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"content": "\u003cp>The state is facing mounting pressure to enforce \u003ca href=\"https://calmatters.org/projects/california-mental-health-care-parity/\" target=\"_blank\" rel=\"noopener noreferrer\">parity laws that are supposed to guarantee equal care for physical and mental health issues\u003c/a>— with a spotlight this week on mental health care problems at health giant Kaiser Permanente.\u003c/p>\n\u003cp>This week, Kaiser mental health clinicians are on a\u003ca href=\"https://www.kqed.org/news/11791527/kaiser-therapists-strike-again-over-long-wait-times\" target=\"_blank\" rel=\"noopener noreferrer\"> five-day strike\u003c/a>, protesting long patient wait times and strenuous working conditions for providers. They say children and adults with serious mental health needs, including schizophrenia, anxiety and severe depression, are often waiting six to eight weeks — sometimes longer — to see a therapist. And they contend that Kaiser’s behavioral health services have in many ways worsened in recent years, despite being under a corrective plan overseen by the state \u003ca href=\"http://www.dmhc.ca.gov/?referral=healthhelp.ca.gov\" target=\"_blank\" rel=\"noopener noreferrer\">Department of Managed Health Care\u003c/a>.\u003c/p>\n\u003cp>[pullquote size=\"medium\" align=\"right\" citation=\"Fred Seavey, research director for the National Union of Healthcare Workers\"]‘If these were cardiac catheterization services that were not functioning, if a health plan was screwing those up, (the state) would jump on that and require those to be fixed right away. Meanwhile they’re just sitting on their hands.’[/pullquote]\u003c/p>\n\u003cp>Striking clinicians on Thursday plan to march from the Capitol to the state agency to protest what they called “the agency’s failure to enforce parity legislation.” They specifically criticized the agency for not releasing reports from an outside monitor that would show whether Kaiser is meeting mental health access benchmarks outlined in a 2017 settlement agreement.\u003c/p>\n\u003cp>“I’m very disappointed with the DMHC — it’s just stunning,” said Fred Seavey, research director for the National Union of Healthcare Workers, which organized the strike. “It’s just criminal in my mind that they’re not holding Kaiser accountable.”\u003c/p>\n\u003cp>“If these were cardiac catheterization services that were not functioning, if a health plan was screwing those up, (the state) would jump on that and require those to be fixed right away,” he said. “Meanwhile they’re just sitting on their hands. We have people who are dying in the course of this failed enforcement by the DMHC.”\u003c/p>\n\u003cp>Seavey criticized Kaiser’s “massive influence” with the department, and said the union may call an open-ended strike in early 2020 if Kaiser does not improve mental health services.\u003c/p>\n\u003cp>After the state’s agreement with Kaiser in 2017, the health plan created a process to ensure that follow-up appointments are available in a timely manner, the state agency said in an emailed statement. Providers who cannot get their patients in for follow-up care are supposed to notify their managers.\u003c/p>\n\u003cp>The department fined Kaiser $4 million in 2013, but the plan did not agree to a settlement with corrective actions until 2017. That \u003ca href=\"https://wpso.dmhc.ca.gov/enfactions/docs/2895/1500394196511.pdf\">settlement agreement\u003c/a> is publicly available. But while the state department receives regular updates about the plan’s progress, it says it keeps that information confidential “in compliance with federal and state laws.”\u003c/p>\n\u003cp>Kaiser spokesman Marc Brown called the strikes “disruptive to patient access, operational care and service and…frankly irresponsible.” In an emailed statement, he said this is the union’s sixth strike this year (Seavey said most of these strikes were done at individual clinics, as opposed to statewide).\u003c/p>\n\u003cp>[aside postID=\"arts_13871243,news_11786202,news_11756742\" label=\"Mental Health Care in California\"]“We take any concern raised about our care very seriously, and always investigate and respond thoroughly,” Brown said. “However, it is inappropriate for the union to file multiple, often unwarranted complaints, and attack Kaiser Permanente’s reputation.”\u003c/p>\n\u003cp>More than a dozen complaints the union has filed with the DMHC in the past year — and sought to publicize — decry violations of network adequacy rules, timely access rules and long appointment wait times, among others. One complaint said patients in Pasadena with schizophrenia, serious major depression and bipolar disorder were waiting three or four months for an appointment. Another complaint said therapists in San Francisco were being told to keep alternative paper wait lists — or tell patients to call back later — to hide its failure to see children in a timely manner.\u003c/p>\n\u003cp>\u003ca href=\"https://calmatters.org/projects/californians-struggle-to-get-mental-health-care/\">Frustration with access to mental health services at Kaiser\u003c/a> extends beyond the HMO as well. According to a\u003ca href=\"https://www.chcf.org/publication/poll-shows-californians-health-priorities-new-governor-legislature/\"> statewide poll\u003c/a> by the Kaiser Family Foundation and the California Health Care Foundation released earlier this year, more than half of those surveyed thought that most people with mental health conditions are unable to get the services they need. A \u003ca href=\"http://www.milliman.com/bowman/\">recent analysis by healthcare consultants Milliman Inc.\u003c/a> showed that California patients were more than five times more likely to have office visits for mental health or addiction problems from providers outside their insurance plan’s network compared with their counterparts seeking medical or surgical care.\u003c/p>\n\u003cp>Concerned about these access problems, State Controller Betty Yee, who sits on the board of the California Public Employees’ Retirement System, wrote a letter to its executive officer requesting a series of hearings with its largest plans: Kaiser, Anthem, Blue Shield and United Healthcare. Kaiser, with more than 640,000 enrollees, has by far the highest membership.\u003c/p>\n\u003cp>“We negotiate contracts; we have leverage,” Yee said Tuesday, as the CalPERS board was conducting its third hearing on the subject. “To the extent that parity is not guaranteed, we need to make sure that our plans are living up to the law.”\u003c/p>\n\u003cp>State Treasurer Fiona Ma, who also sits on the board, said she’s seen firsthand how her own mother and brother have struggled to get adequate, timely care for depression. She’s been writing letters asking plans to explain the long wait times and high cost of care, and the growing numbers of people suffering from mental illnesses. Plans need to get more creative in finding solutions, she said.\u003cbr>\n[pullquote size=\"medium\" align=\"right\" citation=\"Cindy Striegel, a vice president at Kaiser\"]‘This is not an issue or an area that we can solve overnight. We can’t just throw more money at it. We can’t throw more effort at it. We’re doing the things that we feel are the most important.’[/pullquote]\u003c/p>\n\u003cp>“Kaiser is out on strike again today,” she said. “Why is that? Is it because everything is going well? No, it’s because things are not going well in the system and patients are getting sicker and sicker.”\u003c/p>\n\u003cp>Kaiser and the Department of Managed Health Care both sent representatives to speak at a November meeting of the CalPERS Pension and Benefits Committee.\u003c/p>\n\u003cp>DMHC director Shelley Rouillard told board members that day that the department takes its responsibility as a consumer protection agency very seriously, and outlined some of its offerings: a consumer help center, independent medical review process, regular monitoring of plans to ensure they have enough providers and enforcement actions against plans that violate timely access requirements. She said Kaiser has met all of the benchmarks of the 2017 settlement agreement so far.\u003c/p>\n\u003cp>But she also acknowledged that, in some cases, it takes years to correct problems with plans.\u003c/p>\n\u003cp>https://youtu.be/zDuLZ1oJR8k\u003c/p>\n\u003cp>Cindy Striegel, a vice president at Kaiser, said it has hired more than 1,200 full-time therapists or clinicians since 2015, an increase of 30 percent. At the same time, she said, membership has grown about 20 percent. Kaiser is continuing to recruit and currently has about 300 positions posted or in the hiring process.\u003c/p>\n\u003cp>“This is not an issue or an area that we can solve overnight,” she said. “We can’t just throw more money at it. We can’t throw more effort at it. We’re doing the things that we feel are the most important. They just take some time to implement.”\u003c/p>\n\u003cp>Susan Whitney, a psychiatric social worker at the Kern County Kaiser Medical Center in Bakersfield, said she has worked for Kaiser for 15 years. Since the state first cited Kaiser in 2013, she said, “access to care has definitely gotten worse.” She believes that’s because the state has focused its scrutiny on how long it takes to get patients in the door for an initial appointment.\u003c/p>\n\u003cp>“People can get in right away to be seen, but then we’re left saying we don’t have a follow-up appointment for them for 6 to 8 or 12 weeks,’” she said. Whitney, who works with children and teenagers, said those delays in follow-up care exist even for children have anxiety so bad they can’t go to school, or show signs of being suicidal. The network of community providers that Kaiser sometimes outsources care to has been “completely overwhelmed,” she said.\u003c/p>\n\u003cp>“There is no therapy treatment model where you see a provider every 6 to 8 weeks,” she said. “Therapy just doesn’t work that way.”\u003c/p>\n\u003cp>Vicki Hoskins, a psychiatric therapist at Kaiser’s Euclid Medical Offices in Anaheim, said last week she spent the day on the phone telling patients in crisis they can’t get an appointment for a therapist until March.\u003c/p>\n\u003cp>“It’s super stressful,” she said. “Everyone’s frustrated. It’s always been bad, but this is the worst it’s ever been.”\u003c/p>\n\u003cp>She attributes the problem, in part, to Kaiser adding members before they build up their base of clinicians, along with greater awareness of suicidality and depression. A reduced stigma around mental illness also has led more people to seek help.\u003c/p>\n\u003cp>“When someone finally decides to seek help and then are told they can’t get help for 3 months, it makes them feel worse,” she said.\u003c/p>\n\u003cp>[aside tag=\"kaiser-permanente\" label=\"More on Kaiser\"]Des Michel, 27, from Oakland, said they reached out to Kaiser in July of 2018 in crisis, seeking care for gender identity affirming therapy. Michel’s first appointment was at the end of October, at which point they received referrals to Beacon Health Services and then, a few months later to Magellan.\u003c/p>\n\u003cp>“It was overall, and still is, a very negative experience for my mental health,” Michel said. “It’s been a year and a half. I’m probably just going to suck it up and pay privately, but financially and ethically it wasn’t something I wanted to do because I feel strongly that Kaiser has an obligation to their patients to be providing mental health care.”\u003c/p>\n\u003cp>Jeanette Zollinger, 42, of Thousand Oaks, said she, too, ended up paying out of pocket to see an outside therapist when she was having a “pretty rough breakdown.”\u003c/p>\n\u003cp>“It was literally life-saving,” she said. “I really didn’t feel like I had an option to go through Kaiser when I really needed help. They just didn’t have the staffing.”\u003c/p>\n\u003cp>Rouillard at the state Department of Managed Health Care maintains that the state is doing its job, but it is challenging given the shortage of providers.\u003c/p>\n\u003cp>“Access to behavioral health care services is a very high priority for our governor and for the Secretary of the Health and Human Services Agency,” she said. “The department has been working hard to ensure health plans comply with all requirements regarding timely access to care and federal and state mental health law — parity laws.”\u003c/p>\n\u003cp>Critics are unconvinced. Meiram Bendat, a Los Angeles attorney and psychotherapist, won a much-touted case this spring in which a Northern California federal court found that United Behavioral Health had wrongly restricted treatment for patients with mental health and substance abuse disorders in order to cut costs.\u003c/p>\n\u003cp>Kaiser therapists “have every reason to be fed up with the DMHC, which over the years has created an illusion of public service by fining it a few million dollars – trivial penalties that have no actual deterrent effect,” he said. He said Kaiser could compensate for network inadequacies by covering out-of-network mental health treatment at billed charges\u003c/p>\n\u003cp>“If DMHC were truly committed to mental health reforms and not just to its public image, it would have insisted on such measures long ago,” he said.\u003c/p>\n\u003cp>\u003cem>Jocelyn Wiener is a CalMatters contributing writer. Her reporting is made possible by a grant from the California Health Care Foundation.\u003c/em>\u003c/p>\n\u003cp>\u003cem>\u003ca href=\"http://CalMatters.org\" target=\"_blank\" rel=\"noopener noreferrer\">CalMatters.org \u003c/a>is a nonprofit, nonpartisan media venture explaining California policies and politics.\u003c/em>\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>[ad floatright]\u003c/p>\n",
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"excerpt": "Striking clinicians — spotlighting complaints that patients with serious mental illness face long waits and inadequate care — lay blame at the doorstep of the state Department of Managed Health Care.",
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"title": "Mental Health Care Outcry Targets Kaiser — and State Regulators | KQED",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003cp>The state is facing mounting pressure to enforce \u003ca href=\"https://calmatters.org/projects/california-mental-health-care-parity/\" target=\"_blank\" rel=\"noopener noreferrer\">parity laws that are supposed to guarantee equal care for physical and mental health issues\u003c/a>— with a spotlight this week on mental health care problems at health giant Kaiser Permanente.\u003c/p>\n\u003cp>This week, Kaiser mental health clinicians are on a\u003ca href=\"https://www.kqed.org/news/11791527/kaiser-therapists-strike-again-over-long-wait-times\" target=\"_blank\" rel=\"noopener noreferrer\"> five-day strike\u003c/a>, protesting long patient wait times and strenuous working conditions for providers. They say children and adults with serious mental health needs, including schizophrenia, anxiety and severe depression, are often waiting six to eight weeks — sometimes longer — to see a therapist. And they contend that Kaiser’s behavioral health services have in many ways worsened in recent years, despite being under a corrective plan overseen by the state \u003ca href=\"http://www.dmhc.ca.gov/?referral=healthhelp.ca.gov\" target=\"_blank\" rel=\"noopener noreferrer\">Department of Managed Health Care\u003c/a>.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "‘If these were cardiac catheterization services that were not functioning, if a health plan was screwing those up, (the state) would jump on that and require those to be fixed right away. Meanwhile they’re just sitting on their hands.’",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>Striking clinicians on Thursday plan to march from the Capitol to the state agency to protest what they called “the agency’s failure to enforce parity legislation.” They specifically criticized the agency for not releasing reports from an outside monitor that would show whether Kaiser is meeting mental health access benchmarks outlined in a 2017 settlement agreement.\u003c/p>\n\u003cp>“I’m very disappointed with the DMHC — it’s just stunning,” said Fred Seavey, research director for the National Union of Healthcare Workers, which organized the strike. “It’s just criminal in my mind that they’re not holding Kaiser accountable.”\u003c/p>\n\u003cp>“If these were cardiac catheterization services that were not functioning, if a health plan was screwing those up, (the state) would jump on that and require those to be fixed right away,” he said. “Meanwhile they’re just sitting on their hands. We have people who are dying in the course of this failed enforcement by the DMHC.”\u003c/p>\n\u003cp>Seavey criticized Kaiser’s “massive influence” with the department, and said the union may call an open-ended strike in early 2020 if Kaiser does not improve mental health services.\u003c/p>\n\u003cp>After the state’s agreement with Kaiser in 2017, the health plan created a process to ensure that follow-up appointments are available in a timely manner, the state agency said in an emailed statement. Providers who cannot get their patients in for follow-up care are supposed to notify their managers.\u003c/p>\n\u003cp>The department fined Kaiser $4 million in 2013, but the plan did not agree to a settlement with corrective actions until 2017. That \u003ca href=\"https://wpso.dmhc.ca.gov/enfactions/docs/2895/1500394196511.pdf\">settlement agreement\u003c/a> is publicly available. But while the state department receives regular updates about the plan’s progress, it says it keeps that information confidential “in compliance with federal and state laws.”\u003c/p>\n\u003cp>Kaiser spokesman Marc Brown called the strikes “disruptive to patient access, operational care and service and…frankly irresponsible.” In an emailed statement, he said this is the union’s sixth strike this year (Seavey said most of these strikes were done at individual clinics, as opposed to statewide).\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>“We take any concern raised about our care very seriously, and always investigate and respond thoroughly,” Brown said. “However, it is inappropriate for the union to file multiple, often unwarranted complaints, and attack Kaiser Permanente’s reputation.”\u003c/p>\n\u003cp>More than a dozen complaints the union has filed with the DMHC in the past year — and sought to publicize — decry violations of network adequacy rules, timely access rules and long appointment wait times, among others. One complaint said patients in Pasadena with schizophrenia, serious major depression and bipolar disorder were waiting three or four months for an appointment. Another complaint said therapists in San Francisco were being told to keep alternative paper wait lists — or tell patients to call back later — to hide its failure to see children in a timely manner.\u003c/p>\n\u003cp>\u003ca href=\"https://calmatters.org/projects/californians-struggle-to-get-mental-health-care/\">Frustration with access to mental health services at Kaiser\u003c/a> extends beyond the HMO as well. According to a\u003ca href=\"https://www.chcf.org/publication/poll-shows-californians-health-priorities-new-governor-legislature/\"> statewide poll\u003c/a> by the Kaiser Family Foundation and the California Health Care Foundation released earlier this year, more than half of those surveyed thought that most people with mental health conditions are unable to get the services they need. A \u003ca href=\"http://www.milliman.com/bowman/\">recent analysis by healthcare consultants Milliman Inc.\u003c/a> showed that California patients were more than five times more likely to have office visits for mental health or addiction problems from providers outside their insurance plan’s network compared with their counterparts seeking medical or surgical care.\u003c/p>\n\u003cp>Concerned about these access problems, State Controller Betty Yee, who sits on the board of the California Public Employees’ Retirement System, wrote a letter to its executive officer requesting a series of hearings with its largest plans: Kaiser, Anthem, Blue Shield and United Healthcare. Kaiser, with more than 640,000 enrollees, has by far the highest membership.\u003c/p>\n\u003cp>“We negotiate contracts; we have leverage,” Yee said Tuesday, as the CalPERS board was conducting its third hearing on the subject. “To the extent that parity is not guaranteed, we need to make sure that our plans are living up to the law.”\u003c/p>\n\u003cp>State Treasurer Fiona Ma, who also sits on the board, said she’s seen firsthand how her own mother and brother have struggled to get adequate, timely care for depression. She’s been writing letters asking plans to explain the long wait times and high cost of care, and the growing numbers of people suffering from mental illnesses. Plans need to get more creative in finding solutions, she said.\u003cbr>\n\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>“Kaiser is out on strike again today,” she said. “Why is that? Is it because everything is going well? No, it’s because things are not going well in the system and patients are getting sicker and sicker.”\u003c/p>\n\u003cp>Kaiser and the Department of Managed Health Care both sent representatives to speak at a November meeting of the CalPERS Pension and Benefits Committee.\u003c/p>\n\u003cp>DMHC director Shelley Rouillard told board members that day that the department takes its responsibility as a consumer protection agency very seriously, and outlined some of its offerings: a consumer help center, independent medical review process, regular monitoring of plans to ensure they have enough providers and enforcement actions against plans that violate timely access requirements. She said Kaiser has met all of the benchmarks of the 2017 settlement agreement so far.\u003c/p>\n\u003cp>But she also acknowledged that, in some cases, it takes years to correct problems with plans.\u003c/p>\u003c/p>\u003cp>\u003cspan class='utils-parseShortcode-shortcodes-__youtubeShortcode__embedYoutube'>\n \u003cspan class='utils-parseShortcode-shortcodes-__youtubeShortcode__embedYoutubeInside'>\n \u003ciframe\n loading='lazy'\n class='utils-parseShortcode-shortcodes-__youtubeShortcode__youtubePlayer'\n type='text/html'\n src='//www.youtube.com/embed/zDuLZ1oJR8k'\n title='//www.youtube.com/embed/zDuLZ1oJR8k'\n allowfullscreen='true'\n style='border:0;'>\u003c/iframe>\n \u003c/span>\n \u003c/span>\u003c/p>\u003cp>\u003cp>Cindy Striegel, a vice president at Kaiser, said it has hired more than 1,200 full-time therapists or clinicians since 2015, an increase of 30 percent. At the same time, she said, membership has grown about 20 percent. Kaiser is continuing to recruit and currently has about 300 positions posted or in the hiring process.\u003c/p>\n\u003cp>“This is not an issue or an area that we can solve overnight,” she said. “We can’t just throw more money at it. We can’t throw more effort at it. We’re doing the things that we feel are the most important. They just take some time to implement.”\u003c/p>\n\u003cp>Susan Whitney, a psychiatric social worker at the Kern County Kaiser Medical Center in Bakersfield, said she has worked for Kaiser for 15 years. Since the state first cited Kaiser in 2013, she said, “access to care has definitely gotten worse.” She believes that’s because the state has focused its scrutiny on how long it takes to get patients in the door for an initial appointment.