Through Social Media, Family Connects to Rare Diagnosis – And Hope
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You feel like you’re never going to hear another person say, ‘Us too!’ And being connected to other families changes all that.' \u003ccite>Bo Bigelow\u003c/cite>\u003c/aside>\n\u003cp>It's a story that illustrates the power of crowdsourcing. Tess Bigelow, six years old, became the eighth person in the world known to have a mutation of the gene called USP7. This defective gene could be the reason she functions at the level of an 18-month-old child, with developmental delays in basic functions such as walking and talking.\u003c/p>\n\u003cp>Last August, Bo Bigelow, Tess' father, put up \u003ca href=\"http://www.portlandrootsmedia.com/tess-genetic-mystery\" target=\"_blank\">a website\u003c/a> about his daughter's genetic mutation then posted it to Facebook and Twitter. From a \u003ca href=\"https://www.bcm.edu/news/genetics/diagnostic-discovery-through-social-media\" target=\"_blank\">press release\u003c/a> about the case sent out last September by Baylor College of Medicine in Houston:\u003c/p>\n\u003cblockquote>\u003cp>\"Help us find others like Tess.\" Bo Bigelow's plea jumps off the page of his blog, echoing across the continent from his leafy green home city of Portland, Maine.\u003c/p>\n\u003cp>When he posted his call to action, all he knew was that his young daughter has a mutation in her USP7 gene and that she has global developmental delay, hip dysplasia and visual impairment caused by her brain (not a problem in her eyes themselves) among other health issues.\u003c/p>\u003c/blockquote>\n\u003cp>Bo and his wife, Kate, who live in Maine, hoped to find other families affected by the same mutation.\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>\"We thought we were embarking on this months- or years-long odyssey to find at least one other person,\" says Bo Bigelow. \"And instead, by that evening we were on the horn with Baylor. They found us in less than 24 hours, and it’s from people being so great about spreading it and having their friends spread it.\"\u003c/p>\n\u003cp>It was a friend of Bigelow's brother-in-law who \u003ca href=\"https://www.reddit.com/r/genetics/comments/3gr6a8/hi_rgenetics_need_your_help_i_have_a_little/\" target=\"_blank\">posted\u003c/a> Tess' case on Reddit. That's where a worker at a Baylor lab spotted it -- a lab that is one of the few in the world studying USP7.\u003c/p>\n\u003cfigure id=\"attachment_161424\" class=\"wp-caption aligncenter\" style=\"max-width: 720px\">\u003ca href=\"http://ww2.kqed.org/futureofyou/wp-content/uploads/sites/13/2016/05/special-olympics-e1462926780310.jpg\">\u003cimg class=\"size-full wp-image-161424\" src=\"http://ww2.kqed.org/futureofyou/wp-content/uploads/sites/13/2016/05/special-olympics-e1462926780310.jpg\" alt=\"Tess walked 100 meters this spring in the Special Olympics. She needed some help staying in her lane, and had to stop to gather her stamina, but crossed the finish line to the cheers of her family. Her father did a podcast episode about the event.\" width=\"720\" height=\"592\" srcset=\"https://ww2.kqed.org/app/uploads/sites/13/2016/05/special-olympics-e1462926780310.jpg 720w, https://ww2.kqed.org/app/uploads/sites/13/2016/05/special-olympics-e1462926780310-400x329.jpg 400w\" sizes=\"(max-width: 720px) 100vw, 720px\">\u003c/a>\u003cfigcaption class=\"wp-caption-text\">Tess walked 100 meters this spring in the Special Olympics. She needed some help staying in her lane, and had to stop to gather her stamina, but crossed the finish line to the cheers of her family. Her father did a \u003ca href=\"http://www.portlandrootsmedia.com/strongerpodcast/2016/5/4/68-special-is-an-understatement\" target=\"_blank\">podcast episode\u003c/a> about the event. \u003ccite>(Bo Bigelow/Facebook)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>Most striking of all, Bigelow says, that first email from Mike Fountain, a predoctoral fellow in the lab, said the Baylor team had identified other families who had children affected by the same genetic mutation. Just connecting with them has eased Bo and Kate's worries.