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"content": "\u003cp>\u003ca href=\"https://www.kqed.org/news/tag/long-covid\">Long COVID\u003c/a> patients and advocates in the \u003ca href=\"https://www.kqed.org/news/tag/bay-area\">Bay Area\u003c/a> have spent years pushing for a concerted effort toward research, prevention and a cure.\u003c/p>\n\u003cp>They’re now hopeful that the increasingly widespread chronic condition that follows many COVID-19 infections will soon be better understood, thanks to legislation introduced Friday in the House of Representatives that would provide $10 billion in funding for long COVID research and education.\u003c/p>\n\u003cp>The Long COVID Research Moonshot Act, proposed by Rep. Ilhan Omar (D-Minn.) and co-sponsored by Rep.\u003ca href=\"https://www.kqed.org/news/11973684\"> Barbara Lee\u003c/a> (D-Oakland), is a companion bill to one that Sen. Bernie Sanders (I-Vt.) \u003ca href=\"https://www.congress.gov/bill/118th-congress/senate-bill/4964/cosponsors?s=2&r=2&q=%7B%22search%22%3A%22bernie+sanders%22%7D\">introduced\u003c/a> in the Senate in August.\u003c/p>\n\u003cp>“It’s huge for us,” said Lisa McCorkell, an Oakland resident who co-founded the Patient-Led Research Collaborative. The PLRC is a group of researchers living with long COVID and other related chronic conditions.\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>“It really shows that this bill has broad support — as it should — because it’s aiming to address the crisis of long COVID in a way that puts the resources that are necessary behind it,” McCorkell said.\u003c/p>\n\u003cp>The \u003ca href=\"https://www.kqed.org/news/11986724/after-months-long-coma-this-latino-immigrant-worker-is-still-fighting-mysterious-symptoms\">symptoms of long COVID\u003c/a> often include brain fog and fatigue. Many people found to have it have also been diagnosed with conditions like \u003ca href=\"https://solvecfs.org/me-cfs-long-covid/about-the-disease/\">myalgic encephalomyelitis/chronic fatigue syndrome\u003c/a> (ME/CF) and \u003ca href=\"https://www.hopkinsmedicine.org/health/conditions-and-diseases/postural-orthostatic-tachycardia-syndrome-pots\">postural orthostatic tachycardia syndrome\u003c/a> (POTS). These chronic, complex immune diseases can profoundly limit the wellness and productivity of patients and, like long COVID, are often triggered by an infection.\u003c/p>\n\u003cp>Studies have also found that COVID-19 can cause immune system \u003ca href=\"https://www.yalemedicine.org/news/the-long-covid-puzzle-autoimmunity-inflammation-and-other-possible-causes#:~:text=The%20theory%20is%20that%20COVID,in%20those%20with%20Long%20COVID.\">dysfunction\u003c/a>, allowing dormant infections, like the virus that causes Epstein-Barr disease or the bacteria that causes Lyme disease, to reemerge. And while vaccines have ensured bouts of COVID-19 are less likely to be deadly than they were at the pandemic’s start, every infection makes you more \u003ca href=\"https://www.unmc.edu/healthsecurity/transmission/2023/12/27/every-covid-infection-increases-your-risk-of-long-covid-study-warns/\">susceptible \u003c/a>to contracting long COVID.\u003c/p>\n\u003cp>[aside postID=news_12006600 hero='https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/GettyImages-1668874864-1020x646.jpg']\u003c/p>\n\u003cp>Dr. Linda Geng, co-director of the Stanford Post-Acute COVID-19 Syndrome Clinic, said long COVID has become a “huge public health problem,” affecting millions of people in the United States long term.\u003c/p>\n\u003cp>Though physicians have an FDA-approved therapeutic toolkit for COVID-19, they currently have “minimal to no evidence-based strategies” to help those who have long COVID or who may develop it in the future, Geng said.\u003c/p>\n\u003cp>The Long COVID Research Moonshot Act would create a new research center within the National Institutes of Health to study the condition and other related illnesses, like ME/CFS and POTS. The center would house a new database tracking long COVID cases, an advisory board, and new grant processes to accelerate clinical trials, according to a report by \u003ca href=\"https://www.motherjones.com/politics/2024/09/ilhan-omar-bernie-long-covid-house-bill/\">\u003cem>Mother Jones\u003c/em>\u003c/a>.\u003c/p>\n\u003cp>The legislation would also fund public health education and clinics dedicated to long COVID care, especially in underserved communities — and would require any new treatments developed through the act to be reasonably priced and accessible to more patients.\u003c/p>\n\u003cp>The Bay Area’s Umoja Health, which serves the COVID-19 and health needs of people of color, was an early sponsor of the Sanders bill. Co-founder Kim Rhoads described how long COVID can transform patients’ lives and contribute to long-term disability.\u003c/p>\n\u003cp>“We’ve heard stories of folks who now have a hospital bed in their house where the family member who was affected by long COVID lives,” Rhoads said. “Folks who do not like to get out of bed, have burning feet and difficulty walking or have exertional malaise, which is basically a fatigue that can come over people after just doing simple things like cooking a meal.\u003c/p>\n\u003cp>Rhoads said the disease has largely been ignored or treated like a seasonal virus, such as the flu. “There are political reasons to deny that there are any long-term effects of COVID,” Rhoads said, “to allow for us to ‘get back to normal.’”\u003c/p>\n\u003cp>In her work, Rhoads has seen firsthand how communities of color and disabled people have been disproportionately harmed by long COVID. Historically marginalized groups are also on the frontlines of infections and suffer from the highest mortality rates.\u003c/p>\n\u003cp>Disabled people \u003ca href=\"https://www.cidrap.umn.edu/covid-19/long-covid-rate-among-disabled-people-double-able-bodied\">are twice as likely\u003c/a> to contract long COVID as nondisabled people, said Sabrina Epstein, a policy analyst with Disability Rights California.\u003c/p>\n\u003cp>“This is deeply an equity and justice issue,” said Epstein, whose disability makes her at risk for long COVID. “The research proposed by this bill has the potential to benefit folks in the disability and chronic illness community.”\u003c/p>\n\u003cp>\u003cem>KQED’s \u003ca href=\"https://www.kqed.org/author/carlysevern\">Carly Severn\u003c/a> contributed to this report. \u003c/em>\u003c/p>\n\u003cp>\u003c/p>\n",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003cp>\u003ca href=\"https://www.kqed.org/news/tag/long-covid\">Long COVID\u003c/a> patients and advocates in the \u003ca href=\"https://www.kqed.org/news/tag/bay-area\">Bay Area\u003c/a> have spent years pushing for a concerted effort toward research, prevention and a cure.\u003c/p>\n\u003cp>They’re now hopeful that the increasingly widespread chronic condition that follows many COVID-19 infections will soon be better understood, thanks to legislation introduced Friday in the House of Representatives that would provide $10 billion in funding for long COVID research and education.\u003c/p>\n\u003cp>The Long COVID Research Moonshot Act, proposed by Rep. Ilhan Omar (D-Minn.) and co-sponsored by Rep.\u003ca href=\"https://www.kqed.org/news/11973684\"> Barbara Lee\u003c/a> (D-Oakland), is a companion bill to one that Sen. Bernie Sanders (I-Vt.) \u003ca href=\"https://www.congress.gov/bill/118th-congress/senate-bill/4964/cosponsors?s=2&r=2&q=%7B%22search%22%3A%22bernie+sanders%22%7D\">introduced\u003c/a> in the Senate in August.\u003c/p>\n\u003cp>“It’s huge for us,” said Lisa McCorkell, an Oakland resident who co-founded the Patient-Led Research Collaborative. The PLRC is a group of researchers living with long COVID and other related chronic conditions.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>“It really shows that this bill has broad support — as it should — because it’s aiming to address the crisis of long COVID in a way that puts the resources that are necessary behind it,” McCorkell said.\u003c/p>\n\u003cp>The \u003ca href=\"https://www.kqed.org/news/11986724/after-months-long-coma-this-latino-immigrant-worker-is-still-fighting-mysterious-symptoms\">symptoms of long COVID\u003c/a> often include brain fog and fatigue. Many people found to have it have also been diagnosed with conditions like \u003ca href=\"https://solvecfs.org/me-cfs-long-covid/about-the-disease/\">myalgic encephalomyelitis/chronic fatigue syndrome\u003c/a> (ME/CF) and \u003ca href=\"https://www.hopkinsmedicine.org/health/conditions-and-diseases/postural-orthostatic-tachycardia-syndrome-pots\">postural orthostatic tachycardia syndrome\u003c/a> (POTS). These chronic, complex immune diseases can profoundly limit the wellness and productivity of patients and, like long COVID, are often triggered by an infection.\u003c/p>\n\u003cp>Studies have also found that COVID-19 can cause immune system \u003ca href=\"https://www.yalemedicine.org/news/the-long-covid-puzzle-autoimmunity-inflammation-and-other-possible-causes#:~:text=The%20theory%20is%20that%20COVID,in%20those%20with%20Long%20COVID.\">dysfunction\u003c/a>, allowing dormant infections, like the virus that causes Epstein-Barr disease or the bacteria that causes Lyme disease, to reemerge. And while vaccines have ensured bouts of COVID-19 are less likely to be deadly than they were at the pandemic’s start, every infection makes you more \u003ca href=\"https://www.unmc.edu/healthsecurity/transmission/2023/12/27/every-covid-infection-increases-your-risk-of-long-covid-study-warns/\">susceptible \u003c/a>to contracting long COVID.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>Dr. Linda Geng, co-director of the Stanford Post-Acute COVID-19 Syndrome Clinic, said long COVID has become a “huge public health problem,” affecting millions of people in the United States long term.\u003c/p>\n\u003cp>Though physicians have an FDA-approved therapeutic toolkit for COVID-19, they currently have “minimal to no evidence-based strategies” to help those who have long COVID or who may develop it in the future, Geng said.\u003c/p>\n\u003cp>The Long COVID Research Moonshot Act would create a new research center within the National Institutes of Health to study the condition and other related illnesses, like ME/CFS and POTS. The center would house a new database tracking long COVID cases, an advisory board, and new grant processes to accelerate clinical trials, according to a report by \u003ca href=\"https://www.motherjones.com/politics/2024/09/ilhan-omar-bernie-long-covid-house-bill/\">\u003cem>Mother Jones\u003c/em>\u003c/a>.\u003c/p>\n\u003cp>The legislation would also fund public health education and clinics dedicated to long COVID care, especially in underserved communities — and would require any new treatments developed through the act to be reasonably priced and accessible to more patients.\u003c/p>\n\u003cp>The Bay Area’s Umoja Health, which serves the COVID-19 and health needs of people of color, was an early sponsor of the Sanders bill. Co-founder Kim Rhoads described how long COVID can transform patients’ lives and contribute to long-term disability.\u003c/p>\n\u003cp>“We’ve heard stories of folks who now have a hospital bed in their house where the family member who was affected by long COVID lives,” Rhoads said. “Folks who do not like to get out of bed, have burning feet and difficulty walking or have exertional malaise, which is basically a fatigue that can come over people after just doing simple things like cooking a meal.\u003c/p>\n\u003cp>Rhoads said the disease has largely been ignored or treated like a seasonal virus, such as the flu. “There are political reasons to deny that there are any long-term effects of COVID,” Rhoads said, “to allow for us to ‘get back to normal.’”\u003c/p>\n\u003cp>In her work, Rhoads has seen firsthand how communities of color and disabled people have been disproportionately harmed by long COVID. Historically marginalized groups are also on the frontlines of infections and suffer from the highest mortality rates.\u003c/p>\n\u003cp>Disabled people \u003ca href=\"https://www.cidrap.umn.edu/covid-19/long-covid-rate-among-disabled-people-double-able-bodied\">are twice as likely\u003c/a> to contract long COVID as nondisabled people, said Sabrina Epstein, a policy analyst with Disability Rights California.\u003c/p>\n\u003cp>“This is deeply an equity and justice issue,” said Epstein, whose disability makes her at risk for long COVID. “The research proposed by this bill has the potential to benefit folks in the disability and chronic illness community.”\u003c/p>\n\u003cp>\u003cem>KQED’s \u003ca href=\"https://www.kqed.org/author/carlysevern\">Carly Severn\u003c/a> contributed to this report. \u003c/em>\u003c/p>\n\u003cp>\u003c/p>\n\u003c/div>\u003c/p>",
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"title": "Bill Would Mandate Greater Transparency From Nonprofits Serving Californians With Developmental Disabilities",