\u003c/p>\n\u003cp>“People can get in right away to be seen, but then we’re left saying we don’t have a follow-up appointment for them for 6 to 8 or 12 weeks,’” she said. Whitney, who works with children and teenagers, said those delays in follow-up care exist even for children have anxiety so bad they can’t go to school, or show signs of being suicidal. The network of community providers that Kaiser sometimes outsources care to has been “completely overwhelmed,” she said.\u003c/p>\n\u003cp>“There is no therapy treatment model where you see a provider every 6 to 8 weeks,” she said. “Therapy just doesn’t work that way.”\u003c/p>\n\u003cp>Vicki Hoskins, a psychiatric therapist at Kaiser’s Euclid Medical Offices in Anaheim, said last week she spent the day on the phone telling patients in crisis they can’t get an appointment for a therapist until March.\u003c/p>\n\u003cp>“It’s super stressful,” she said. “Everyone’s frustrated. It’s always been bad, but this is the worst it’s ever been.”\u003c/p>\n\u003cp>She attributes the problem, in part, to Kaiser adding members before they build up their base of clinicians, along with greater awareness of suicidality and depression. A reduced stigma around mental illness also has led more people to seek help.\u003c/p>\n\u003cp>“When someone finally decides to seek help and then are told they can’t get help for 3 months, it makes them feel worse,” she said.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>Des Michel, 27, from Oakland, said they reached out to Kaiser in July of 2018 in crisis, seeking care for gender identity affirming therapy. Michel’s first appointment was at the end of October, at which point they received referrals to Beacon Health Services and then, a few months later to Magellan.\u003c/p>\n\u003cp>“It was overall, and still is, a very negative experience for my mental health,” Michel said. “It’s been a year and a half. I’m probably just going to suck it up and pay privately, but financially and ethically it wasn’t something I wanted to do because I feel strongly that Kaiser has an obligation to their patients to be providing mental health care.”\u003c/p>\n\u003cp>Jeanette Zollinger, 42, of Thousand Oaks, said she, too, ended up paying out of pocket to see an outside therapist when she was having a “pretty rough breakdown.”\u003c/p>\n\u003cp>“It was literally life-saving,” she said. “I really didn’t feel like I had an option to go through Kaiser when I really needed help. They just didn’t have the staffing.”\u003c/p>\n\u003cp>Rouillard at the state Department of Managed Health Care maintains that the state is doing its job, but it is challenging given the shortage of providers.\u003c/p>\n\u003cp>“Access to behavioral health care services is a very high priority for our governor and for the Secretary of the Health and Human Services Agency,” she said. “The department has been working hard to ensure health plans comply with all requirements regarding timely access to care and federal and state mental health law — parity laws.”\u003c/p>\n\u003cp>Critics are unconvinced. Meiram Bendat, a Los Angeles attorney and psychotherapist, won a much-touted case this spring in which a Northern California federal court found that United Behavioral Health had wrongly restricted treatment for patients with mental health and substance abuse disorders in order to cut costs.\u003c/p>\n\u003cp>Kaiser therapists “have every reason to be fed up with the DMHC, which over the years has created an illusion of public service by fining it a few million dollars – trivial penalties that have no actual deterrent effect,” he said. He said Kaiser could compensate for network inadequacies by covering out-of-network mental health treatment at billed charges\u003c/p>\n\u003cp>“If DMHC were truly committed to mental health reforms and not just to its public image, it would have insisted on such measures long ago,” he said.\u003c/p>\n\u003cp>\u003cem>Jocelyn Wiener is a CalMatters contributing writer. Her reporting is made possible by a grant from the California Health Care Foundation.\u003c/em>\u003c/p>\n\u003cp>\u003cem>\u003ca href=\"http://CalMatters.org\" target=\"_blank\" rel=\"noopener noreferrer\">CalMatters.org \u003c/a>is a nonprofit, nonpartisan media venture explaining California policies and politics.\u003c/em>\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cp>Four thousand mental health clinicians are walking off their jobs at Kaiser Permanente today, affecting care at more than 100 clinics across the state. The week-long strike is the second in a year, as the workers’ union and Kaiser management remain deadlocked on a new contract.\u003c/p>\n\u003cp>Therapists’ main complaint is long wait times for patients. While industry best practice is to see clients every one to two weeks, the majority of Kaiser clinicians say their patients with anxiety and depression are forced to wait four to eight weeks between appointments.\u003c/p>\n\u003cp>“That is substandard care, that is unethical care and that is dangerous care,” said Mickey Fitzpatrick, a clinical psychologist at Kaiser in Pleasanton. “That increases the risk of suicide and, indeed, people have taken their lives.”\u003c/p>\n\u003cp>They're asking Kaiser to hire more therapists to reduce wait times and ease the workload on employees. They also want higher wages and more time to complete administrative tasks.\u003c/p>\n\u003cp>Under the current contract, Fitzpatrick said he sees four to five new patients every week, in addition to all his current patients. Unlike therapists in private practice, Fitzpatrick can not turn patients away or tell them he doesn’t have room to see them.\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>“There's no cap to my caseload,” he said. “It just grows and grows and grows.”\u003c/p>\n\u003cp>Kaiser executives say they are investing millions of dollars in new facilities and workforce development, including educational programs for new therapists to meet the increasing demand for mental health care.\u003c/p>\n\u003cp>The company says it increased its workforce by 30% in the last three years, including hiring nearly 500 new therapists last year, but patient demand has grown 23% in the same time.\u003c/p>\n\u003cp>“The good news is that the stigma has been removed and people that need care are actually coming forward to get it,” said Michelle Gaskill-Hames, senior vice president for hospital and health plan operations at Kaiser Northern California. But, “it's creating a rise in demand at a time when there is a shortage of workers.”\u003c/p>\n\u003cfigure id=\"attachment_11791582\" class=\"wp-caption aligncenter\" style=\"max-width: 1920px\">\u003ca href=\"https://ww2.kqed.org/news/2019/12/16/kaiser-therapists-strike-again-over-long-wait-times/img_3737/\" rel=\"attachment wp-att-11791582\">\u003cimg src=\"https://ww2.kqed.org/app/uploads/sites/10/2019/12/IMG_3737.jpg\" alt=\"\" width=\"1920\" height=\"1440\" class=\"size-full wp-image-11791582\" srcset=\"https://ww2.kqed.org/app/uploads/sites/10/2019/12/IMG_3737.jpg 1920w, https://ww2.kqed.org/app/uploads/sites/10/2019/12/IMG_3737-160x120.jpg 160w, https://ww2.kqed.org/app/uploads/sites/10/2019/12/IMG_3737-800x600.jpg 800w, https://ww2.kqed.org/app/uploads/sites/10/2019/12/IMG_3737-1020x765.jpg 1020w, https://ww2.kqed.org/app/uploads/sites/10/2019/12/IMG_3737-1200x900.jpg 1200w, https://ww2.kqed.org/app/uploads/sites/10/2019/12/IMG_3737-1832x1374.jpg 1832w, https://ww2.kqed.org/app/uploads/sites/10/2019/12/IMG_3737-1376x1032.jpg 1376w, https://ww2.kqed.org/app/uploads/sites/10/2019/12/IMG_3737-1044x783.jpg 1044w, https://ww2.kqed.org/app/uploads/sites/10/2019/12/IMG_3737-632x474.jpg 632w, https://ww2.kqed.org/app/uploads/sites/10/2019/12/IMG_3737-536x402.jpg 536w\" sizes=\"(max-width: 1920px) 100vw, 1920px\">\u003c/a>\u003cfigcaption class=\"wp-caption-text\">A Kaiser clinician during the previous Dec. 2018 strike. \u003ccite>(April Dembosky/KQED)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>Research shows there is a shortage of clinicians in some positions in some regions of the country, particularly for psychiatrists and adolescent psychiatrists in rural areas. But union members say that's not the case in most Kaiser locations, where graduate schools are “pumping out” masters and doctorate level mental health clinicians.\u003c/p>\n\u003cp>“The issue is that few people want to work for Kaiser,” said Fitzpatrick, “because once they’re working for Kaiser, they quickly burn out. They’re overloaded, they're overworked, and so they leave.”\u003c/p>\n\u003cp>California regulators have substantiated some of the therapists’ allegations. In 2013, the state Department of Managed Health Care fined Kaiser $4 million for long wait times for individual appointments and for forcing patients into group therapy who didn’t want it. The agency cited Kaiser again in 2015 and 2017 over wait times.\u003c/p>\n\u003cp>Kaiser executives say the company has improved since then, meeting the state’s standard for timely access 90% of the time in 2019, according to its own data.\u003c/p>\n\u003cp>But therapists say Kaiser is crunching the numbers to make the situation look better than it is on the ground. For example, one of Kaiser’s solutions to improving wait times for initial appointments, which they must provide with 48 hours for urgent needs and 10 days for non-urgent matters under state law, is to do intakes over the phone through its Connect 2 Care program.\u003c/p>\n\u003cp>[aside postID='news_11763856,news_11760375,news_11748021,news_11711317' label='Previous Kaiser Strikes']Clinicians say this means patients get quick access to an initial 30-minute phone appointment, but are still waiting weeks or a month to start therapy in earnest with a clinician who can see them on a regular basis, and are then waiting months between appointments.\u003c/p>\n\u003cp>“It’s mainly giving patients more of the run-around, of needing to talk to multiple providers before getting to their assigned therapist,” said Kirstin Quinn Siegel, a licensed marriage and family therapist at Kaiser’s Richmond clinic, who marched on the picket lines on Monday. “So right now they have improved their initial access, but it hasn't really made a dent in our return access.”\u003c/p>\n\u003cp>During the strike, emergency mental health services will be available and Kaiser is working to minimize disruption to ongoing care, but some appointments may need to be rescheduled.\u003c/p>\n\u003cp>“We have plans in place, but we're really disappointed that we haven't been able to draw this to resolution,” said Kaiser’s Gaskill-Hames. “This is the sixth time that there's been a strike called in 12 months, and each time it can be disruptive to our members.”\u003c/p>\n\u003cp>Two previous strikes were called off, once in June, after state lawmakers asked both sides to return to the bargaining table, and another time in November, after Kaiser CEO Bernard Tyson died unexpectedly.\u003c/p>\n\u003cp>\u003c/p>\n\u003cp>\u003cem>Sara Hossaini contributed reporting.\u003c/em>\u003c/p>\n\n",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003cp>Four thousand mental health clinicians are walking off their jobs at Kaiser Permanente today, affecting care at more than 100 clinics across the state. The week-long strike is the second in a year, as the workers’ union and Kaiser management remain deadlocked on a new contract.\u003c/p>\n\u003cp>Therapists’ main complaint is long wait times for patients. While industry best practice is to see clients every one to two weeks, the majority of Kaiser clinicians say their patients with anxiety and depression are forced to wait four to eight weeks between appointments.\u003c/p>\n\u003cp>“That is substandard care, that is unethical care and that is dangerous care,” said Mickey Fitzpatrick, a clinical psychologist at Kaiser in Pleasanton. “That increases the risk of suicide and, indeed, people have taken their lives.”\u003c/p>\n\u003cp>They're asking Kaiser to hire more therapists to reduce wait times and ease the workload on employees. They also want higher wages and more time to complete administrative tasks.\u003c/p>\n\u003cp>Under the current contract, Fitzpatrick said he sees four to five new patients every week, in addition to all his current patients. Unlike therapists in private practice, Fitzpatrick can not turn patients away or tell them he doesn’t have room to see them.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>“There's no cap to my caseload,” he said. “It just grows and grows and grows.”\u003c/p>\n\u003cp>Kaiser executives say they are investing millions of dollars in new facilities and workforce development, including educational programs for new therapists to meet the increasing demand for mental health care.\u003c/p>\n\u003cp>The company says it increased its workforce by 30% in the last three years, including hiring nearly 500 new therapists last year, but patient demand has grown 23% in the same time.\u003c/p>\n\u003cp>“The good news is that the stigma has been removed and people that need care are actually coming forward to get it,” said Michelle Gaskill-Hames, senior vice president for hospital and health plan operations at Kaiser Northern California. But, “it's creating a rise in demand at a time when there is a shortage of workers.”\u003c/p>\n\u003cfigure id=\"attachment_11791582\" class=\"wp-caption aligncenter\" style=\"max-width: 1920px\">\u003ca href=\"https://ww2.kqed.org/news/2019/12/16/kaiser-therapists-strike-again-over-long-wait-times/img_3737/\" rel=\"attachment wp-att-11791582\">\u003cimg src=\"https://ww2.kqed.org/app/uploads/sites/10/2019/12/IMG_3737.jpg\" alt=\"\" width=\"1920\" height=\"1440\" class=\"size-full wp-image-11791582\" srcset=\"https://ww2.kqed.org/app/uploads/sites/10/2019/12/IMG_3737.jpg 1920w, https://ww2.kqed.org/app/uploads/sites/10/2019/12/IMG_3737-160x120.jpg 160w, https://ww2.kqed.org/app/uploads/sites/10/2019/12/IMG_3737-800x600.jpg 800w, https://ww2.kqed.org/app/uploads/sites/10/2019/12/IMG_3737-1020x765.jpg 1020w, https://ww2.kqed.org/app/uploads/sites/10/2019/12/IMG_3737-1200x900.jpg 1200w, https://ww2.kqed.org/app/uploads/sites/10/2019/12/IMG_3737-1832x1374.jpg 1832w, https://ww2.kqed.org/app/uploads/sites/10/2019/12/IMG_3737-1376x1032.jpg 1376w, https://ww2.kqed.org/app/uploads/sites/10/2019/12/IMG_3737-1044x783.jpg 1044w, https://ww2.kqed.org/app/uploads/sites/10/2019/12/IMG_3737-632x474.jpg 632w, https://ww2.kqed.org/app/uploads/sites/10/2019/12/IMG_3737-536x402.jpg 536w\" sizes=\"(max-width: 1920px) 100vw, 1920px\">\u003c/a>\u003cfigcaption class=\"wp-caption-text\">A Kaiser clinician during the previous Dec. 2018 strike. \u003ccite>(April Dembosky/KQED)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>Research shows there is a shortage of clinicians in some positions in some regions of the country, particularly for psychiatrists and adolescent psychiatrists in rural areas. But union members say that's not the case in most Kaiser locations, where graduate schools are “pumping out” masters and doctorate level mental health clinicians.\u003c/p>\n\u003cp>“The issue is that few people want to work for Kaiser,” said Fitzpatrick, “because once they’re working for Kaiser, they quickly burn out. They’re overloaded, they're overworked, and so they leave.”\u003c/p>\n\u003cp>California regulators have substantiated some of the therapists’ allegations. In 2013, the state Department of Managed Health Care fined Kaiser $4 million for long wait times for individual appointments and for forcing patients into group therapy who didn’t want it. The agency cited Kaiser again in 2015 and 2017 over wait times.\u003c/p>\n\u003cp>Kaiser executives say the company has improved since then, meeting the state’s standard for timely access 90% of the time in 2019, according to its own data.\u003c/p>\n\u003cp>But therapists say Kaiser is crunching the numbers to make the situation look better than it is on the ground. For example, one of Kaiser’s solutions to improving wait times for initial appointments, which they must provide with 48 hours for urgent needs and 10 days for non-urgent matters under state law, is to do intakes over the phone through its Connect 2 Care program.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>Clinicians say this means patients get quick access to an initial 30-minute phone appointment, but are still waiting weeks or a month to start therapy in earnest with a clinician who can see them on a regular basis, and are then waiting months between appointments.\u003c/p>\n\u003cp>“It’s mainly giving patients more of the run-around, of needing to talk to multiple providers before getting to their assigned therapist,” said Kirstin Quinn Siegel, a licensed marriage and family therapist at Kaiser’s Richmond clinic, who marched on the picket lines on Monday. “So right now they have improved their initial access, but it hasn't really made a dent in our return access.”\u003c/p>\n\u003cp>During the strike, emergency mental health services will be available and Kaiser is working to minimize disruption to ongoing care, but some appointments may need to be rescheduled.\u003c/p>\n\u003cp>“We have plans in place, but we're really disappointed that we haven't been able to draw this to resolution,” said Kaiser’s Gaskill-Hames. “This is the sixth time that there's been a strike called in 12 months, and each time it can be disruptive to our members.”\u003c/p>\n\u003cp>Two previous strikes were called off, once in June, after state lawmakers asked both sides to return to the bargaining table, and another time in November, after Kaiser CEO Bernard Tyson died unexpectedly.\u003c/p>\n\u003cp>\u003c/p>\n\u003cp>\u003cem>Sara Hossaini contributed reporting.\u003c/em>\u003c/p>\n\n\u003c/div>\u003c/p>",
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"title": "In the Expensive Bay Area, Artists Navigate Unique Mental Health Challenges",
"headTitle": "In the Expensive Bay Area, Artists Navigate Unique Mental Health Challenges | KQED",
"content": "\u003cfigure id=\"attachment_13871302\" class=\"wp-caption aligncenter\" style=\"max-width: 800px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-13871302\" src=\"https://cdn.kqed.org/wp-content/uploads/sites/2/2019/12/image0.jpeg\" alt=\"A music studio viewed from above. A man sits in a chair with a guitar and looks up.\" width=\"800\" height=\"450\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/2/2019/12/image0.jpeg 800w, https://cdn.kqed.org/wp-content/uploads/sites/2/2019/12/image0-160x90.jpeg 160w, https://cdn.kqed.org/wp-content/uploads/sites/2/2019/12/image0-768x432.jpeg 768w\" sizes=\"(max-width: 800px) 100vw, 800px\">\u003cfigcaption class=\"wp-caption-text\">The Housewarmers’ bandleader Ian Santillano says that the Bay Area’s high cost of living can exacerbate the unique pressures musicians face by virtue of their profession. \u003ccite>(Courtesy of Ian Santillano)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>“As a musician, it can be difficult to navigate a community stricken with mental health concerns,” says \u003ca href=\"https://seanthompson.bandcamp.com/\" target=\"_blank\" rel=\"noopener noreferrer\">Sean Emmett Thompson\u003c/a>, a 26-year-old singer and guitarist who lives in San Francisco.\u003c/p>\n\u003cp>Grueling tour schedules, financial ups and downs, performance anxiety, fear of failure—musicians face unique job pressures that can make them more prone to mental illness. A \u003ca href=\"https://www.the73percent.com/\" target=\"_blank\" rel=\"noopener noreferrer\">2019 survey\u003c/a> of nearly 1,500 independent musicians conducted by music distributor \u003ca href=\"https://www.recordunion.com/\" target=\"_blank\" rel=\"noopener noreferrer\">Record Union\u003c/a> found that 73 percent of respondents struggled with anxiety and depression, and 33 percent grappled with panic attacks. Furthermore, a \u003ca href=\"https://westminsterresearch.westminster.ac.uk/download/fd3b380d63e4e4a1219017768f5a56a2004e0916b59065565bac67b9d9562a22/3955058/Gross%20%26%20Musgrave%20%282016%29%20Can%20Music%20Make%20You%20Sick%20Pt1.pdf\" target=\"_blank\" rel=\"noopener noreferrer\">2016 University of Westminster survey\u003c/a> of 2,211 U.K. musicians found that respondents were three times more likely than the general population to become depressed.\u003c/p>\n\u003cp>While composing and playing music can be therapeutic, trying to turn that into a full-time career can be an occupational hazard. Performing music puts an artist’s talent on display, and while this is one way to garner fans, it makes artists vulnerable to the praise and rejection of others. [aside postid='arts_13857471']\u003c/p>\n\u003cp>There are also \u003ca href=\"https://www.kqed.org/arts/13857471/artist-passion-exploitation-duke-study\" target=\"_blank\" rel=\"noopener noreferrer\">issues of fair compensation\u003c/a>: as one University of Westminster survey respondent shared, “A doctor doesn’t perform surgery for ‘exposure.’” Artists disclosed that poor pay, impostor syndrome and toxic working conditions had damaged their mental health.\u003c/p>\n\u003cp>These challenges are especially pronounced in the Bay Area, where high living costs make it nearly impossible for local artists to pursue their passion full time. And in a competitive industry, being pulled away from one’s art can cause feelings of insecurity and doubt to surface. \u003ca href=\"https://www.iansantillano.com/\" target=\"_blank\" rel=\"noopener noreferrer\">Ian Santillano\u003c/a>, a 23-year-old Bay Area musician and leader of the band \u003ca href=\"https://www.facebook.com/pages/category/Musician-Band/The-Housewarmers-313769652609322/\" target=\"_blank\" rel=\"noopener noreferrer\">The Housewarmers\u003c/a>, says not having enough time to work on music can rattle his confidence.\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>“I get anxious, because I wonder if I am doing enough and if I’m \u003cem>truly \u003c/em>a musician,” he says. At those times, impostor syndrome can set in—a dreadful feeling that’s amplified when Santillano scrolls through fellow artists’ Instagram feeds. [aside postid='arts_13869819']\u003c/p>\n\u003cp>Thompson has faced similar struggles. “When I first moved to San Francisco, I could barely make ends meet,” he says. Like many artists, Thompson teaches music lessons and takes on \u003ca href=\"https://www.kqed.org/ourturbulentdecade/2019-the-gig-economy-defined-how-artists-do-business-heres-whats-likely-to-change\" target=\"_blank\" rel=\"noopener noreferrer\">side projects\u003c/a>, but overworking can make it tricky to find a work-life balance. “I’ve had difficulty saying ‘no’ to projects for fear of losing out on an opportunity, which only creates more stress,” says the artist.\u003c/p>\n\u003cp>In the past, those stressors caused Thompson to become anxious and depressed, “When you’re distracted by other work responsibilities, composing music is hard,” he shares. Not being able to create new music feeds impostor syndrome, which can leave Thompson feeling aimless and inadequate. Despite those challenges, he’s never seen a mental health professional. “Once I’m financially stable, I hope to address my mental health needs in therapy,” Thompson adds.