\u003c/p>\n\u003cp>\"These days there are ribbons and awareness-weeks for so many diseases,\" Bigelow says, \"but when yours is ultra-rare, you feel completely isolated. You feel like you're never going to hear another person say, 'Us too!' And being connected to other families changes all that.\"\u003c/p>\n\u003cp>Fountain's colleague, researcher and Baylor genetics professor Christian Schaaf, had already found seven children around the world with USP7 mutations and symptoms similar to Tess'. Schaaf and 18 of his colleagues were getting ready to publish \u003ca href=\"http://www.cell.com/molecular-cell/abstract/S1097-2765(15)00617-6?_returnURL=http%3A%2F%2Flinkinghub.elsevier.com%2Fretrieve%2Fpii%2FS1097276515006176%3Fshowall%3Dtrue\">research\u003c/a> in the journal \u003cem>Molecular Cell \u003c/em>describing how USP7 becomes a \"disease gene.\"\u003c/p>\n\u003cp>USP7 and two other genes are critical in the process of recycling and breaking down the proteins in a cell that are no longer of use. This process keeps all the work of our cells in balance; when it's out of whack, it can lead to cancers, neurodegenerative diseases or genetic disorders.\u003c/p>\n\u003cp>https://youtu.be/TF7zOV0KT0s\u003c/p>\n\u003cp>Bigelow says the family doesn't yet have official confirmation that Tess' symptoms are caused by her genetic mutation. Baylor researchers are examining that now and he expects to hear soon whether the lab will accept her for inclusion in potential treatments, now in development. Meanwhile, he says, Baylor asked him to use his website and social media skills to search out other families, and he's found two more who have children with a USP7 mutation.\u003c/p>\n\u003cp>\u003cstrong>Crowdsourcing Diagnoses Takes Hold\u003c/strong>\u003c/p>\n\u003cp>Patients or parents like Tess' who are seeking answers to seemingly unsolvable medical mysteries have new tools to reach out, not only on social media, but in crowdsourcing websites like \u003ca href=\"https://www.crowdmed.com/\" target=\"_blank\">CrowdMed\u003c/a>, a subscription service for people seeking answers to medical conundrums.\u003c/p>\n\u003cp>At CrowdMed, people who have symptoms but have yet to find a diagnosis seek opinions from the site's \"medical detectives,\" only some of whom are medical professionals.\u003c/p>\n\u003cp>The process involves patients posting their symptoms and other relevant data, opening their case up to the site's diagnostic community. When a diagnosis is offered, the other \"detectives\" vote on it, and that opinion moves up or down according to those votes and the weight assigned to each diagnostician, which is determined by their past accuracy.\u003c/p>\n\u003cp>\"We call it a stock market for diagnoses,\" CrowdMed co-founder Jessica Greenwalt told Future of You editor Jon Brooks at a University of San Francisco medical technology conference in March.\u003c/p>\n\u003cp>She said the site had resolved close to 800 cases in which the patient has reported the CrowdMed diagnosis was correct.\u003c/p>\n\u003cp>\"The nice thing about not limiting it to physicians,\" Greenwalt said, \"is we get people who are not stuck in the same method of thought training. Or they're not afraid to suggest the rare diagnosis. We see this a lot, where doctors are afraid to say it might be this rare condition.