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"content": "\u003cp>A bill before Gov. Gavin Newsom would force the group of regional nonprofits that serve Californians with developmental disabilities to comply with the same transparency laws as state agencies, allowing \u003ca href=\"https://docs.google.com/spreadsheets/d/16S5-6nFOe4xMZ8wN0cVXhdZjGoy2PyJD/edit?usp=drive_link&ouid=109411565409580749553&rtpof=true&sd=true\">nearly 450,000 people\u003c/a> with disabilities to access certain records and information related to their care for the first time.\u003c/p>\n\u003cp>The bill, AB 1147, \u003ca href=\"https://digitaldemocracy.calmatters.org/bills/ca_202320240ab1147\">passed the state Assembly and Senate \u003c/a>without opposition at the end of August, \u003ca href=\"https://digitaldemocracy.calmatters.org/bills/ca_202320240ab1147\">after a 19-month fight\u003c/a> in which many of its accountability measures were stripped out. The most impactful remaining provision would make the 21 nonprofit organizations throughout the state, called “regional centers,” subject to the \u003ca href=\"https://www.thefirstamendment.org/media/publicrecordsact.pdf\">California Public Records Act (PRA)\u003c/a>, a law that requires the public disclosure of government records when requested.\u003c/p>\n\u003cp>Proponents of the bill argue the regional centers perform a public function and are entirely funded by state dollars and should, therefore, be subject to the PRA. However, the centers that oppose the bill say that complying with it would strain an already cash-strapped system and could lead to accidental disclosures of personal information.\u003c/p>\n\u003cp>California’s developmental disability system operates with a budget of more than $15 billion, serving Californians with a range of conditions, including autism, cerebral palsy, intellectual disability and epilepsy. All funding and services flow through the regional centers, which connect people with disabilities to various service providers.\u003c/p>\n\u003cp>The governor is expected to sign or veto the bill by Sept. 26.\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>A quirk of California’s sweeping 1977 developmental disability law, known as the Lanterman Act, established the regional centers as private nonprofits rather than public agencies, keeping them exempt from the PRA. The intention was to create independent, board-operated organizations that could respond more nimbly than a single statewide agency to each community’s needs. However, critics say this design has led to a system with 21 different operational methods, and the policies of each center remain opaque.\u003c/p>\n\u003cp>“It just seems so wrong and so unfair that an entire sector of local entities could evade the Public Records Act through some wrinkle that they happened to have been established decades ago as nonprofits,” said Vivian Haun, a senior policy attorney at Disability Rights California, which has advocated for the bill.\u003c/p>\n\u003cp>Haun researched and wrote the original PRA policy proposal that ended up in AB 1147. She points to \u003ca href=\"https://www.cde.ca.gov/sp/ch/ec47604faq.asp#:~:text=All%20state%20and%20local%20agencies,are%20subject%20to%20the%20Public\">a law Newsom signed in 2019\u003c/a> making charter schools subject to the PRA and argues that should be the precedent for other nonprofits that serve a public function.\u003c/p>\n\u003cp>“They’re expected by the government to do all the same things that a traditional school district is supposed to do, which is to provide a public education to children using the same source of funds,” Haun said. “It just so happens that many of them are nonprofit in status.”\u003c/p>\n\u003cp>In a July 2023 \u003ca href=\"https://sjud.senate.ca.gov/sites/sjud.senate.ca.gov/files/ab_1147_sjud_analysis.pdf\">report\u003c/a>, the state Senate Judiciary Committee firmly underscored Haun’s argument, stating, “If anything, the regional centers land even more squarely in the public domain than charter schools: While charter schools are a quasi-private alternative to public schools, regional centers are the public option.”\u003c/p>\n\u003ch2>Calls for more transparency\u003c/h2>\n\u003cp>A slew of reports in recent years have called out California’s developmental disability system for a lack of transparency and accountability, among other issues. A 2022 \u003ca href=\"https://information.auditor.ca.gov/pdfs/reports/2021-107.pdf\">State Auditor’s Office report\u003c/a> found that \u003ca href=\"https://drive.google.com/file/d/1po5JtPCmC5pryZKHbylflJr4kNIxhTKn/view?usp=drive_link\">some regional centers \u003c/a>were not conducting regular quality assurance reviews of their vendors despite a 2016 report identifying the same issue.\u003c/p>\n\u003cp>Last year, \u003ca href=\"https://lhc.ca.gov/wp-content/uploads/Reports/273/Report273.pdf\">the Little Hoover Commission\u003c/a>, an independent state oversight agency, found that extreme racial disparities have persisted in the system for decades despite the state investing $66 million over recent years to address the issue. It also found that the quality of care disabled people and their families receive can differ wildly from one regional center to another.\u003c/p>\n\u003cp>[aside label=\"related coverage\" tag=\"disability-community\"]\u003c/p>\n\u003cp>Last year, \u003ca href=\"https://www.kqed.org/news/11969597/whistleblowers-call-out-california-group-home-for-abuse-against-disabled-residents\">KQED published an investigation \u003c/a>of abuse allegations at a disability group home in the Sacramento area that fell within the jurisdiction of Alta Regional Center. At the time, the information about the center’s investigations into the allegations were not publicly available.\u003c/p>\n\u003cp>The KQED analysis of data from the Department of Developmental Services (DDS) showed that reports of abuse in disability group homes are somewhat common. From 2012 to 2022, the agency recorded at least 1,900 incidents of suspected abuse and more than 500 incidents of suspected neglect.\u003c/p>\n\u003cp>Judy Mark, president of Disability Voices United, a sponsor of AB 1147, said the additional transparency the bill calls for would help watchdog groups investigate and understand why these cases keep happening. “If we had that information, we would be able to see, ‘Oh, there is a pattern of problems at this time at this agency.’ Or, ‘Everything looked fine; how did you not see that these abuses were happening or that things were dirty or that people were getting hurt?’” she said.\u003c/p>\n\u003cp>Besides cases of abuse, Mark said the opaqueness of regional centers makes it especially frustrating for disabled individuals when they attempt to understand why they were denied services.\u003c/p>\n\u003cp>“All we know as families is that if you are at one regional center, you can get a service, but if you’re at a different regional center, you don’t,” Mark said. “We would be asking, like, ‘What are the consistent policies that you are applying toward individuals so that we know why somebody got a yes and another person got a no?’”\u003c/p>\n\u003ch2>Centers push back\u003c/h2>\n\u003cp>Regional centers fervently oppose the PRA requirement in the bill, claiming that they don’t have the staffing or resources to comply with it — despite a recent \u003ca href=\"https://www.latimes.com/california/story/2024-08-20/unused-money-at-regional-centers#:~:text=Nearly%20%241%20billion%20allocated%20for,said%20they%20needed%20more%20help.\">Los Angeles Times report\u003c/a> that found regional centers left nearly $1 billion unspent in 2021–22. Doing so, the centers said, could also result in the release of private health information.\u003c/p>\n\u003cp>“Given the highly sensitive information maintained on each individual, and the potential for redaction errors, there is an inherent privacy risk every time a PRA is responded to,” said Amy Westling, executive director of the Association of Regional Center Agencies (ARCA), in an email. “This is particularly true when new staff without prior experience with the PRA would be responding to requests.”\u003c/p>\n\u003cp>Westling also pointed to the litany of disclosures that regional centers are already required to make publicly available online, including “information about policies, spending patterns, and boards of directors for each regional center.” Each regional center also transmits information daily to the DDS, which is subject to the PRA, she said.\u003c/p>\n\u003cp>But Haun, of Disability Rights California, said the bigger issue is that regional centers should be held to the same accountability standards as other publicly funded entities.\u003c/p>\n\u003cp>“Why should they be exempt from the same transparency requirements and expectations that all other entities are expected to comply with when they are using taxpayer dollars to carry out governmental functions?” she said.\u003c/p>\n\u003ch2>Upcoming reform efforts\u003c/h2>\n\u003cp>Advocates say the timing of the bill is crucial. Earlier this year, the California Health and Human Services Agency began working on the \u003ca href=\"https://www.chhs.ca.gov/home/master-plan-for-developmental-services/#\">Master Plan for Developmental Services\u003c/a>, an expansive effort to significantly transform how the state’s developmental disability system operates. The agency is convening stakeholders from across the system to develop a framework “for providing equitable, high quality, and person-centered services to all Californians with intellectual and developmental disabilities.” The plan is expected to be completed by March 2025.\u003c/p>\n\u003cp>The transparency that the bill’s PRA requirement would provide is critical to the master plan’s success, advocates argued.\u003c/p>\n\u003cp>“We can’t possibly do what we need to do to get that master plan done if we don’t have access to the information we need from the regional centers,” Mark said. “And that’s why we hope that Gov. Newsom will see this as just one step towards complete transparency and accountability over a system that spends over $15 billion a year.”\u003c/p>\n\u003cp>But Westling, of ARCA, said the goals of the master plan can be met without subjecting regional centers to the PRA. “If gaps in available data and information are identified through the master plan or other processes, we are happy to help identify potential solutions,” she said.\u003c/p>\n\u003cp>Haun added that increasing transparency for regional centers would also open the doors to independent studies, research, and policy analyses that could help dramatically improve the system. “There’s almost nothing like that now,” she said. “It’s critical to be able to improve the system and help the state know how to better invest the funds.”\u003c/p>\n\u003cp>She also believes that the bill goes beyond policy implications; a longer-term effect will be an increased sense of empowerment for people with developmental disabilities.\u003c/p>\n\u003cp>“When policies, rules, and information about how decisions are made that affect your everyday life are held from you, it is so disempowering,” Haun said. “Even if you wanted to engage or try to speak up or change things for the better, you don’t know how, and you can’t even begin to identify where or what’s even happening to you.”\u003c/p>\n\u003cp>[ad floatright]\u003c/p>\n\u003cp>\u003ci>This story was made possible in part with funding and support from the USC Center for Health Journalism’s Data Fellowship.\u003c/i>\u003c/p>\n\n",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003cp>A bill before Gov. Gavin Newsom would force the group of regional nonprofits that serve Californians with developmental disabilities to comply with the same transparency laws as state agencies, allowing \u003ca href=\"https://docs.google.com/spreadsheets/d/16S5-6nFOe4xMZ8wN0cVXhdZjGoy2PyJD/edit?usp=drive_link&ouid=109411565409580749553&rtpof=true&sd=true\">nearly 450,000 people\u003c/a> with disabilities to access certain records and information related to their care for the first time.\u003c/p>\n\u003cp>The bill, AB 1147, \u003ca href=\"https://digitaldemocracy.calmatters.org/bills/ca_202320240ab1147\">passed the state Assembly and Senate \u003c/a>without opposition at the end of August, \u003ca href=\"https://digitaldemocracy.calmatters.org/bills/ca_202320240ab1147\">after a 19-month fight\u003c/a> in which many of its accountability measures were stripped out. The most impactful remaining provision would make the 21 nonprofit organizations throughout the state, called “regional centers,” subject to the \u003ca href=\"https://www.thefirstamendment.org/media/publicrecordsact.pdf\">California Public Records Act (PRA)\u003c/a>, a law that requires the public disclosure of government records when requested.\u003c/p>\n\u003cp>Proponents of the bill argue the regional centers perform a public function and are entirely funded by state dollars and should, therefore, be subject to the PRA. However, the centers that oppose the bill say that complying with it would strain an already cash-strapped system and could lead to accidental disclosures of personal information.\u003c/p>\n\u003cp>California’s developmental disability system operates with a budget of more than $15 billion, serving Californians with a range of conditions, including autism, cerebral palsy, intellectual disability and epilepsy. All funding and services flow through the regional centers, which connect people with disabilities to various service providers.\u003c/p>\n\u003cp>The governor is expected to sign or veto the bill by Sept. 26.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>A quirk of California’s sweeping 1977 developmental disability law, known as the Lanterman Act, established the regional centers as private nonprofits rather than public agencies, keeping them exempt from the PRA. The intention was to create independent, board-operated organizations that could respond more nimbly than a single statewide agency to each community’s needs. However, critics say this design has led to a system with 21 different operational methods, and the policies of each center remain opaque.\u003c/p>\n\u003cp>“It just seems so wrong and so unfair that an entire sector of local entities could evade the Public Records Act through some wrinkle that they happened to have been established decades ago as nonprofits,” said Vivian Haun, a senior policy attorney at Disability Rights California, which has advocated for the bill.