\u003c/p>\n\u003cfigure id=\"attachment_13871305\" class=\"wp-caption aligncenter\" style=\"max-width: 800px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-13871305\" src=\"https://ww2.kqed.org/app/uploads/sites/2/2019/12/10531349_10152705050652868_411939417121906542_o-800x450.jpg\" alt=\"\" width=\"800\" height=\"450\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/2/2019/12/10531349_10152705050652868_411939417121906542_o-800x450.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/2/2019/12/10531349_10152705050652868_411939417121906542_o-160x90.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/2/2019/12/10531349_10152705050652868_411939417121906542_o-768x432.jpg 768w, https://cdn.kqed.org/wp-content/uploads/sites/2/2019/12/10531349_10152705050652868_411939417121906542_o-1020x574.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/2/2019/12/10531349_10152705050652868_411939417121906542_o-1200x675.jpg 1200w, https://cdn.kqed.org/wp-content/uploads/sites/2/2019/12/10531349_10152705050652868_411939417121906542_o.jpg 1544w\" sizes=\"(max-width: 800px) 100vw, 800px\">\u003cfigcaption class=\"wp-caption-text\">Sean Thompson (center). \u003ccite>(Courtesy of the artist)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>While many artists battle with mental illness, the latest survey results suggest that only 40 percent of suffering musicians received mental health care, while over 50 percent turned to alcohol and drugs to numb their pain, which isn’t uncommon for people \u003ca href=\"https://www.drugabuse.gov/publications/drugfacts/comorbidity-substance-use-disorders-other-mental-illnesses\" target=\"_blank\" rel=\"noopener noreferrer\">with mental illness\u003c/a>.\u003c/p>\n\u003cp>“I couldn’t see the wonder in the world,” recalls \u003ca href=\"https://www.mroliverblank.com/\" target=\"_blank\" rel=\"noopener noreferrer\">Oliver Blank\u003c/a>, 37, a Bay Area artist and composer. Last year, Blank’s long-term relationship ended, and his intense grief caused his creative drive to dwindle.\u003c/p>\n\u003cp>At that time, Blank was working on his podcast \u003ca href=\"https://www.mroliverblank.com/art-index/the-one-who-got-away\">\u003cem>The One Who Got Away\u003c/em>\u003c/a>, which intimately depicts the lingering grief that travels with loss. For the podcast, Blank invited people from all over the world to call a phone number and leave a message for a lost loved one, or forgotten romance, answering just one question: “What would you say to the one who got away?”\u003c/p>\n\u003cp>Hearing other people’s grief-stricken stories amplified Blank’s suffering, which only intensified his sadness. “I didn’t want to die or to hurt myself, but I wanted to go to sleep for a very long time,” the artist explains. [aside postid='arts_13861452']\u003c/p>\n\u003cp>Concerned friends encouraged Blank to talk to a therapist. He reached out for professional help, but initially, no one reached back. “The biggest issue was finding a therapist who would return my call,” says Blank.\u003c/p>\n\u003cp>For many people, navigating the mental healthcare system can be puzzling. Firstly, even with health coverage, high-deductible insurance plans require people to pay upfront for medical expenses, including psychotherapy, which can be costly. In the Bay Area, the economic boost brought on by the \u003ca href=\"https://www.kqed.org/stateofhealth/23916/bay-area-boom-driving-up-cost-of-therapy\">tech boom\u003c/a> has driven up the cost of rent, food and psychotherapy. As a result, therapy can cost anywhere between 140 and 300 dollars per session.\u003c/p>\n\u003cp>More affordable options are available, but finding the right type of help isn’t always straight forward. Websites like \u003ca href=\"https://www.betterhelp.com/helpme/?utm_source=AdWords&utm_medium=Search_PPC_c&utm_term=better%2Bhelp_e&utm_content=13899929650&network=g&placement=&target=&matchtype=e&utm_campaign=177007450&ad_type=text&adposition=1t1&gclid=CjwKCAjwlovtBRBrEiwAG3\" target=\"_blank\" rel=\"noopener noreferrer\">Better Help\u003c/a> and \u003ca href=\"https://lp.talkspace.com/try?utm_source=google&utm_medium=sembrand&utm_campaign=SEARCH_GOOGLE_BRAND&utm_content=apply65&utm_term=talkspace&gclid=CjwKCAjwlovtBRBrEiwAG3XJ-6Uy8h5LQ-0XOeo4by1B5Hv1x5qjWf2Hn4ZnJ6sUB-BxoLTnlLf74RoCOV8QAvD_BwE\">Talkspace\u003c/a> offer counseling online. While convenient, talking to a therapist online may not be ideal for people with acute mental health symptoms, such as panic attacks, thoughts of self-harm and severe depression.\u003c/p>\n\u003cp>For those seeking in-person mental health care, the non-profit organization \u003ca href=\"https://openpathcollective.org/\" target=\"_blank\" rel=\"noopener noreferrer\">Open Path Psychotherapy Collective\u003c/a> provides affordable counseling services, and its fees range from 30 to 60 dollars per session. According to the website, over 300 therapists in the Bay Area provide mental health services through the Open Path network.\u003c/p>\n\u003cp>Psychotherapy training clinics staffed by graduate students and recent graduates also provide accessible care. For instance, in San Francisco, \u003ca href=\"https://www.ciis.edu/counseling-and-acupuncture-clinics/center-for-somatic-psychotherapy\">Center for Somatic Psychotherapy (CSP)\u003c/a> offers sliding-scale psychotherapy services seven days a week, and therapy is provided by graduate students and recent graduates from the California Institute of Integral Studies (CIIS).\u003c/p>\n\u003cp>In addition to offering traditional talk therapy, CSP therapists promote self-awareness and stress reduction by helping clients connect with the mind, body and spirit, says Steuart Gold, the CSP clinic director. “Somatic therapy encourages accessing the wisdom of the body and creates conditions where one’s creative self can live its fullest expression,” he explains. With this focus, Gold says musicians and artists often benefit from somatic psychotherapy.\u003c/p>\n\u003cp>Even though it took many phone calls, Blank eventually found a therapist. “My therapist diagnosed me with depression and told me I was experiencing suicidal ideation,” he shares. Receiving a diagnosis helped Blank understand the nature of his pain, which aided in the healing process. “I immediately felt relief,” he shares.\u003c/p>\n\u003cp>[ad floatright]\u003c/p>\n\u003cp>For now, Santillano and Thompson find emotional support by talking to their peers. Still, Thompson hopes to speak to a therapist in the near future, “I believe therapy can help me pinpoint things that I haven’t been able to put together for myself,” he says.\u003c/p>\n\n",
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"excerpt": "Research shows musicians struggle with mental health issues at high rates. The Bay Area's cost of living doesn't help. ",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003cfigure id=\"attachment_13871302\" class=\"wp-caption aligncenter\" style=\"max-width: 800px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-13871302\" src=\"https://cdn.kqed.org/wp-content/uploads/sites/2/2019/12/image0.jpeg\" alt=\"A music studio viewed from above. A man sits in a chair with a guitar and looks up.\" width=\"800\" height=\"450\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/2/2019/12/image0.jpeg 800w, https://cdn.kqed.org/wp-content/uploads/sites/2/2019/12/image0-160x90.jpeg 160w, https://cdn.kqed.org/wp-content/uploads/sites/2/2019/12/image0-768x432.jpeg 768w\" sizes=\"(max-width: 800px) 100vw, 800px\">\u003cfigcaption class=\"wp-caption-text\">The Housewarmers’ bandleader Ian Santillano says that the Bay Area’s high cost of living can exacerbate the unique pressures musicians face by virtue of their profession. \u003ccite>(Courtesy of Ian Santillano)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>“As a musician, it can be difficult to navigate a community stricken with mental health concerns,” says \u003ca href=\"https://seanthompson.bandcamp.com/\" target=\"_blank\" rel=\"noopener noreferrer\">Sean Emmett Thompson\u003c/a>, a 26-year-old singer and guitarist who lives in San Francisco.\u003c/p>\n\u003cp>Grueling tour schedules, financial ups and downs, performance anxiety, fear of failure—musicians face unique job pressures that can make them more prone to mental illness. A \u003ca href=\"https://www.the73percent.com/\" target=\"_blank\" rel=\"noopener noreferrer\">2019 survey\u003c/a> of nearly 1,500 independent musicians conducted by music distributor \u003ca href=\"https://www.recordunion.com/\" target=\"_blank\" rel=\"noopener noreferrer\">Record Union\u003c/a> found that 73 percent of respondents struggled with anxiety and depression, and 33 percent grappled with panic attacks. Furthermore, a \u003ca href=\"https://westminsterresearch.westminster.ac.uk/download/fd3b380d63e4e4a1219017768f5a56a2004e0916b59065565bac67b9d9562a22/3955058/Gross%20%26%20Musgrave%20%282016%29%20Can%20Music%20Make%20You%20Sick%20Pt1.pdf\" target=\"_blank\" rel=\"noopener noreferrer\">2016 University of Westminster survey\u003c/a> of 2,211 U.K. musicians found that respondents were three times more likely than the general population to become depressed.\u003c/p>\n\u003cp>While composing and playing music can be therapeutic, trying to turn that into a full-time career can be an occupational hazard. Performing music puts an artist’s talent on display, and while this is one way to garner fans, it makes artists vulnerable to the praise and rejection of others. \u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>There are also \u003ca href=\"https://www.kqed.org/arts/13857471/artist-passion-exploitation-duke-study\" target=\"_blank\" rel=\"noopener noreferrer\">issues of fair compensation\u003c/a>: as one University of Westminster survey respondent shared, “A doctor doesn’t perform surgery for ‘exposure.’” Artists disclosed that poor pay, impostor syndrome and toxic working conditions had damaged their mental health.\u003c/p>\n\u003cp>These challenges are especially pronounced in the Bay Area, where high living costs make it nearly impossible for local artists to pursue their passion full time. And in a competitive industry, being pulled away from one’s art can cause feelings of insecurity and doubt to surface. \u003ca href=\"https://www.iansantillano.com/\" target=\"_blank\" rel=\"noopener noreferrer\">Ian Santillano\u003c/a>, a 23-year-old Bay Area musician and leader of the band \u003ca href=\"https://www.facebook.com/pages/category/Musician-Band/The-Housewarmers-313769652609322/\" target=\"_blank\" rel=\"noopener noreferrer\">The Housewarmers\u003c/a>, says not having enough time to work on music can rattle his confidence.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>“I get anxious, because I wonder if I am doing enough and if I’m \u003cem>truly \u003c/em>a musician,” he says. At those times, impostor syndrome can set in—a dreadful feeling that’s amplified when Santillano scrolls through fellow artists’ Instagram feeds. \u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>Thompson has faced similar struggles. “When I first moved to San Francisco, I could barely make ends meet,” he says. Like many artists, Thompson teaches music lessons and takes on \u003ca href=\"https://www.kqed.org/ourturbulentdecade/2019-the-gig-economy-defined-how-artists-do-business-heres-whats-likely-to-change\" target=\"_blank\" rel=\"noopener noreferrer\">side projects\u003c/a>, but overworking can make it tricky to find a work-life balance. “I’ve had difficulty saying ‘no’ to projects for fear of losing out on an opportunity, which only creates more stress,” says the artist.\u003c/p>\n\u003cp>In the past, those stressors caused Thompson to become anxious and depressed, “When you’re distracted by other work responsibilities, composing music is hard,” he shares. Not being able to create new music feeds impostor syndrome, which can leave Thompson feeling aimless and inadequate. Despite those challenges, he’s never seen a mental health professional. “Once I’m financially stable, I hope to address my mental health needs in therapy,” Thompson adds.\u003c/p>\n\u003cfigure id=\"attachment_13871305\" class=\"wp-caption aligncenter\" style=\"max-width: 800px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-13871305\" src=\"https://ww2.kqed.org/app/uploads/sites/2/2019/12/10531349_10152705050652868_411939417121906542_o-800x450.jpg\" alt=\"\" width=\"800\" height=\"450\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/2/2019/12/10531349_10152705050652868_411939417121906542_o-800x450.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/2/2019/12/10531349_10152705050652868_411939417121906542_o-160x90.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/2/2019/12/10531349_10152705050652868_411939417121906542_o-768x432.jpg 768w, https://cdn.kqed.org/wp-content/uploads/sites/2/2019/12/10531349_10152705050652868_411939417121906542_o-1020x574.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/2/2019/12/10531349_10152705050652868_411939417121906542_o-1200x675.jpg 1200w, https://cdn.kqed.org/wp-content/uploads/sites/2/2019/12/10531349_10152705050652868_411939417121906542_o.jpg 1544w\" sizes=\"(max-width: 800px) 100vw, 800px\">\u003cfigcaption class=\"wp-caption-text\">Sean Thompson (center). \u003ccite>(Courtesy of the artist)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>While many artists battle with mental illness, the latest survey results suggest that only 40 percent of suffering musicians received mental health care, while over 50 percent turned to alcohol and drugs to numb their pain, which isn’t uncommon for people \u003ca href=\"https://www.drugabuse.gov/publications/drugfacts/comorbidity-substance-use-disorders-other-mental-illnesses\" target=\"_blank\" rel=\"noopener noreferrer\">with mental illness\u003c/a>.\u003c/p>\n\u003cp>“I couldn’t see the wonder in the world,” recalls \u003ca href=\"https://www.mroliverblank.com/\" target=\"_blank\" rel=\"noopener noreferrer\">Oliver Blank\u003c/a>, 37, a Bay Area artist and composer. Last year, Blank’s long-term relationship ended, and his intense grief caused his creative drive to dwindle.\u003c/p>\n\u003cp>At that time, Blank was working on his podcast \u003ca href=\"https://www.mroliverblank.com/art-index/the-one-who-got-away\">\u003cem>The One Who Got Away\u003c/em>\u003c/a>, which intimately depicts the lingering grief that travels with loss. For the podcast, Blank invited people from all over the world to call a phone number and leave a message for a lost loved one, or forgotten romance, answering just one question: “What would you say to the one who got away?”\u003c/p>\n\u003cp>Hearing other people’s grief-stricken stories amplified Blank’s suffering, which only intensified his sadness. “I didn’t want to die or to hurt myself, but I wanted to go to sleep for a very long time,” the artist explains. \u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>Concerned friends encouraged Blank to talk to a therapist. He reached out for professional help, but initially, no one reached back. “The biggest issue was finding a therapist who would return my call,” says Blank.\u003c/p>\n\u003cp>For many people, navigating the mental healthcare system can be puzzling. Firstly, even with health coverage, high-deductible insurance plans require people to pay upfront for medical expenses, including psychotherapy, which can be costly. In the Bay Area, the economic boost brought on by the \u003ca href=\"https://www.kqed.org/stateofhealth/23916/bay-area-boom-driving-up-cost-of-therapy\">tech boom\u003c/a> has driven up the cost of rent, food and psychotherapy. As a result, therapy can cost anywhere between 140 and 300 dollars per session.\u003c/p>\n\u003cp>More affordable options are available, but finding the right type of help isn’t always straight forward. Websites like \u003ca href=\"https://www.betterhelp.com/helpme/?utm_source=AdWords&utm_medium=Search_PPC_c&utm_term=better%2Bhelp_e&utm_content=13899929650&network=g&placement=&target=&matchtype=e&utm_campaign=177007450&ad_type=text&adposition=1t1&gclid=CjwKCAjwlovtBRBrEiwAG3\" target=\"_blank\" rel=\"noopener noreferrer\">Better Help\u003c/a> and \u003ca href=\"https://lp.talkspace.com/try?utm_source=google&utm_medium=sembrand&utm_campaign=SEARCH_GOOGLE_BRAND&utm_content=apply65&utm_term=talkspace&gclid=CjwKCAjwlovtBRBrEiwAG3XJ-6Uy8h5LQ-0XOeo4by1B5Hv1x5qjWf2Hn4ZnJ6sUB-BxoLTnlLf74RoCOV8QAvD_BwE\">Talkspace\u003c/a> offer counseling online. While convenient, talking to a therapist online may not be ideal for people with acute mental health symptoms, such as panic attacks, thoughts of self-harm and severe depression.\u003c/p>\n\u003cp>For those seeking in-person mental health care, the non-profit organization \u003ca href=\"https://openpathcollective.org/\" target=\"_blank\" rel=\"noopener noreferrer\">Open Path Psychotherapy Collective\u003c/a> provides affordable counseling services, and its fees range from 30 to 60 dollars per session. According to the website, over 300 therapists in the Bay Area provide mental health services through the Open Path network.\u003c/p>\n\u003cp>Psychotherapy training clinics staffed by graduate students and recent graduates also provide accessible care. For instance, in San Francisco, \u003ca href=\"https://www.ciis.edu/counseling-and-acupuncture-clinics/center-for-somatic-psychotherapy\">Center for Somatic Psychotherapy (CSP)\u003c/a> offers sliding-scale psychotherapy services seven days a week, and therapy is provided by graduate students and recent graduates from the California Institute of Integral Studies (CIIS).\u003c/p>\n\u003cp>In addition to offering traditional talk therapy, CSP therapists promote self-awareness and stress reduction by helping clients connect with the mind, body and spirit, says Steuart Gold, the CSP clinic director. “Somatic therapy encourages accessing the wisdom of the body and creates conditions where one’s creative self can live its fullest expression,” he explains. With this focus, Gold says musicians and artists often benefit from somatic psychotherapy.\u003c/p>\n\u003cp>Even though it took many phone calls, Blank eventually found a therapist. “My therapist diagnosed me with depression and told me I was experiencing suicidal ideation,” he shares. Receiving a diagnosis helped Blank understand the nature of his pain, which aided in the healing process. “I immediately felt relief,” he shares.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>For now, Santillano and Thompson find emotional support by talking to their peers. Still, Thompson hopes to speak to a therapist in the near future, “I believe therapy can help me pinpoint things that I haven’t been able to put together for myself,” he says.\u003c/p>\n\n\u003c/div>\u003c/p>",
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"content": "\u003cp>San Francisco Mayor London Breed and Supervisors Matt Haney and Hillary Ronen announced a deal Tuesday reconciling their dueling plans to reform the city’s fragmented mental health care system.\u003c/p>\n\u003cp>The trio introduced the agreement outside of City Hall, following months of often tense negotiations on ways to overhaul the treatment of residents grappling with homelessness, mental health and substance abuse issues.\u003c/p>\n\u003cp>In October, Breed announced she was backing her own comprehensive health care plan — called Urgent Care SF — geared towards some 4,000 homeless San Franciscans suffering from mental illness and substance abuse, an initiative she placed on the March 2020 ballot.\u003c/p>\n\u003cp>Similarly, Ronen and Haney also announced last month they had filed paperwork to put their own proposal — dubbed Mental Health SF — on the same ballot. That more sweeping plan pushed for systemic change to the city’s mental health system, a proposal Breed criticized as too broad and costly.\u003c/p>\n\u003cp>[aside label=\"related coverage\" tag=\"mental-health-sf\"]Under the new deal, both sides are pulling their respective measures from the ballot, avoiding what promised to be a long, costly fight in the coming months. Instead, the new plan — still called Mental Health SF — is now being introduced as legislation to the Board of Supervisors.\u003c/p>\n\u003cp>“People didn’t want to see competing ballot measures — a bunch of politics that actually would’ve delayed the solution,” Haney said on Tuesday. “What we’ve put forward here with Mental Health SF is the vision and the framework and the accountability structure to have a system that actually works, because the one we have right now is disjointed, disconnected and is failing our city.”\u003c/p>\n\u003cp>The agreement incorporates Breed’s original demand to prioritize treatment for the city’s most vulnerable population. But it also retains Ronen and Haney’s push to create an Office of Private Insurance Accountability to make sure residents with mental health needs, including those with insurance, receive adequate care.\u003c/p>\n\u003cp>The new program would also include a 24-hour drop-in center with access to psychiatrists and medication for anyone who needs it, regardless of insurance status.\u003c/p>\n\u003cp>“I am so excited for the future of mental health in San Francisco because I know this is the right way to do it,” Breed said. “We have to start looking at mental health in a whole other way than we did in the past. What happens when someone is a schizophrenic? What happens when someone develops dementia or all these other things? What are we doing to make sure we are helping these people and meeting them where they are?”\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>However, without a funding source, the effort to approve and implement the program may be far from over.\u003c/p>\n\u003cp>City officials still need to identify a funding source, Haney noted. The program is estimated to cost at least $100 million annually, on top of the $400 million the city already spends on behavioral health services.\u003c/p>\n\u003cp>Funding sources could include a public housing bond, a gross receipts business tax or funding from Proposition C, the a measure passed by voters in 2018 that increases taxes on the city’s biggest corporations to fund housing and homelessness services.\u003c/p>\n\u003cp>Despite the funding vagaries, Ronen said she was optimistic the program would be fully operational within the next two years.\u003c/p>\n\u003cp>“We just created the first universal mental health and substance use system in the country,” she said. “We’re no longer going to waste money, time and the goodwill of patients, and the rest of us quite frankly, by watching people cycle from the street to emergency services, to residential treatment and then right back out on the street, where it is almost impossible to get better.”\u003c/p>\n\u003cp>\u003cem>Additional reporting included from Bay City News’ Daniel Montes.\u003c/em>\u003c/p>\n\u003cp>\u003c/p>\n",
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"excerpt": "The deal reconciles dueling proposals by prioritizing care to homeless residents suffering from serious mental illness while guaranteeing that San Francisco residents have access to adequate mental health care.",