\"\u003c/p>\n\u003cp>A writer who \u003ca href=\"http://www.elle.com/culture/news/a28783/the-crowd-will-see-you-now/\" target=\"_blank\">reviewed C\u003c/a>rowdMed for Elle discovered one of the common pitfalls of self-diagnosis: worrying about a range of diseases she'd never heard of. But she also wrote she felt encouraged to do research about her health and supported by the care people offered in listening to and responding to her case.\u003c/p>\n\u003cp>\"While reporting this piece,\" wrote Molly Langmuir, \"I vacillated between viewing CrowdMed as a dire indictment of our medical system—things are so bad we've had to turn to a bunch of strangers who may or may not have had medical training—and a heartening sign of progress, a surprisingly effective way of putting the 'care' back into health\u003c/p>\n\u003cp>\u003ca href=\"https://www.mygene2.org/MyGene2/\" target=\"_blank\">MyGene2\u003c/a> is another crowdsourcing site. It serves as an information hub where those with rare genetic disorders can share information, and researchers and clinicians working with a particular condition or gene can contact people who may benefit from new treatments or ideas.\u003c/p>\n\u003cp>The site just went live this spring and already features more than 100 families and 87 different problematic genes.\u003c/p>\n\u003cp>[ad floatright]\u003c/p>\n\u003cp>\u003cem>Jon Brooks contributed to this post.\u003c/em>\u003c/p>\n\n","blocks":[],"excerpt":"Only after turning to social media did six-year-old Tess Bigelow's parents learn of a lab researching her rare genetic mutation.","status":"publish","parent":0,"modified":1476850729,"stats":{"hasAudio":false,"hasVideo":false,"hasChartOrMap":false,"iframeSrcs":[],"hasGoogleForm":false,"hasGallery":false,"hasHearkenModule":false,"hasPolis":false,"paragraphCount":28,"wordCount":1210},"headData":{"title":"Through Social Media, Family Connects to Rare Diagnosis – And Hope | KQED","description":"Only after turning to social media did six-year-old Tess Bigelow's parents learn of a lab researching her rare genetic mutation.","ogTitle":"","ogDescription":"","ogImgId":"","twTitle":"","twDescription":"","twImgId":"","schema":{"@context":"http://schema.org","@type":"Article","headline":"Through Social Media, Family Connects to Rare Diagnosis – And Hope","datePublished":"2016-05-10T21:33:21.000Z","dateModified":"2016-10-19T04:18:49.000Z","image":"https://cdn.kqed.org/wp-content/uploads/2020/02/KQED-OG-Image@1x.png"}},"disqusIdentifier":"160842 http://ww2.kqed.org/futureofyou/?p=160842","disqusUrl":"https://ww2.kqed.org/futureofyou/2016/05/10/social-media-uncovers-rare-diagnosis-after-years-of-frustration/","disqusTitle":"Through Social Media, Family Connects to Rare Diagnosis – And Hope","path":"/futureofyou/160842/social-media-uncovers-rare-diagnosis-after-years-of-frustration","audioTrackLength":null,"parsedContent":[{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003cp>If you are suffering from an illness fewer than a dozen people in the world are known to have, getting a proper diagnosis can start to feel like a hunt for something that doesn't exist.\u003c/p>\n\u003cp>That's the position one family found themselves in before they turned to social media in search of an answer, managing to discover in one day an answer that had eluded doctors for years.\u003c/p>\n\u003caside class=\"pullquote alignright\">'These days there are ribbons and awareness weeks for so many diseases, but when yours is ultra-rare, you feel completely isolated. You feel like you’re never going to hear another person say, ‘Us too!’ And being connected to other families changes all that.' \u003ccite>Bo Bigelow\u003c/cite>\u003c/aside>\n\u003cp>It's a story that illustrates the power of crowdsourcing. Tess Bigelow, six years old, became the eighth person in the world known to have a mutation of the gene called USP7. This defective gene could be the reason she functions at the level of an 18-month-old child, with developmental delays in basic functions such as walking and talking.