\u003c/p>\n\u003cp>Haun researched and wrote the original PRA policy proposal that ended up in AB 1147. She points to \u003ca href=\"https://www.cde.ca.gov/sp/ch/ec47604faq.asp#:~:text=All%20state%20and%20local%20agencies,are%20subject%20to%20the%20Public\">a law Newsom signed in 2019\u003c/a> making charter schools subject to the PRA and argues that should be the precedent for other nonprofits that serve a public function.\u003c/p>\n\u003cp>“They’re expected by the government to do all the same things that a traditional school district is supposed to do, which is to provide a public education to children using the same source of funds,” Haun said. “It just so happens that many of them are nonprofit in status.”\u003c/p>\n\u003cp>In a July 2023 \u003ca href=\"https://sjud.senate.ca.gov/sites/sjud.senate.ca.gov/files/ab_1147_sjud_analysis.pdf\">report\u003c/a>, the state Senate Judiciary Committee firmly underscored Haun’s argument, stating, “If anything, the regional centers land even more squarely in the public domain than charter schools: While charter schools are a quasi-private alternative to public schools, regional centers are the public option.”\u003c/p>\n\u003ch2>Calls for more transparency\u003c/h2>\n\u003cp>A slew of reports in recent years have called out California’s developmental disability system for a lack of transparency and accountability, among other issues. A 2022 \u003ca href=\"https://information.auditor.ca.gov/pdfs/reports/2021-107.pdf\">State Auditor’s Office report\u003c/a> found that \u003ca href=\"https://drive.google.com/file/d/1po5JtPCmC5pryZKHbylflJr4kNIxhTKn/view?usp=drive_link\">some regional centers \u003c/a>were not conducting regular quality assurance reviews of their vendors despite a 2016 report identifying the same issue.\u003c/p>\n\u003cp>Last year, \u003ca href=\"https://lhc.ca.gov/wp-content/uploads/Reports/273/Report273.pdf\">the Little Hoover Commission\u003c/a>, an independent state oversight agency, found that extreme racial disparities have persisted in the system for decades despite the state investing $66 million over recent years to address the issue. It also found that the quality of care disabled people and their families receive can differ wildly from one regional center to another.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>Last year, \u003ca href=\"https://www.kqed.org/news/11969597/whistleblowers-call-out-california-group-home-for-abuse-against-disabled-residents\">KQED published an investigation \u003c/a>of abuse allegations at a disability group home in the Sacramento area that fell within the jurisdiction of Alta Regional Center. At the time, the information about the center’s investigations into the allegations were not publicly available.\u003c/p>\n\u003cp>The KQED analysis of data from the Department of Developmental Services (DDS) showed that reports of abuse in disability group homes are somewhat common. From 2012 to 2022, the agency recorded at least 1,900 incidents of suspected abuse and more than 500 incidents of suspected neglect.\u003c/p>\n\u003cp>Judy Mark, president of Disability Voices United, a sponsor of AB 1147, said the additional transparency the bill calls for would help watchdog groups investigate and understand why these cases keep happening. “If we had that information, we would be able to see, ‘Oh, there is a pattern of problems at this time at this agency.’ Or, ‘Everything looked fine; how did you not see that these abuses were happening or that things were dirty or that people were getting hurt?’” she said.\u003c/p>\n\u003cp>Besides cases of abuse, Mark said the opaqueness of regional centers makes it especially frustrating for disabled individuals when they attempt to understand why they were denied services.\u003c/p>\n\u003cp>“All we know as families is that if you are at one regional center, you can get a service, but if you’re at a different regional center, you don’t,” Mark said. “We would be asking, like, ‘What are the consistent policies that you are applying toward individuals so that we know why somebody got a yes and another person got a no?’”\u003c/p>\n\u003ch2>Centers push back\u003c/h2>\n\u003cp>Regional centers fervently oppose the PRA requirement in the bill, claiming that they don’t have the staffing or resources to comply with it — despite a recent \u003ca href=\"https://www.latimes.com/california/story/2024-08-20/unused-money-at-regional-centers#:~:text=Nearly%20%241%20billion%20allocated%20for,said%20they%20needed%20more%20help.\">Los Angeles Times report\u003c/a> that found regional centers left nearly $1 billion unspent in 2021–22. Doing so, the centers said, could also result in the release of private health information.\u003c/p>\n\u003cp>“Given the highly sensitive information maintained on each individual, and the potential for redaction errors, there is an inherent privacy risk every time a PRA is responded to,” said Amy Westling, executive director of the Association of Regional Center Agencies (ARCA), in an email. “This is particularly true when new staff without prior experience with the PRA would be responding to requests.”\u003c/p>\n\u003cp>Westling also pointed to the litany of disclosures that regional centers are already required to make publicly available online, including “information about policies, spending patterns, and boards of directors for each regional center.” Each regional center also transmits information daily to the DDS, which is subject to the PRA, she said.\u003c/p>\n\u003cp>But Haun, of Disability Rights California, said the bigger issue is that regional centers should be held to the same accountability standards as other publicly funded entities.\u003c/p>\n\u003cp>“Why should they be exempt from the same transparency requirements and expectations that all other entities are expected to comply with when they are using taxpayer dollars to carry out governmental functions?” she said.\u003c/p>\n\u003ch2>Upcoming reform efforts\u003c/h2>\n\u003cp>Advocates say the timing of the bill is crucial. Earlier this year, the California Health and Human Services Agency began working on the \u003ca href=\"https://www.chhs.ca.gov/home/master-plan-for-developmental-services/#\">Master Plan for Developmental Services\u003c/a>, an expansive effort to significantly transform how the state’s developmental disability system operates. The agency is convening stakeholders from across the system to develop a framework “for providing equitable, high quality, and person-centered services to all Californians with intellectual and developmental disabilities.” The plan is expected to be completed by March 2025.\u003c/p>\n\u003cp>The transparency that the bill’s PRA requirement would provide is critical to the master plan’s success, advocates argued.\u003c/p>\n\u003cp>“We can’t possibly do what we need to do to get that master plan done if we don’t have access to the information we need from the regional centers,” Mark said. “And that’s why we hope that Gov. Newsom will see this as just one step towards complete transparency and accountability over a system that spends over $15 billion a year.”\u003c/p>\n\u003cp>But Westling, of ARCA, said the goals of the master plan can be met without subjecting regional centers to the PRA. “If gaps in available data and information are identified through the master plan or other processes, we are happy to help identify potential solutions,” she said.\u003c/p>\n\u003cp>Haun added that increasing transparency for regional centers would also open the doors to independent studies, research, and policy analyses that could help dramatically improve the system. “There’s almost nothing like that now,” she said. “It’s critical to be able to improve the system and help the state know how to better invest the funds.”\u003c/p>\n\u003cp>She also believes that the bill goes beyond policy implications; a longer-term effect will be an increased sense of empowerment for people with developmental disabilities.\u003c/p>\n\u003cp>“When policies, rules, and information about how decisions are made that affect your everyday life are held from you, it is so disempowering,” Haun said. “Even if you wanted to engage or try to speak up or change things for the better, you don’t know how, and you can’t even begin to identify where or what’s even happening to you.”\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>\u003ci>This story was made possible in part with funding and support from the USC Center for Health Journalism’s Data Fellowship.\u003c/i>\u003c/p>\n\n\u003c/div>\u003c/p>",
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"content": "\u003cp>California’s surgeon general, Dr. Diana Ramos, introduced a new initiative on Tuesday that promises to cut the state’s maternal mortality rate by 50% by December 2026.\u003c/p>\n\u003cp>Currently, a mother in California loses her life to \u003ca href=\"https://www.kqed.org/news/tag/pregnancy\">pregnancy\u003c/a>-related complications every five days.\u003c/p>\n\u003cp>“Pregnancy is more than just a pivotal moment in a woman’s life; it is also a crucial indicator of future health. Complications like diabetes, hypertension, and depression can reappear later in life, often triggered by the conditions surrounding childbirth,” Ramos said. “We cannot stand idly by as preventable deaths continue to occur.”\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>Research from the Centers for Disease Control and Prevention shows that \u003ca href=\"https://www.cdc.gov/media/releases/2022/p0919-pregnancy-related-deaths.html#:~:text=More%20than%2080%25%20of%20pregnancy,to%201%20year%20after%20pregnancy.\">80%\u003c/a> of maternal deaths are preventable.\u003c/p>\n\u003cp>Maternal health mortality disproportionately affects Black, Indigenous and other women of color. Black mothers are \u003ca href=\"https://www.prb.org/resources/black-women-over-three-times-more-likely-to-die-in-pregnancy-postpartum-than-white-women-new-research-finds/\">three times\u003c/a> more likely to die compared to white women. In California, maternal mortality rates have worsened over the years despite advancements in healthcare technology.\u003c/p>\n\u003cp>[aside postID=news_12004431 hero='https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/240910-CHILDCARE-REAX-MD-04-KQED-1020x680.jpg']\u003c/p>\n\u003cp>Partnerships are a key anchor of the initiative, which the state has dubbed “Strong Start & Beyond.” Educational campaigns will help build awareness of resources available through advocacy organizations and churches. Other primary tenants include integrating mental health services, improving access to prenatal care, and increasing patient engagement in their health care decisions. Finally, the initiative aims to address the \u003ca href=\"https://oag.ca.gov/system/files/attachments/press-docs/Report%20on%20Healthcare%20Facilities%20and%20the%20California%20Dignity%20in%20Pregnancy%20and%20Childbirth%20Act%20(2).pdf\">distrust\u003c/a> that many marginalized communities have for the healthcare system.\u003c/p>\n\u003cp>“We know that systemic biases in healthcare have contributed to this distrust. That must change,” first partner Jennifer Siebel Newsom said. “Women deserve the right to be heard and seen during their pregnancies, and their lives depend on it.”\u003c/p>\n\u003cp>While the blueprint outlines a series of lofty goals, it’s light on details of how the state will accomplish them beyond promises of “collaboration.”\u003c/p>\n\u003cp>Eyes will be on whether California can achieve what is increasingly seen as a public health imperative — saving the lives of mothers across all communities.\u003c/p>\n\u003cp>\u003c/p>\n",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003cp>California’s surgeon general, Dr. Diana Ramos, introduced a new initiative on Tuesday that promises to cut the state’s maternal mortality rate by 50% by December 2026.\u003c/p>\n\u003cp>Currently, a mother in California loses her life to \u003ca href=\"https://www.kqed.org/news/tag/pregnancy\">pregnancy\u003c/a>-related complications every five days.\u003c/p>\n\u003cp>“Pregnancy is more than just a pivotal moment in a woman’s life; it is also a crucial indicator of future health. Complications like diabetes, hypertension, and depression can reappear later in life, often triggered by the conditions surrounding childbirth,” Ramos said. “We cannot stand idly by as preventable deaths continue to occur.”\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>Research from the Centers for Disease Control and Prevention shows that \u003ca href=\"https://www.cdc.gov/media/releases/2022/p0919-pregnancy-related-deaths.html#:~:text=More%20than%2080%25%20of%20pregnancy,to%201%20year%20after%20pregnancy.\">80%\u003c/a> of maternal deaths are preventable.\u003c/p>\n\u003cp>Maternal health mortality disproportionately affects Black, Indigenous and other women of color. Black mothers are \u003ca href=\"https://www.prb.org/resources/black-women-over-three-times-more-likely-to-die-in-pregnancy-postpartum-than-white-women-new-research-finds/\">three times\u003c/a> more likely to die compared to white women. In California, maternal mortality rates have worsened over the years despite advancements in healthcare technology.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>Partnerships are a key anchor of the initiative, which the state has dubbed “Strong Start & Beyond.” Educational campaigns will help build awareness of resources available through advocacy organizations and churches. Other primary tenants include integrating mental health services, improving access to prenatal care, and increasing patient engagement in their health care decisions. Finally, the initiative aims to address the \u003ca href=\"https://oag.ca.gov/system/files/attachments/press-docs/Report%20on%20Healthcare%20Facilities%20and%20the%20California%20Dignity%20in%20Pregnancy%20and%20Childbirth%20Act%20(2).pdf\">distrust\u003c/a> that many marginalized communities have for the healthcare system.\u003c/p>\n\u003cp>“We know that systemic biases in healthcare have contributed to this distrust. That must change,” first partner Jennifer Siebel Newsom said. “Women deserve the right to be heard and seen during their pregnancies, and their lives depend on it.”\u003c/p>\n\u003cp>While the blueprint outlines a series of lofty goals, it’s light on details of how the state will accomplish them beyond promises of “collaboration.”\u003c/p>\n\u003cp>Eyes will be on whether California can achieve what is increasingly seen as a public health imperative — saving the lives of mothers across all communities.\u003c/p>\n\u003cp>\u003c/p>\n\u003c/div>\u003c/p>",
