c/a>’s One Big Beautiful Bill Act is expected to cut hundreds of millions of dollars annually from \u003ca href=\"https://www.kqed.org/news/tag/san-francisco\">San Francisco\u003c/a>’s budget, with up to 50,000 people potentially losing access to public benefits.\u003c/p>\n\u003cp>That’s according to a new report from the San Francisco Department of Public Health and Human Services, which estimates the federal budget could cost the city up to $400 million annually once fully implemented in 2038.\u003c/p>\n\u003cp>“Our economy is recovering, and we made real progress eliminating hundreds of millions of dollars every year from our structural deficit,” Mayor Daniel Lurie said in a statement. “But these changes at the state and federal level represent a real threat to San Francisco, to our residents and to our budget.”\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>Signed into law on July 4, the Big Beautiful Bill, as it’s officially known, strips federal funding for a variety of public healthcare programs and the Supplemental Nutrition Assistance Program, while cutting taxes for the wealthiest Americans by tens of thousands of dollars.\u003c/p>\n\u003cp>The Department of Public Health stands to lose $315 million in 2027–28 alone, and the city’s Department of Human Services, which administers CalFresh, the state’s food stamp program, estimates it will lose $81 million annually. Around 21,000 San Franciscans could lose food benefits by 2027 if they do not have an income, largely due to newly imposed work requirements.\u003c/p>\n\u003cp>About 112,000 San Franciscans receive food assistance through CalFresh, according to the report.\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>“The strict work and paperwork requirements are really about layering on a whole lot of red tape,” said Tanis Crosby, executive director of the San Francisco-Marin Food Bank, adding that CalFresh and other SNAP programs already have income limits and work requirements. “This will all make a big administrative entanglement and create more burden and disinventive for people who need and deserve benefits to even apply.”\u003c/p>\n\u003cp>Between 25,000 and 50,000 San Franciscans are also projected to lose access to Medi-Cal, the report shows. Undocumented residents are particularly vulnerable to the cuts, and starting in January, Medi-Cal recipients will have more hurdles to jump through for benefits, including verifying their eligibility every six months rather than once per year.\u003c/p>\n\u003cp>The city is already charting out mitigation strategies, including keeping residents enrolled in benefits programs. It is also looking to expand programs like Healthy San Francisco, a city program that provides health coverage for residents who are not eligible for Medi-Cal and Medicare.\u003c/p>\n\u003cp>“Despite these actions, the City and County will face difficult financial decisions, and we will need to prioritize programs, services and staffing,” the report reads.\u003c/p>\n\u003cp>The dramatic projections come after the city earlier this year cut millions from its own budget in order to balance an $800 million shortfall.\u003c/p>\n\u003cp>“We are really concerned about what this means for people who are just struggling to make ends meet,” Crosby said. “We have among the highest rates of food insecurity … There is a lot of opportunity for bold change that we can make within our state.”\u003c/p>\n\u003cp>Lurie’s budget, passed earlier this year, anticipated federal cuts and included $400 million in reserves to help combat future shortfalls. The city is now preparing to start developing its next annual budget.\u003c/p>\n\u003cp>“Over the next several months, I will work with the Board of Supervisors, community leaders, and residents across the city to ensure we take care of San Franciscans and deliver another responsible budget that supports our residents and strengthens our recovery,” Lurie said.\u003c/p>\n\u003cp>\u003c/p>\n\u003c/div>\u003c/p>",