\u003c/p>\n\u003cp>Last August, Bo Bigelow, Tess' father, put up \u003ca href=\"http://www.portlandrootsmedia.com/tess-genetic-mystery\" target=\"_blank\">a website\u003c/a> about his daughter's genetic mutation then posted it to Facebook and Twitter. From a \u003ca href=\"https://www.bcm.edu/news/genetics/diagnostic-discovery-through-social-media\" target=\"_blank\">press release\u003c/a> about the case sent out last September by Baylor College of Medicine in Houston:\u003c/p>\n\u003cblockquote>\u003cp>\"Help us find others like Tess.\" Bo Bigelow's plea jumps off the page of his blog, echoing across the continent from his leafy green home city of Portland, Maine.\u003c/p>\n\u003cp>When he posted his call to action, all he knew was that his young daughter has a mutation in her USP7 gene and that she has global developmental delay, hip dysplasia and visual impairment caused by her brain (not a problem in her eyes themselves) among other health issues.\u003c/p>\u003c/blockquote>\n\u003cp>Bo and his wife, Kate, who live in Maine, hoped to find other families affected by the same mutation.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"ad","attributes":{"named":{"label":"fullwidth"},"numeric":["fullwidth"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>\"We thought we were embarking on this months- or years-long odyssey to find at least one other person,\" says Bo Bigelow. \"And instead, by that evening we were on the horn with Baylor. They found us in less than 24 hours, and it’s from people being so great about spreading it and having their friends spread it.\"\u003c/p>\n\u003cp>It was a friend of Bigelow's brother-in-law who \u003ca href=\"https://www.reddit.com/r/genetics/comments/3gr6a8/hi_rgenetics_need_your_help_i_have_a_little/\" target=\"_blank\">posted\u003c/a> Tess' case on Reddit. That's where a worker at a Baylor lab spotted it -- a lab that is one of the few in the world studying USP7.\u003c/p>\n\u003cfigure id=\"attachment_161424\" class=\"wp-caption aligncenter\" style=\"max-width: 720px\">\u003ca href=\"http://ww2.kqed.org/futureofyou/wp-content/uploads/sites/13/2016/05/special-olympics-e1462926780310.jpg\">\u003cimg class=\"size-full wp-image-161424\" src=\"http://ww2.kqed.org/futureofyou/wp-content/uploads/sites/13/2016/05/special-olympics-e1462926780310.jpg\" alt=\"Tess walked 100 meters this spring in the Special Olympics. She needed some help staying in her lane, and had to stop to gather her stamina, but crossed the finish line to the cheers of her family. Her father did a podcast episode about the event.\" width=\"720\" height=\"592\" srcset=\"https://ww2.kqed.org/app/uploads/sites/13/2016/05/special-olympics-e1462926780310.jpg 720w, https://ww2.kqed.org/app/uploads/sites/13/2016/05/special-olympics-e1462926780310-400x329.jpg 400w\" sizes=\"(max-width: 720px) 100vw, 720px\">\u003c/a>\u003cfigcaption class=\"wp-caption-text\">Tess walked 100 meters this spring in the Special Olympics. She needed some help staying in her lane, and had to stop to gather her stamina, but crossed the finish line to the cheers of her family. Her father did a \u003ca href=\"http://www.portlandrootsmedia.com/strongerpodcast/2016/5/4/68-special-is-an-understatement\" target=\"_blank\">podcast episode\u003c/a> about the event. \u003ccite>(Bo Bigelow/Facebook)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>Most striking of all, Bigelow says, that first email from Mike Fountain, a predoctoral fellow in the lab, said the Baylor team had identified other families who had children affected by the same genetic mutation. Just connecting with them has eased Bo and Kate's worries.