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"slug": "the-sf-to-la-aids-lifecycle-ride-is-ending-but-the-love-bubble-community-lives-on",
"title": "The SF-to-LA AIDS/LifeCycle Ride Is Ending, But the ‘Love Bubble’ Community Lives on",
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"content": "\u003cp>After three decades of promoting AIDS awareness and raising money for advocacy efforts throughout \u003ca href=\"https://www.kqed.org/news/tag/california\">California\u003c/a>, AIDS/LifeCycle has announced that next year’s annual bike ride from San Francisco to Los Angeles will be the last.\u003c/p>\n\u003cp>It marks the end of an era for what was an iconic event for a generation of Bay Area residents, stirring mixed emotions among its longtime participants. Organizers cited rising operational costs and declining participation since the COVID-19 pandemic in the indefinite cancellation.\u003c/p>\n\u003cp>More than 1,000 riders gather each year at the Cow Palace in Daly City for the strictly noncompetitive 545-mile bike ride lasting seven days. The “Love Bubble,” as the event is known to its avid participants, is an important source of community for many who have joined the cycling odyssey.\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>“It has touched and changed the lives of hundreds of thousands of riders and our volunteer roadies,” said Tyler TerMeer, CEO of the San Francisco AIDS Foundation. “I’m a person who’s been living with HIV for the last 20 years of my life, long before I was the CEO of San Francisco AIDS Foundation. I found AIDS/LifeCycle, and I became a participant as a rider 16 years ago, and it has been an incredibly important part of my own life.”\u003c/p>\n\u003cp>According to TerMeer, the decision to end AIDS/LifeCycle was extremely difficult because of what the experience means to so many of its participants. He noted that being part of the ride allowed him to build a support network of “belonging, pride, acceptance and love.”\u003c/p>\n\u003cfigure id=\"attachment_12004555\" class=\"wp-caption aligncenter\" style=\"max-width: 2000px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-12004555\" src=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/AIDSLifecycle4.jpg\" alt=\"\" width=\"2000\" height=\"1333\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/AIDSLifecycle4.jpg 2000w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/AIDSLifecycle4-800x533.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/AIDSLifecycle4-1020x680.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/AIDSLifecycle4-160x107.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/AIDSLifecycle4-1536x1024.jpg 1536w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/AIDSLifecycle4-1920x1280.jpg 1920w\" sizes=\"(max-width: 2000px) 100vw, 2000px\">\u003cfigcaption class=\"wp-caption-text\">The AIDS/LifeCycle, launched in 1994 as the California AIDS Ride, has raised over $300 million for the San Francisco AIDS Foundation and the Los Angeles LGBT Center, supporting essential HIV and AIDS services. \u003ccite>(Courtesy SF AIDS Foundation)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>The event first began as the California AIDS Ride in 1994, during the height of the HIV/AIDS epidemic in the state. In 2002, it was rebranded as the AIDS/LifeCycle, with the San Francisco AIDS Foundation and the Los Angeles LGBT Center as its primary benefactors.\u003c/p>\n\u003cp>In the last 30 years, the ride has raised over $300 million for these two organizations, money that has been used to provide medical and social services to those affected with HIV and AIDS.\u003c/p>\n\u003cp>For San Francisco resident and longtime AIDS/LifeCycle rider Jim Winslow, the annual event has allowed him to foster relationships both new and old.\u003c/p>\n\u003cfigure id=\"attachment_12004554\" class=\"wp-caption aligncenter\" style=\"max-width: 2000px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-12004554\" src=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/AIDSLifecycle3.jpg\" alt=\"\" width=\"2000\" height=\"1333\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/AIDSLifecycle3.jpg 2000w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/AIDSLifecycle3-800x533.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/AIDSLifecycle3-1020x680.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/AIDSLifecycle3-160x107.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/AIDSLifecycle3-1536x1024.jpg 1536w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/AIDSLifecycle3-1920x1280.jpg 1920w\" sizes=\"(max-width: 2000px) 100vw, 2000px\">\u003cfigcaption class=\"wp-caption-text\">The final AIDS/LifeCycle ride is set for June 2025. \u003ccite>(Courtesy SF AIDS Foundation)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>Winslow participated in the AIDS/LifeCycle ride 17 times alongside his husband, who died last year. During one of those rides, they met a lesbian couple whom they’d go on to befriend. Winslow’s husband eventually became the couple’s sperm donor, resulting in a baby girl.\u003c/p>\n\u003cp>“It’s something that’s created a community to help those of us affected by the AIDS epidemic — who’ve lost so many people — find a way to fight back, a way to create visibility in the state of California for people with HIV,” Winslow said.\u003c/p>\n\u003cp>But Winslow said he understands why the decision to end the rides was made.\u003c/p>\n\u003cfigure id=\"attachment_12004553\" class=\"wp-caption alignleft\" style=\"max-width: 800px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-12004553\" src=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/AIDSLifecycle2-800x1200.jpg\" alt=\"\" width=\"800\" height=\"1200\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/AIDSLifecycle2-800x1200.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/AIDSLifecycle2-1020x1530.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/AIDSLifecycle2-160x240.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/AIDSLifecycle2-1024x1536.jpg 1024w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/AIDSLifecycle2-1365x2048.jpg 1365w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/AIDSLifecycle2-1920x2880.jpg 1920w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/AIDSLifecycle2-scaled.jpg 1707w\" sizes=\"(max-width: 800px) 100vw, 800px\">\u003cfigcaption class=\"wp-caption-text\">Each year, over 1,000 riders gather at the Cow Palace in Daly City for the noncompetitive, seven-day, 545-mile AIDS/LifeCycle ride. \u003ccite>(Courtesy SF AIDS Foundation)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>Each year, cyclists who wish to participate in the AIDS/LifeCycle ride must fundraise a minimum of $3,500 per person. In 2022, the ride attracted over 2,000 cyclists and raised more than $17 million. But those numbers have rapidly declined as the costs of hosting the rides increased dramatically.\u003c/p>\n\u003cp>According to Winslow, it’s not too much of a surprise. In recent years, increased HIV/AIDS awareness and medical advancements, including the preventive drug PrEP, have resulted in lower infection rates.\u003c/p>\n\u003cp>“The cause has changed so much over the years,” Winslow said. “It went from something that was so core to all of us in the community to support to what is now a more manageable disease.”\u003c/p>\n\u003cp>He said it’s an opportunity for AIDS/LifeCycle riders to shift their attention to the other issues facing the LGBTQ community instead of focusing on the actual event itself.\u003c/p>\n\u003cp>TerMeer agreed with the sentiment. He also added that despite the reduced numbers, he still wants the community to work together to uplift the people who suffer from HIV or AIDS or who may be at higher risk of contracting the disease. According to TerMeer, the ride’s legacy of support will continue.\u003c/p>\n\u003cp>The final AIDS/LifeCycle ride will take place in June 2025. As of now, there are no plans for a new cycling event, but community discussions are underway.\u003c/p>\n\u003cp>“Some of my closest friends and chosen family are people that I have met on this ride over the last 16 years, and I don’t take it lightly when I say that this event is life-changing,” TerMeer said. “So many people have met the love of their life, their best friends, the people that they call in the happiest and the hardest of times, and that is true for me as well.”\u003c/p>\n\u003cp>\u003c/p>\n",
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"title": "The SF-to-LA AIDS/LifeCycle Ride Is Ending, But the ‘Love Bubble’ Community Lives on | KQED",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003cp>After three decades of promoting AIDS awareness and raising money for advocacy efforts throughout \u003ca href=\"https://www.kqed.org/news/tag/california\">California\u003c/a>, AIDS/LifeCycle has announced that next year’s annual bike ride from San Francisco to Los Angeles will be the last.\u003c/p>\n\u003cp>It marks the end of an era for what was an iconic event for a generation of Bay Area residents, stirring mixed emotions among its longtime participants. Organizers cited rising operational costs and declining participation since the COVID-19 pandemic in the indefinite cancellation.\u003c/p>\n\u003cp>More than 1,000 riders gather each year at the Cow Palace in Daly City for the strictly noncompetitive 545-mile bike ride lasting seven days. The “Love Bubble,” as the event is known to its avid participants, is an important source of community for many who have joined the cycling odyssey.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>“It has touched and changed the lives of hundreds of thousands of riders and our volunteer roadies,” said Tyler TerMeer, CEO of the San Francisco AIDS Foundation. “I’m a person who’s been living with HIV for the last 20 years of my life, long before I was the CEO of San Francisco AIDS Foundation. I found AIDS/LifeCycle, and I became a participant as a rider 16 years ago, and it has been an incredibly important part of my own life.”\u003c/p>\n\u003cp>According to TerMeer, the decision to end AIDS/LifeCycle was extremely difficult because of what the experience means to so many of its participants. He noted that being part of the ride allowed him to build a support network of “belonging, pride, acceptance and love.”\u003c/p>\n\u003cfigure id=\"attachment_12004555\" class=\"wp-caption aligncenter\" style=\"max-width: 2000px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-12004555\" src=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/AIDSLifecycle4.jpg\" alt=\"\" width=\"2000\" height=\"1333\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/AIDSLifecycle4.jpg 2000w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/AIDSLifecycle4-800x533.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/AIDSLifecycle4-1020x680.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/AIDSLifecycle4-160x107.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/AIDSLifecycle4-1536x1024.jpg 1536w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/AIDSLifecycle4-1920x1280.jpg 1920w\" sizes=\"(max-width: 2000px) 100vw, 2000px\">\u003cfigcaption class=\"wp-caption-text\">The AIDS/LifeCycle, launched in 1994 as the California AIDS Ride, has raised over $300 million for the San Francisco AIDS Foundation and the Los Angeles LGBT Center, supporting essential HIV and AIDS services. \u003ccite>(Courtesy SF AIDS Foundation)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>The event first began as the California AIDS Ride in 1994, during the height of the HIV/AIDS epidemic in the state. In 2002, it was rebranded as the AIDS/LifeCycle, with the San Francisco AIDS Foundation and the Los Angeles LGBT Center as its primary benefactors.\u003c/p>\n\u003cp>In the last 30 years, the ride has raised over $300 million for these two organizations, money that has been used to provide medical and social services to those affected with HIV and AIDS.\u003c/p>\n\u003cp>For San Francisco resident and longtime AIDS/LifeCycle rider Jim Winslow, the annual event has allowed him to foster relationships both new and old.\u003c/p>\n\u003cfigure id=\"attachment_12004554\" class=\"wp-caption aligncenter\" style=\"max-width: 2000px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-12004554\" src=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/AIDSLifecycle3.jpg\" alt=\"\" width=\"2000\" height=\"1333\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/AIDSLifecycle3.jpg 2000w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/AIDSLifecycle3-800x533.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/AIDSLifecycle3-1020x680.