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"title": "SF Mayor Breed, Supervisors Agree on Plan to Overhaul City's Mental Health Program | KQED",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003cp>San Francisco Mayor London Breed and Supervisors Matt Haney and Hillary Ronen announced a deal Tuesday reconciling their dueling plans to reform the city’s fragmented mental health care system.\u003c/p>\n\u003cp>The trio introduced the agreement outside of City Hall, following months of often tense negotiations on ways to overhaul the treatment of residents grappling with homelessness, mental health and substance abuse issues.\u003c/p>\n\u003cp>In October, Breed announced she was backing her own comprehensive health care plan — called Urgent Care SF — geared towards some 4,000 homeless San Franciscans suffering from mental illness and substance abuse, an initiative she placed on the March 2020 ballot.\u003c/p>\n\u003cp>Similarly, Ronen and Haney also announced last month they had filed paperwork to put their own proposal — dubbed Mental Health SF — on the same ballot. That more sweeping plan pushed for systemic change to the city’s mental health system, a proposal Breed criticized as too broad and costly.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>Under the new deal, both sides are pulling their respective measures from the ballot, avoiding what promised to be a long, costly fight in the coming months. Instead, the new plan — still called Mental Health SF — is now being introduced as legislation to the Board of Supervisors.\u003c/p>\n\u003cp>“People didn’t want to see competing ballot measures — a bunch of politics that actually would’ve delayed the solution,” Haney said on Tuesday. “What we’ve put forward here with Mental Health SF is the vision and the framework and the accountability structure to have a system that actually works, because the one we have right now is disjointed, disconnected and is failing our city.”\u003c/p>\n\u003cp>The agreement incorporates Breed’s original demand to prioritize treatment for the city’s most vulnerable population. But it also retains Ronen and Haney’s push to create an Office of Private Insurance Accountability to make sure residents with mental health needs, including those with insurance, receive adequate care.\u003c/p>\n\u003cp>The new program would also include a 24-hour drop-in center with access to psychiatrists and medication for anyone who needs it, regardless of insurance status.\u003c/p>\n\u003cp>“I am so excited for the future of mental health in San Francisco because I know this is the right way to do it,” Breed said. “We have to start looking at mental health in a whole other way than we did in the past. What happens when someone is a schizophrenic? What happens when someone develops dementia or all these other things? What are we doing to make sure we are helping these people and meeting them where they are?”\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>However, without a funding source, the effort to approve and implement the program may be far from over.\u003c/p>\n\u003cp>City officials still need to identify a funding source, Haney noted. The program is estimated to cost at least $100 million annually, on top of the $400 million the city already spends on behavioral health services.\u003c/p>\n\u003cp>Funding sources could include a public housing bond, a gross receipts business tax or funding from Proposition C, the a measure passed by voters in 2018 that increases taxes on the city’s biggest corporations to fund housing and homelessness services.\u003c/p>\n\u003cp>Despite the funding vagaries, Ronen said she was optimistic the program would be fully operational within the next two years.\u003c/p>\n\u003cp>“We just created the first universal mental health and substance use system in the country,” she said. “We’re no longer going to waste money, time and the goodwill of patients, and the rest of us quite frankly, by watching people cycle from the street to emergency services, to residential treatment and then right back out on the street, where it is almost impossible to get better.”\u003c/p>\n\u003cp>\u003cem>Additional reporting included from Bay City News’ Daniel Montes.\u003c/em>\u003c/p>\n\u003cp>\u003c/p>\n\u003c/div>\u003c/p>",
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"content": "\u003cp>At first glance, this lot in Paradise seems idyllic: quiet and wooded.\u003c/p>\n\u003cp>But a closer look reveals scars that the Camp Fire — California’s deadliest blaze — etched into the landscape: burnt tree trunks, a warped chain-link fence and melted trinkets missed by cleanup crews.\u003c/p>\n\u003cp>The scars the fire left on people are more obvious, though. Sabrina Hanes, who lived on this now-empty lot, had a tumultuous childhood and finally found some stability in Paradise until the blaze claimed her and her daughter’s home, belongings and beloved cat — and reignited old trauma.\u003c/p>\n\u003cp>A year since the fire struck, Hanes, 34, has struggled to avoid the destructive practices she used to cope in the past: “I don’t want to be back in that place where I used drugs or did the cutting. But I would be lying to myself if those thoughts haven’t arisen in my head.”\u003c/p>\n\u003cp>Recovering from the physical losses has been a challenge, but the emotional ones have proved tougher for Hanes due to her history of trauma. Natural disasters like the Camp Fire can reopen those old wounds or create new ones, experts say, bringing up trauma symptoms like insomnia, worry and hopelessness.\u003c/p>\n\u003cfigure id=\"attachment_11785098\" class=\"wp-caption alignnone\" style=\"max-width: 800px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"wp-image-11785098 size-medium\" src=\"https://ww2.kqed.org/news/wp-content/uploads/sites/10/2019/11/RS39864__DSC4817-qut-800x534.jpg\" alt=\"Sabrina Hanes home schools her daughter Aroara in their trailer on October 7, 2019 outside Paradise, Ca where their home was destroyed in the 2018 Camp Fire.\" width=\"800\" height=\"534\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2019/11/RS39864__DSC4817-qut-800x534.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/11/RS39864__DSC4817-qut-160x107.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/11/RS39864__DSC4817-qut-1020x681.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/11/RS39864__DSC4817-qut-1200x801.jpg 1200w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/11/RS39864__DSC4817-qut.jpg 1920w\" sizes=\"(max-width: 800px) 100vw, 800px\">\u003cfigcaption class=\"wp-caption-text\">Sabrina Hanes home-schools her daughter, Aroara, in their trailer on Oct. 7, 2019, outside Paradise, where their home was destroyed in the 2018 Camp Fire. \u003ccite>(Stephanie Lister/KQED)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>\u003cstrong>Compounding Trauma Upon Trauma\u003c/strong>\u003c/p>\n\u003cp>Before the Camp Fire, Hanes already had more stress than most. She was a single mother, living off of the disability check she received for a bad back, and would skip meals to make sure Aroara had enough food.\u003c/p>\n\u003cp>She also carried the scars of a painful childhood, including, she said, being raped by a neighbor. The trauma of her past led her to attempt suicide multiple times as a young adult.\u003c/p>\n\u003cp>[pullquote size='medium' align='right' citation='Sabrina Hanes, Butte County']‘Now I’m on a different path and it’s hard. But I know that at the end something good will come out of it.’[/pullquote]But in Paradise she had turned things around, creating \u003ca href=\"https://www.kqed.org/news/11687798/childhood-trauma-can-mean-early-death-this-california-mom-wants-to-beat-the-odds\">a stable routine\u003c/a> for herself and Aroara. She was on track to get her bachelor’s degree, with the goal of working in early childhood development. She helped teach classes for toddlers and parents at a nonprofit, and took her daughter to a special kind of \u003ca href=\"https://pcit.ucdavis.edu\">play therapy\u003c/a> to learn how to better manage Aroara’s meltdowns. The pair spent most afternoons at a dance studio, where they found a community.\u003c/p>\n\u003cp>In its wake, however, the fire destroyed that sense of normalcy.\u003c/p>\n\u003cp>“It’s not just losing the home, it’s not just losing the town,” Hanes said. “It’s losing people that we cared about because they had to move away — because there was nowhere to move.”\u003c/p>\n\u003cp>Losing these social ties has made life harder for Hanes, and so has the reawakening of old, painful memories.\u003c/p>\n\u003cp>“I think it’s stuff that I never fully worked through,” Hanes said. “This trauma has just added this new layer.”\u003c/p>\n\u003cp>While she is trying to do the best she can, “it’s a lot harder to cope with day-to-day life,” Hanes said. Even little challenges set her off: “I feel like it’s because of this (the fire). I’m just so angry that this happened.”\u003c/p>\n\u003cfigure id=\"attachment_11785773\" class=\"wp-caption aligncenter\" style=\"max-width: 800px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"wp-image-11785773 size-medium\" src=\"https://ww2.kqed.org/news/wp-content/uploads/sites/10/2019/11/RS39865__DSC4866-qut-800x534.jpg\" alt=\"Sabrina Hanes and her daughter Aroara do a science experiment in their trailer. Hanes chose to homeschool her daughter in part due to behavior issues that emerged after the Camp Fire.\" width=\"800\" height=\"534\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2019/11/RS39865__DSC4866-qut-800x534.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/11/RS39865__DSC4866-qut-160x107.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/11/RS39865__DSC4866-qut-1020x681.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/11/RS39865__DSC4866-qut-1200x801.jpg 1200w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/11/RS39865__DSC4866-qut.jpg 1920w\" sizes=\"(max-width: 800px) 100vw, 800px\">\u003cfigcaption class=\"wp-caption-text\">Sabrina Hanes and her daughter, Aroara, do a science experiment in their trailer. Hanes chose to home-school her daughter in part due to behavior issues that emerged after the Camp Fire. \u003ccite>(Stephanie Lister/KQED)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>\u003cstrong>‘Another Trauma Often Reawakens Symptoms’\u003c/strong>\u003c/p>\n\u003cp>Psychologist \u003ca href=\"https://childtrauma.ucsf.edu/our-team#Chandra\">Chandra Ghosh Ippen\u003c/a> said past trauma, like Hanes’, can resurface.\u003c/p>\n\u003cp>“If you’ve had a very heavy trauma history, another trauma often reawakens symptoms,” said Ghosh Ippen, associate director of the Child Trauma Research Program at UCSF.\u003c/p>\n\u003cp>“When we think about asthma, we think about how there’s often a reemergence of symptoms when you’re around pollen,” she added. “It’s that same way with trauma. There’s a re-emergence of symptoms when you’re around reminders.”\u003c/p>\n\u003cp>That’s been the case for Mary Chelton, of Glen Ellen in Sonoma County. The scars of the 2017 North Bay fires reopened in late October, when the Kincade Fire erupted. Just before the blaze, her mother died. Then she lost power at home during the PG&E preemptive shutoffs — just like what happened during the earlier fires.\u003c/p>\n\u003cp>“The traumatic reminders of smoke and wind, like the wildfires we experienced previously, has been a less than perfect storm,” she said.\u003c/p>\n\u003cp>The reminders have also come up in everyday life.\u003c/p>\n\u003cp>[pullquote size='medium' align='right' citation='Mary Chelton, Glen Ellen']‘The traumatic reminders of smoke and wind, like the wildfires we experienced previously, has been a less than perfect storm.’[/pullquote]“I’ve had the experience where I go to eat a smoky type of food like salmon,” she said. “And just the taste of it or the smell of that will make my stomach clench and make my heart start beating faster. It’s a visceral reaction that I didn’t expect to be sort of scarred with because of what happened a couple of years ago.”\u003c/p>\n\u003cp>After the 2017 blazes, people “felt fragile, overwhelmed and flooded with fear and stress, said \u003ca href=\"https://www.usfca.edu/faculty/daniela-dominguez\">Daniela Domínguez\u003c/a>, a psychologist and assistant professor at University of San Francisco.\u003c/p>\n\u003cp>Domínguez, who has spent the past two years working with community members in Sonoma County affected by the 2017 fires, focuses on the Latinx and undocumented populations.\u003c/p>\n\u003cp>Reactions to wildfires differ from person to person, ranging from social withdrawal to increased irritability to a lack of self-compassion for the feelings they are experiencing, she said.\u003c/p>\n\u003cp>For Anayeli Rodriguez, 33, those symptoms have come in the form of nightly anxiety. Rodriguez and her family had to evacuate from their home in Winters during the 2017 North Bay fires and again during the Kincade Fire.\u003c/p>\n\u003cp>Just a few weeks ago, they were preparing their home for a party following Rodriguez’s daughter’s baptism. Instead of guests coming to their door, it was police with evacuation notices. The family struggled to find an evacuation shelter that was not yet full.\u003c/p>\n\u003cp>“We feel a lot of sadness about what’s happened these past two years,” she said. Now that they’ve returned home, Rodriguez said her children don’t want to be there alone: “They constantly want to be with us.”\u003c/p>\n\u003cp>[aside postID='news_11687798']Both Domínguez and Ghosh Ippen said ways to deal with the pain brought up by the wildfires include acknowledging the severity of the event and the feelings it has brought up, and seeking out counseling from people trained in disaster response.\u003c/p>\n\u003cp>Domínguez cautioned, however, that those services should be responsive to a person’s culture and language.\u003c/p>\n\u003cp>“We have a lot of wonderful mental health practitioners who understand trauma, but folks who might not necessarily understand the structural barriers, the disparities and the adversities that the Latinx community is experiencing in Sonoma County,” she said.\u003c/p>\n\u003cp>Domínguez said counseling also isn’t an option that’s available to everyone — especially people who are undocumented and fear using services due to their immigration status. She worries that having no way to process fire trauma will lead to prolonged stress, which can impact physical health in adults and brain development in children.\u003c/p>\n\u003cfigure id=\"attachment_11785774\" class=\"wp-caption aligncenter\" style=\"max-width: 800px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-11785774\" src=\"https://ww2.kqed.org/news/wp-content/uploads/sites/10/2019/11/RS39862__DSC4742-qut-800x534.jpg\" alt=\"Aroara sits outside the trailer where she lives with her mother in Butte County.\" width=\"800\" height=\"534\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2019/11/RS39862__DSC4742-qut-800x534.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/11/RS39862__DSC4742-qut-160x107.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/11/RS39862__DSC4742-qut-1020x681.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/11/RS39862__DSC4742-qut-1200x801.jpg 1200w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/11/RS39862__DSC4742-qut.jpg 1920w\" sizes=\"(max-width: 800px) 100vw, 800px\">\u003cfigcaption class=\"wp-caption-text\">Aroara sits outside the trailer where she lives with her mother in Butte County. \u003ccite>(Stephanie Lister/KQED)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>\u003cstrong>Becoming the Journey\u003c/strong>\u003c/p>\n\u003cp>Hanes has seen a change in her daughter Aroara’s behavior since the fire. Aroara gets scared when she smells any kind of smoke, and she began acting out in school, which led Hanes to home-school.\u003c/p>\n\u003cp>Psychologist Ghosh Ippen said behaviors like Aroara’s are normal and children will exhibit trauma symptoms in several ways, including developmental regressions, tantrums and anger.\u003c/p>\n\u003cp>[aside tag='kincade-fire' label='Related Coverage']Hanes regularly brings Aroara with her to therapy to work through the lingering impacts of the fire, but she has found it difficult to make time for counseling. She is on disability and is struggling to provide food for herself and her daughter, and she said the trailer where they live always seems to need some repair. She spends evenings preparing lessons for the kindergarten education she’s giving Aroara at home.\u003c/p>\n\u003cp>Despite a year that has tested her, Hanes said she doesn’t think she will resort to her old coping mechanisms, like cutting herself or drug use, because of Aroara.\u003c/p>\n\u003cp>This past spring, when she thought cutting herself might bring some relief, she chose a different path. She looked online for meaningful quotes and found one she liked by author Robert M. Drake.\u003c/p>\n\u003cp>It said; “In the end, she became more than what she expected. She became the journey. And like all journeys, she simply changed directions and kept going.”\u003c/p>\n\u003cp>She tattooed it on her arm.\u003c/p>\n\u003cp>“I was on one path. Now I’m on a different path and it’s hard,” she said. “But I know that at the end something good will come out of it.”\u003c/p>\n\u003cp>\u003cem>KQED News’ Miranda Leitsinger contributed to this report.\u003c/em>\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>[ad floatright]\u003c/p>\n",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003cp>At first glance, this lot in Paradise seems idyllic: quiet and wooded.\u003c/p>\n\u003cp>But a closer look reveals scars that the Camp Fire — California’s deadliest blaze — etched into the landscape: burnt tree trunks, a warped chain-link fence and melted trinkets missed by cleanup crews.\u003c/p>\n\u003cp>The scars the fire left on people are more obvious, though. Sabrina Hanes, who lived on this now-empty lot, had a tumultuous childhood and finally found some stability in Paradise until the blaze claimed her and her daughter’s home, belongings and beloved cat — and reignited old trauma.\u003c/p>\n\u003cp>A year since the fire struck, Hanes, 34, has struggled to avoid the destructive practices she used to cope in the past: “I don’t want to be back in that place where I used drugs or did the cutting. But I would be lying to myself if those thoughts haven’t arisen in my head.”\u003c/p>\n\u003cp>Recovering from the physical losses has been a challenge, but the emotional ones have proved tougher for Hanes due to her history of trauma. Natural disasters like the Camp Fire can reopen those old wounds or create new ones, experts say, bringing up trauma symptoms like insomnia, worry and hopelessness.\u003c/p>\n\u003cfigure id=\"attachment_11785098\" class=\"wp-caption alignnone\" style=\"max-width: 800px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"wp-image-11785098 size-medium\" src=\"https://ww2.kqed.org/news/wp-content/uploads/sites/10/2019/11/RS39864__DSC4817-qut-800x534.jpg\" alt=\"Sabrina Hanes home schools her daughter Aroara in their trailer on October 7, 2019 outside Paradise, Ca where their home was destroyed in the 2018 Camp Fire.\" width=\"800\" height=\"534\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2019/11/RS39864__DSC4817-qut-800x534.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/11/RS39864__DSC4817-qut-160x107.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/11/RS39864__DSC4817-qut-1020x681.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/11/RS39864__DSC4817-qut-1200x801.jpg 1200w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/11/RS39864__DSC4817-qut.jpg 1920w\" sizes=\"(max-width: 800px) 100vw, 800px\">\u003cfigcaption class=\"wp-caption-text\">Sabrina Hanes home-schools her daughter, Aroara, in their trailer on Oct. 7, 2019, outside Paradise, where their home was destroyed in the 2018 Camp Fire. \u003ccite>(Stephanie Lister/KQED)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>\u003cstrong>Compounding Trauma Upon Trauma\u003c/strong>\u003c/p>\n\u003cp>Before the Camp Fire, Hanes already had more stress than most. She was a single mother, living off of the disability check she received for a bad back, and would skip meals to make sure Aroara had enough food.\u003c/p>\n\u003cp>She also carried the scars of a painful childhood, including, she said, being raped by a neighbor. The trauma of her past led her to attempt suicide multiple times as a young adult.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>But in Paradise she had turned things around, creating \u003ca href=\"https://www.kqed.org/news/11687798/childhood-trauma-can-mean-early-death-this-california-mom-wants-to-beat-the-odds\">a stable routine\u003c/a> for herself and Aroara. She was on track to get her bachelor’s degree, with the goal of working in early childhood development. She helped teach classes for toddlers and parents at a nonprofit, and took her daughter to a special kind of \u003ca href=\"https://pcit.ucdavis.edu\">play therapy\u003c/a> to learn how to better manage Aroara’s meltdowns. The pair spent most afternoons at a dance studio, where they found a community.\u003c/p>\n\u003cp>In its wake, however, the fire destroyed that sense of normalcy.\u003c/p>\n\u003cp>“It’s not just losing the home, it’s not just losing the town,” Hanes said. “It’s losing people that we cared about because they had to move away — because there was nowhere to move.”\u003c/p>\n\u003cp>Losing these social ties has made life harder for Hanes, and so has the reawakening of old, painful memories.\u003c/p>\n\u003cp>“I think it’s stuff that I never fully worked through,” Hanes said. “This trauma has just added this new layer.”\u003c/p>\n\u003cp>While she is trying to do the best she can, “it’s a lot harder to cope with day-to-day life,” Hanes said. Even little challenges set her off: “I feel like it’s because of this (the fire). I’m just so angry that this happened.”\u003c/p>\n\u003cfigure id=\"attachment_11785773\" class=\"wp-caption aligncenter\" style=\"max-width: 800px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"wp-image-11785773 size-medium\" src=\"https://ww2.kqed.org/news/wp-content/uploads/sites/10/2019/11/RS39865__DSC4866-qut-800x534.jpg\" alt=\"Sabrina Hanes and her daughter Aroara do a science experiment in their trailer. Hanes chose to homeschool her daughter in part due to behavior issues that emerged after the Camp Fire.\" width=\"800\" height=\"534\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2019/11/RS39865__DSC4866-qut-800x534.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/11/RS39865__DSC4866-qut-160x107.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/11/RS39865__DSC4866-qut-1020x681.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/11/RS39865__DSC4866-qut-1200x801.jpg 1200w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/11/RS39865__DSC4866-qut.jpg 1920w\" sizes=\"(max-width: 800px) 100vw, 800px\">\u003cfigcaption class=\"wp-caption-text\">Sabrina Hanes and her daughter, Aroara, do a science experiment in their trailer. Hanes chose to home-school her daughter in part due to behavior issues that emerged after the Camp Fire. \u003ccite>(Stephanie Lister/KQED)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>\u003cstrong>‘Another Trauma Often Reawakens Symptoms’\u003c/strong>\u003c/p>\n\u003cp>Psychologist \u003ca href=\"https://childtrauma.ucsf.edu/our-team#Chandra\">Chandra Ghosh Ippen\u003c/a> said past trauma, like Hanes’, can resurface.\u003c/p>\n\u003cp>“If you’ve had a very heavy trauma history, another trauma often reawakens symptoms,” said Ghosh Ippen, associate director of the Child Trauma Research Program at UCSF.\u003c/p>\n\u003cp>“When we think about asthma, we think about how there’s often a reemergence of symptoms when you’re around pollen,” she added. “It’s that same way with trauma. There’s a re-emergence of symptoms when you’re around reminders.”