\u003c/p>\n\u003cp>\"These days there are ribbons and awareness-weeks for so many diseases,\" Bigelow says, \"but when yours is ultra-rare, you feel completely isolated. You feel like you're never going to hear another person say, 'Us too!' And being connected to other families changes all that.\"\u003c/p>\n\u003cp>Fountain's colleague, researcher and Baylor genetics professor Christian Schaaf, had already found seven children around the world with USP7 mutations and symptoms similar to Tess'. Schaaf and 18 of his colleagues were getting ready to publish \u003ca href=\"http://www.cell.com/molecular-cell/abstract/S1097-2765(15)00617-6?_returnURL=http%3A%2F%2Flinkinghub.elsevier.com%2Fretrieve%2Fpii%2FS1097276515006176%3Fshowall%3Dtrue\">research\u003c/a> in the journal \u003cem>Molecular Cell \u003c/em>describing how USP7 becomes a \"disease gene.\"\u003c/p>\n\u003cp>USP7 and two other genes are critical in the process of recycling and breaking down the proteins in a cell that are no longer of use. This process keeps all the work of our cells in balance; when it's out of whack, it can lead to cancers, neurodegenerative diseases or genetic disorders.\u003c/p>\u003c/p>\u003cp>\u003cspan class='utils-parseShortcode-shortcodes-__youtubeShortcode__embedYoutube'>\n \u003cspan class='utils-parseShortcode-shortcodes-__youtubeShortcode__embedYoutubeInside'>\n \u003ciframe\n loading='lazy'\n class='utils-parseShortcode-shortcodes-__youtubeShortcode__youtubePlayer'\n type='text/html'\n src='//www.youtube.com/embed/TF7zOV0KT0s'\n title='//www.youtube.com/embed/TF7zOV0KT0s'\n allowfullscreen='true'\n style='border:0;'>\u003c/iframe>\n \u003c/span>\n \u003c/span>\u003c/p>\u003cp>\u003cp>Bigelow says the family doesn't yet have official confirmation that Tess' symptoms are caused by her genetic mutation. Baylor researchers are examining that now and he expects to hear soon whether the lab will accept her for inclusion in potential treatments, now in development. Meanwhile, he says, Baylor asked him to use his website and social media skills to search out other families, and he's found two more who have children with a USP7 mutation.\u003c/p>\n\u003cp>\u003cstrong>Crowdsourcing Diagnoses Takes Hold\u003c/strong>\u003c/p>\n\u003cp>Patients or parents like Tess' who are seeking answers to seemingly unsolvable medical mysteries have new tools to reach out, not only on social media, but in crowdsourcing websites like \u003ca href=\"https://www.crowdmed.com/\" target=\"_blank\">CrowdMed\u003c/a>, a subscription service for people seeking answers to medical conundrums.\u003c/p>\n\u003cp>At CrowdMed, people who have symptoms but have yet to find a diagnosis seek opinions from the site's \"medical detectives,\" only some of whom are medical professionals.\u003c/p>\n\u003cp>The process involves patients posting their symptoms and other relevant data, opening their case up to the site's diagnostic community. When a diagnosis is offered, the other \"detectives\" vote on it, and that opinion moves up or down according to those votes and the weight assigned to each diagnostician, which is determined by their past accuracy.\u003c/p>\n\u003cp>\"We call it a stock market for diagnoses,\" CrowdMed co-founder Jessica Greenwalt told Future of You editor Jon Brooks at a University of San Francisco medical technology conference in March.\u003c/p>\n\u003cp>She said the site had resolved close to 800 cases in which the patient has reported the CrowdMed diagnosis was correct.\u003c/p>\n\u003cp>\"The nice thing about not limiting it to physicians,\" Greenwalt said, \"is we get people who are not stuck in the same method of thought training. Or they're not afraid to suggest the rare diagnosis. We see this a lot, where doctors are afraid to say it might be this rare condition.