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/AIDSLifecycle3-160x107.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/AIDSLifecycle3-1536x1024.jpg 1536w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/AIDSLifecycle3-1920x1280.jpg 1920w\" sizes=\"(max-width: 2000px) 100vw, 2000px\">\u003cfigcaption class=\"wp-caption-text\">The final AIDS/LifeCycle ride is set for June 2025. \u003ccite>(Courtesy SF AIDS Foundation)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>Winslow participated in the AIDS/LifeCycle ride 17 times alongside his husband, who died last year. During one of those rides, they met a lesbian couple whom they’d go on to befriend. Winslow’s husband eventually became the couple’s sperm donor, resulting in a baby girl.\u003c/p>\n\u003cp>“It’s something that’s created a community to help those of us affected by the AIDS epidemic — who’ve lost so many people — find a way to fight back, a way to create visibility in the state of California for people with HIV,” Winslow said.\u003c/p>\n\u003cp>But Winslow said he understands why the decision to end the rides was made.\u003c/p>\n\u003cfigure id=\"attachment_12004553\" class=\"wp-caption alignleft\" style=\"max-width: 800px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-12004553\" src=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/AIDSLifecycle2-800x1200.jpg\" alt=\"\" width=\"800\" height=\"1200\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/AIDSLifecycle2-800x1200.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/AIDSLifecycle2-1020x1530.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/AIDSLifecycle2-160x240.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/AIDSLifecycle2-1024x1536.jpg 1024w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/AIDSLifecycle2-1365x2048.jpg 1365w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/AIDSLifecycle2-1920x2880.jpg 1920w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/AIDSLifecycle2-scaled.jpg 1707w\" sizes=\"(max-width: 800px) 100vw, 800px\">\u003cfigcaption class=\"wp-caption-text\">Each year, over 1,000 riders gather at the Cow Palace in Daly City for the noncompetitive, seven-day, 545-mile AIDS/LifeCycle ride. \u003ccite>(Courtesy SF AIDS Foundation)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>Each year, cyclists who wish to participate in the AIDS/LifeCycle ride must fundraise a minimum of $3,500 per person. In 2022, the ride attracted over 2,000 cyclists and raised more than $17 million. But those numbers have rapidly declined as the costs of hosting the rides increased dramatically.\u003c/p>\n\u003cp>According to Winslow, it’s not too much of a surprise. In recent years, increased HIV/AIDS awareness and medical advancements, including the preventive drug PrEP, have resulted in lower infection rates.\u003c/p>\n\u003cp>“The cause has changed so much over the years,” Winslow said. “It went from something that was so core to all of us in the community to support to what is now a more manageable disease.”\u003c/p>\n\u003cp>He said it’s an opportunity for AIDS/LifeCycle riders to shift their attention to the other issues facing the LGBTQ community instead of focusing on the actual event itself.\u003c/p>\n\u003cp>TerMeer agreed with the sentiment. He also added that despite the reduced numbers, he still wants the community to work together to uplift the people who suffer from HIV or AIDS or who may be at higher risk of contracting the disease. According to TerMeer, the ride’s legacy of support will continue.\u003c/p>\n\u003cp>The final AIDS/LifeCycle ride will take place in June 2025. As of now, there are no plans for a new cycling event, but community discussions are underway.\u003c/p>\n\u003cp>“Some of my closest friends and chosen family are people that I have met on this ride over the last 16 years, and I don’t take it lightly when I say that this event is life-changing,” TerMeer said. “So many people have met the love of their life, their best friends, the people that they call in the happiest and the hardest of times, and that is true for me as well.”\u003c/p>\n\u003cp>\u003c/p>\n\u003c/div>\u003c/p>",
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"content": "\u003cp>The rising cost of having babies and caring for them has become a central issue in the \u003ca href=\"https://www.kqed.org/news/tag/presidential-election\">presidential election\u003c/a>, and it’s hitting home with California parents as they contemplate their vote in November.\u003c/p>\n\u003cp>According to a new report from First 5 California, 48% of parents in the state find it difficult or very difficult to find \u003ca href=\"https://www.kqed.org/news/tag/child-care\">child care\u003c/a> they can afford.\u003c/p>\n\u003cp>Half of the respondents also said child care issues have a negative impact on their job or career, according to the survey of more than a thousand parents and business owners. About 70% said they pieced together childcare by altering their work hours or relying on family, friends or neighbors, leaving them feeling stressed or guilty.\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>“When you have that stress and that guilt, how productive are you when you do show up [to work]?” said Jackie Thu-Huong Wong, executive director of the child advocacy organization, which is launching \u003ca href=\"https://www.raisecastrong.com/\">a campaign to raise awareness about the child care crisis\u003c/a> and its impact on the state’s economy.\u003c/p>\n\u003cp>Vice President Kamala Harris and former President Donald Trump offer starkly different ideas on lowering the financial burden of caring for young children.\u003c/p>\n\u003cfigure id=\"attachment_12004353\" class=\"wp-caption aligncenter\" style=\"max-width: 2000px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-12004353\" src=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/240911-CHILDCARE-REAX-MD-02-KQED.jpg\" alt=\"\" width=\"2000\" height=\"1333\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/240911-CHILDCARE-REAX-MD-02-KQED.jpg 2000w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/240911-CHILDCARE-REAX-MD-02-KQED-800x533.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/240911-CHILDCARE-REAX-MD-02-KQED-1020x680.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/240911-CHILDCARE-REAX-MD-02-KQED-160x107.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/240911-CHILDCARE-REAX-MD-02-KQED-1536x1024.jpg 1536w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/240911-CHILDCARE-REAX-MD-02-KQED-1920x1280.jpg 1920w\" sizes=\"(max-width: 2000px) 100vw, 2000px\">\u003cfigcaption class=\"wp-caption-text\">People walk around Lake Merritt in Oakland on Sept. 11, 2024. \u003ccite>(Martin do Nascimento/KQED)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>During Tuesday’s \u003ca href=\"https://abcnews.go.com/Politics/harris-trump-presidential-debate-transcript/story?id=113560542\">presidential debate\u003c/a>, Harris highlighted her proposal to give families with newborns a $6,000 child tax credit and gave a shout-out to “working women who can barely afford child care.”\u003c/p>\n\u003cp>She said the money would help families afford a crib, car seat, clothes and other essential items “to help you in that most critical stage of your child’s development.”\u003c/p>\n\u003cp>That kind of money could go a long way for Oakland resident Carolina Munoz, who became a first-time mom eight months ago. She said she’s putting off going back to work as a hairstylist because “it’s cheaper” for her to stay at home than to pay someone else to watch her daughter, Soleil.\u003c/p>\n\u003cp>“Things add up, right? Daycare or even having somebody watch her a couple days a week that is extremely expensive,” Munoz said Wednesday.\u003c/p>\n\u003cp>[aside postID=news_11992142 hero='https://cdn.kqed.org/wp-content/uploads/sites/10/2024/06/image-1020x684.png']\u003c/p>\n\u003cp>The $6,000 tax credit would help offset the cost of diapers, food and age-appropriate toys and activities that support her child’s development, she said.\u003c/p>\n\u003cp>Munoz said Harris’ proposals to lower the cost of living and healthcare for families resonate with her as she grapples with the cost of raising a child.\u003c/p>\n\u003cp>“I think Kamala really cares about what we all go through as a community, as a society, which is a safe environment for our children,” including the ability for parents to provide for their children so they have a secure future, she said.\u003c/p>\n\u003cp>When asked last week how he would bring down the high cost of child care, Trump gave a rambling answer that \u003ca href=\"https://apnews.com/article/trump-economy-harris-corporate-taxes-15ba5ecfdf5e907bd9b2c349b07222b8\">suggested that increasing tariffs on foreign imports\u003c/a> could raise enough money to help fix the problem.\u003c/p>\n\u003cp>\u003cspan style=\"margin: 0px;padding: 0px\">His running mate, JD Vance, has mentioned \u003ca href=\"https://www.cbsnews.com/news/transcript-jd-vance-on-face-the-nation-aug-11-2024/\" target=\"_blank\" rel=\"noopener\">raising the child tax credit and giving grandparents or stay-at-home parents\u003c/a> a “credit” or a “check” for taking care of kids so that families have more options for childcare arrangements that work for them.\u003c/span>\u003c/p>\n\u003cp>“If you open up kinship and other options for families, you will relieve some pressure on the daycare system in this country,” \u003ca href=\"https://x.com/JDVance/status/1831701121758589425\">he wrote on social media site X l\u003c/a>ast week. He also criticized “a totally broken” educational pathway that’s keeping people from getting jobs in child care.\u003c/p>\n\u003cp>\u003c/p>\n",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>“When you have that stress and that guilt, how productive are you when you do show up [to work]?” said Jackie Thu-Huong Wong, executive director of the child advocacy organization, which is launching \u003ca href=\"https://www.raisecastrong.com/\">a campaign to raise awareness about the child care crisis\u003c/a> and its impact on the state’s economy.\u003c/p>\n\u003cp>Vice President Kamala Harris and former President Donald Trump offer starkly different ideas on lowering the financial burden of caring for young children.\u003c/p>\n\u003cfigure id=\"attachment_12004353\" class=\"wp-caption aligncenter\" style=\"max-width: 2000px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-12004353\" src=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/240911-CHILDCARE-REAX-MD-02-KQED.jpg\" alt=\"\" width=\"2000\" height=\"1333\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/240911-CHILDCARE-REAX-MD-02-KQED.jpg 2000w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/240911-CHILDCARE-REAX-MD-02-KQED-800x533.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/240911-CHILDCARE-REAX-MD-02-KQED-1020x680.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/240911-CHILDCARE-REAX-MD-02-KQED-160x107.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/240911-CHILDCARE-REAX-MD-02-KQED-1536x1024.jpg 1536w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/240911-CHILDCARE-REAX-MD-02-KQED-1920x1280.jpg 1920w\" sizes=\"(max-width: 2000px) 100vw, 2000px\">\u003cfigcaption class=\"wp-caption-text\">People walk around Lake Merritt in Oakland on Sept. 11, 2024. \u003ccite>(Martin do Nascimento/KQED)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>During Tuesday’s \u003ca href=\"https://abcnews.go.com/Politics/harris-trump-presidential-debate-transcript/story?id=113560542\">presidential debate\u003c/a>, Harris highlighted her proposal to give families with newborns a $6,000 child tax credit and gave a shout-out to “working women who can barely afford child care.”\u003c/p>\n\u003cp>She said the money would help families afford a crib, car seat, clothes and other essential items “to help you in that most critical stage of your child’s development.”\u003c/p>\n\u003cp>That kind of money could go a long way for Oakland resident Carolina Munoz, who became a first-time mom eight months ago. She said she’s putting off going back to work as a hairstylist because “it’s cheaper” for her to stay at home than to pay someone else to watch her daughter, Soleil.\u003c/p>\n\u003cp>“Things add up, right? Daycare or even having somebody watch her a couple days a week that is extremely expensive,” Munoz said Wednesday.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>The $6,000 tax credit would help offset the cost of diapers, food and age-appropriate toys and activities that support her child’s development, she said.\u003c/p>\n\u003cp>Munoz said Harris’ proposals to lower the cost of living and healthcare for families resonate with her as she grapples with the cost of raising a child.\u003c/p>\n\u003cp>“I think Kamala really cares about what we all go through as a community, as a society, which is a safe environment for our children,” including the ability for parents to provide for their children so they have a secure future, she said.\u003c/p>\n\u003cp>When asked last week how he would bring down the high cost of child care, Trump gave a rambling answer that \u003ca href=\"https://apnews.com/article/trump-economy-harris-corporate-taxes-15ba5ecfdf5e907bd9b2c349b07222b8\">suggested that increasing tariffs on foreign imports\u003c/a> could raise enough money to help fix the problem.\u003c/p>\n\u003cp>\u003cspan style=\"margin: 0px;padding: 0px\">His running mate, JD Vance, has mentioned \u003ca href=\"https://www.cbsnews.com/news/transcript-jd-vance-on-face-the-nation-aug-11-2024/\" target=\"_blank\" rel=\"noopener\">raising the child tax credit and giving grandparents or stay-at-home parents\u003c/a> a “credit” or a “check” for taking care of kids so that families have more options for childcare arrangements that work for them.\u003c/span>\u003c/p>\n\u003cp>“If you open up kinship and other options for families, you will relieve some pressure on the daycare system in this country,” \u003ca href=\"https://x.com/JDVance/status/1831701121758589425\">he wrote on social media site X l\u003c/a>ast week. He also criticized “a totally broken” educational pathway that’s keeping people from getting jobs in child care.\u003c/p>\n\u003cp>\u003c/p>\n\u003c/div>\u003c/p>",
