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"content": "\u003cp>Lauren Brady, a Whittier resident, has lived all her 19 years with Rett syndrome, a rare neurological illness that can cause seizures and limits muscle movement. She can’t speak, needs a feeding tube and uses a wheelchair to get around.\u003c/p>\n\u003cp>“It affects her from head to toe, but we don’t let all of that get in our way,” her mother, Sherri Brady said this week. “Lauren has lots of friends; she goes horseback riding. Next weekend she’s going on a ski trip.”\u003c/p>\n\u003cp>That Lauren can even contemplate those activities is testimony to a $2.9 billion a year state program, \u003ca href=\"http://www.dhcs.ca.gov/services/ccs/Pages/default.aspx\" target=\"_blank\">California Children’s Services\u003c/a>, her mother said. The program provides specialized care to some 180,000 children and young adults who suffer from a range of complicated, debilitating illnesses including Rett syndrome, sickle cell anemia, cancer, cerebral palsy, hemophilia and more.\u003c/p>\n\u003cp>In recent years, Sherri Brady and other parents of children in the program have lived in fear that the care of their kids could be disrupted — at what they see as a great risk of physical and emotional harm. That’s because the state’s Department of Health Care Services ultimately wants to move all the children into managed care.\u003c/p>\n\u003cp>But the first phase of that move, which would have targeted just under one-fifth of the children beginning next January, is now on hold. The state Assembly’s influential budget subcommittee voted earlier this week to shelve it and send the department back to the drawing board. The Senate’s budget subcommittee is expected to endorse that ruling next week.\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>This means all of those children will be able to keep seeing the same providers and get the same services they’ve been receiving — at least for now.\u003c/p>\n\u003cp>That’s a big relief to their parents, who fear that in managed care their children could lose relationships with the caregivers who know them best and could face difficulty getting appointments with specialists.\u003c/p>\n\u003cp>“It’s wonderful that the legislators did this,” said Sherri Brady. But she knows her battle isn’t over.\u003c/p>\n\u003cp>The state has been under pressure for years to restructure the program both to improve the care it delivers and reduce its cost, according to a \u003ca href=\"http://www.chcf.org/~/media/MEDIA%20LIBRARY%20Files/PDF/PDF%20A/PDF%20AssessingTheCAChildrensServicesProgram.pdf\" target=\"_blank\">study by the California Health Care Foundation\u003c/a>.\u003c/p>\n\u003cp>“This isn’t the end of it,” Brady said. We’ve been fighting it and we’ll keep fighting it.”\u003c/p>\n\u003cp>Brady has trouble understanding why the state wants to move the kids into managed care. “To make a change that could be harmful for individuals who already live with such harm, that’s just not right,” she said.\u003c/p>\n\u003cp>Jennifer Kent, director of the California Department of Health Care Services, testified to the Assembly subcommittee that the first-phase proposal to move nearly 20 percent of the the kids into managed care plans would provide them with better care.\u003c/p>\n\u003cp>“One of the key components is because (California Children's Services) is a program around a condition rather than a child, the different payers don’t look at the whole child,” Kent said. “We want to better manage the care of these children across the spectrum.”\u003c/p>\n\u003cp>Under managed care, health plans are paid fixed rates to cover and coordinate nearly all health care services for patients.\u003c/p>\n\u003cp>Kent told legislators the department’s plan was “budget-neutral,” meaning it would result neither in savings nor additional costs for taxpayers.\u003c/p>\n\u003cp>Nearly half the cost of the program, or about $1.4 billion, is paid for out of the state’s general fund, according to Kent’s department.\u003c/p>\n\u003cp>About 70 percent of children in the program get benefits from Medi-Cal, the state-federal health coverage program for people with low incomes. The other 30 percent have private insurance, but the state helps pay for some of the care not covered by their insurers. The federal and county governments also pick up a portion of the tab.