\u003c/p>\n\u003cp>That’s been the case for Mary Chelton, of Glen Ellen in Sonoma County. The scars of the 2017 North Bay fires reopened in late October, when the Kincade Fire erupted. Just before the blaze, her mother died. Then she lost power at home during the PG&E preemptive shutoffs — just like what happened during the earlier fires.\u003c/p>\n\u003cp>“The traumatic reminders of smoke and wind, like the wildfires we experienced previously, has been a less than perfect storm,” she said.\u003c/p>\n\u003cp>The reminders have also come up in everyday life.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>“I’ve had the experience where I go to eat a smoky type of food like salmon,” she said. “And just the taste of it or the smell of that will make my stomach clench and make my heart start beating faster. It’s a visceral reaction that I didn’t expect to be sort of scarred with because of what happened a couple of years ago.”\u003c/p>\n\u003cp>After the 2017 blazes, people “felt fragile, overwhelmed and flooded with fear and stress, said \u003ca href=\"https://www.usfca.edu/faculty/daniela-dominguez\">Daniela Domínguez\u003c/a>, a psychologist and assistant professor at University of San Francisco.\u003c/p>\n\u003cp>Domínguez, who has spent the past two years working with community members in Sonoma County affected by the 2017 fires, focuses on the Latinx and undocumented populations.\u003c/p>\n\u003cp>Reactions to wildfires differ from person to person, ranging from social withdrawal to increased irritability to a lack of self-compassion for the feelings they are experiencing, she said.\u003c/p>\n\u003cp>For Anayeli Rodriguez, 33, those symptoms have come in the form of nightly anxiety. Rodriguez and her family had to evacuate from their home in Winters during the 2017 North Bay fires and again during the Kincade Fire.\u003c/p>\n\u003cp>Just a few weeks ago, they were preparing their home for a party following Rodriguez’s daughter’s baptism. Instead of guests coming to their door, it was police with evacuation notices. The family struggled to find an evacuation shelter that was not yet full.\u003c/p>\n\u003cp>“We feel a lot of sadness about what’s happened these past two years,” she said. Now that they’ve returned home, Rodriguez said her children don’t want to be there alone: “They constantly want to be with us.”\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>Both Domínguez and Ghosh Ippen said ways to deal with the pain brought up by the wildfires include acknowledging the severity of the event and the feelings it has brought up, and seeking out counseling from people trained in disaster response.\u003c/p>\n\u003cp>Domínguez cautioned, however, that those services should be responsive to a person’s culture and language.\u003c/p>\n\u003cp>“We have a lot of wonderful mental health practitioners who understand trauma, but folks who might not necessarily understand the structural barriers, the disparities and the adversities that the Latinx community is experiencing in Sonoma County,” she said.\u003c/p>\n\u003cp>Domínguez said counseling also isn’t an option that’s available to everyone — especially people who are undocumented and fear using services due to their immigration status. She worries that having no way to process fire trauma will lead to prolonged stress, which can impact physical health in adults and brain development in children.\u003c/p>\n\u003cfigure id=\"attachment_11785774\" class=\"wp-caption aligncenter\" style=\"max-width: 800px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-11785774\" src=\"https://ww2.kqed.org/news/wp-content/uploads/sites/10/2019/11/RS39862__DSC4742-qut-800x534.jpg\" alt=\"Aroara sits outside the trailer where she lives with her mother in Butte County.\" width=\"800\" height=\"534\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2019/11/RS39862__DSC4742-qut-800x534.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/11/RS39862__DSC4742-qut-160x107.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/11/RS39862__DSC4742-qut-1020x681.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/11/RS39862__DSC4742-qut-1200x801.jpg 1200w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/11/RS39862__DSC4742-qut.jpg 1920w\" sizes=\"(max-width: 800px) 100vw, 800px\">\u003cfigcaption class=\"wp-caption-text\">Aroara sits outside the trailer where she lives with her mother in Butte County. \u003ccite>(Stephanie Lister/KQED)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>\u003cstrong>Becoming the Journey\u003c/strong>\u003c/p>\n\u003cp>Hanes has seen a change in her daughter Aroara’s behavior since the fire. Aroara gets scared when she smells any kind of smoke, and she began acting out in school, which led Hanes to home-school.\u003c/p>\n\u003cp>Psychologist Ghosh Ippen said behaviors like Aroara’s are normal and children will exhibit trauma symptoms in several ways, including developmental regressions, tantrums and anger.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>Hanes regularly brings Aroara with her to therapy to work through the lingering impacts of the fire, but she has found it difficult to make time for counseling. She is on disability and is struggling to provide food for herself and her daughter, and she said the trailer where they live always seems to need some repair. She spends evenings preparing lessons for the kindergarten education she’s giving Aroara at home.\u003c/p>\n\u003cp>Despite a year that has tested her, Hanes said she doesn’t think she will resort to her old coping mechanisms, like cutting herself or drug use, because of Aroara.\u003c/p>\n\u003cp>This past spring, when she thought cutting herself might bring some relief, she chose a different path. She looked online for meaningful quotes and found one she liked by author Robert M. Drake.\u003c/p>\n\u003cp>It said; “In the end, she became more than what she expected. She became the journey. And like all journeys, she simply changed directions and kept going.”\u003c/p>\n\u003cp>She tattooed it on her arm.\u003c/p>\n\u003cp>“I was on one path. Now I’m on a different path and it’s hard,” she said. “But I know that at the end something good will come out of it.”\u003c/p>\n\u003cp>\u003cem>KQED News’ Miranda Leitsinger contributed to this report.\u003c/em>\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cp>The climate change crisis can be overwhelming, triggering crippling fear and sadness in some people. Some call it \u003ca href=\"https://www.kqed.org/news/11776098/climate-change-despair-is-real-this-is-how-you-fight-it\" rel=\"noopener\" target=\"_blank\">eco-anxiety\u003c/a>, some call it climate grief.\u003c/p>\n\u003cp>[pullquote size='medium' align='right' citation='Haley Staudmyer on Twitter']‘The amount of death and hurt we will see as a result of climate change gnaws at my heart every day. I find solace in community, in putting my soul into my education, in doing my part to make this world worth saving.’[/pullquote]\u003c/p>\n\u003cp>That makes it hard sometimes for people to face global warming — not because they don’t care, but precisely because they do: “I think it’s actually the fact that we do care very deeply. But the experience is one of feeling overwhelmed, feeling powerless,” said environmental psychologist \u003ca href=\"https://reneelertzman.com/\" target=\"_blank\" rel=\"noopener\">Renee Lertzman\u003c/a>. “As individuals, we are very easily led to feel that we are insignificant.”\u003c/p>\n\u003cp>We wanted to know how our audience was experiencing climate grief, so we asked on \u003ca href=\"https://twitter.com/lauraklivans/status/1167122097245577217\" target=\"_blank\" rel=\"noopener\">Twitter\u003c/a>, and got a range of responses — from difficulty making big life decisions to having concern for kids, from accepting that the fear is based on real threats to using those threats as motivation to get involved.\u003c/p>\n\u003cp>\u003cstrong>Here are some of your responses:\u003c/strong>\u003c/p>\n\u003cp>Nic Eaton said he and his wife spoke about decision-making “with climate catastrophe ahead” and that they were “feeling utterly incapable of making appropriate decisions.”\u003c/p>\n\u003cp>“By which I mean worthwhile decisions. Should we just say fuck it and roll the dice? Do all the things we want to do now regardless of future implications?” \u003ca href=\"https://twitter.com/NicEatonWrites/status/1167246141953589253\" target=\"_blank\" rel=\"noopener\">he wrote\u003c/a>. “Do we play it safe? Do we build a bunker? Can our lives have meaning even in the event of collapse?”\u003c/p>\n\u003cp>https://twitter.com/RebeccaPHall/status/1167220215811170304\u003c/p>\n\u003cp>Others, with kids, expressed worries about their future.\u003c/p>\n\u003cp>“I have very young kids and I don’t know how to talk to them about the world anymore. I don’t know how to describe the future, or their future,” wrote \u003ca href=\"https://twitter.com/moultano/status/1167165627410173952\" target=\"_blank\" rel=\"noopener\">Ryan Moulton\u003c/a>. “I feel like I have to pretend that their life will be similar to mine, even though I know that it’s likely that it won’t be.”\u003c/p>\n\u003cp>https://twitter.com/3TomatoesShort/status/1167643304600584192\u003c/p>\n\u003cp>For some, their fear is based on personal experience. Dr. Eki Shola Abrams said her family drove through flames to escape the 2017 Tubbs Fire in Northern California. She has had eco-anxiety ever since.\u003c/p>\n\u003cp>“I appreciate this deeper awareness of climate change yet it has sometimes paralyzed me with fear … I constantly ask myself, ‘Do I need this?’ when thinking about buying replacement items we lost in the fire,” she wrote in an email to KQED. “Teaching my children to recycle knowing that a lot of it will inevitably end up in landfills is very unsettling.”\u003c/p>\n\u003cp>For some, processing their anxiety can take the form of grief. People have gathered in places like \u003ca href=\"https://www.wbur.org/hereandnow/2019/08/16/dead-icelandic-glacier-lost-to-climate-change\" target=\"_blank\" rel=\"noopener\">Iceland\u003c/a> and \u003ca href=\"https://www.npr.org/2019/09/22/763229087/hundreds-attend-funeral-for-pizol-a-disappearing-glacier\" target=\"_blank\" rel=\"noopener\">Switzerland\u003c/a> to memorialize glaciers as though they were humans who had passed away.\u003c/p>\n\u003cp>For \u003ca href=\"https://twitter.com/nightspunwriter/status/1167460099335622657\" target=\"_blank\" rel=\"noopener\">Katy M\u003c/a>, the grief comes in “waves. Guilt, helplessness, hopelessness, depression.” Daniel Jin said he feels it every day.\u003c/p>\n\u003cp>“It’s an ever-present anxiety that grows and recedes but never leaves,” \u003ca href=\"https://twitter.com/daniel_jin/status/1167166429038145536\" target=\"_blank\" rel=\"noopener\">Jin wrote\u003c/a>. “Sometimes it’s a dull ache that gnaws at the present moment, and sometimes it’s acute and all-consuming.”\u003c/p>\n\u003cp>https://twitter.com/aitana_banana/status/1167558016582873089\u003c/p>\n\u003cp>And yet others defined grief like this:\u003c/p>\n\u003cp>https://twitter.com/baitnickel/status/1167239212489273344\u003c/p>\n\u003cp>Craig Chalquist, a psychologist and professor at the California Institute of Integral Studies, said all of these feelings are normal.\u003c/p>\n\u003cp>[aside tag='climate-change' label='Related Coverage']“The human mind is built such that it protects itself by defending itself against intolerable information,” he said. Such defenses may include “surfing away from the bad news,” regressing to a childlike state and expecting someone else to take care of the issue, denying that the problem is happening or believing in a silver-bullet solution.\u003c/p>\n\u003cp>Eco-anxiety can be \u003ca href=\"https://www.kqed.org/news/11776098/climate-change-despair-is-real-this-is-how-you-fight-it\" target=\"_blank\" rel=\"noopener\">managed.\u003c/a> Experts suggest processing feelings, meeting with allies, identifying problems — and getting to work.\u003c/p>\n\u003cp>Some of those who responded to us said they’ve used their \u003ca href=\"https://twitter.com/Jacobonollo/status/1167255653133574144\" target=\"_blank\" rel=\"noopener\">feelings\u003c/a> as inspiration to act.\u003c/p>\n\u003cp>“The only way I find to cope is to do something about it: to take action demonstrating and working for change,” wrote \u003ca href=\"https://twitter.com/AveryBlueberry/status/1167514976673783808\" target=\"_blank\" rel=\"noopener\">Avery Blueberry\u003c/a>.\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>Rhiannon, founder of online support group Parents for the Planet, said they’ve developed a series of coping steps on this issue.\u003c/p>\n\u003cp>“The important things in our experience are acknowledging it and also fighting an understandable temptation to freeze or hide instead of act,” \u003ca href=\"https://twitter.com/Parents4Planet/status/1167254537989578752\" target=\"_blank\" rel=\"noopener\">she wrote\u003c/a>.\u003c/p>\n\u003cp>Abrams, the Tubbs Wildfire survivor, said she has developed coping tools, too, like writing music about the pain. She has also become certified in a training program to help others in her community build resilience. “Being a part of this resilience community has allowed for open and safe discussions about climate change, trauma and much more,” she said.\u003c/p>\n\u003cp>https://twitter.com/hstaudmyer/status/1167247604163334144\u003c/p>\n\u003cp>Not everyone felt down about the days ahead. Some even said they felt hopeful, like \u003ca href=\"https://twitter.com/AdelaP/status/1167392183353335808\" target=\"_blank\" rel=\"noopener\">Adela P\u003c/a>.\u003c/p>\n\u003cp>“Perhaps the pendulum has to swing this far before it forces humanity to evolve,” she wrote. “We have the tools — let’s implement them.”\u003c/p>\n\u003cp>\u003c/p>\n",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003cp>The climate change crisis can be overwhelming, triggering crippling fear and sadness in some people. Some call it \u003ca href=\"https://www.kqed.org/news/11776098/climate-change-despair-is-real-this-is-how-you-fight-it\" rel=\"noopener\" target=\"_blank\">eco-anxiety\u003c/a>, some call it climate grief.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "‘The amount of death and hurt we will see as a result of climate change gnaws at my heart every day. I find solace in community, in putting my soul into my education, in doing my part to make this world worth saving.’",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>That makes it hard sometimes for people to face global warming — not because they don’t care, but precisely because they do: “I think it’s actually the fact that we do care very deeply. But the experience is one of feeling overwhelmed, feeling powerless,” said environmental psychologist \u003ca href=\"https://reneelertzman.com/\" target=\"_blank\" rel=\"noopener\">Renee Lertzman\u003c/a>. “As individuals, we are very easily led to feel that we are insignificant.”\u003c/p>\n\u003cp>We wanted to know how our audience was experiencing climate grief, so we asked on \u003ca href=\"https://twitter.com/lauraklivans/status/1167122097245577217\" target=\"_blank\" rel=\"noopener\">Twitter\u003c/a>, and got a range of responses — from difficulty making big life decisions to having concern for kids, from accepting that the fear is based on real threats to using those threats as motivation to get involved.\u003c/p>\n\u003cp>\u003cstrong>Here are some of your responses:\u003c/strong>\u003c/p>\n\u003cp>Nic Eaton said he and his wife spoke about decision-making “with climate catastrophe ahead” and that they were “feeling utterly incapable of making appropriate decisions.”\u003c/p>\n\u003cp>“By which I mean worthwhile decisions. Should we just say fuck it and roll the dice? Do all the things we want to do now regardless of future implications?” \u003ca href=\"https://twitter.com/NicEatonWrites/status/1167246141953589253\" target=\"_blank\" rel=\"noopener\">he wrote\u003c/a>. “Do we play it safe? Do we build a bunker? Can our lives have meaning even in the event of collapse?”\u003c/p>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\n\u003cp>Others, with kids, expressed worries about their future.\u003c/p>\n\u003cp>“I have very young kids and I don’t know how to talk to them about the world anymore. I don’t know how to describe the future, or their future,” wrote \u003ca href=\"https://twitter.com/moultano/status/1167165627410173952\" target=\"_blank\" rel=\"noopener\">Ryan Moulton\u003c/a>. “I feel like I have to pretend that their life will be similar to mine, even though I know that it’s likely that it won’t be.”\u003c/p>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\n\u003cp>For some, their fear is based on personal experience. Dr. Eki Shola Abrams said her family drove through flames to escape the 2017 Tubbs Fire in Northern California. She has had eco-anxiety ever since.\u003c/p>\n\u003cp>“I appreciate this deeper awareness of climate change yet it has sometimes paralyzed me with fear … I constantly ask myself, ‘Do I need this?’ when thinking about buying replacement items we lost in the fire,” she wrote in an email to KQED. “Teaching my children to recycle knowing that a lot of it will inevitably end up in landfills is very unsettling.”\u003c/p>\n\u003cp>For some, processing their anxiety can take the form of grief. People have gathered in places like \u003ca href=\"https://www.wbur.org/hereandnow/2019/08/16/dead-icelandic-glacier-lost-to-climate-change\" target=\"_blank\" rel=\"noopener\">Iceland\u003c/a> and \u003ca href=\"https://www.npr.org/2019/09/22/763229087/hundreds-attend-funeral-for-pizol-a-disappearing-glacier\" target=\"_blank\" rel=\"noopener\">Switzerland\u003c/a> to memorialize glaciers as though they were humans who had passed away.\u003c/p>\n\u003cp>For \u003ca href=\"https://twitter.com/nightspunwriter/status/1167460099335622657\" target=\"_blank\" rel=\"noopener\">Katy M\u003c/a>, the grief comes in “waves. Guilt, helplessness, hopelessness, depression.” Daniel Jin said he feels it every day.\u003c/p>\n\u003cp>“It’s an ever-present anxiety that grows and recedes but never leaves,” \u003ca href=\"https://twitter.com/daniel_jin/status/1167166429038145536\" target=\"_blank\" rel=\"noopener\">Jin wrote\u003c/a>. “Sometimes it’s a dull ache that gnaws at the present moment, and sometimes it’s acute and all-consuming.”\u003c/p>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\n\u003cp>And yet others defined grief like this:\u003c/p>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\n\u003cp>Craig Chalquist, a psychologist and professor at the California Institute of Integral Studies, said all of these feelings are normal.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>“The human mind is built such that it protects itself by defending itself against intolerable information,” he said. Such defenses may include “surfing away from the bad news,” regressing to a childlike state and expecting someone else to take care of the issue, denying that the problem is happening or believing in a silver-bullet solution.\u003c/p>\n\u003cp>Eco-anxiety can be \u003ca href=\"https://www.kqed.org/news/11776098/climate-change-despair-is-real-this-is-how-you-fight-it\" target=\"_blank\" rel=\"noopener\">managed.\u003c/a> Experts suggest processing feelings, meeting with allies, identifying problems — and getting to work.\u003c/p>\n\u003cp>Some of those who responded to us said they’ve used their \u003ca href=\"https://twitter.com/Jacobonollo/status/1167255653133574144\" target=\"_blank\" rel=\"noopener\">feelings\u003c/a> as inspiration to act.\u003c/p>\n\u003cp>“The only way I find to cope is to do something about it: to take action demonstrating and working for change,” wrote \u003ca href=\"https://twitter.com/AveryBlueberry/status/1167514976673783808\" target=\"_blank\" rel=\"noopener\">Avery Blueberry\u003c/a>.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>Rhiannon, founder of online support group Parents for the Planet, said they’ve developed a series of coping steps on this issue.\u003c/p>\n\u003cp>“The important things in our experience are acknowledging it and also fighting an understandable temptation to freeze or hide instead of act,” \u003ca href=\"https://twitter.com/Parents4Planet/status/1167254537989578752\" target=\"_blank\" rel=\"noopener\">she wrote\u003c/a>.\u003c/p>\n\u003cp>Abrams, the Tubbs Wildfire survivor, said she has developed coping tools, too, like writing music about the pain. She has also become certified in a training program to help others in her community build resilience. “Being a part of this resilience community has allowed for open and safe discussions about climate change, trauma and much more,” she said.\u003c/p>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\n\u003cp>Not everyone felt down about the days ahead. Some even said they felt hopeful, like \u003ca href=\"https://twitter.com/AdelaP/status/1167392183353335808\" target=\"_blank\" rel=\"noopener\">Adela P\u003c/a>.\u003c/p>\n\u003cp>“Perhaps the pendulum has to swing this far before it forces humanity to evolve,” she wrote. “We have the tools — let’s implement them.”\u003c/p>\n\u003cp>\u003c/p>\n\u003c/div>\u003c/p>",