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"content": "\u003cp>Building codes aren’t typically dinner table conversation, but policymakers and environmental advocates are quick to say they matter deeply in the race to cut emissions in \u003ca href=\"https://www.kqed.org/news/tag/california\">California\u003c/a>.\u003c/p>\n\u003cp>With that goal in mind, state energy policymakers are set to vote Wednesday on an updated set of requirements for new construction designed to make electrifying buildings more attractive.\u003c/p>\n\u003cp>The new code before the California Energy Commission, which would regulate how new buildings, additions and alterations are constructed, addresses the appliances that create the majority of a building’s emissions: furnaces and water heaters.\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>The plans would require a greater standard of building efficiency. To get there, some components — like certain levels of insulation — would be mandatory; the code would also encourage the use of electric appliances like heat pumps and heat pump water heaters, making it far easier to reach those standards. It does not prohibit the use of gas appliances.\u003c/p>\n\u003cp>Heat pumps can warm or cool a building’s air, serving the same role as a furnace and air conditioner rolled into one. Most furnaces use gas, while a heat pump uses electricity. Heat pumps can also warm and cool water, like a water heater.\u003c/p>\n\u003cp>More efficient buildings could have a major impact. Buildings produce roughly a quarter of California’s emissions, and reducing those emissions requires replacing windows, insulating homes and swapping out gas-burning appliances for efficient, electric ones. Electric appliances are powered by a grid that is continuously getting greener as energy from zero-emission sources continues to increase in the state.\u003c/p>\n\u003cp>“It’s a very positive development that takes a meaningful step forward in getting fossil fuels out of both new and existing buildings,” Matt Vespa, senior attorney at environmental law nonprofit Earthjustice, said of the new code proposal.\u003c/p>\n\u003cp>[aside postID=news_12002972 hero='https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/240903-MARIN-SUBSTANDARD-AG-WORKER-HOUSING-MD-04-KQED-1020x680.jpg']\u003c/p>\n\u003cp>“I think the CEC has really gone to the fullest extent they can under what authority they have in encouraging all-electric new homes,” Vespa said.\u003c/p>\n\u003cp>Such building codes can have strong effects on the market, Vespa said, noting that after the 2022 building codes began to prioritize electrifying homes, California saw “a larger share of new homes being all electric. This will push it even further.”\u003c/p>\n\u003cp>Opposition to the codes comes largely from equipment builders and manufacturers. The Air-Conditioning, Heating, and Refrigeration Institute, representing more than 330 manufacturers, has pushed back on the proposed codes, citing “several concerns and suggested improvements” in its comments submitted to the CEC.\u003c/p>\n\u003cp>Among their concerns are HVAC system requirements for small to medium offices and schools with different temperature controls throughout their buildings. The proposed building code does not require electric HVAC systems on these buildings but does incentivize using specific heat pumps, which AHRI said are “completely untenable for designers, building owners, and equipment manufacturers.”\u003c/p>\n\u003cp>Although builders can choose gas-powered options for HVAC systems instead of heat pumps, they would need to compensate for building efficiency in other ways, making it less attractive to install the gas-powered system.\u003c/p>\n\u003cp>The building standards are updated by the California Energy Commission, the state’s energy policy and planning administrator, every three years. The new codes will take effect on Jan. 1, 2026.\u003c/p>\n\u003cp>The codes are one lever for California policymakers as they try to meet a state target of carbon neutrality — when the amount of carbon dioxide emitted by the state is equal to the amount it absorbs — by 2045.\u003c/p>\n\u003cp>The state also has a goal of installing 6 million heat pumps by 2030, and the most recent numbers show California is a quarter of the way there.\u003c/p>\n\u003cp>\u003c/p>\n",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003cp>Building codes aren’t typically dinner table conversation, but policymakers and environmental advocates are quick to say they matter deeply in the race to cut emissions in \u003ca href=\"https://www.kqed.org/news/tag/california\">California\u003c/a>.\u003c/p>\n\u003cp>With that goal in mind, state energy policymakers are set to vote Wednesday on an updated set of requirements for new construction designed to make electrifying buildings more attractive.\u003c/p>\n\u003cp>The new code before the California Energy Commission, which would regulate how new buildings, additions and alterations are constructed, addresses the appliances that create the majority of a building’s emissions: furnaces and water heaters.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>The plans would require a greater standard of building efficiency. To get there, some components — like certain levels of insulation — would be mandatory; the code would also encourage the use of electric appliances like heat pumps and heat pump water heaters, making it far easier to reach those standards. It does not prohibit the use of gas appliances.\u003c/p>\n\u003cp>Heat pumps can warm or cool a building’s air, serving the same role as a furnace and air conditioner rolled into one. Most furnaces use gas, while a heat pump uses electricity. Heat pumps can also warm and cool water, like a water heater.\u003c/p>\n\u003cp>More efficient buildings could have a major impact. Buildings produce roughly a quarter of California’s emissions, and reducing those emissions requires replacing windows, insulating homes and swapping out gas-burning appliances for efficient, electric ones. Electric appliances are powered by a grid that is continuously getting greener as energy from zero-emission sources continues to increase in the state.\u003c/p>\n\u003cp>“It’s a very positive development that takes a meaningful step forward in getting fossil fuels out of both new and existing buildings,” Matt Vespa, senior attorney at environmental law nonprofit Earthjustice, said of the new code proposal.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>“I think the CEC has really gone to the fullest extent they can under what authority they have in encouraging all-electric new homes,” Vespa said.\u003c/p>\n\u003cp>Such building codes can have strong effects on the market, Vespa said, noting that after the 2022 building codes began to prioritize electrifying homes, California saw “a larger share of new homes being all electric. This will push it even further.”\u003c/p>\n\u003cp>Opposition to the codes comes largely from equipment builders and manufacturers. The Air-Conditioning, Heating, and Refrigeration Institute, representing more than 330 manufacturers, has pushed back on the proposed codes, citing “several concerns and suggested improvements” in its comments submitted to the CEC.\u003c/p>\n\u003cp>Among their concerns are HVAC system requirements for small to medium offices and schools with different temperature controls throughout their buildings. The proposed building code does not require electric HVAC systems on these buildings but does incentivize using specific heat pumps, which AHRI said are “completely untenable for designers, building owners, and equipment manufacturers.”\u003c/p>\n\u003cp>Although builders can choose gas-powered options for HVAC systems instead of heat pumps, they would need to compensate for building efficiency in other ways, making it less attractive to install the gas-powered system.\u003c/p>\n\u003cp>The building standards are updated by the California Energy Commission, the state’s energy policy and planning administrator, every three years. The new codes will take effect on Jan. 1, 2026.\u003c/p>\n\u003cp>The codes are one lever for California policymakers as they try to meet a state target of carbon neutrality — when the amount of carbon dioxide emitted by the state is equal to the amount it absorbs — by 2045.\u003c/p>\n\u003cp>The state also has a goal of installing 6 million heat pumps by 2030, and the most recent numbers show California is a quarter of the way there.\u003c/p>\n\u003cp>\u003c/p>\n\u003c/div>\u003c/p>",
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"content": "\u003cp>This week, \u003ca href=\"https://www.npr.org/2024/09/05/nx-s1-5101890/apalachee-high-school-shooting-charges-investigation\">a 14-year-old Georgia high school student was charged as an adult\u003c/a> with four counts of felony murder for allegedly using an assault-style rifle to kill two students and two teachers in the hallway outside his algebra classroom, according to authorities.\u003c/p>\n\u003cp>The shooting at Apalachee High School in Winder, about an hour’s drive from Atlanta, is \u003ca href=\"https://projects.apnews.com/features/2023/mass-killings/index.html\">the latest among dozens of school shootings across the U.S. in recent years\u003c/a>, including especially deadly ones in Newtown, Connecticut; Parkland, Florida; and Uvalde, Texas.\u003c/p>\n\u003cp>The media coverage of these events are once again prompting conversations about how to talk with kids about the news — especially \u003ca href=\"https://www.kqed.org/news/11996268/gun-violence-mental-health-support-compensation-bay-area\">gun violence.\u003c/a> Such acts of violence are disturbing for children to witness, but kid also are exposed to scary-sounding news and alarming imagery when similar traumatic events occur around the country.\u003c/p>\n\u003cp>Schools in the United States have become more prepared for mass shootings in recent years, which has meant learning how to talk with kids about active shooters and “bad guys” on school campuses. While \u003ca href=\"https://www.npr.org/sections/ed/2018/08/27/640323347/the-school-shootings-that-werent\">the incidence of on-campus shootings is extremely low\u003c/a>, they’re something many teachers and parents have prepared for.\u003c/p>\n\u003cp>“The most helpful thing for parents to share with their kids is that these events are rare and that adults are there to protect them,” said Stephen Brock, professor of psychology at CSU Sacramento. “We can’t deny the reality of these things, but kids need to be reassured with these facts.”\u003c/p>\n\u003cp>Some kids find out about the news by seeing it themselves or hearing it discussed at school, at home or in their communities. Young children can especially be harmed by this exposure, so experts recommend restricting their access to traumatic news. Kids old enough to have smartphones will likely get misinformation on the internet and social media, so it’s even more important for parents and caregivers to support their kids.\u003c/p>\n\u003cp>Here are some key steps parents and caregivers can take:\u003c/p>\n\u003ch2>Remind kids that they are safe\u003c/h2>\n\u003cp>Children need to be reassured by their caregivers that they are safe. \u003ca href=\"https://www.apa.org/helpcenter/talking-to-children\">The American Psychological Association says, above all, reassure\u003c/a>:\u003c/p>\n\u003cp>“ … reassure your children that you will do everything you know how to do to keep them safe and to watch out for them. Reassure them that you will be available to answer any questions or talk about this topic again in the future. Reassure them that they are loved.”\u003c/p>\n\u003ch2>Limit young children’s exposure to traumatic news\u003c/h2>\n\u003cp>Young children have less developed skills to separate facts from fears, so psychologists recommend minimizing a child’s exposure to traumatic news.\u003c/p>\n\u003cp>“When kids see the news, even if they are not a resident of [the affected place], they have the mistaken perception that they could be shot at any time,” said Brock. “For little ones, turn [the news] off.”\u003c/p>\n\u003cp>And sometimes, that fear is transferred to children through adult behavior. If adults are behaving in an anxious or fearful manner, kids will pick up on that, especially those in primary grades and younger.\u003c/p>\n\u003cp>“Kids will look to adults to see how scared they should be,” said Brock.\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003ch2>Observe your kids for verbal and nonverbal cues\u003c/h2>\n\u003cp>A parent might overhear a child talking about a traumatic news event, or the child might ask about it. If it looks like the child is curious, engage the child in conversation, said Brock, adding, “Let their questions be your guide.”