\u003c/p>\n\u003cp>Assuming the Senate subcommittee concurs with its Assembly counterpart, the health department will be instructed to develop a new proposal requiring what is known in Capitol lingo as “enabling legislation,” and ultimately floor votes in both houses. The process is expected to take a long time, though nobody can say how long.\u003c/p>\n\u003cp>Child advocates fear that the ultimate outcome will be the same — the kids will end up being moved into managed care.\u003c/p>\n\u003cp>“The assumption has always been that the state wants to move all of the kids,” said Yvette Baptiste, executive director of the Eastern Los Angeles Family Resource Center in Alhambra, which helps children with developmental disabilities and their families.\u003c/p>\n\u003cp>Before the Assembly subcommittee voted, its staff had recommended rejecting the department’s plan out of concern that the children’s quality of care could be compromised.\u003c/p>\n\u003cp>The Legislative Analyst’s Office agreed, as did a conga line of children’s advocates, providers and families, who all appeared at the hearing to urge the legislature to scrub the proposal from the calendar.\u003c/p>\n\u003cp>California Children’s Services, established in 1927, is one of the oldest public health programs in the nation.\u003c/p>\n\u003cp>The subcommittee chairman, Tony Thurmond, D-Richmond, said that given the program’s longevity and the apparent satisfaction of the children’s families, he didn’t want to change it.\u003c/p>\n\u003cp>“If this is one of the oldest programs around and it’s something we can hold up as a shining example of how to do things right, then let’s not mess with it,” Thurmond said.\u003c/p>\n\u003cfigure id=\"attachment_161060\" class=\"wp-caption aligncenter\" style=\"max-width: 770px\">\u003cimg class=\"size-full wp-image-161060\" src=\"http://ww2.kqed.org/stateofhealth/wp-content/uploads/sites/27/2016/03/fragile-kids_finnie_770.jpg\" alt=\"Lisa and Jaheen Finnie of Brentwood. Jaheen is 14 and has a rare condition that, since he was 3 years old, sometimes causes his brain fluid to leak, and that prompts episodes of meningitis. \" width=\"770\" height=\"513\" srcset=\"https://ww2.kqed.org/app/uploads/sites/27/2016/03/fragile-kids_finnie_770.jpg 770w, https://ww2.kqed.org/app/uploads/sites/27/2016/03/fragile-kids_finnie_770-400x266.jpg 400w, https://ww2.kqed.org/app/uploads/sites/27/2016/03/fragile-kids_finnie_770-768x512.jpg 768w\" sizes=\"(max-width: 770px) 100vw, 770px\">\u003cfigcaption class=\"wp-caption-text\">Lisa and Jaheen Finnie of Brentwood. Jaheen is 14 and has a rare condition that, since he was 3 years old, sometimes causes his brain fluid to leak, and that prompts episodes of meningitis. \u003ccite>(David Gorn/California Healthline)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>That was music to the ears of Lisa Finnie and her 14-year-old son Jaheen of Brentwood, 45 miles east of Oakland. Jaheen struggles with a rare medical condition that sometimes causes brain fluid to leak from his skull.\u003c/p>\n\u003cp>Since he was 3, Jaheen has had six surgeries and survived seven bouts of life-threatening meningitis caused by the defect. He has had periods of blindness, and at one point was in a coma for a month.\u003c/p>\n\u003cp>But right now, Jaheen can see just fine. His only outward signs of the condition are faulty hearing and a face that droops a bit on one side.\u003c/p>\n\u003cp>“I kind of smile on one side right now,” Jaheen explained. “I’m learning how to get this side of my face up,” he said, touching his left cheek.\u003c/p>\n\u003cp>His mom Lisa credits the Children’s Services program with helping her family survive and thrive, she said.\u003c/p>\n\u003cp>“I don’t know what we’d do without it.”\u003c/p>\n\u003cfigure id=\"attachment_161061\" class=\"wp-caption alignright\" style=\"max-width: 370px\">\u003cimg class=\"size-full wp-image-161061\" src=\"http://ww2.kqed.org/stateofhealth/wp-content/uploads/sites/27/2016/03/fragile-kids_mia_370.jpg\" alt=\"Mia Vasquez, 8 , has cerebral palsy and bone deformities.\" width=\"370\" height=\"464\">\u003cfigcaption class=\"wp-caption-text\">Mia Vasquez, 8 , has cerebral palsy and bone deformities. \u003ccite>(Courtesy of Emelyn Lacayo)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>That sentiment was echoed by Emelyn Lacayo of Hayward, the mother of a seven-year-old daughter, Mia, who has cerebral palsy, bone deformities and is also believed to suffer from a rare condition called Cockayne syndrome.