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"content": "\u003cp>\u003cspan style=\"font-weight: 400\">Alice Wong, a disability rights activist, writer, and MacArthur Genius award winner based in San Francisco, died last Friday at UCSF at the age of 51. Wong was best known as the founder of the\u003c/span>\u003ca href=\"https://disabilityvisibilityproject.com/\">\u003cspan style=\"font-weight: 400\"> Disability Visibility Project\u003c/span>\u003c/a>\u003cspan style=\"font-weight: 400\"> (DVP), a group that highlights disabled people and disability culture through storytelling projects, social media and other channels.\u003c/span>\u003c/p>\n\u003cp>\u003cspan style=\"font-weight: 400\">Alice’s friend and fellow activist, Sandy Ho, wrote, “Alice Wong was a hysterical friend, writer, activist and disability justice luminary whose influence was outsized.” Today, we remember Wong by sharing a radio essay she recorded for The California Report Magazine in December 2022.\u003c/span>\u003c/p>\n\u003cp>\u003c!-- iframe plugin v.4.3 wordpress.org/plugins/iframe/ -->\u003cbr>\n\u003ciframe loading=\"lazy\" frameborder=\"0\" height=\"200\" scrolling=\"no\" src=\"https://playlist.megaphone.fm?e=KQINC2770679635\" width=\"100%\" class=\"iframe-class\">\u003c/iframe>\u003c/p>\n\u003cp>\u003cstrong>Links:\u003c/strong>\u003c/p>\n\u003cul>\n\u003cli style=\"font-weight: 400\">\u003ca href=\"https://www.gofundme.com/f/alice-wong-stay-in-community\">\u003cspan style=\"font-weight: 400\">Alice’s GoFundMe\u003c/span>\u003c/a>\u003c/li>\n\u003cli style=\"font-weight: 400\">\u003ca href=\"https://www.kqed.org/arts/13983848/alice-wong-disability-rights-activist-obituary\">\u003cspan style=\"font-weight: 400\">Disability Rights Activist and Author Alice Wong Dies at 51 | KQED\u003c/span>\u003c/a>\u003c/li>\n\u003cli style=\"font-weight: 400\">\u003ca href=\"https://www.kqed.org/forum/2010101908618/bay-area-legends-activist-alice-wong-and-the-power-of-bringing-visibility-to-disability\">\u003cspan style=\"font-weight: 400\">Bay Area Legends: Activist Alice Wong and The Power of Bringing Visibility to Disability\u003c/span>\u003c/a>\u003c/li>\n\u003c/ul>\n\u003cp>\u003cem>This is a computer-generated transcript. While our team has reviewed it, there may be errors.\u003c/em>\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>\u003cstrong>Ericka Cruz Guevarra: \u003c/strong>I’m Ericka Cruz Guevarra and welcome to the bay. Local news to keep you rooted.\u003c/p>\n\u003cp>\u003cstrong>Ericka Cruz Guevarra: \u003c/strong>In April 2020, just one month after the World Health Organization declared Covid19 a global pandemic, disability rights activist Alice Wong stood out as one of the most outspoken critics of our public response. Social distancing was still this awkward dance that not everyone took seriously. People were still going out. Masks were still an option, not a requirement. And Alice argued that this was putting the most vulnerable at risk:\u003c/p>\n\u003cp>\u003cstrong>Alice Wong: \u003c/strong>It just burns me up. I feel like this sets up this very unfair dynamic where the burden of staying safe and healthy falls upon those who are the most marginalized and the most impacted.\u003c/p>\n\u003cp>\u003cstrong>Ericka Cruz Guevarra: \u003c/strong>Wong, a disability rights advocate, author, and MacArthur genius, insisted that the disabled community had a lot of wisdom to share with the rest of us at this strange moment; Wisdom around being nimble, and taking care of each other… How access and accommodations that disabled people often pushed for – like, working from home or live streaming public events and concerts, were suddenly beneficial to \u003ci>everyone.\u003c/i>\u003c/p>\n\u003cp>\u003cstrong>Alice Wong:\u003c/strong> This wasn’t the first crisis that disabled folks faced. We’ve had to make due with living in a world that’s rather hostile and not designed for us in the first place.\u003c/p>\n\u003cp>\u003cstrong>Ericka Cruz Guevarra: \u003c/strong>Alice Wong, who lived in San Francisco, died last Friday. She was 51 years old. Wong leaves behind an incredible archive and legacy of disability justice, stories, and community organizing. Today, we’re sharing this essay Alice wrote in 2022: About her vision for a new approach to health care… And how prioritizing the most \u003ci>vulnerable \u003c/i>in our society… lifts us all up. That’s coming up. Right after this break.