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"content": "\u003cp>In 2015, Bay Area lawyer and activist Sarah Jornsay-Silverberg found herself in Paris representing island nations at the United Nations Climate Change Conference. She was thrilled to be there.\u003c/p>\n\u003cp>[pullquote size='medium' align='right' citation='Robin Cooper, a psychiatrist in San Francisco']‘We are biologically wired to respond with anxiety to alert us to respond to real threats.’[/pullquote]As the event progressed, however, “it was really clear that we were not going to achieve what we’d hoped,” she said.\u003c/p>\n\u003cp>What she and her colleagues had hoped for was a deal to limit global temperature rise to 1.5 degrees Celsius this century and a binding mechanism to enforce that. What they got was the\u003ca href=\"https://unfccc.int/process-and-meetings/the-paris-agreement/the-paris-agreement\" target=\"_blank\" rel=\"noopener noreferrer\"> Paris Agreement\u003c/a>, which aims to keep global temperature rise to “well below 2 degrees Celsius” — and which countries have signed on to through voluntary pledges.\u003c/p>\n\u003cp>Instead of celebrating in the streets, she found herself curled up in her hostel bed, crying.\u003c/p>\n\u003cp>\u003ca href=\"https://ww2.kqed.org/news/wp-content/uploads/sites/10/2019/09/CoveringClimateNow.jpg\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-11777126\" src=\"https://ww2.kqed.org/news/wp-content/uploads/sites/10/2019/09/CoveringClimateNow.jpg\" alt=\"\" width=\"223\" height=\"223\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2019/09/CoveringClimateNow.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/09/CoveringClimateNow-160x160.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/09/CoveringClimateNow-550x550.jpg 550w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/09/CoveringClimateNow-470x470.jpg 470w\" sizes=\"(max-width: 223px) 100vw, 223px\">\u003c/a>The depression that struck Jornsay-Silverberg, 34, in 2015 still comes and goes today. She worries about ecosystems, native people and their habitats, the Amazon. She is also grieving a vision of her future that may no longer become a reality.\u003c/p>\n\u003cp>“People like myself are deciding whether [we] even want to have children,” she said. When she was younger, she always assumed that she would.\u003c/p>\n\u003cp>\u003cb>The Rise of Eco-Anxiety\u003c/b>\u003c/p>\n\u003cp>Environmental activists like Jornsay-Silverberg are not the only ones feeling overwhelmed with despair as the climate changes. While “eco-anxiety” is most commonly used to describe these feelings, therapists and others have bandied about different labels, too: climate anxiety, climate despair, eco-despair and eco-grief.\u003c/p>\n\u003cp>The American Psychological Association even published \u003ca href=\"https://www.apa.org/news/press/releases/2017/03/mental-health-climate.pdf\" target=\"_blank\" rel=\"noopener noreferrer\">a guide for therapists\u003c/a> to help them assist their patients. In it, they wrote, “the psychological responses to climate change, such as conflict avoidance, fatalism, fear, helplessness and resignation are growing. These responses are keeping us, and our nation, from properly addressing the core causes of and solutions for our changing climate, and from building and supporting psychological resiliency.”\u003c/p>\n\u003cfigure id=\"attachment_11776259\" class=\"wp-caption alignnone\" style=\"max-width: 800px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-11776259\" src=\"https://ww2.kqed.org/news/wp-content/uploads/sites/10/2019/09/IMG_2809-800x600.jpg\" alt=\"Seth Dunn, Sarah Jornsay-Silverberg, and Michela Fitten at the Global Climate Strike in downtown San Francisco on Sept. 20, 2019.\" width=\"800\" height=\"600\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2019/09/IMG_2809-800x600.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/09/IMG_2809-160x120.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/09/IMG_2809-1020x765.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/09/IMG_2809-1200x900.jpg 1200w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/09/IMG_2809-1920x1440.jpg 1920w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/09/IMG_2809-1832x1374.jpg 1832w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/09/IMG_2809-1376x1032.jpg 1376w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/09/IMG_2809-1044x783.jpg 1044w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/09/IMG_2809-632x474.jpg 632w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/09/IMG_2809-536x402.jpg 536w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/09/IMG_2809.jpg 2048w\" sizes=\"(max-width: 800px) 100vw, 800px\">\u003cfigcaption class=\"wp-caption-text\">Seth Dunn, Sarah Jornsay-Silverberg and Michela Fitten at the Global Climate Strike in downtown San Francisco on Sept. 20, 2019. \u003ccite>(Laura Klivans/KQED)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>Robin Cooper, of San Francisco, is one of the founders of the \u003ca href=\"https://www.climatepsychiatry.org/\" target=\"_blank\" rel=\"noopener noreferrer\">Climate Psychiatry Alliance\u003c/a>, a group of psychiatrists working to highlight how climate change impacts mental health, and how to help those affected.\u003c/p>\n\u003cp>She said she and her colleagues are seeing more patients with “tension, anxiety, worry, depression” about the climate.\u003c/p>\n\u003cp>In cases like this, one of the first things Cooper said she does is acknowledge the realistic nature of a patient’s concerns. Unlike an irrational fear, eco-anxiety is a healthy response to a serious risk, she said.\u003c/p>\n\u003cp>“We are biologically wired to respond with anxiety to alert us to respond to real threats,” she said.\u003c/p>\n\u003cp>\u003cstrong>Despair’s Antidote \u003c/strong>\u003c/p>\n\u003cp>So if the negative aspects of climate change won’t be going away, how do we “treat” eco-anxiety?\u003c/p>\n\u003cp>Experts seem to agree on a three-part strategy:\u003c/p>\n\u003col>\n\u003cli>\u003cstrong>Come together in community. \u003c/strong>“Find allies who understand what [you’re] feeling… and get together with them,” said Craig Chalquist, a psychologist and professor at the California Institute of Integral Studies. He said it can even be something informal. Often, people struggle with these feelings in isolation, since bringing up climate change is taboo in many social situations.\u003c/li>\n\u003cli>\u003cstrong>Process your feelings. \u003c/strong>This can happen through talking, \u003ca href=\"https://www.goodgriefnetwork.org/\" target=\"_blank\" rel=\"noopener noreferrer\">grief groups\u003c/a> and\u003ca href=\"https://www.amazon.com/Ecotherapy-Healing-Nature-Linda-Buzzell/dp/1578051614\" target=\"_blank\" rel=\"noopener noreferrer\"> spending time in nature\u003c/a>. Really? Just talk about such a huge issue? Chalquist said yes, adding that people with eco-anxiety then “quickly move from that phase into, ‘What can I do?'”\u003c/li>\n\u003cli>\u003cstrong>\u003cstrong>\u003cstrong>Identify what specific problems speak to you, and get to work. \u003c/strong>\u003c/strong>\u003c/strong>Interested in oceans? Food systems? Reforestation? Chalquist said because all these aspects of the environment are connected, “to work on one is actually to bring some healing to the whole thing.”\u003c/li>\n\u003c/ol>\n\u003cp>Sarah Jornsay-Silverberg said these steps have been crucial for her mental health.\u003c/p>\n\u003cp>[aside tag='climate-strike' label='More Coverage']She has found meaningful community through the \u003ca href=\"https://www.goodgriefnetwork.org/\" target=\"_blank\" rel=\"noopener noreferrer\">Good Grief Network\u003c/a>, a group that follows a 10-step program to combat despair and eco-anxiety, and build “personal resilience.” Jornsay-Silverberg described this resilience as the ability to face the climate crisis head-on while not being bowled over by it.\u003c/p>\n\u003cp>Good Grief steps range from “accept the problem and its severity,” to “reinvest in problem-solving efforts,” according to the group’s website. Good Grief has been a place for Jornsay-Silverberg to process her emotions about the climate crisis.\u003c/p>\n\u003cp>“It’s really useful to be in community,” Jornsay-Silverberg said. She doesn’t feel like she’s bringing other people down “when I talk about where my mind goes and how sad and dark it feels sometimes.”\u003c/p>\n\u003cp>It has also reinvigorated her desire to fight for the environment in several ways. First, she and some friends are starting a Good Grief group in the Bay Area that’s open to new people. Second, she is launching an outdoor class aimed at helping kids develop emotional resilience to face whatever challenges our society may face in the future. And third, she is hitting the streets: She and friends marched in the recent Global Climate Strike in downtown San Francisco.\u003c/p>\n\u003cp>[pullquote size='medium' align='right' citation='Sarah Jornsay-Silverberg, Bay Area climate activist']‘You don’t have to be a trained climate activist to play your part. You just have to figure out what you’re good at and how you are a useful contributor, and just stick with that.’[/pullquote]“This is the antidote,” she said walking down 7th Street last Friday. “Being surrounded by people that also care about this, you feel so supported and held by this community. Like look at how many young people are here with their signs. I’m going to cry, you know?”\u003c/p>\n\u003cp>Jornsay-Silverberg’s eco-anxiety is not gone, and it probably never will be. But her actions help her feel like she is part of the solution.\u003c/p>\n\u003cp>“You don’t have to be a trained climate activist to play your part,” she said. “You just have to figure out what you’re good at and how you are a useful contributor, and just stick with that.”\u003c/p>\n\u003cp>\u003cem>This story is part of KQED Science’s partnership with Covering Climate Now, a global collaboration of more than 300 news outlets to strengthen coverage of the climate story.\u003c/em>\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>[ad floatright]\u003c/p>\n",
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"content": "\u003cdiv class=\"post-body\">\u003cp>As the event progressed, however, “it was really clear that we were not going to achieve what we’d hoped,” she said.\u003c/p>\n\u003cp>What she and her colleagues had hoped for was a deal to limit global temperature rise to 1.5 degrees Celsius this century and a binding mechanism to enforce that. What they got was the\u003ca href=\"https://unfccc.int/process-and-meetings/the-paris-agreement/the-paris-agreement\" target=\"_blank\" rel=\"noopener noreferrer\"> Paris Agreement\u003c/a>, which aims to keep global temperature rise to “well below 2 degrees Celsius” — and which countries have signed on to through voluntary pledges.\u003c/p>\n\u003cp>Instead of celebrating in the streets, she found herself curled up in her hostel bed, crying.\u003c/p>\n\u003cp>\u003ca href=\"https://ww2.kqed.org/news/wp-content/uploads/sites/10/2019/09/CoveringClimateNow.jpg\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-11777126\" src=\"https://ww2.kqed.org/news/wp-content/uploads/sites/10/2019/09/CoveringClimateNow.jpg\" alt=\"\" width=\"223\" height=\"223\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2019/09/CoveringClimateNow.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/09/CoveringClimateNow-160x160.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/09/CoveringClimateNow-550x550.jpg 550w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/09/CoveringClimateNow-470x470.jpg 470w\" sizes=\"(max-width: 223px) 100vw, 223px\">\u003c/a>The depression that struck Jornsay-Silverberg, 34, in 2015 still comes and goes today. She worries about ecosystems, native people and their habitats, the Amazon. She is also grieving a vision of her future that may no longer become a reality.\u003c/p>\n\u003cp>“People like myself are deciding whether [we] even want to have children,” she said. When she was younger, she always assumed that she would.\u003c/p>\n\u003cp>\u003cb>The Rise of Eco-Anxiety\u003c/b>\u003c/p>\n\u003cp>Environmental activists like Jornsay-Silverberg are not the only ones feeling overwhelmed with despair as the climate changes. While “eco-anxiety” is most commonly used to describe these feelings, therapists and others have bandied about different labels, too: climate anxiety, climate despair, eco-despair and eco-grief.\u003c/p>\n\u003cp>The American Psychological Association even published \u003ca href=\"https://www.apa.org/news/press/releases/2017/03/mental-health-climate.pdf\" target=\"_blank\" rel=\"noopener noreferrer\">a guide for therapists\u003c/a> to help them assist their patients. In it, they wrote, “the psychological responses to climate change, such as conflict avoidance, fatalism, fear, helplessness and resignation are growing. These responses are keeping us, and our nation, from properly addressing the core causes of and solutions for our changing climate, and from building and supporting psychological resiliency.”\u003c/p>\n\u003cfigure id=\"attachment_11776259\" class=\"wp-caption alignnone\" style=\"max-width: 800px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-11776259\" src=\"https://ww2.kqed.org/news/wp-content/uploads/sites/10/2019/09/IMG_2809-800x600.jpg\" alt=\"Seth Dunn, Sarah Jornsay-Silverberg, and Michela Fitten at the Global Climate Strike in downtown San Francisco on Sept. 20, 2019.\" width=\"800\" height=\"600\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2019/09/IMG_2809-800x600.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/09/IMG_2809-160x120.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/09/IMG_2809-1020x765.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/09/IMG_2809-1200x900.jpg 1200w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/09/IMG_2809-1920x1440.jpg 1920w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/09/IMG_2809-1832x1374.jpg 1832w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/09/IMG_2809-1376x1032.jpg 1376w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/09/IMG_2809-1044x783.jpg 1044w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/09/IMG_2809-632x474.jpg 632w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/09/IMG_2809-536x402.jpg 536w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/09/IMG_2809.jpg 2048w\" sizes=\"(max-width: 800px) 100vw, 800px\">\u003cfigcaption class=\"wp-caption-text\">Seth Dunn, Sarah Jornsay-Silverberg and Michela Fitten at the Global Climate Strike in downtown San Francisco on Sept. 20, 2019. \u003ccite>(Laura Klivans/KQED)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>Robin Cooper, of San Francisco, is one of the founders of the \u003ca href=\"https://www.climatepsychiatry.org/\" target=\"_blank\" rel=\"noopener noreferrer\">Climate Psychiatry Alliance\u003c/a>, a group of psychiatrists working to highlight how climate change impacts mental health, and how to help those affected.\u003c/p>\n\u003cp>She said she and her colleagues are seeing more patients with “tension, anxiety, worry, depression” about the climate.\u003c/p>\n\u003cp>In cases like this, one of the first things Cooper said she does is acknowledge the realistic nature of a patient’s concerns. Unlike an irrational fear, eco-anxiety is a healthy response to a serious risk, she said.\u003c/p>\n\u003cp>“We are biologically wired to respond with anxiety to alert us to respond to real threats,” she said.\u003c/p>\n\u003cp>\u003cstrong>Despair’s Antidote \u003c/strong>\u003c/p>\n\u003cp>So if the negative aspects of climate change won’t be going away, how do we “treat” eco-anxiety?\u003c/p>\n\u003cp>Experts seem to agree on a three-part strategy:\u003c/p>\n\u003col>\n\u003cli>\u003cstrong>Come together in community. \u003c/strong>“Find allies who understand what [you’re] feeling… and get together with them,” said Craig Chalquist, a psychologist and professor at the California Institute of Integral Studies. He said it can even be something informal. Often, people struggle with these feelings in isolation, since bringing up climate change is taboo in many social situations.\u003c/li>\n\u003cli>\u003cstrong>Process your feelings. \u003c/strong>This can happen through talking, \u003ca href=\"https://www.goodgriefnetwork.org/\" target=\"_blank\" rel=\"noopener noreferrer\">grief groups\u003c/a> and\u003ca href=\"https://www.amazon.com/Ecotherapy-Healing-Nature-Linda-Buzzell/dp/1578051614\" target=\"_blank\" rel=\"noopener noreferrer\"> spending time in nature\u003c/a>. Really? Just talk about such a huge issue? Chalquist said yes, adding that people with eco-anxiety then “quickly move from that phase into, ‘What can I do?'”\u003c/li>\n\u003cli>\u003cstrong>\u003cstrong>\u003cstrong>Identify what specific problems speak to you, and get to work. \u003c/strong>\u003c/strong>\u003c/strong>Interested in oceans? Food systems? Reforestation? Chalquist said because all these aspects of the environment are connected, “to work on one is actually to bring some healing to the whole thing.”\u003c/li>\n\u003c/ol>\n\u003cp>Sarah Jornsay-Silverberg said these steps have been crucial for her mental health.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>She has found meaningful community through the \u003ca href=\"https://www.goodgriefnetwork.org/\" target=\"_blank\" rel=\"noopener noreferrer\">Good Grief Network\u003c/a>, a group that follows a 10-step program to combat despair and eco-anxiety, and build “personal resilience.” Jornsay-Silverberg described this resilience as the ability to face the climate crisis head-on while not being bowled over by it.\u003c/p>\n\u003cp>Good Grief steps range from “accept the problem and its severity,” to “reinvest in problem-solving efforts,” according to the group’s website. Good Grief has been a place for Jornsay-Silverberg to process her emotions about the climate crisis.\u003c/p>\n\u003cp>“It’s really useful to be in community,” Jornsay-Silverberg said. She doesn’t feel like she’s bringing other people down “when I talk about where my mind goes and how sad and dark it feels sometimes.”\u003c/p>\n\u003cp>It has also reinvigorated her desire to fight for the environment in several ways. First, she and some friends are starting a Good Grief group in the Bay Area that’s open to new people. Second, she is launching an outdoor class aimed at helping kids develop emotional resilience to face whatever challenges our society may face in the future. And third, she is hitting the streets: She and friends marched in the recent Global Climate Strike in downtown San Francisco.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "‘You don’t have to be a trained climate activist to play your part. You just have to figure out what you’re good at and how you are a useful contributor, and just stick with that.’",
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"content": "\u003cdiv class=\"post-body\">\u003cp>“This is the antidote,” she said walking down 7th Street last Friday. “Being surrounded by people that also care about this, you feel so supported and held by this community. Like look at how many young people are here with their signs. I’m going to cry, you know?”\u003c/p>\n\u003cp>Jornsay-Silverberg’s eco-anxiety is not gone, and it probably never will be. But her actions help her feel like she is part of the solution.\u003c/p>\n\u003cp>“You don’t have to be a trained climate activist to play your part,” she said. “You just have to figure out what you’re good at and how you are a useful contributor, and just stick with that.”\u003c/p>\n\u003cp>\u003cem>This story is part of KQED Science’s partnership with Covering Climate Now, a global collaboration of more than 300 news outlets to strengthen coverage of the climate story.\u003c/em>\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"disqusTitle": "How A Proposed 3-Digit Suicide Hotline Could Help Prevention Efforts",
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"content": "\u003cp>The Federal Communications Commission is proposing to launch a new three-digit hotline for people who are feeling suicidal or are going through any other mental health crisis. It recommends making 988 the new national number to call for help, replacing the current 10-digit number.\u003c/p>\n\u003cp>The agency presented the idea to Congress in a \u003ca href=\"https://docs.fcc.gov/public/attachments/DOC-359095A1.pdf\">report\u003c/a> earlier this month and is expected to release more information and seek public comment about the proposal in the coming months.\u003c/p>\n\u003cp>Mental health advocates are excited about the proposal. They say it will make it easier for people in crisis to seek help, but caution that effective implementation could be costly, as the move could increase the need for staff to answer calls.\u003c/p>\n\u003cp>\u003cspan style=\"font-weight: 400\">[aside tag='mental-health' label='Related Coverage']\u003c/span>\u003c/p>\n\u003cp>\"This is a great idea,\" says\u003ca href=\"https://www.columbiapsychiatry.org/profile/madelyn-gould-phd\"> Madelyn Gould\u003c/a>, a psychiatrist at Columbia University and an expert on suicide prevention.\u003c/p>\n\u003cp>The current \u003ca href=\"https://suicidepreventionlifeline.org/\">National Suicide Prevention Lifeline\u003c/a> number — 1-800-273-TALK or 1-800-273-8255 — can be difficult for people to remember in the midst of a crisis, she says.\u003c/p>\n\u003cp>\"People can have a cognitive shutdown or blank, as any of us do, when we can't remember things during times of extreme stress,\" she says.\u003c/p>\n\u003cp>Having a three-digit hotline, she says, will \"facilitate people's access to care at times when they are in dire need.\"\u003c/p>\n\u003cp>Her research shows that the current suicide prevention lifeline can save lives — that when people who are feeling suicidal call and talk to someone, \u003ca href=\"https://onlinelibrary.wiley.com/doi/abs/10.1521/suli.2007.37.3.338\">they do tend to feel better\u003c/a>.\u003c/p>\n\u003cp>And the existing number is being used by a large number of people. In 2018, the lifeline answered more than 2 million calls, up from about 46,000 in 2005, according to the report submitted by the FCC. Gould thinks a three-digit hotline will make it easier for more people to call.\u003c/p>\n\u003cp>\u003cstrong>\"A 911 for the brain\"\u003c/strong>\u003c/p>\n\u003cp>The FCC proposal stems from a congressional mandate in the \u003ca href=\"https://www.congress.gov/bill/115th-congress/house-bill/2345\">National Suicide Hotline Improvement Act of 2018\u003c/a>, which required the agency to work with the Substance Abuse and Mental Health Services Administration (SAMHSA) and the Department of Veterans Affairs to evaluate the effectiveness of the suicide prevention lifelines and consider the feasibility of having a three-digit dialing code for mental health emergencies.\u003c/p>\n\u003cp>Americans know to call 911 for all other kinds of emergencies, says\u003ca href=\"https://riinternational.com/about-us/leadership/executive-leadership/david-covington-lpc-mba/\"> David Covington\u003c/a>, the CEO of \u003ca href=\"https://riinternational.com/\">RI International\u003c/a>, a nonprofit that provides behavioral health care around the country.\u003c/p>\n\u003cp>\"When my father was having chest pains we immediately called 911,\" says Covington. \"It's very straightforward what you do in our society in case of fire, or medical or other emergencies.\"\u003c/p>\n\u003cp>But \"we don't have a 911 for the brain,\" he adds.\u003c/p>\n\u003cp>And the stigma around mental illness makes people hesitate to seek help during a mental health crisis, says Covington. Those who do, either call the suicide prevention lifeline, or end up in a hospital emergency department after calling 911, he says.\u003c/p>\n\u003cp>\"The most common experience for individuals who make it through to some kind of hospital emergency department is to wait for hours and days in order to get a referral,\" says Covington.\u003c/p>\n\u003cp>He says he hopes the new hotline will reduce stigma and make it easier for people to seek help.\u003c/p>\n\u003cp>\"Having a three-digit national hotline would go a long way in beginning to normalize that it's OK to seek help,\" he says.\u003c/p>\n\u003cp>\"It's reinforcing the idea that seeking help is good,\" agrees Gould.\u003c/p>\n\u003cp>Gould hopes that the new hotline will encourage more people to call before they start feeling suicidal. \"If we can have people recognize that there's help in times of extreme depression or anxiety,\" she says, then the crisis is less likely to \"escalate to the point where they're so overwhelmed that they may think that suicide is the only solution.\"\u003c/p>\n\u003cp>\u003cstrong>Challenges of keeping up with call volume\u003c/strong>\u003c/p>\n\u003cp>Gould cautions that just launching a new three-digit hotline isn't enough.\u003c/p>\n\u003cp>\"The only way this is going to work is if additional services are funded,\" she says.\u003c/p>\n\u003cp>\u003cspan style=\"font-weight: 400\">[pullquote size='medium' align='right' citation='David Covington']'Having a three-digit national hotline would go a long way in beginning to normalize that it's OK to seek help.'[/pullquote]\u003c/span>\u003c/p>\n\u003cp>Calls to the current Suicide Prevention Lifeline are handled by a patchwork of more than 160 crisis centers around the country. Each center has its own — often local, or regional — source of funding, and some centers are better resourced than others. Calls are usually taken by trained volunteers at these crisis centers, although some centers also employ clinicians.