\u003c/p>\n\u003cp>“The doctors thought she wouldn’t live past a year, but she’s almost 8 now,” Lacayo said.\u003c/p>\n\u003cp>A possible transition into managed care worries Lacayo, because Mia might lose one of her key specialists.\u003c/p>\n\u003cp>“Our biggest fear is that Mia would fall through the cracks,” she said. “You can’t just throw us into managed care. These are kids who need the specialty care.”\u003c/p>\n\u003cp>Lacayo says the state has long wanted to replace this high-need, high-cost program, and she was heartened when the subcommittee applied the brakes to the plan that would have started to do that. But she understands the fight has only been put off for another day.\u003c/p>\n\u003cp>[ad floatright]\u003c/p>\n\u003cp>“We’re okay for now, but we still have a lot of work to do,” she said. “The moral of the story is, these kids are expensive, yes — but they need that care,” Lacayo said. “They didn’t choose to have these conditions.”\u003c/p>\n\n",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003cp>Lauren Brady, a Whittier resident, has lived all her 19 years with Rett syndrome, a rare neurological illness that can cause seizures and limits muscle movement. She can’t speak, needs a feeding tube and uses a wheelchair to get around.\u003c/p>\n\u003cp>“It affects her from head to toe, but we don’t let all of that get in our way,” her mother, Sherri Brady said this week. “Lauren has lots of friends; she goes horseback riding. Next weekend she’s going on a ski trip.”\u003c/p>\n\u003cp>That Lauren can even contemplate those activities is testimony to a $2.9 billion a year state program, \u003ca href=\"http://www.dhcs.ca.gov/services/ccs/Pages/default.aspx\" target=\"_blank\">California Children’s Services\u003c/a>, her mother said. The program provides specialized care to some 180,000 children and young adults who suffer from a range of complicated, debilitating illnesses including Rett syndrome, sickle cell anemia, cancer, cerebral palsy, hemophilia and more.\u003c/p>\n\u003cp>In recent years, Sherri Brady and other parents of children in the program have lived in fear that the care of their kids could be disrupted — at what they see as a great risk of physical and emotional harm. That’s because the state’s Department of Health Care Services ultimately wants to move all the children into managed care.\u003c/p>\n\u003cp>But the first phase of that move, which would have targeted just under one-fifth of the children beginning next January, is now on hold. The state Assembly’s influential budget subcommittee voted earlier this week to shelve it and send the department back to the drawing board. The Senate’s budget subcommittee is expected to endorse that ruling next week.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>This means all of those children will be able to keep seeing the same providers and get the same services they’ve been receiving — at least for now.\u003c/p>\n\u003cp>That’s a big relief to their parents, who fear that in managed care their children could lose relationships with the caregivers who know them best and could face difficulty getting appointments with specialists.\u003c/p>\n\u003cp>“It’s wonderful that the legislators did this,” said Sherri Brady. But she knows her battle isn’t over.\u003c/p>\n\u003cp>The state has been under pressure for years to restructure the program both to improve the care it delivers and reduce its cost, according to a \u003ca href=\"http://www.chcf.org/~/media/MEDIA%20LIBRARY%20Files/PDF/PDF%20A/PDF%20AssessingTheCAChildrensServicesProgram.pdf\" target=\"_blank\">study by the California Health Care Foundation\u003c/a>.\u003c/p>\n\u003cp>“This isn’t the end of it,” Brady said. We’ve been fighting it and we’ll keep fighting it.”\u003c/p>\n\u003cp>Brady has trouble understanding why the state wants to move the kids into managed care. “To make a change that could be harmful for individuals who already live with such harm, that’s just not right,” she said.\u003c/p>\n\u003cp>Jennifer Kent, director of the California Department of Health Care Services, testified to the Assembly subcommittee that the first-phase proposal to move nearly 20 percent of the the kids into managed care plans would provide them with better care.