\u003c/p>\n\u003cp>\u003cstrong><ad break>\u003c/strong>\u003c/p>\n\u003cp>\u003cb>Alice Wong:\u003c/b> I was born with a progressive neuromuscular disability and my life has always been centered on care. Both receiving and giving it.\u003c/p>\n\u003cp>When I could no longer walk and started using a power chair, needed assistance breathing, and experienced difficulty swallowing and eating, I learned how to direct and manage my caregivers like a boss. I’ve done it ever since I was a child. This year, however, presented the greatest challenge in my abilities because the stakes were higher and dire.\u003c/p>\n\u003cp>Over the summer I experienced several medical crises, such as a collapsed lung and an inability to swallow, which resulted in a tracheostomy that’s connected to a ventilator. I also now have a G-J tube that delivers liquid nutrition to my small intestine and stomach.\u003c/p>\n\u003cp>And now I speak through this app.\u003c/p>\n\u003cp>In the span of four weeks, my entire world was turned upside down.\u003c/p>\n\u003cp>One of the biggest stressors upon leaving the hospital was how I would get my intensive medical needs covered at home. The discharge planner said that a person like me with my disability and new care needs who is on Medi-Cal, California’s Medicaid program, should consider going to a subacute nursing facility unless they had family support 24/7.\u003c/p>\n\u003cp>It was the only time I cried in the hospital.\u003c/p>\n\u003cp>\u003ci>[Sound of a hospital bed’s movement]\u003c/i>\u003c/p>\n\u003cp>That sound you just heard is of my hospital bed, one of many types of medical equipment I depend on. Needing total help with my daily activities has cost me greatly. The necessary close contact with your body, the lack of privacy and spontaneity, the presumptions strangers have about your competence. My life is in my caregivers’ hands and this is a cost I must pay because I want to live.\u003c/p>\n\u003cp>Having multiple caregivers, training and communicating with them, and dealing with unexpected ups and downs when they are late, sick, or forget to show up has taken a lot out of me as I try to recover and heal.\u003c/p>\n\u003cp>What I learned this year and what I’ve known in my bones during my entire 48 years on this planet is that nothing is certain and that we must build a world that acknowledges our interdependence with one another so no one ever falls through the cracks.\u003c/p>\n\u003cp>I already receive hours of care through two programs, but it was impossible finding workers because of low wages, worker shortages, and the fluidic nature of the workforce. So I resorted to hiring a team of private-pay caregivers to augment the help I receive from my family. By the way, the \u003ca href=\"https://www.cdss.ca.gov/inforesources/ihss/county-ihss-wage-rates\">wage rate for home care workers\u003c/a> in the programs I am on is a paltry $18.75 per hour in San Francisco, which is not a livable wage in such an expensive city.\u003c/p>\n\u003cp>A generous friend launched a \u003ca href=\"https://www.gofundme.com/f/alice-wong-stay-in-community\">GoFundMe campaign\u003c/a> to finance the indefinite costs of my private-pay care, which is approximately $600 per day. This is something no disabled person should have to do to live in the community.\u003c/p>\n\u003cp>Knowing how close I was to being institutionalized still haunts me and brings a searing clarity on how our society is focused on capitalism, productivity and independence which are all scams.\u003c/p>\n\u003cp>\u003ci>[Sound of a ventilator]\u003c/i>\u003c/p>\n\u003cp>That’s the alarm from my ventilator, which happens when I am disconnected or something is wrong and my caregivers or family members have to immediately check on me. My caregivers care for me but do they care about me? I believe they do but this is probably an unrealistic expectation because at the end of the day it is a job. And yet, care work is different. We share a mutual vulnerability shaped by structural and institutional inequality.\u003c/p>\n\u003cp>According to the UCLA Labor Center, as of 2019 there were at least \u003ca href=\"https://www.labor.ucla.edu/wp-content/uploads/2022/03/Lives-and-Livelihood-Report-1.pdf\">1.75 million disabled adults under 65\u003c/a> in California who needed home care.