\u003c/p>\n\u003cp>But not all kids can verbalize what they’re feeling, so look for changes in behavior. According to \u003ca href=\"https://www.nasponline.org/resources-and-publications/resources-and-podcasts/school-climate-safety-and-crisis/school-violence-resources/talking-to-children-about-violence-tips-for-parents-and-teachers\">the “Talking to Children About Violence: Tips for Parents and Teachers” report\u003c/a> from the National Association of School Psychologists (NASP), caregivers are advised to:\u003c/p>\n\u003cp>“Watch for clues that they may want to talk, such as hovering around while you do the dishes or yard work. Some children prefer writing, playing music, or doing an art project as an outlet. Young children may need concrete activities (such as drawing, looking at picture books, or imaginative play) to help them identify and express their feelings.”\u003c/p>\n\u003cp>But if the child is not aware or expressing any interest in a traumatic event, it’s best to not bring it up.\u003c/p>\n\u003cp>“You don’t want to interject traumatic events into a child,” said Brock, who co-authored the report.\u003c/p>\n\u003ch2>Talk with your kids in a way that’s developmentally appropriate\u003c/h2>\n\u003cp>Parents can talk with kids about anything, but it must be developmentally appropriate. Communicating with a 15-year-old is going to be different from talking with a 4-year-old. The \u003ca href=\"https://www.nasponline.org/resources-and-publications/resources-and-podcasts/school-climate-safety-and-crisis/school-violence-resources/talking-to-children-about-violence-tips-for-parents-and-teachers\">NASP\u003c/a> has this advice on how to explain traumas, especially in schools, to different age groups:\u003c/p>\n\u003cp>\u003cem>\u003cstrong>Early elementary school children\u003c/strong> need brief, simple information that should be balanced with reassurances that their schools and homes are safe and that adults are there to protect them. Give simple examples of school safety like reminding children about exterior doors being locked, child monitoring efforts on the playground, and emergency drills practiced during the school day.\u003c/em>\u003c/p>\n\u003cp>\u003cem>\u003cstrong>Upper elementary and early middle school children\u003c/strong> will be more vocal in asking questions about whether they truly are safe and what is being done at their school. They may need assistance separating reality from fantasy. Discuss efforts of school and community leaders to provide safe schools.\u003c/em>\u003c/p>\n\u003cp>\u003cem>\u003cstrong>Upper middle school and high school students\u003c/strong> will have strong and varying opinions about the causes of violence in schools and society. They will share concrete suggestions about how to make school safer and how to prevent tragedies in society. Emphasize the role that students have in maintaining safe schools by following school safety guidelines (e.g., not providing building access to strangers, reporting strangers on campus, reporting threats to the school safety made by students or community members, etc.), communicating any personal safety concerns to school administrators, and accessing support for emotional needs.\u003c/em>\u003c/p>\n\u003cp>Teens need guidance from their parents, too, especially since they’re absorbing the chatter on social media networks and direct messages from friends. Kids with phones will likely see graphic images through friends and news updates, which can create added trauma and anxiety. \u003ca href=\"https://www.commonsensemedia.org/blog/explaining-the-news-to-our-kids\">Common Sense Media advises parents to check in\u003c/a> on their teens:\u003c/p>\n\u003cp>“Since, in many instances, teens will have absorbed the news independently of you, talking with them can offer great insights into their developing politics and their senses of justice and morality. It will also help you get a sense of what they already know or have learned about the situation from their own social networks. It will also give you the opportunity to throw your own insights into the mix (just don’t dismiss theirs, since that will shut down the conversation immediately).”\u003c/p>\n\u003ch2>Maintain a normal routine\u003c/h2>\n\u003cp>Brock said, to the extent that it’s possible, maintain a normal routine. This will be helpful for the kid who’s frightened or anxious about a traumatic event.\u003c/p>\n\u003cp>“The more typical the routine, the more reassuring it can be,” he said.\u003c/p>\n\u003cp>\u003cem>This story contains reporting by the Associated Press, and KQED’s Carly Severn and Spencer Whitney also contributed to this story. A previous version of this story was published on July 15, 2024.\u003c/em>\u003c/p>\n\u003cp>[ad floatright]\u003c/p>\n",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003cp>This week, \u003ca href=\"https://www.npr.org/2024/09/05/nx-s1-5101890/apalachee-high-school-shooting-charges-investigation\">a 14-year-old Georgia high school student was charged as an adult\u003c/a> with four counts of felony murder for allegedly using an assault-style rifle to kill two students and two teachers in the hallway outside his algebra classroom, according to authorities.\u003c/p>\n\u003cp>The shooting at Apalachee High School in Winder, about an hour’s drive from Atlanta, is \u003ca href=\"https://projects.apnews.com/features/2023/mass-killings/index.html\">the latest among dozens of school shootings across the U.S. in recent years\u003c/a>, including especially deadly ones in Newtown, Connecticut; Parkland, Florida; and Uvalde, Texas.\u003c/p>\n\u003cp>The media coverage of these events are once again prompting conversations about how to talk with kids about the news — especially \u003ca href=\"https://www.kqed.org/news/11996268/gun-violence-mental-health-support-compensation-bay-area\">gun violence.\u003c/a> Such acts of violence are disturbing for children to witness, but kid also are exposed to scary-sounding news and alarming imagery when similar traumatic events occur around the country.\u003c/p>\n\u003cp>Schools in the United States have become more prepared for mass shootings in recent years, which has meant learning how to talk with kids about active shooters and “bad guys” on school campuses. While \u003ca href=\"https://www.npr.org/sections/ed/2018/08/27/640323347/the-school-shootings-that-werent\">the incidence of on-campus shootings is extremely low\u003c/a>, they’re something many teachers and parents have prepared for.\u003c/p>\n\u003cp>“The most helpful thing for parents to share with their kids is that these events are rare and that adults are there to protect them,” said Stephen Brock, professor of psychology at CSU Sacramento. “We can’t deny the reality of these things, but kids need to be reassured with these facts.”\u003c/p>\n\u003cp>Some kids find out about the news by seeing it themselves or hearing it discussed at school, at home or in their communities. Young children can especially be harmed by this exposure, so experts recommend restricting their access to traumatic news. Kids old enough to have smartphones will likely get misinformation on the internet and social media, so it’s even more important for parents and caregivers to support their kids.\u003c/p>\n\u003cp>Here are some key steps parents and caregivers can take:\u003c/p>\n\u003ch2>Remind kids that they are safe\u003c/h2>\n\u003cp>Children need to be reassured by their caregivers that they are safe. \u003ca href=\"https://www.apa.org/helpcenter/talking-to-children\">The American Psychological Association says, above all, reassure\u003c/a>:\u003c/p>\n\u003cp>“ … reassure your children that you will do everything you know how to do to keep them safe and to watch out for them. Reassure them that you will be available to answer any questions or talk about this topic again in the future. Reassure them that they are loved.”\u003c/p>\n\u003ch2>Limit young children’s exposure to traumatic news\u003c/h2>\n\u003cp>Young children have less developed skills to separate facts from fears, so psychologists recommend minimizing a child’s exposure to traumatic news.\u003c/p>\n\u003cp>“When kids see the news, even if they are not a resident of [the affected place], they have the mistaken perception that they could be shot at any time,” said Brock. “For little ones, turn [the news] off.”\u003c/p>\n\u003cp>And sometimes, that fear is transferred to children through adult behavior. If adults are behaving in an anxious or fearful manner, kids will pick up on that, especially those in primary grades and younger.\u003c/p>\n\u003cp>“Kids will look to adults to see how scared they should be,” said Brock.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003ch2>Observe your kids for verbal and nonverbal cues\u003c/h2>\n\u003cp>A parent might overhear a child talking about a traumatic news event, or the child might ask about it. If it looks like the child is curious, engage the child in conversation, said Brock, adding, “Let their questions be your guide.”\u003c/p>\n\u003cp>But not all kids can verbalize what they’re feeling, so look for changes in behavior. According to \u003ca href=\"https://www.nasponline.org/resources-and-publications/resources-and-podcasts/school-climate-safety-and-crisis/school-violence-resources/talking-to-children-about-violence-tips-for-parents-and-teachers\">the “Talking to Children About Violence: Tips for Parents and Teachers” report\u003c/a> from the National Association of School Psychologists (NASP), caregivers are advised to:\u003c/p>\n\u003cp>“Watch for clues that they may want to talk, such as hovering around while you do the dishes or yard work. Some children prefer writing, playing music, or doing an art project as an outlet. Young children may need concrete activities (such as drawing, looking at picture books, or imaginative play) to help them identify and express their feelings.”\u003c/p>\n\u003cp>But if the child is not aware or expressing any interest in a traumatic event, it’s best to not bring it up.\u003c/p>\n\u003cp>“You don’t want to interject traumatic events into a child,” said Brock, who co-authored the report.\u003c/p>\n\u003ch2>Talk with your kids in a way that’s developmentally appropriate\u003c/h2>\n\u003cp>Parents can talk with kids about anything, but it must be developmentally appropriate. Communicating with a 15-year-old is going to be different from talking with a 4-year-old. The \u003ca href=\"https://www.nasponline.org/resources-and-publications/resources-and-podcasts/school-climate-safety-and-crisis/school-violence-resources/talking-to-children-about-violence-tips-for-parents-and-teachers\">NASP\u003c/a> has this advice on how to explain traumas, especially in schools, to different age groups:\u003c/p>\n\u003cp>\u003cem>\u003cstrong>Early elementary school children\u003c/strong> need brief, simple information that should be balanced with reassurances that their schools and homes are safe and that adults are there to protect them. Give simple examples of school safety like reminding children about exterior doors being locked, child monitoring efforts on the playground, and emergency drills practiced during the school day.\u003c/em>\u003c/p>\n\u003cp>\u003cem>\u003cstrong>Upper elementary and early middle school children\u003c/strong> will be more vocal in asking questions about whether they truly are safe and what is being done at their school. They may need assistance separating reality from fantasy. Discuss efforts of school and community leaders to provide safe schools.\u003c/em>\u003c/p>\n\u003cp>\u003cem>\u003cstrong>Upper middle school and high school students\u003c/strong> will have strong and varying opinions about the causes of violence in schools and society. They will share concrete suggestions about how to make school safer and how to prevent tragedies in society. Emphasize the role that students have in maintaining safe schools by following school safety guidelines (e.g., not providing building access to strangers, reporting strangers on campus, reporting threats to the school safety made by students or community members, etc.), communicating any personal safety concerns to school administrators, and accessing support for emotional needs.\u003c/em>\u003c/p>\n\u003cp>Teens need guidance from their parents, too, especially since they’re absorbing the chatter on social media networks and direct messages from friends. Kids with phones will likely see graphic images through friends and news updates, which can create added trauma and anxiety. \u003ca href=\"https://www.commonsensemedia.org/blog/explaining-the-news-to-our-kids\">Common Sense Media advises parents to check in\u003c/a> on their teens:\u003c/p>\n\u003cp>“Since, in many instances, teens will have absorbed the news independently of you, talking with them can offer great insights into their developing politics and their senses of justice and morality. It will also help you get a sense of what they already know or have learned about the situation from their own social networks. It will also give you the opportunity to throw your own insights into the mix (just don’t dismiss theirs, since that will shut down the conversation immediately).”\u003c/p>\n\u003ch2>Maintain a normal routine\u003c/h2>\n\u003cp>Brock said, to the extent that it’s possible, maintain a normal routine. This will be helpful for the kid who’s frightened or anxious about a traumatic event.\u003c/p>\n\u003cp>“The more typical the routine, the more reassuring it can be,” he said.\u003c/p>\n\u003cp>\u003cem>This story contains reporting by the Associated Press, and KQED’s Carly Severn and Spencer Whitney also contributed to this story. A previous version of this story was published on July 15, 2024.\u003c/em>\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"slug": "breast-cancer-rises-among-asian-american-and-pacific-islander-women",
"title": "'It's a Real Trend': Breast Cancer Cases Rise Among Asian Americans and Pacific Islanders",