\u003c/p>\n\u003cp>“One of the key components is because (California Children's Services) is a program around a condition rather than a child, the different payers don’t look at the whole child,” Kent said. “We want to better manage the care of these children across the spectrum.”\u003c/p>\n\u003cp>Under managed care, health plans are paid fixed rates to cover and coordinate nearly all health care services for patients.\u003c/p>\n\u003cp>Kent told legislators the department’s plan was “budget-neutral,” meaning it would result neither in savings nor additional costs for taxpayers.\u003c/p>\n\u003cp>Nearly half the cost of the program, or about $1.4 billion, is paid for out of the state’s general fund, according to Kent’s department.\u003c/p>\n\u003cp>About 70 percent of children in the program get benefits from Medi-Cal, the state-federal health coverage program for people with low incomes. The other 30 percent have private insurance, but the state helps pay for some of the care not covered by their insurers. The federal and county governments also pick up a portion of the tab.\u003c/p>\n\u003cp>Assuming the Senate subcommittee concurs with its Assembly counterpart, the health department will be instructed to develop a new proposal requiring what is known in Capitol lingo as “enabling legislation,” and ultimately floor votes in both houses. The process is expected to take a long time, though nobody can say how long.\u003c/p>\n\u003cp>Child advocates fear that the ultimate outcome will be the same — the kids will end up being moved into managed care.\u003c/p>\n\u003cp>“The assumption has always been that the state wants to move all of the kids,” said Yvette Baptiste, executive director of the Eastern Los Angeles Family Resource Center in Alhambra, which helps children with developmental disabilities and their families.\u003c/p>\n\u003cp>Before the Assembly subcommittee voted, its staff had recommended rejecting the department’s plan out of concern that the children’s quality of care could be compromised.\u003c/p>\n\u003cp>The Legislative Analyst’s Office agreed, as did a conga line of children’s advocates, providers and families, who all appeared at the hearing to urge the legislature to scrub the proposal from the calendar.\u003c/p>\n\u003cp>California Children’s Services, established in 1927, is one of the oldest public health programs in the nation.\u003c/p>\n\u003cp>The subcommittee chairman, Tony Thurmond, D-Richmond, said that given the program’s longevity and the apparent satisfaction of the children’s families, he didn’t want to change it.\u003c/p>\n\u003cp>“If this is one of the oldest programs around and it’s something we can hold up as a shining example of how to do things right, then let’s not mess with it,” Thurmond said.\u003c/p>\n\u003cfigure id=\"attachment_161060\" class=\"wp-caption aligncenter\" style=\"max-width: 770px\">\u003cimg class=\"size-full wp-image-161060\" src=\"http://ww2.kqed.org/stateofhealth/wp-content/uploads/sites/27/2016/03/fragile-kids_finnie_770.jpg\" alt=\"Lisa and Jaheen Finnie of Brentwood. Jaheen is 14 and has a rare condition that, since he was 3 years old, sometimes causes his brain fluid to leak, and that prompts episodes of meningitis. \" width=\"770\" height=\"513\" srcset=\"https://ww2.kqed.org/app/uploads/sites/27/2016/03/fragile-kids_finnie_770.jpg 770w, https://ww2.kqed.org/app/uploads/sites/27/2016/03/fragile-kids_finnie_770-400x266.jpg 400w, https://ww2.kqed.org/app/uploads/sites/27/2016/03/fragile-kids_finnie_770-768x512.jpg 768w\" sizes=\"(max-width: 770px) 100vw, 770px\">\u003cfigcaption class=\"wp-caption-text\">Lisa and Jaheen Finnie of Brentwood. Jaheen is 14 and has a rare condition that, since he was 3 years old, sometimes causes his brain fluid to leak, and that prompts episodes of meningitis. \u003ccite>(David Gorn/California Healthline)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>That was music to the ears of Lisa Finnie and her 14-year-old son Jaheen of Brentwood, 45 miles east of Oakland. Jaheen struggles with a rare medical condition that sometimes causes brain fluid to leak from his skull.\u003c/p>\n\u003cp>Since he was 3, Jaheen has had six surgeries and survived seven bouts of life-threatening meningitis caused by the defect. He has had periods of blindness, and at one point was in a coma for a month.\u003c/p>\n\u003cp>But right now, Jaheen can see just fine. His only outward signs of the condition are faulty hearing and a face that droops a bit on one side.