\u003c/p>\n\u003cp>I wrote about the future of care infrastructure in my memoir, \u003ci>Year of the Tiger: An Activist’s Life\u003c/i>. They are not unfeasible dreams. Change comes from wild imaginings of what is possible.\u003c/p>\n\u003cp>In the future care infrastructure will be …\u003c/p>\n\u003cp>One that treats care as a normal part of the human lifespan and not a failure or weakness to need help.\u003c/p>\n\u003cp>One led and designed by disabled people and others who need or provide care.\u003c/p>\n\u003cp>One that is free, publicly funded, and not means-tested or linked to employment.\u003c/p>\n\u003cp>One that puts a primacy on self-direction of the individual, bodily autonomy, and dignity of risk rather than a formulaic, medicalized training that dehumanizes disabled, older and chronically ill people.\u003c/p>\n\u003cp>\u003ci>[Sound of suction machine]\u003c/i>\u003c/p>\n\u003cp>And this is the sound of another essential piece of equipment, a suction machine that helps me clear my lungs of secretions that I produce almost every hour. Because of, not despite, the hardships I experienced this year, my life is filled with joy, beauty and gratitude. The cost of care is steep but it doesn’t have to be a burden if people truly believe their security and wellness is tied to their communities, neighbors, friends and family.\u003c/p>\n\u003cp>While I still feel incredibly fragile and scared about what next year holds, I know we can transform the world if we have the political and collective will to do so.\u003c/p>\n\u003cp>Manifesting this dream from San Francisco, for The California Report, I’m Alice Wong.\u003c/p>\n\u003cp>[ad floatright]\u003c/p>\n\u003cp>\u003cstrong>Ericka Cruz Guevarra: \u003c/strong>That was disability rights activist Alice Wong,for The California Report Magazine back in Dec 2022. There is a GOFUNDME set up to help continue the legacy of Alice’s work. We’ll leave you a link to that in our show notes.\u003c/p>\n\n",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003cp>\u003cspan style=\"font-weight: 400\">Alice Wong, a disability rights activist, writer, and MacArthur Genius award winner based in San Francisco, died last Friday at UCSF at the age of 51. Wong was best known as the founder of the\u003c/span>\u003ca href=\"https://disabilityvisibilityproject.com/\">\u003cspan style=\"font-weight: 400\"> Disability Visibility Project\u003c/span>\u003c/a>\u003cspan style=\"font-weight: 400\"> (DVP), a group that highlights disabled people and disability culture through storytelling projects, social media and other channels.\u003c/span>\u003c/p>\n\u003cp>\u003cspan style=\"font-weight: 400\">Alice’s friend and fellow activist, Sandy Ho, wrote, “Alice Wong was a hysterical friend, writer, activist and disability justice luminary whose influence was outsized.” Today, we remember Wong by sharing a radio essay she recorded for The California Report Magazine in December 2022.\u003c/span>\u003c/p>\n\u003cp>\u003c!-- iframe plugin v.4.3 wordpress.org/plugins/iframe/ -->\u003cbr>\n\u003ciframe loading=\"lazy\" frameborder=\"0\" height=\"200\" scrolling=\"no\" src=\"https://playlist.megaphone.fm?e=KQINC2770679635\" width=\"100%\" class=\"iframe-class\">\u003c/iframe>\u003c/p>\n\u003cp>\u003cstrong>Links:\u003c/strong>\u003c/p>\n\u003cul>\n\u003cli style=\"font-weight: 400\">\u003ca href=\"https://www.gofundme.com/f/alice-wong-stay-in-community\">\u003cspan style=\"font-weight: 400\">Alice’s GoFundMe\u003c/span>\u003c/a>\u003c/li>\n\u003cli style=\"font-weight: 400\">\u003ca href=\"https://www.kqed.org/arts/13983848/alice-wong-disability-rights-activist-obituary\">\u003cspan style=\"font-weight: 400\">Disability Rights Activist and Author Alice Wong Dies at 51 | KQED\u003c/span>\u003c/a>\u003c/li>\n\u003cli style=\"font-weight: 400\">\u003ca href=\"https://www.kqed.org/forum/2010101908618/bay-area-legends-activist-alice-wong-and-the-power-of-bringing-visibility-to-disability\">\u003cspan style=\"font-weight: 400\">Bay Area Legends: Activist Alice Wong and The Power of Bringing Visibility to Disability\u003c/span>\u003c/a>\u003c/li>\n\u003c/ul>\n\u003cp>\u003cem>This is a computer-generated transcript. While our team has reviewed it, there may be errors.