\"\u003c/p>\n\u003cp>A writer who \u003ca href=\"http://www.elle.com/culture/news/a28783/the-crowd-will-see-you-now/\" target=\"_blank\">reviewed C\u003c/a>rowdMed for Elle discovered one of the common pitfalls of self-diagnosis: worrying about a range of diseases she'd never heard of. But she also wrote she felt encouraged to do research about her health and supported by the care people offered in listening to and responding to her case.\u003c/p>\n\u003cp>\"While reporting this piece,\" wrote Molly Langmuir, \"I vacillated between viewing CrowdMed as a dire indictment of our medical system—things are so bad we've had to turn to a bunch of strangers who may or may not have had medical training—and a heartening sign of progress, a surprisingly effective way of putting the 'care' back into health\u003c/p>\n\u003cp>\u003ca href=\"https://www.mygene2.org/MyGene2/\" target=\"_blank\">MyGene2\u003c/a> is another crowdsourcing site. It serves as an information hub where those with rare genetic disorders can share information, and researchers and clinicians working with a particular condition or gene can contact people who may benefit from new treatments or ideas.\u003c/p>\n\u003cp>The site just went live this spring and already features more than 100 families and 87 different problematic genes.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"ad","attributes":{"named":{"label":"floatright"},"numeric":["floatright"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>\u003cem>Jon Brooks contributed to this post.\u003c/em>\u003c/p>\n\n\u003c/div>\u003c/p>","attributes":{"named":{},"numeric":[]}}],"link":"/futureofyou/160842/social-media-uncovers-rare-diagnosis-after-years-of-frustration","authors":["235"],"categories":["futureofyou_1060"],"tags":["futureofyou_914","futureofyou_124","futureofyou_915","futureofyou_916"],"featImg":"futureofyou_161306","label":"futureofyou"}},"programsReducer":{"possible":{"id":"possible","title":"Possible","info":"Possible is hosted by entrepreneur Reid Hoffman and writer Aria Finger. 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Each episode also includes a short fiction story generated by advanced AI GPT-4, serving as a thought-provoking springboard to speculate how humanity could leverage technology for good.","airtime":"SUN 2pm","imageSrc":"https://cdn.kqed.org/wp-content/uploads/2024/04/Possible-Podcast-Tile-360x360-1.jpg","officialWebsiteLink":"https://www.possible.fm/","meta":{"site":"news","source":"Possible"},"link":"/radio/program/possible","subscribe":{"apple":"https://podcasts.apple.com/us/podcast/possible/id1677184070","spotify":"https://open.spotify.com/show/730YpdUSNlMyPQwNnyjp4k"}},"1a":{"id":"1a","title":"1A","info":"1A is home to the national conversation. 1A brings on great guests and frames the best debate in ways that make you think, share and engage.","airtime":"MON-THU 11pm-12am","imageSrc":"https://ww2.kqed.org/radio/wp-content/uploads/sites/50/2018/04/1a.jpg","officialWebsiteLink":"https://the1a.org/","meta":{"site":"news","source":"npr"},"link":"/radio/program/1a","subscribe":{"npr":"https://rpb3r.app.goo.gl/RBrW","apple":"https://itunes.apple.com/WebObjects/MZStore.woa/wa/viewPodcast?s=143441&mt=2&id=1188724250&at=11l79Y&ct=nprdirectory","tuneIn":"https://tunein.com/radio/1A-p947376/","rss":"https://feeds.npr.org/510316/podcast.xml"}},"all-things-considered":{"id":"all-things-considered","title":"All Things Considered","info":"Every weekday, \u003cem>All Things Considered\u003c/em> hosts Robert Siegel, Audie Cornish, Ari Shapiro, and Kelly McEvers present the program's trademark mix of news, interviews, commentaries, reviews, and offbeat features. 