\u003c/p>\n\u003cp>\u003ca href=\"https://www.linkedin.com/in/allie-franklin-93441614\">Allie Franklin\u003c/a>, the executive director of \u003ca href=\"https://www.crisisconnections.org/\">Crisis Connections\u003c/a>, one of the National Suicide Prevention Lifeline centers in Washington, says she expects a surge in calls when the national 988 number becomes available — and that's a good thing.\u003c/p>\n\u003cp>\"But how do we make sure we always have additional funding to make sure we always have someone answering the line?\" she asks.\u003c/p>\n\u003cp>If individual crisis centers don't receive additional funding to increase their staff and volunteers, callers might be left waiting, and feeling discouraged and helpless, she adds.\u003c/p>\n\u003cp>The FCC reports that the current system is challenged by \"rising call volume and uneven coverage in many states.\" This results in many calls getting routed to backup centers where wait times are longer.\u003c/p>\n\u003cp>\"We know that it's really important for people to get live answers very quickly when they call one of these numbers or one of these centers,\" says Franklin. \"At Crisis Connections, we strive to answer the line within 30 seconds, 95% of the time or more. And so someone doesn't have to wait for for very long at all before they get a live answer.\"\u003c/p>\n\u003cp>But in 2018, there was a surge in calls to the Suicide Prevention lifeline for a couple of reasons, says Franklin — and call wait times went up. The rapper Logic \u003ca href=\"https://www.cnn.com/2018/02/03/us/logic-grammys-performance-suicide-prevention-calls-trnd/index.html\">performed his song\u003c/a> about suicidal thoughts at the Grammys, a song titled, \"1-800-273-TALK,\" the number to the suicide prevention hotline. Then, a \u003ca href=\"https://www.newyorker.com/news/daily-comment/preventable-tragedies\">couple of celebrities\u003c/a> died by suicide last year.\u003c/p>\n\u003cp>\"It was really difficult in Washington when we had a 45% increase in calls statewide,\" she says. She said she had to find additional funds to respond to the higher call volume.\u003c/p>\n\u003cdiv class=\"fullattribution\">Copyright 2019 NPR. To see more, visit https://www.npr.org.\u003cimg src=\"https://www.google-analytics.com/__utm.gif?utmac=UA-5828686-4&utmdt=How+A+Proposed+3-Digit+Suicide+Hotline+Could+Help+Prevention+Efforts&utme=8(APIKey)9(MDAxOTAwOTE4MDEyMTkxMDAzNjczZDljZA004)\">\u003c/div>\n\u003cdiv>\u003c/div>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>[ad floatright]\u003c/p>\n",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/span>\u003c/p>\n\u003cp>\"This is a great idea,\" says\u003ca href=\"https://www.columbiapsychiatry.org/profile/madelyn-gould-phd\"> Madelyn Gould\u003c/a>, a psychiatrist at Columbia University and an expert on suicide prevention.\u003c/p>\n\u003cp>The current \u003ca href=\"https://suicidepreventionlifeline.org/\">National Suicide Prevention Lifeline\u003c/a> number — 1-800-273-TALK or 1-800-273-8255 — can be difficult for people to remember in the midst of a crisis, she says.\u003c/p>\n\u003cp>\"People can have a cognitive shutdown or blank, as any of us do, when we can't remember things during times of extreme stress,\" she says.\u003c/p>\n\u003cp>Having a three-digit hotline, she says, will \"facilitate people's access to care at times when they are in dire need.\"\u003c/p>\n\u003cp>Her research shows that the current suicide prevention lifeline can save lives — that when people who are feeling suicidal call and talk to someone, \u003ca href=\"https://onlinelibrary.wiley.com/doi/abs/10.1521/suli.2007.37.3.338\">they do tend to feel better\u003c/a>.\u003c/p>\n\u003cp>And the existing number is being used by a large number of people. In 2018, the lifeline answered more than 2 million calls, up from about 46,000 in 2005, according to the report submitted by the FCC. Gould thinks a three-digit hotline will make it easier for more people to call.\u003c/p>\n\u003cp>\u003cstrong>\"A 911 for the brain\"\u003c/strong>\u003c/p>\n\u003cp>The FCC proposal stems from a congressional mandate in the \u003ca href=\"https://www.congress.gov/bill/115th-congress/house-bill/2345\">National Suicide Hotline Improvement Act of 2018\u003c/a>, which required the agency to work with the Substance Abuse and Mental Health Services Administration (SAMHSA) and the Department of Veterans Affairs to evaluate the effectiveness of the suicide prevention lifelines and consider the feasibility of having a three-digit dialing code for mental health emergencies.\u003c/p>\n\u003cp>Americans know to call 911 for all other kinds of emergencies, says\u003ca href=\"https://riinternational.com/about-us/leadership/executive-leadership/david-covington-lpc-mba/\"> David Covington\u003c/a>, the CEO of \u003ca href=\"https://riinternational.com/\">RI International\u003c/a>, a nonprofit that provides behavioral health care around the country.\u003c/p>\n\u003cp>\"When my father was having chest pains we immediately called 911,\" says Covington. \"It's very straightforward what you do in our society in case of fire, or medical or other emergencies.\"\u003c/p>\n\u003cp>But \"we don't have a 911 for the brain,\" he adds.\u003c/p>\n\u003cp>And the stigma around mental illness makes people hesitate to seek help during a mental health crisis, says Covington. Those who do, either call the suicide prevention lifeline, or end up in a hospital emergency department after calling 911, he says.\u003c/p>\n\u003cp>\"The most common experience for individuals who make it through to some kind of hospital emergency department is to wait for hours and days in order to get a referral,\" says Covington.\u003c/p>\n\u003cp>He says he hopes the new hotline will reduce stigma and make it easier for people to seek help.\u003c/p>\n\u003cp>\"Having a three-digit national hotline would go a long way in beginning to normalize that it's OK to seek help,\" he says.\u003c/p>\n\u003cp>\"It's reinforcing the idea that seeking help is good,\" agrees Gould.\u003c/p>\n\u003cp>Gould hopes that the new hotline will encourage more people to call before they start feeling suicidal. \"If we can have people recognize that there's help in times of extreme depression or anxiety,\" she says, then the crisis is less likely to \"escalate to the point where they're so overwhelmed that they may think that suicide is the only solution.\"\u003c/p>\n\u003cp>\u003cstrong>Challenges of keeping up with call volume\u003c/strong>\u003c/p>\n\u003cp>Gould cautions that just launching a new three-digit hotline isn't enough.\u003c/p>\n\u003cp>\"The only way this is going to work is if additional services are funded,\" she says.\u003c/p>\n\u003cp>\u003cspan style=\"font-weight: 400\">\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/span>\u003c/p>\n\u003cp>Calls to the current Suicide Prevention Lifeline are handled by a patchwork of more than 160 crisis centers around the country. Each center has its own — often local, or regional — source of funding, and some centers are better resourced than others. Calls are usually taken by trained volunteers at these crisis centers, although some centers also employ clinicians.\u003c/p>\n\u003cp>\u003ca href=\"https://www.linkedin.com/in/allie-franklin-93441614\">Allie Franklin\u003c/a>, the executive director of \u003ca href=\"https://www.crisisconnections.org/\">Crisis Connections\u003c/a>, one of the National Suicide Prevention Lifeline centers in Washington, says she expects a surge in calls when the national 988 number becomes available — and that's a good thing.\u003c/p>\n\u003cp>\"But how do we make sure we always have additional funding to make sure we always have someone answering the line?\" she asks.\u003c/p>\n\u003cp>If individual crisis centers don't receive additional funding to increase their staff and volunteers, callers might be left waiting, and feeling discouraged and helpless, she adds.\u003c/p>\n\u003cp>The FCC reports that the current system is challenged by \"rising call volume and uneven coverage in many states.\" This results in many calls getting routed to backup centers where wait times are longer.\u003c/p>\n\u003cp>\"We know that it's really important for people to get live answers very quickly when they call one of these numbers or one of these centers,\" says Franklin. \"At Crisis Connections, we strive to answer the line within 30 seconds, 95% of the time or more. And so someone doesn't have to wait for for very long at all before they get a live answer.\"\u003c/p>\n\u003cp>But in 2018, there was a surge in calls to the Suicide Prevention lifeline for a couple of reasons, says Franklin — and call wait times went up. The rapper Logic \u003ca href=\"https://www.cnn.com/2018/02/03/us/logic-grammys-performance-suicide-prevention-calls-trnd/index.html\">performed his song\u003c/a> about suicidal thoughts at the Grammys, a song titled, \"1-800-273-TALK,\" the number to the suicide prevention hotline. Then, a \u003ca href=\"https://www.newyorker.com/news/daily-comment/preventable-tragedies\">couple of celebrities\u003c/a> died by suicide last year.\u003c/p>\n\u003cp>\"It was really difficult in Washington when we had a 45% increase in calls statewide,\" she says. She said she had to find additional funds to respond to the higher call volume.\u003c/p>\n\u003cdiv class=\"fullattribution\">Copyright 2019 NPR. To see more, visit https://www.npr.org.\u003cimg src=\"https://www.google-analytics.com/__utm.gif?utmac=UA-5828686-4&utmdt=How+A+Proposed+3-Digit+Suicide+Hotline+Could+Help+Prevention+Efforts&utme=8(APIKey)9(MDAxOTAwOTE4MDEyMTkxMDAzNjczZDljZA004)\">\u003c/div>\n\u003cdiv>\u003c/div>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cp>[dropcap]J[/dropcap]on Lucas sits down on a shaded bench and pulls a Ziploc bag out of his pocket. “I generally bring some treats. She likes M&Ms still,” he says. Jon is tall with an athletic frame that suggests he keeps pretty active. The M&Ms are for his wife, Sharon, who sits next to him. Sharon wears a black cardigan and slacks with sneakers. Her shoulders are slouched, and her expression is mostly blank.\u003c/p>\n\u003cp>“Sharon, do you want a candy? Look what I brought you,” he tells her, offering his hand. Sharon runs her fingers searchingly over his palm, like she’s reading braille and the M&Ms are the raised letters.\u003c/p>\n\u003cp>[aside postID=\"news_11759132\" label=\"Related coverage\"]\u003c/p>\n\u003cp>Sharon isn’t blind. In her mid-60s, like Jon, she’s been living for almost a decade with Alzheimer’s disease. Six years ago, Jon decided he could no longer be her sole caregiver, and he placed her in the facility where we’re sitting. It’s in Los Gatos, in Silicon Valley, about a half-hour from Fremont, where he lives.\u003c/p>\n\u003cp>According to the Alzheimer’s Association, Jon is one of \u003ca href=\"https://www.alz.org/media/Documents/california-alzheimers-facts-figures-2018.pdf\" target=\"_blank\" rel=\"noopener noreferrer\">more than 1.6 million\u003c/a> Californians caring for a loved one with Alzheimer’s disease. A \u003ca href=\"https://discovery.cdph.ca.gov/fusion/communityburden/_w_fab2c486b487e535dc456f735a3804864596f43b642170ad/CA_Health_Views.pdf\" target=\"_blank\" rel=\"noopener noreferrer\">report\u003c/a> published earlier this year by the California Department of Health says more people in our state die from Alzheimer’s than anything else, except heart disease. Much of the care Alzheimer’s patients need is considered custodial, so it’s not covered by most insurance — and funding for patients like Sharon with early-onset Alzheimer’s is even more limited.\u003c/p>\n\u003cp>By 2030, California’s senior population is \u003ca href=\"https://www.ppic.org/publication/planning-for-californias-growing-senior-population/\" target=\"_blank\" rel=\"noopener noreferrer\">projected to grow by 4 million people\u003c/a>, and lawmakers are recognizing the urgency of preparing for this shift. In June, Gov. Gavin Newsom signed an executive order to create a \u003ca href=\"https://www.gov.ca.gov/2019/06/10/governor-gavin-newsom-calls-for-creation-of-a-master-plan-for-aging/\" target=\"_blank\" rel=\"noopener noreferrer\">Master Plan for Aging\u003c/a> and, within that, a \u003ca href=\"https://www.chhs.ca.gov/home/committees/governors-task-force-on-alzheimers/\" target=\"_blank\" rel=\"noopener noreferrer\">Task Force on Alzheimer’s Prevention and Preparedness,\u003c/a> helmed by former California first lady Maria Shriver.\u003c/p>\n\u003ch2>High School Sweethearts\u003c/h2>\n\u003cp>Jon tries to visit Sharon a few times a week. He doesn’t bring it up in our interview, but it’s easy to see how he could feel conflicted about whether the benefits she receives from his being there outweigh the emotional strain the visits clearly inflict on him.\u003c/p>\n\u003cp>[aside postID=\"forum_2010101862635\" label=\"Related coverage\"]\u003c/p>\n\u003cp>By the time she was diagnosed almost 10 years ago, he says, her memory had diminished so much that she couldn’t comprehend her illness. Now, on top of the memory loss, she’s no longer verbal — she stopped talking about a year and a half ago, he says.\u003c/p>\n\u003cp>Jon and Sharon have been together since she asked him to a Sadie Hawkins dance when she was 16. “She was young and beautiful with long copper-red hair. Very funny person, very lively. She continued with that personality all throughout her life until the disease hit her,” Jon says.\u003c/p>\n\u003cp>Sharon never had a great sense of direction, but in her mid-50s she started struggling more noticeably with finding her way to places, and becoming more forgetful. Eventually, one of their two daughters insisted he take her in for cognitive tests. “Sharon failed … miserably. And watching that was one of the hardest moments ever,” Jon remembers.\u003c/p>\n\u003cfigure id=\"attachment_11770620\" class=\"wp-caption alignnone\" style=\"max-width: 800px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-11770620\" src=\"https://ww2.kqed.org/news/wp-content/uploads/sites/10/2019/08/RS38677_Jon-Sharon1-qut-800x1067.jpg\" alt=\"Sharon and Jon Lucas in the years prior to Sharon's Alzheimer's diagnosis.\" width=\"800\" height=\"1067\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2019/08/RS38677_Jon-Sharon1-qut-800x1067.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/08/RS38677_Jon-Sharon1-qut-160x213.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/08/RS38677_Jon-Sharon1-qut-1020x1360.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/08/RS38677_Jon-Sharon1-qut-900x1200.jpg 900w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/08/RS38677_Jon-Sharon1-qut-1920x2560.jpg 1920w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/08/RS38677_Jon-Sharon1-qut-1122x1496.jpg 1122w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/08/RS38677_Jon-Sharon1-qut-840x1120.jpg 840w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/08/RS38677_Jon-Sharon1-qut-687x916.jpg 687w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/08/RS38677_Jon-Sharon1-qut-414x552.jpg 414w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/08/RS38677_Jon-Sharon1-qut-354x472.jpg 354w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/08/RS38677_Jon-Sharon1-qut.jpg 1536w\" sizes=\"(max-width: 800px) 100vw, 800px\">\u003cfigcaption class=\"wp-caption-text\">Sharon and Jon Lucas in the years prior to her Alzheimer’s diagnosis. \u003ccite>(Courtesy of Jon Lucas)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>Looking back, Jon says he realizes Sharon was conscious of the shift she was experiencing. When he moved her from their home to her facility, he found stacks of Post-it notes she’d written to remind herself how to do simple tasks on the computer, and self-help books with tabs on the pages about memory improvement.\u003c/p>\n\u003cp>In less than a year from those first cognitive tests, Sharon was diagnosed with early-onset Alzheimer’s. Initially, Jon and his daughters, who were out of the house at that point, decided not to tell Sharon about the diagnosis, because they thought she wouldn’t be able to grasp what it meant and, on the off-chance that she would, it would just be upsetting.\u003c/p>\n\u003cp>“After about … two or three months of that, … it was gut-wrenching to us to try to keep it a secret and it didn’t seem fair to her,” Jon recalls. “My daughters came home and we sat her down on the couch and … we had that discussion with her. That she had Alzheimer’s disease and it was a fatal disease and she had about eight or 10 years on average to live. We all had a big cry. Five minutes later, sure enough, she had forgotten it. And we moved on. But we felt better that we’d had the conversation, at least,” Jon said.\u003c/p>\n\u003ch2>Life as a Full-Time Caregiver\u003c/h2>\n\u003cp>Two weeks after Sharon’s diagnosis, Jon left his senior role at an electronics company and became her full-time caregiver. It was a trying few years as he took on round-the-clock duties on top of all the household tasks they used to shoulder together. Sharon’s disease progressed to the extent that Jon was able to sleep only if she was in the small area of the house he’d cordoned off where she could wander safely.\u003c/p>\n\u003cp>[pullquote size=\"medium\" align=\"right\" citation=\"Jon Lucas\"]‘It was the hardest decision I’ve ever made. And it was the most amazing feeling coming out of here. All the emotions that hit: Freedom. Guilt. Sadness. Joy.’[/pullquote]\u003c/p>\n\u003cp>Their circle of friends dwindled. Jon started to recognize signs of depression in himself, and members of his Alzheimer’s support group encouraged him to find a care facility for Sharon.\u003c/p>\n\u003cp>A \u003ca href=\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6292823/\" target=\"_blank\" rel=\"noopener noreferrer\">recent study\u003c/a> shows that 18% of Alzheimer’s and dementia caregivers die before those receiving their care, and the toll that this process can take is a big focus of groups like the Alzheimer’s Association. Jon knew that his own health was in jeopardy, and he ultimately decided to move Sharon to Cedar Creek, the facility where she lives today, and where we’ve met to talk.\u003c/p>\n\u003cp>“It was the hardest decision I’ve ever made. And it was the most amazing feeling coming out of here. All the emotions that hit: Freedom. Guilt. Sadness. Joy. All of it coming down all at once. I just sat out in that parking lot for about 15 minutes and cried. And then I went home and started living my life again,” Jon says, his voice breaking.\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003ch2>Finding a New Path through Advocacy\u003c/h2>\n\u003cp>With Sharon at Cedar Creek, Jon suddenly felt retired for the first time since he left his job. After a short spell enjoying his new flexibility and easing back into a regular social life, he realized he wanted to channel his experience with Alzheimer’s into productive use, and he decided to become an advocate for the Alzheimer’s Association.\u003c/p>\n\u003cp>At his first advocacy forum in Washington, D.C., he met Patt Martin. Patt’s husband, Bill, had succumbed to a form of dementia called primary progressive aphasia (PPA) after being diagnosed in his early 50s.\u003c/p>\n\u003cfigure id=\"attachment_11770619\" class=\"wp-caption alignnone\" style=\"max-width: 800px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-11770619\" src=\"https://ww2.kqed.org/news/wp-content/uploads/sites/10/2019/08/RS38676_Patt-Bill-Martin-qut-800x603.jpg\" alt=\"Patt Martin, left, with her husband, Bill, before his dementia diagnosis.\" width=\"800\" height=\"603\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2019/08/RS38676_Patt-Bill-Martin-qut-800x603.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/08/RS38676_Patt-Bill-Martin-qut-160x121.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/08/RS38676_Patt-Bill-Martin-qut-1020x768.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/08/RS38676_Patt-Bill-Martin-qut-1200x904.jpg 1200w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/08/RS38676_Patt-Bill-Martin-qut.jpg 1280w\" sizes=\"(max-width: 800px) 100vw, 800px\">\u003cfigcaption class=\"wp-caption-text\">Patt Martin, left, with her husband, Bill, before his dementia diagnosis. \u003ccite>(Courtesy of Patt Martin)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>Soon after Jon placed Sharon at the care facility, Sharon’s mother gave him her blessing to date again. He was hesitant at first, and not sure how to ease back in when dating sites didn’t feel like the right fit for him. Patt had felt the same way. So it was a pleasant surprise to both of them when they each sensed a spark at the forum. When they both got back to California, they set up a coffee date through Facebook.\u003c/p>\n\u003cp>“We spent three hours talking to each other,” Jon recalls. “The crowd faded away. We forgot we were even sitting in a coffee house … it was a magical three hours. And then after that we just started dating more and we fell in love. And that’s been three years now.”\u003c/p>\n\u003ch2>A Foot in Two Worlds\u003c/h2>\n\u003cp>Jon and Patt’s shared experiences as caregivers have bonded them from the start. They have both weathered seeing their spouses become strangers to them. Since Patt’s experience caring for her husband is behind her, she feels uniquely attuned to what Jon is going through, both in the day-to-day, and as he anticipates Sharon’s passing.\u003c/p>\n\u003cp>[pullquote size=\"medium\" align=\"right\" citation=\"Patt Martin\"]‘I mean, he has a foot in two different worlds right now, and I can be somebody that he can … say anything to … I will understand it, wherever his feelings are.’[/pullquote]\u003c/p>\n\u003cp>“Jon is still in the midst of the journey with Sharon, and I understand that that journey is very difficult. I mean, he has a foot in two different worlds right now, and I can be somebody that he can … say anything to … I will understand it, wherever his feelings are,” Patt says.\u003c/p>\n\u003cp>In addition to the shared emotional strain, Jon and Patt have also both spent considerable chunks of savings on their spouses’ care — in Jon’s case, $550,000 just in the last six years.\u003c/p>\n\u003cp>By the time Patt’s husband Bill passed away, they had paid more than $300,000 out of pocket for his care. “We were lucky we had the money to be able to do that,” she says. “Many people don’t have those kind of means. And I was totally unaware — I had no idea … that there wasn’t any kind of support for this.”\u003c/p>\n\u003cp>Jon and Patt have moved in together now, partly out of necessity for Jon because, in addition to dipping into his retirement and starting to take Social Security early to help pay for Sharon’s facility, he has moved out of the house they shared so he can have rental income to contribute to those costs.\u003c/p>\n\u003cp>[aside postID=\"futureofyou_444207\" label=\"Related coverage\"]\u003c/p>\n\u003cp>Because much of the care for those with dementia-related illnesses is custodial — meaning just guiding the person through personal hygiene, meals and the other ins and outs of their day — most insurance won’t cover it. For people like Jon and Patt with too much cash in the bank to qualify for long-term coverage through Medi-Cal, long-term care insurance can be an option. But it’s often expensive, and the Alzheimer’s Association and an insurance agent confirmed that once a patient is diagnosed with Alzheimer’s, they are \u003ca href=\"https://www.alz.org/help-support/caregiving/financial-legal-planning/insurance\" target=\"_blank\" rel=\"noopener noreferrer\">no longer eligible\u003c/a> to apply.