\u003c/em>\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>\u003cstrong>Ericka Cruz Guevarra: \u003c/strong>I’m Ericka Cruz Guevarra and welcome to the bay. Local news to keep you rooted.\u003c/p>\n\u003cp>\u003cstrong>Ericka Cruz Guevarra: \u003c/strong>In April 2020, just one month after the World Health Organization declared Covid19 a global pandemic, disability rights activist Alice Wong stood out as one of the most outspoken critics of our public response. Social distancing was still this awkward dance that not everyone took seriously. People were still going out. Masks were still an option, not a requirement. And Alice argued that this was putting the most vulnerable at risk:\u003c/p>\n\u003cp>\u003cstrong>Alice Wong: \u003c/strong>It just burns me up. I feel like this sets up this very unfair dynamic where the burden of staying safe and healthy falls upon those who are the most marginalized and the most impacted.\u003c/p>\n\u003cp>\u003cstrong>Ericka Cruz Guevarra: \u003c/strong>Wong, a disability rights advocate, author, and MacArthur genius, insisted that the disabled community had a lot of wisdom to share with the rest of us at this strange moment; Wisdom around being nimble, and taking care of each other… How access and accommodations that disabled people often pushed for – like, working from home or live streaming public events and concerts, were suddenly beneficial to \u003ci>everyone.\u003c/i>\u003c/p>\n\u003cp>\u003cstrong>Alice Wong:\u003c/strong> This wasn’t the first crisis that disabled folks faced. We’ve had to make due with living in a world that’s rather hostile and not designed for us in the first place.\u003c/p>\n\u003cp>\u003cstrong>Ericka Cruz Guevarra: \u003c/strong>Alice Wong, who lived in San Francisco, died last Friday. She was 51 years old. Wong leaves behind an incredible archive and legacy of disability justice, stories, and community organizing. Today, we’re sharing this essay Alice wrote in 2022: About her vision for a new approach to health care… And how prioritizing the most \u003ci>vulnerable \u003c/i>in our society… lifts us all up. That’s coming up. Right after this break.\u003c/p>\n\u003cp>\u003cstrong><ad break>\u003c/strong>\u003c/p>\n\u003cp>\u003cb>Alice Wong:\u003c/b> I was born with a progressive neuromuscular disability and my life has always been centered on care. Both receiving and giving it.\u003c/p>\n\u003cp>When I could no longer walk and started using a power chair, needed assistance breathing, and experienced difficulty swallowing and eating, I learned how to direct and manage my caregivers like a boss. I’ve done it ever since I was a child. This year, however, presented the greatest challenge in my abilities because the stakes were higher and dire.\u003c/p>\n\u003cp>Over the summer I experienced several medical crises, such as a collapsed lung and an inability to swallow, which resulted in a tracheostomy that’s connected to a ventilator. I also now have a G-J tube that delivers liquid nutrition to my small intestine and stomach.\u003c/p>\n\u003cp>And now I speak through this app.\u003c/p>\n\u003cp>In the span of four weeks, my entire world was turned upside down.\u003c/p>\n\u003cp>One of the biggest stressors upon leaving the hospital was how I would get my intensive medical needs covered at home. The discharge planner said that a person like me with my disability and new care needs who is on Medi-Cal, California’s Medicaid program, should consider going to a subacute nursing facility unless they had family support 24/7.\u003c/p>\n\u003cp>It was the only time I cried in the hospital.\u003c/p>\n\u003cp>\u003ci>[Sound of a hospital bed’s movement]\u003c/i>\u003c/p>\n\u003cp>That sound you just heard is of my hospital bed, one of many types of medical equipment I depend on. Needing total help with my daily activities has cost me greatly. The necessary close contact with your body, the lack of privacy and spontaneity, the presumptions strangers have about your competence. My life is in my caregivers’ hands and this is a cost I must pay because I want to live.\u003c/p>\n\u003cp>Having multiple caregivers, training and communicating with them, and dealing with unexpected ups and downs when they are late, sick, or forget to show up has taken a lot out of me as I try to recover and heal.