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You ask the questions. You decide what Bay Curious investigates. And you join us on the journey to find the answers.","imageSrc":"https://cdn.kqed.org/wp-content/uploads/2024/04/Bay-Curious-Podcast-Tile-703x703-1.jpg","imageAlt":"\"KQED Bay Curious","officialWebsiteLink":"/news/series/baycurious","meta":{"site":"news","source":"kqed","order":"4"},"link":"/podcasts/baycurious","subscribe":{"apple":"https://podcasts.apple.com/us/podcast/bay-curious/id1172473406","npr":"https://www.npr.org/podcasts/500557090/bay-curious","rss":"https://ww2.kqed.org/news/category/bay-curious-podcast/feed/podcast","google":"https://podcasts.google.com/feed/aHR0cHM6Ly93dzIua3FlZC5vcmcvbmV3cy9jYXRlZ29yeS9iYXktY3VyaW91cy1wb2RjYXN0L2ZlZWQvcG9kY2FzdA","stitcher":"https://www.stitcher.com/podcast/kqed/bay-curious","spotify":"https://open.spotify.com/show/6O76IdmhixfijmhTZLIJ8k"}},"bbc-world-service":{"id":"bbc-world-service","title":"BBC World Service","info":"The day's top stories from BBC News compiled twice daily in the week, once at weekends.","airtime":"MON-FRI 9pm-10pm, TUE-FRI 1am-2am","imageSrc":"https://cdn.kqed.org/wp-content/uploads/2024/04/BBC-World-Service-Podcast-Tile-360x360-1.jpg","officialWebsiteLink":"https://www.bbc.co.uk/sounds/play/live:bbc_world_service","meta":{"site":"news","source":"BBC World Service"},"link":"/radio/program/bbc-world-service","subscribe":{"apple":"https://itunes.apple.com/us/podcast/global-news-podcast/id135067274?mt=2","tuneIn":"https://tunein.com/radio/BBC-World-Service-p455581/","rss":"https://podcasts.files.bbci.co.uk/p02nq0gn.rss"}},"code-switch-life-kit":{"id":"code-switch-life-kit","title":"Code Switch / Life Kit","info":"\u003cem>Code Switch\u003c/em>, which listeners will hear in the first part of the hour, has fearless and much-needed conversations about race. Hosted by journalists of color, the show tackles the subject of race head-on, exploring how it impacts every part of society — from politics and pop culture to history, sports and more.\u003cbr />\u003cbr />\u003cem>Life Kit\u003c/em>, which will be in the second part of the hour, guides you through spaces and feelings no one prepares you for — from finances to mental health, from workplace microaggressions to imposter syndrome, from relationships to parenting. The show features experts with real world experience and shares their knowledge. Because everyone needs a little help being human.\u003cbr />\u003cbr />\u003ca href=\"https://www.npr.org/podcasts/510312/codeswitch\">\u003cem>Code Switch\u003c/em> offical site and podcast\u003c/a>\u003cbr />\u003ca href=\"https://www.npr.org/lifekit\">\u003cem>Life Kit\u003c/em> offical site and podcast\u003c/a>\u003cbr />","airtime":"SUN 9pm-10pm","imageSrc":"https://cdn.kqed.org/wp-content/uploads/2024/04/Code-Switch-Life-Kit-Podcast-Tile-360x360-1.jpg","meta":{"site":"radio","source":"npr"},"link":"/radio/program/code-switch-life-kit","subscribe":{"apple":"https://podcasts.apple.com/podcast/1112190608?mt=2&at=11l79Y&ct=nprdirectory","google":"https://podcasts.google.com/feed/aHR0cHM6Ly93d3cubnByLm9yZy9yc3MvcG9kY2FzdC5waHA_aWQ9NTEwMzEy","spotify":"https://open.spotify.com/show/3bExJ9JQpkwNhoHvaIIuyV","rss":"https://feeds.npr.org/510312/podcast.xml"}},"commonwealth-club":{"id":"commonwealth-club","title":"Commonwealth Club of California Podcast","info":"The Commonwealth Club of California is the nation's oldest and largest public affairs forum. As a non-partisan forum, The Club brings to the public airwaves diverse viewpoints on important topics. The Club's weekly radio broadcast - the oldest in the U.S., dating back to 1924 - is carried across the nation on public radio stations and is now podcasting. Our website archive features audio of our recent programs, as well as selected speeches from our long and distinguished history. 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