\u003c/p>\n\u003cp>“I kind of smile on one side right now,” Jaheen explained. “I’m learning how to get this side of my face up,” he said, touching his left cheek.\u003c/p>\n\u003cp>His mom Lisa credits the Children’s Services program with helping her family survive and thrive, she said.\u003c/p>\n\u003cp>“I don’t know what we’d do without it.”\u003c/p>\n\u003cfigure id=\"attachment_161061\" class=\"wp-caption alignright\" style=\"max-width: 370px\">\u003cimg class=\"size-full wp-image-161061\" src=\"http://ww2.kqed.org/stateofhealth/wp-content/uploads/sites/27/2016/03/fragile-kids_mia_370.jpg\" alt=\"Mia Vasquez, 8 , has cerebral palsy and bone deformities.\" width=\"370\" height=\"464\">\u003cfigcaption class=\"wp-caption-text\">Mia Vasquez, 8 , has cerebral palsy and bone deformities. \u003ccite>(Courtesy of Emelyn Lacayo)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>That sentiment was echoed by Emelyn Lacayo of Hayward, the mother of a seven-year-old daughter, Mia, who has cerebral palsy, bone deformities and is also believed to suffer from a rare condition called Cockayne syndrome.\u003c/p>\n\u003cp>“The doctors thought she wouldn’t live past a year, but she’s almost 8 now,” Lacayo said.\u003c/p>\n\u003cp>A possible transition into managed care worries Lacayo, because Mia might lose one of her key specialists.\u003c/p>\n\u003cp>“Our biggest fear is that Mia would fall through the cracks,” she said. “You can’t just throw us into managed care. These are kids who need the specialty care.”\u003c/p>\n\u003cp>Lacayo says the state has long wanted to replace this high-need, high-cost program, and she was heartened when the subcommittee applied the brakes to the plan that would have started to do that. But she understands the fight has only been put off for another day.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"info": "What kind of no sabo word is Hyphenación? For us, it’s about living within a hyphenation. Like being a third-gen Mexican-American from the Texas border now living that Bay Area Chicano life. Like Xorje! Each week we bring together a couple of hyphenated Latinos to talk all about personal life choices: family, careers, relationships, belonging … everything is on the table. ",
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"info": "The Political Mind of Jerry Brown brings listeners the wisdom of the former Governor, Mayor, and presidential candidate. Scott Shafer interviewed Brown for more than 40 hours, covering the former governor's life and half-century in the political game – and Brown has some lessons he'd like to share. ",
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"info": "Our flagship program, helmed by Kai Ryssdal, examines what the day in money delivered, through stories, conversations, newsworthy numbers and more. Updated Monday through Friday at about 3:30 p.m. PT.",
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"info": "The MindShift podcast explores the innovations in education that are shaping how kids learn. Hosts Ki Sung and Katrina Schwartz introduce listeners to educators, researchers, parents and students who are developing effective ways to improve how kids learn. We cover topics like how fed-up administrators are developing surprising tactics to deal with classroom disruptions; how listening to podcasts are helping kids develop reading skills; the consequences of overparenting; and why interdisciplinary learning can engage students on all ends of the traditional achievement spectrum. This podcast is part of the MindShift education site, a division of KQED News. KQED is an NPR/PBS member station based in San Francisco. You can also visit the MindShift website for episodes and supplemental blog posts or tweet us \u003ca href=\"https://twitter.com/MindShiftKQED\">@MindShiftKQED\u003c/a> or visit us at \u003ca href=\"/mindshift\">MindShift.KQED.org\u003c/a>",
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"info": "For decades, the process for how police police themselves has been inconsistent – if not opaque. In some states, like California, these proceedings were completely hidden. After a new police transparency law unsealed scores of internal affairs files, our reporters set out to examine these cases and the shadow world of police discipline. On Our Watch brings listeners into the rooms where officers are questioned and witnesses are interrogated to find out who this system is really protecting. Is it the officers, or the public they've sworn to serve?",