\u003c/p>\n\u003cp>What I learned this year and what I’ve known in my bones during my entire 48 years on this planet is that nothing is certain and that we must build a world that acknowledges our interdependence with one another so no one ever falls through the cracks.\u003c/p>\n\u003cp>I already receive hours of care through two programs, but it was impossible finding workers because of low wages, worker shortages, and the fluidic nature of the workforce. So I resorted to hiring a team of private-pay caregivers to augment the help I receive from my family. By the way, the \u003ca href=\"https://www.cdss.ca.gov/inforesources/ihss/county-ihss-wage-rates\">wage rate for home care workers\u003c/a> in the programs I am on is a paltry $18.75 per hour in San Francisco, which is not a livable wage in such an expensive city.\u003c/p>\n\u003cp>A generous friend launched a \u003ca href=\"https://www.gofundme.com/f/alice-wong-stay-in-community\">GoFundMe campaign\u003c/a> to finance the indefinite costs of my private-pay care, which is approximately $600 per day. This is something no disabled person should have to do to live in the community.\u003c/p>\n\u003cp>Knowing how close I was to being institutionalized still haunts me and brings a searing clarity on how our society is focused on capitalism, productivity and independence which are all scams.\u003c/p>\n\u003cp>\u003ci>[Sound of a ventilator]\u003c/i>\u003c/p>\n\u003cp>That’s the alarm from my ventilator, which happens when I am disconnected or something is wrong and my caregivers or family members have to immediately check on me. My caregivers care for me but do they care about me? I believe they do but this is probably an unrealistic expectation because at the end of the day it is a job. And yet, care work is different. We share a mutual vulnerability shaped by structural and institutional inequality.\u003c/p>\n\u003cp>According to the UCLA Labor Center, as of 2019 there were at least \u003ca href=\"https://www.labor.ucla.edu/wp-content/uploads/2022/03/Lives-and-Livelihood-Report-1.pdf\">1.75 million disabled adults under 65\u003c/a> in California who needed home care.\u003c/p>\n\u003cp>I wrote about the future of care infrastructure in my memoir, \u003ci>Year of the Tiger: An Activist’s Life\u003c/i>. They are not unfeasible dreams. Change comes from wild imaginings of what is possible.\u003c/p>\n\u003cp>In the future care infrastructure will be …\u003c/p>\n\u003cp>One that treats care as a normal part of the human lifespan and not a failure or weakness to need help.\u003c/p>\n\u003cp>One led and designed by disabled people and others who need or provide care.\u003c/p>\n\u003cp>One that is free, publicly funded, and not means-tested or linked to employment.\u003c/p>\n\u003cp>One that puts a primacy on self-direction of the individual, bodily autonomy, and dignity of risk rather than a formulaic, medicalized training that dehumanizes disabled, older and chronically ill people.\u003c/p>\n\u003cp>\u003ci>[Sound of suction machine]\u003c/i>\u003c/p>\n\u003cp>And this is the sound of another essential piece of equipment, a suction machine that helps me clear my lungs of secretions that I produce almost every hour. Because of, not despite, the hardships I experienced this year, my life is filled with joy, beauty and gratitude. The cost of care is steep but it doesn’t have to be a burden if people truly believe their security and wellness is tied to their communities, neighbors, friends and family.\u003c/p>\n\u003cp>While I still feel incredibly fragile and scared about what next year holds, I know we can transform the world if we have the political and collective will to do so.\u003c/p>\n\u003cp>Manifesting this dream from San Francisco, for The California Report, I’m Alice Wong.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>\u003cstrong>Ericka Cruz Guevarra: \u003c/strong>That was disability rights activist Alice Wong,for The California Report Magazine back in Dec 2022. There is a GOFUNDME set up to help continue the legacy of Alice’s work. We’ll leave you a link to that in our show notes.\u003c/p>\n\n\u003c/div>\u003c/p>",
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