“We refuse to stand by while Sutter pre-emptively bows to political pressure instead of standing up for our kids,” Rainbow Families Action wrote.
Arne Johnson, a lead advocate with the group, said parents and allies are planning a series of actions to protest the potential cessation and have asked Sutter Health leadership “to clarify before this becomes a much bigger thing.”
“We are offering to have those conversations because they are saying we’re going to do this in thoughtful consideration, but they have not actually done that,” Johnson said. “We are going to consider that an invitation, and assume that they are in fact going to meet with patients and families and make a real plan for their care.”
Johnson said the group has also reached out to California Attorney General Rob Bonta over the legality of the potential decision. State law prohibits health care discrimination on the basis of sexual orientation or gender identity, and earlier this month, the attorney general’s office issued a guidance reminding Californians that they “have the right to receive medically necessary gender-affirming care or any other medically necessary healthcare without discrimination.”
Another mother, Nikki, also from the East Bay, found out on her 14-year-old son’s birthday that his care could end. A caregiver said they would return from vacation early to ensure Julie’s son had at least one more visit before the cutoff. She also asked KQED to only use her first name.
“It’s terrifying, and I haven’t told my son because the news came on his birthday,” Nikki said. “Psychologically, it makes you not trust your doctors. It makes you not trust the government.”
Nikki is angry that the move would come after open enrollment, when the family could have joined another health care network to ensure her son could continue to receive his weekly medication.
As a queer person who sought the Bay Area more than two decades ago as a place of refuge, Nikki said she is flabbergasted by the potential decision.
“I’m kind of frozen,” she said. “I don’t know that I’m moving forward other than making some phone calls right before the holidays, just [to] desperately see what doctors can help us.”
Julie said she hasn’t been able to reach any new doctors yet in her search for a new care team for her son.
“They have taken away our ability to have care that goes in alignment with my doctor’s recommendation,” Julie said. “I have to move forward. We have to find another doctor, and who is that going to be with? I don’t know of anyone who is going to take this kid. And that sucks.”
She sees this as a sign that other care for the general public could be next on the chopping block.
“If they can take evidence-based care that is legal in the state of California and is medically necessary, lifesaving care for my child, what the f— is next?” Julie said. “It’s just a slippery slope.”