Oscar Rouvine Berry isn’t going to let nerve disease get in his way.
In seventh and eighth grade, I underwent three reconstructive surgeries, spent two years bound to a wheelchair, and attended a one-on-one school. I hated going outside. I felt like a toad in a cage. Small, ugly, on display. I hid behind textbooks, hopping through chapters. Living beyond my physical challenges, I immersed myself in academia. I sought new ways to continue making and keeping my world as big as possible.
Today my hands gave up. I am a soldier at war with the inevitable. A degenerative disease that ravishes my body. I see my reflection in the shards of glass. Tears decorate my face as I contemplate my reality: Charcot Marie Tooth Disease.
I was tired of hiding. My disease was not limited to my physical decline. It did more than damage my peripheral nerves and weaken my muscles. It isolated me. It broke me.
Upon my reintroduction to the mainstream in high school, I took the most rigorous classes available to me. Quickly, however, academic achievement became a fading painkiller. I wanted more. I needed more.