\u003c/p>\n\u003cp>The requirements for long-term care coverage through a need-based program like Medi-Cal are \u003ca href=\"https://www.medicaidplanningassistance.org/medicaid-long-term-care-faq/\">complicated\u003c/a>. Assets, like a primary home and car, and certain kinds of trust accounts, don’t count against a family’s or an individual’s eligibility. However, each individual may have no more than $2,000 in what are termed “countable assets” to qualify. Countable assets include bank accounts, unapproved trust accounts and secondary vehicles.\u003c/p>\n\u003ch2>Bucket Lists and Family Celebrations\u003c/h2>\n\u003cfigure id=\"attachment_11770626\" class=\"wp-caption alignnone\" style=\"max-width: 800px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-11770626\" src=\"https://ww2.kqed.org/news/wp-content/uploads/sites/10/2019/08/RS38672_Jon-Patt-with-Ro-Khanna2-qut-800x600.jpg\" alt=\"Jon Lucas (left) and Patt Martin discuss Alzheimer's funding needs with Congressman Ro Khanna. \" width=\"800\" height=\"600\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2019/08/RS38672_Jon-Patt-with-Ro-Khanna2-qut-800x600.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/08/RS38672_Jon-Patt-with-Ro-Khanna2-qut-160x120.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/08/RS38672_Jon-Patt-with-Ro-Khanna2-qut-632x474.jpg 632w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/08/RS38672_Jon-Patt-with-Ro-Khanna2-qut-536x402.jpg 536w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/08/RS38672_Jon-Patt-with-Ro-Khanna2-qut.jpg 960w\" sizes=\"(max-width: 800px) 100vw, 800px\">\u003cfigcaption class=\"wp-caption-text\">Jon Lucas (left) and Patt Martin discuss Alzheimer’s funding needs with congressman Ro Khanna. \u003ccite>(Courtesy of Patt Martin)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>With the untraditional relationship dynamics they’re balancing, Jon and Patt say they’re lucky that their children — they both have two daughters — have accepted the other into their family.\u003c/p>\n\u003cp>“I was so excited about meeting [Patt] that … I wanted to get on the top of the mountain and scream it out to the world, so I was really happy to tell the kids that I had met someone. I had some reservation about how they were gonna take it,” Jon says. The families have found a balance, but Jon says he’s had friends in similar positions whose children have been much more resistant to their new partners.\u003c/p>\n\u003cp>[aside postID=\"futureofyou_436409\" label=\"Related coverage\"]\u003c/p>\n\u003cp>By their second date, Jon and Patt were comparing bucket lists, and now they’re ticking them off together. “We talk about the fact that we really are living life for four people because Bill and Sharon, they got robbed,” Patt says.\u003c/p>\n\u003cp>Sharon entered hospice in August. When the time comes, Jon says, he wants her memorial to feel uplifting for those who love her. “People have gone through this loss and grief process for so long with Sharon that I think it’s going to be a big relief to everyone once … she’s not suffering anymore,” he says.\u003c/p>\n\u003cp>Someday, Jon and Patt hope to marry, but Patt is conscientious about the way that she and Jon comport themselves as a couple to ensure they are respectful to Sharon. In the meantime, they’ll continue to advocate in Congress, where they’ve met with lawmakers, including congressman Ro Khanna, on behalf of the Alzheimer’s Association.\u003c/p>\n\u003cp>Right now, the two are focused on more funding for Alzheimer’s research, stronger infrastructures for early detection, and more support for caregivers — especially caregivers of loved ones with early-onset Alzheimer’s. In October, they’ll be side-by-side at the \u003ca href=\"https://act.alz.org/site/TR/Walk2019/CA-NorthernCaliforniaandNorthernNevada?pg=entry&fr_id=12096&gclid=CjwKCAjwzJjrBRBvEiwA867bykJQhj8hBp6eGxDBDSN6UMositLjbSAT8XTOawnPDYBrbi7FLotaXBoCcCMQAvD_BwE\">Silicon Valley Walk to End Alzheimer’s\u003c/a>.\u003c/p>\n\u003cp>[ad floatright]\u003c/p>\n",
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"excerpt": "In California, 1 million people are caregivers for Alzheimer’s patients. Two of those caregivers fell in love with each other after their spouses were diagnosed, and have become advocates for Alzheimer's research.",
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"title": "Finding Love Again After Alzheimer's Takes a Spouse | KQED",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003cp>\u003c/p>\u003cp>\u003cspan class=\"utils-parseShortcode-shortcodes-__dropcapShortcode__dropcap\">J\u003c/span>\u003c/p>\u003cp>on Lucas sits down on a shaded bench and pulls a Ziploc bag out of his pocket. “I generally bring some treats. She likes M&Ms still,” he says. Jon is tall with an athletic frame that suggests he keeps pretty active. The M&Ms are for his wife, Sharon, who sits next to him. Sharon wears a black cardigan and slacks with sneakers. Her shoulders are slouched, and her expression is mostly blank.\u003c/p>\n\u003cp>“Sharon, do you want a candy? Look what I brought you,” he tells her, offering his hand. Sharon runs her fingers searchingly over his palm, like she’s reading braille and the M&Ms are the raised letters.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>Sharon isn’t blind. In her mid-60s, like Jon, she’s been living for almost a decade with Alzheimer’s disease. Six years ago, Jon decided he could no longer be her sole caregiver, and he placed her in the facility where we’re sitting. It’s in Los Gatos, in Silicon Valley, about a half-hour from Fremont, where he lives.\u003c/p>\n\u003cp>According to the Alzheimer’s Association, Jon is one of \u003ca href=\"https://www.alz.org/media/Documents/california-alzheimers-facts-figures-2018.pdf\" target=\"_blank\" rel=\"noopener noreferrer\">more than 1.6 million\u003c/a> Californians caring for a loved one with Alzheimer’s disease. A \u003ca href=\"https://discovery.cdph.ca.gov/fusion/communityburden/_w_fab2c486b487e535dc456f735a3804864596f43b642170ad/CA_Health_Views.pdf\" target=\"_blank\" rel=\"noopener noreferrer\">report\u003c/a> published earlier this year by the California Department of Health says more people in our state die from Alzheimer’s than anything else, except heart disease. Much of the care Alzheimer’s patients need is considered custodial, so it’s not covered by most insurance — and funding for patients like Sharon with early-onset Alzheimer’s is even more limited.\u003c/p>\n\u003cp>By 2030, California’s senior population is \u003ca href=\"https://www.ppic.org/publication/planning-for-californias-growing-senior-population/\" target=\"_blank\" rel=\"noopener noreferrer\">projected to grow by 4 million people\u003c/a>, and lawmakers are recognizing the urgency of preparing for this shift. In June, Gov. Gavin Newsom signed an executive order to create a \u003ca href=\"https://www.gov.ca.gov/2019/06/10/governor-gavin-newsom-calls-for-creation-of-a-master-plan-for-aging/\" target=\"_blank\" rel=\"noopener noreferrer\">Master Plan for Aging\u003c/a> and, within that, a \u003ca href=\"https://www.chhs.ca.gov/home/committees/governors-task-force-on-alzheimers/\" target=\"_blank\" rel=\"noopener noreferrer\">Task Force on Alzheimer’s Prevention and Preparedness,\u003c/a> helmed by former California first lady Maria Shriver.\u003c/p>\n\u003ch2>High School Sweethearts\u003c/h2>\n\u003cp>Jon tries to visit Sharon a few times a week. He doesn’t bring it up in our interview, but it’s easy to see how he could feel conflicted about whether the benefits she receives from his being there outweigh the emotional strain the visits clearly inflict on him.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>By the time she was diagnosed almost 10 years ago, he says, her memory had diminished so much that she couldn’t comprehend her illness. Now, on top of the memory loss, she’s no longer verbal — she stopped talking about a year and a half ago, he says.\u003c/p>\n\u003cp>Jon and Sharon have been together since she asked him to a Sadie Hawkins dance when she was 16. “She was young and beautiful with long copper-red hair. Very funny person, very lively. She continued with that personality all throughout her life until the disease hit her,” Jon says.\u003c/p>\n\u003cp>Sharon never had a great sense of direction, but in her mid-50s she started struggling more noticeably with finding her way to places, and becoming more forgetful. Eventually, one of their two daughters insisted he take her in for cognitive tests. “Sharon failed … miserably. And watching that was one of the hardest moments ever,” Jon remembers.\u003c/p>\n\u003cfigure id=\"attachment_11770620\" class=\"wp-caption alignnone\" style=\"max-width: 800px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-11770620\" src=\"https://ww2.kqed.org/news/wp-content/uploads/sites/10/2019/08/RS38677_Jon-Sharon1-qut-800x1067.jpg\" alt=\"Sharon and Jon Lucas in the years prior to Sharon's Alzheimer's diagnosis.\" width=\"800\" height=\"1067\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2019/08/RS38677_Jon-Sharon1-qut-800x1067.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/08/RS38677_Jon-Sharon1-qut-160x213.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/08/RS38677_Jon-Sharon1-qut-1020x1360.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/08/RS38677_Jon-Sharon1-qut-900x1200.jpg 900w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/08/RS38677_Jon-Sharon1-qut-1920x2560.jpg 1920w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/08/RS38677_Jon-Sharon1-qut-1122x1496.jpg 1122w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/08/RS38677_Jon-Sharon1-qut-840x1120.jpg 840w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/08/RS38677_Jon-Sharon1-qut-687x916.jpg 687w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/08/RS38677_Jon-Sharon1-qut-414x552.jpg 414w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/08/RS38677_Jon-Sharon1-qut-354x472.jpg 354w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/08/RS38677_Jon-Sharon1-qut.jpg 1536w\" sizes=\"(max-width: 800px) 100vw, 800px\">\u003cfigcaption class=\"wp-caption-text\">Sharon and Jon Lucas in the years prior to her Alzheimer’s diagnosis. \u003ccite>(Courtesy of Jon Lucas)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>Looking back, Jon says he realizes Sharon was conscious of the shift she was experiencing. When he moved her from their home to her facility, he found stacks of Post-it notes she’d written to remind herself how to do simple tasks on the computer, and self-help books with tabs on the pages about memory improvement.\u003c/p>\n\u003cp>In less than a year from those first cognitive tests, Sharon was diagnosed with early-onset Alzheimer’s. Initially, Jon and his daughters, who were out of the house at that point, decided not to tell Sharon about the diagnosis, because they thought she wouldn’t be able to grasp what it meant and, on the off-chance that she would, it would just be upsetting.\u003c/p>\n\u003cp>“After about … two or three months of that, … it was gut-wrenching to us to try to keep it a secret and it didn’t seem fair to her,” Jon recalls. “My daughters came home and we sat her down on the couch and … we had that discussion with her. That she had Alzheimer’s disease and it was a fatal disease and she had about eight or 10 years on average to live. We all had a big cry. Five minutes later, sure enough, she had forgotten it. And we moved on. But we felt better that we’d had the conversation, at least,” Jon said.\u003c/p>\n\u003ch2>Life as a Full-Time Caregiver\u003c/h2>\n\u003cp>Two weeks after Sharon’s diagnosis, Jon left his senior role at an electronics company and became her full-time caregiver. It was a trying few years as he took on round-the-clock duties on top of all the household tasks they used to shoulder together. Sharon’s disease progressed to the extent that Jon was able to sleep only if she was in the small area of the house he’d cordoned off where she could wander safely.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>Their circle of friends dwindled. Jon started to recognize signs of depression in himself, and members of his Alzheimer’s support group encouraged him to find a care facility for Sharon.\u003c/p>\n\u003cp>A \u003ca href=\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6292823/\" target=\"_blank\" rel=\"noopener noreferrer\">recent study\u003c/a> shows that 18% of Alzheimer’s and dementia caregivers die before those receiving their care, and the toll that this process can take is a big focus of groups like the Alzheimer’s Association. Jon knew that his own health was in jeopardy, and he ultimately decided to move Sharon to Cedar Creek, the facility where she lives today, and where we’ve met to talk.\u003c/p>\n\u003cp>“It was the hardest decision I’ve ever made. And it was the most amazing feeling coming out of here. All the emotions that hit: Freedom. Guilt. Sadness. Joy. All of it coming down all at once. I just sat out in that parking lot for about 15 minutes and cried. And then I went home and started living my life again,” Jon says, his voice breaking.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003ch2>Finding a New Path through Advocacy\u003c/h2>\n\u003cp>With Sharon at Cedar Creek, Jon suddenly felt retired for the first time since he left his job. After a short spell enjoying his new flexibility and easing back into a regular social life, he realized he wanted to channel his experience with Alzheimer’s into productive use, and he decided to become an advocate for the Alzheimer’s Association.\u003c/p>\n\u003cp>At his first advocacy forum in Washington, D.C., he met Patt Martin. Patt’s husband, Bill, had succumbed to a form of dementia called primary progressive aphasia (PPA) after being diagnosed in his early 50s.\u003c/p>\n\u003cfigure id=\"attachment_11770619\" class=\"wp-caption alignnone\" style=\"max-width: 800px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-11770619\" src=\"https://ww2.kqed.org/news/wp-content/uploads/sites/10/2019/08/RS38676_Patt-Bill-Martin-qut-800x603.jpg\" alt=\"Patt Martin, left, with her husband, Bill, before his dementia diagnosis.\" width=\"800\" height=\"603\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2019/08/RS38676_Patt-Bill-Martin-qut-800x603.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/08/RS38676_Patt-Bill-Martin-qut-160x121.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/08/RS38676_Patt-Bill-Martin-qut-1020x768.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/08/RS38676_Patt-Bill-Martin-qut-1200x904.jpg 1200w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/08/RS38676_Patt-Bill-Martin-qut.jpg 1280w\" sizes=\"(max-width: 800px) 100vw, 800px\">\u003cfigcaption class=\"wp-caption-text\">Patt Martin, left, with her husband, Bill, before his dementia diagnosis. \u003ccite>(Courtesy of Patt Martin)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>Soon after Jon placed Sharon at the care facility, Sharon’s mother gave him her blessing to date again. He was hesitant at first, and not sure how to ease back in when dating sites didn’t feel like the right fit for him. Patt had felt the same way. So it was a pleasant surprise to both of them when they each sensed a spark at the forum. When they both got back to California, they set up a coffee date through Facebook.\u003c/p>\n\u003cp>“We spent three hours talking to each other,” Jon recalls. “The crowd faded away. We forgot we were even sitting in a coffee house … it was a magical three hours. And then after that we just started dating more and we fell in love. And that’s been three years now.”\u003c/p>\n\u003ch2>A Foot in Two Worlds\u003c/h2>\n\u003cp>Jon and Patt’s shared experiences as caregivers have bonded them from the start. They have both weathered seeing their spouses become strangers to them. Since Patt’s experience caring for her husband is behind her, she feels uniquely attuned to what Jon is going through, both in the day-to-day, and as he anticipates Sharon’s passing.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>“Jon is still in the midst of the journey with Sharon, and I understand that that journey is very difficult. I mean, he has a foot in two different worlds right now, and I can be somebody that he can … say anything to … I will understand it, wherever his feelings are,” Patt says.\u003c/p>\n\u003cp>In addition to the shared emotional strain, Jon and Patt have also both spent considerable chunks of savings on their spouses’ care — in Jon’s case, $550,000 just in the last six years.\u003c/p>\n\u003cp>By the time Patt’s husband Bill passed away, they had paid more than $300,000 out of pocket for his care. “We were lucky we had the money to be able to do that,” she says. “Many people don’t have those kind of means. And I was totally unaware — I had no idea … that there wasn’t any kind of support for this.”\u003c/p>\n\u003cp>Jon and Patt have moved in together now, partly out of necessity for Jon because, in addition to dipping into his retirement and starting to take Social Security early to help pay for Sharon’s facility, he has moved out of the house they shared so he can have rental income to contribute to those costs.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>Because much of the care for those with dementia-related illnesses is custodial — meaning just guiding the person through personal hygiene, meals and the other ins and outs of their day — most insurance won’t cover it. For people like Jon and Patt with too much cash in the bank to qualify for long-term coverage through Medi-Cal, long-term care insurance can be an option. But it’s often expensive, and the Alzheimer’s Association and an insurance agent confirmed that once a patient is diagnosed with Alzheimer’s, they are \u003ca href=\"https://www.alz.org/help-support/caregiving/financial-legal-planning/insurance\" target=\"_blank\" rel=\"noopener noreferrer\">no longer eligible\u003c/a> to apply.\u003c/p>\n\u003cp>The requirements for long-term care coverage through a need-based program like Medi-Cal are \u003ca href=\"https://www.medicaidplanningassistance.org/medicaid-long-term-care-faq/\">complicated\u003c/a>. Assets, like a primary home and car, and certain kinds of trust accounts, don’t count against a family’s or an individual’s eligibility. However, each individual may have no more than $2,000 in what are termed “countable assets” to qualify. Countable assets include bank accounts, unapproved trust accounts and secondary vehicles.\u003c/p>\n\u003ch2>Bucket Lists and Family Celebrations\u003c/h2>\n\u003cfigure id=\"attachment_11770626\" class=\"wp-caption alignnone\" style=\"max-width: 800px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-11770626\" src=\"https://ww2.kqed.org/news/wp-content/uploads/sites/10/2019/08/RS38672_Jon-Patt-with-Ro-Khanna2-qut-800x600.jpg\" alt=\"Jon Lucas (left) and Patt Martin discuss Alzheimer's funding needs with Congressman Ro Khanna. \" width=\"800\" height=\"600\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2019/08/RS38672_Jon-Patt-with-Ro-Khanna2-qut-800x600.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/08/RS38672_Jon-Patt-with-Ro-Khanna2-qut-160x120.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/08/RS38672_Jon-Patt-with-Ro-Khanna2-qut-632x474.jpg 632w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/08/RS38672_Jon-Patt-with-Ro-Khanna2-qut-536x402.jpg 536w, https://cdn.kqed.org/wp-content/uploads/sites/10/2019/08/RS38672_Jon-Patt-with-Ro-Khanna2-qut.jpg 960w\" sizes=\"(max-width: 800px) 100vw, 800px\">\u003cfigcaption class=\"wp-caption-text\">Jon Lucas (left) and Patt Martin discuss Alzheimer’s funding needs with congressman Ro Khanna. \u003ccite>(Courtesy of Patt Martin)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>With the untraditional relationship dynamics they’re balancing, Jon and Patt say they’re lucky that their children — they both have two daughters — have accepted the other into their family.\u003c/p>\n\u003cp>“I was so excited about meeting [Patt] that … I wanted to get on the top of the mountain and scream it out to the world, so I was really happy to tell the kids that I had met someone. I had some reservation about how they were gonna take it,” Jon says. The families have found a balance, but Jon says he’s had friends in similar positions whose children have been much more resistant to their new partners.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"marketplace": {
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"info": "Our flagship program, helmed by Kai Ryssdal, examines what the day in money delivered, through stories, conversations, newsworthy numbers and more. Updated Monday through Friday at about 3:30 p.m. PT.",
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"possible": {
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"title": "Possible",
"info": "Possible is hosted by entrepreneur Reid Hoffman and writer Aria Finger. Together in Possible, Hoffman and Finger lead enlightening discussions about building a brighter collective future. The show features interviews with visionary guests like Trevor Noah, Sam Altman and Janette Sadik-Khan. Possible paints an optimistic portrait of the world we can create through science, policy, business, art and our shared humanity. It asks: What if everything goes right for once? How can we get there? Each episode also includes a short fiction story generated by advanced AI GPT-4, serving as a thought-provoking springboard to speculate how humanity could leverage technology for good.",
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"radiolab": {
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"title": "Rightnowish",
"tagline": "Art is where you find it",
"info": "Rightnowish digs into life in the Bay Area right now… ish. Journalist Pendarvis Harshaw takes us to galleries painted on the sides of liquor stores in West Oakland. We'll dance in warehouses in the Bayview, make smoothies with kids in South Berkeley, and listen to classical music in a 1984 Cutlass Supreme in Richmond. Every week, Pen talks to movers and shakers about how the Bay Area shapes what they create, and how they shape the place we call home.",
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"soldout": {
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"title": "SOLD OUT: Rethinking Housing in America",
"tagline": "A new future for housing",
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"info": "",
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"tech-nation": {
"id": "tech-nation",
"title": "Tech Nation Radio Podcast",
"info": "Tech Nation is a weekly public radio program, hosted by Dr. Moira Gunn. Founded in 1993, it has grown from a simple interview show to a multi-faceted production, featuring conversations with noted technology and science leaders, and a weekly science and technology-related commentary.",
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"ted-radio-hour": {
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"title": "TED Radio Hour",
"info": "The TED Radio Hour is a journey through fascinating ideas, astonishing inventions, fresh approaches to old problems, and new ways to think and create.",
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