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"politicalbreakdown": {
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"tagline": "Politics from a personal perspective",
"info": "Political Breakdown is a new series that explores the political intersection of California and the nation. Each week hosts Scott Shafer and Marisa Lagos are joined with a new special guest to unpack politics -- with personality — and offer an insider’s glimpse at how politics happens.",
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"possible": {
"id": "possible",
"title": "Possible",
"info": "Possible is hosted by entrepreneur Reid Hoffman and writer Aria Finger. Together in Possible, Hoffman and Finger lead enlightening discussions about building a brighter collective future. The show features interviews with visionary guests like Trevor Noah, Sam Altman and Janette Sadik-Khan. Possible paints an optimistic portrait of the world we can create through science, policy, business, art and our shared humanity. It asks: What if everything goes right for once? How can we get there? Each episode also includes a short fiction story generated by advanced AI GPT-4, serving as a thought-provoking springboard to speculate how humanity could leverage technology for good.",
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"pri-the-world": {
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},
"radiolab": {
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"info": "A two-time Peabody Award-winner, Radiolab is an investigation told through sounds and stories, and centered around one big idea. In the Radiolab world, information sounds like music and science and culture collide. Hosted by Jad Abumrad and Robert Krulwich, the show is designed for listeners who demand skepticism, but appreciate wonder. WNYC Studios is the producer of other leading podcasts including Freakonomics Radio, Death, Sex & Money, On the Media and many more.",
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"reveal": {
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"info": "Created by The Center for Investigative Reporting and PRX, Reveal is public radios first one-hour weekly radio show and podcast dedicated to investigative reporting. Credible, fact based and without a partisan agenda, Reveal combines the power and artistry of driveway moment storytelling with data-rich reporting on critically important issues. The result is stories that inform and inspire, arming our listeners with information to right injustices, hold the powerful accountable and improve lives.Reveal is hosted by Al Letson and showcases the award-winning work of CIR and newsrooms large and small across the nation. In a radio and podcast market crowded with choices, Reveal focuses on important and often surprising stories that illuminate the world for our listeners.",
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},
"rightnowish": {
"id": "rightnowish",
"title": "Rightnowish",
"tagline": "Art is where you find it",
"info": "Rightnowish digs into life in the Bay Area right now… ish. Journalist Pendarvis Harshaw takes us to galleries painted on the sides of liquor stores in West Oakland. We'll dance in warehouses in the Bayview, make smoothies with kids in South Berkeley, and listen to classical music in a 1984 Cutlass Supreme in Richmond. Every week, Pen talks to movers and shakers about how the Bay Area shapes what they create, and how they shape the place we call home.",
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"order": 16
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},
"science-friday": {
"id": "science-friday",
"title": "Science Friday",
"info": "Science Friday is a weekly science talk show, broadcast live over public radio stations nationwide. Each week, the show focuses on science topics that are in the news and tries to bring an educated, balanced discussion to bear on the scientific issues at hand. Panels of expert guests join host Ira Flatow, a veteran science journalist, to discuss science and to take questions from listeners during the call-in portion of the program.",
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},
"snap-judgment": {
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