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"headTitle": "‘It’s a Real Trend’: Breast Cancer Cases Rise Among Asian Americans and Pacific Islanders | KQED",
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"content": "\u003cp>Christina Kashiwada was traveling for work during the summer of 2018 when she noticed a small, itchy lump in her left breast.\u003c/p>\n\u003cp>She thought little of it at first. She did routine self-checks and kept up with medical appointments. But a relative urged her to get a mammogram. She took the advice and learned she had stage 3 breast cancer, a revelation that stunned her.\u003c/p>\n\u003cp>“I’m 36 years old, right?” said Kashiwada, a civil engineer in Sacramento, California. “No one’s thinking about cancer.”\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>About 11,000 Asian American and Pacific Islander women were diagnosed with breast cancer in 2021 and about 1,500 died. The latest federal data shows the rate of new breast cancer diagnoses in Asian American and Pacific Islander women — a group that once had relatively low rates of diagnosis — is rising much faster than that of many other racial and ethnic groups. The trend is especially sharp among young women such as Kashiwada.\u003c/p>\n\u003cp>About 55 of every 100,000 Asian American and Pacific Islander women under 50 were diagnosed with breast cancer in 2021, surpassing the rate for Black and Hispanic women and on par with the rate for white women, according to \u003ca href=\"https://seer.cancer.gov/statistics-network/explorer/application.html?site=55&data_type=1&graph_type=2&compareBy=race&chk_race_4=4&rate_type=2&sex=3&age_range=9&stage=101&advopt_precision=1&advopt_show_ci=on&hdn_view=0&advopt_show_apc=on&advopt_display=2#resultsRegion0\">age-adjusted data\u003c/a> from the National Institutes of Health. (Hispanic people can be of any race or combination of races but are grouped separately in this data.)\u003c/p>\n\u003cp>The rate of new breast cancer cases among Asian American and Pacific Islander women under 50 grew by about 52% from 2000 through 2021. Rates for AAPI women 50 to 64 rose 33% and rates for AAPI women 65 and older grew by 43% during that period. By comparison, the rate for women of all ages, races, and ethnicities grew by 3%.\u003c/p>\n\u003cp>\u003c!-- iframe plugin v.4.3 wordpress.org/plugins/iframe/ -->\u003cbr>\n\u003ciframe loading=\"lazy\" src=\"https://datawrapper.dwcdn.net/VwlRg/12/\" width=\"800\" height=\"600\" scrolling=\"yes\" class=\"iframe-class\" frameborder=\"0\">\u003c/iframe>\u003c/p>\n\u003cp>Researchers have picked up on this trend and are racing to find out why it is occurring within this ethnically diverse group. They suspect the answer is complex, ranging from cultural shifts to pressure-filled lifestyles — yet they concede it remains a mystery and difficult for patients and their families to discuss because of cultural differences.\u003c/p>\n\u003cp>\u003ca href=\"https://health.ucdavis.edu/medical-center/team/646/helen-chew---cancer---hematology-oncology---internal-medicine-sacramento/\">Helen Chew\u003c/a>, director of the Clinical Breast Cancer Program at UC Davis Health, said the Asian American diaspora is so \u003ca href=\"https://data.census.gov/table/ACSDT1Y2022.B02015?q=B02015:%20Asian%20Alone%20by%20Selected%20Groups\">broad and diverse\u003c/a> that simple explanations for the increase in breast cancer aren’t obvious.\u003c/p>\n\u003cp>“It’s a real trend,” Chew said, adding that “it is just difficult to tease out exactly why it is. Is it because we’re seeing an influx of people who have less access to care? Is it because of many things culturally where they may not want to come in if they see something on their breast?”\u003c/p>\n\u003cp>There’s urgency to solve this mystery because it’s costing lives. While women in most ethnic and racial groups are experiencing sharp declines in breast cancer death rates, about \u003ca href=\"https://wonder.cdc.gov/controller/saved/D176/D401F928\">12 of every 100,000\u003c/a> Asian American and Pacific Islander women of any age died from breast cancer in 2023, essentially the same death rate as in 2000, according to age-adjusted, provisional data from the Centers for Disease Control and Prevention. The breast cancer death rate among all women during that period dropped 30%.\u003c/p>\n\u003cp>\u003c!-- iframe plugin v.4.3 wordpress.org/plugins/iframe/ -->\u003cbr>\n\u003ciframe loading=\"lazy\" src=\"https://datawrapper.dwcdn.net/vSr1U/13/\" width=\"800\" height=\"600\" scrolling=\"yes\" class=\"iframe-class\" frameborder=\"0\">\u003c/iframe>\u003c/p>\n\u003cp>The CDC does not break out breast cancer death rates for many different groups of Asian American women, such as those of Chinese or Korean descent. It has, though, begun distinguishing between Asian American women and Pacific Islander women.\u003c/p>\n\u003cp>Nearly 9,000 Asian American women died from breast cancer from 2018 through 2023, compared with about 500 Native Hawaiian and Pacific Islander women. However, breast cancer death rates were \u003ca href=\"https://wonder.cdc.gov/controller/saved/D176/D403F335\">116% higher\u003c/a> among Native Hawaiian and Pacific Islander women than among Asian American women during that period.\u003c/p>\n\u003cp>Rates of \u003ca href=\"https://seer.cancer.gov/statistics-network/explorer/application.html?site=40&data_type=1&graph_type=2&compareBy=race&chk_race_4=4&rate_type=2&sex=3&age_range=9&stage=101&advopt_precision=1&advopt_show_ci=on&hdn_view=0&advopt_show_apc=on&advopt_display=1#resultsRegion0\">pancreatic\u003c/a>, \u003ca href=\"https://seer.cancer.gov/statistics-network/explorer/application.html?site=80&data_type=1&graph_type=2&compareBy=race&chk_race_4=4&rate_type=2&sex=3&age_range=9&stage=101&advopt_precision=1&advopt_show_ci=on&hdn_view=0&advopt_show_apc=on&advopt_display=1\">thyroid\u003c/a>, \u003ca href=\"https://seer.cancer.gov/statistics-network/explorer/application.html?site=21&data_type=1&graph_type=2&compareBy=race&chk_race_4=4&rate_type=2&sex=3&age_range=9&stage=101&advopt_precision=1&advopt_show_ci=on&hdn_view=0&advopt_show_apc=on&advopt_display=1#resultsRegion0\">colon\u003c/a>, and \u003ca href=\"https://seer.cancer.gov/statistics-network/explorer/application.html?site=58&data_type=1&graph_type=2&compareBy=race&chk_race_4=4&rate_type=2&hdn_sex=3&age_range=9&stage=101&advopt_precision=1&advopt_show_ci=on&hdn_view=0&advopt_show_apc=on&advopt_display=1#resultsRegion0\">endometrial\u003c/a> cancer, along with \u003ca href=\"https://seer.cancer.gov/statistics-network/explorer/application.html?site=86&data_type=1&graph_type=2&compareBy=race&chk_race_4=4&rate_type=2&sex=3&age_range=9&stage=101&advopt_precision=1&advopt_show_ci=on&hdn_view=0&advopt_show_apc=on&advopt_display=1#resultsRegion0\">non-Hodgkin lymphoma\u003c/a> rates, have also recently risen significantly among Asian American and Pacific Islander women under 50, NIH data show. Yet breast cancer is much more common among young AAPI women than any of those other types of cancer — especially concerning because young women are \u003ca href=\"https://www.bcrf.org/blog/breast-cancer-young-women/\">more likely to \u003c/a>\u003ca href=\"https://www.bcrf.org/blog/breast-cancer-young-women/\">face\u003c/a> more aggressive forms of the disease, with high mortality rates.\u003c/p>\n\u003cp>“We’re seeing somewhere almost around a 4% per-year increase,” said \u003ca href=\"https://cancer.ucsf.edu/people/gomez.scarlett\">Scarlett Gomez\u003c/a>, a professor and epidemiologist at the University of California-San Francisco’s Helen Diller Family Comprehensive Cancer Center. “We’re seeing even more than the 4% per-year increase in Asian/Pacific Islander women less than age 50.”\u003c/p>\n\u003cp>Gomez is a lead investigator on a \u003ca href=\"https://www.ucsf.edu/news/2024/05/427586/new-ucsf-study-find-out-what-drives-cancer-asian-americans\">large study\u003c/a> exploring the causes of cancer in Asian Americans. She said there is not yet enough research to know what is causing the recent spike in breast cancer. The answer may involve multiple risk factors over a long period of time.\u003c/p>\n\u003cp>“One of the hypotheses that we’re exploring there is the role of stress,” she said. “We’re asking all sorts of questions about different sources of stress, different coping styles throughout the lifetime.”\u003c/p>\n\u003cp>It’s likely not just that there’s more screening. “We looked at trends by stage at diagnosis, and we are seeing similar rates of increase across all stages of disease,” Gomez said.\u003c/p>\n\u003cp>\u003ca href=\"https://keck.usc.edu/faculty-search/veronica-w-setiawan/\">Veronica Setiawan\u003c/a>, a professor and epidemiologist at the Keck School of Medicine of the University of Southern California, said the trend may be related to Asian immigrants adopting some lifestyles that put them at higher risk. Setiawan is a breast cancer survivor who was diagnosed a few years ago at the age of 49.\u003c/p>\n\u003cp>“Asian women, American women, they become more westernized, so they have their puberty younger now — having earlier age at [the first menstrual cycle] is \u003ca href=\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3488186/\">associated with increased risk\u003c/a>,” said Setiawan, who is working with Gomez on the cancer study. “Maybe \u003ca href=\"https://www.komen.org/breast-cancer/risk-factor/age-at-first-childbirth/#:~:text=Women%20who%20give%20birth%20to%20their%20first%20child%20at%20later,never%20give%20birth%20%5B12%5D.\">giving birth later\u003c/a>, we delay childbearing, \u003ca href=\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9972148/\">we don’t breastfeed\u003c/a> — those are all associated with breast cancer risks.”\u003c/p>\n\u003cp>\u003ca href=\"https://health.ucdavis.edu/medical-center/team/1129/moon-chen--jr----population-health---cancer/\">Moon Chen\u003c/a>, a professor at the University of California-Davis and an \u003ca href=\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9194616/\">expert on cancer health disparities\u003c/a>, added that only \u003ca href=\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3980490/\">a tiny fraction\u003c/a> of NIH funding is devoted to researching cancer among Asian Americans.\u003c/p>\n\u003cp>\u003c!-- iframe plugin v.4.3 wordpress.org/plugins/iframe/ -->\u003cbr>\n\u003ciframe loading=\"lazy\" src=\"https://datawrapper.dwcdn.net/5RYAR/10/\" width=\"800\" height=\"700\" scrolling=\"yes\" class=\"iframe-class\" frameborder=\"0\">\u003c/iframe>\u003c/p>\n\u003cp>Whatever its cause, the trend has created years of anguish for many patients.\u003c/p>\n\u003cp>Kashiwada underwent a mastectomy following her breast cancer diagnosis. During surgery, doctors at UC Davis Health discovered the cancer had spread to lymph nodes in her underarm. She underwent eight rounds of chemotherapy and 20 sessions of radiation treatment.\u003c/p>\n\u003cp>Throughout her treatments, Kashiwada kept her ordeal a secret from her grandmother, who had helped raise her. Her grandmother never knew about the diagnosis. “I didn’t want her to worry about me or add stress to her,” Kashiwada said. “She just would probably never sleep if she knew that was happening. It was very important to me to protect her.”\u003c/p>\n\u003cp>Kashiwada moved in with her parents. Her mom took a leave from work to help take care of her.\u003c/p>\n\u003cp>Kashiwada’s two young children, who were 3 and 6 at the time, stayed with their dad so she could focus on her recovery.\u003c/p>\n\u003cp>“The kids would come over after school,” she said. “My dad would pick them up and bring them over to see me almost every day while their dad was at work.”\u003c/p>\n\u003cfigure id=\"attachment_12003007\" class=\"wp-caption alignright\" style=\"max-width: 2560px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-12003007\" src=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/Kashiwada_01-resized-copy-scaled.jpg\" alt=\"\" width=\"2560\" height=\"1707\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/Kashiwada_01-resized-copy-scaled.jpg 2560w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/Kashiwada_01-resized-copy-800x533.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/Kashiwada_01-resized-copy-1020x680.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/Kashiwada_01-resized-copy-160x107.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/Kashiwada_01-resized-copy-1536x1024.jpg 1536w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/Kashiwada_01-resized-copy-2048x1365.jpg 2048w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/Kashiwada_01-resized-copy-1920x1280.jpg 1920w\" sizes=\"auto, (max-width: 2560px) 100vw, 2560px\">\u003cfigcaption class=\"wp-caption-text\">Kashiwada had to undergo eight rounds of chemotherapy and 20 sessions of radiation treatment to treat her breast cancer. \u003ccite>(Rich Pedroncelli for KFF Health News)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>Kashiwada spent months regaining strength after the radiation treatments. She returned to work but with a doctor’s instruction to avoid lifting heavy objects.\u003c/p>\n\u003cp>Kashiwada had her final reconstructive surgery a few weeks before COVID-19 lockdowns began in 2020. But her treatment was not finished.\u003c/p>\n\u003cp>Her doctors had told her that estrogen fed her cancer, so they gave her medicine to put her through early menopause. The treatment was not as effective as they had hoped. Her doctor performed surgery in 2021 to remove her ovaries.\u003c/p>\n\u003cp>More recently, she was diagnosed with osteopenia and will start injections to stop bone loss.\u003c/p>\n\u003cp>Kashiwada said she has moved past many of the negative emotions she felt about her illness and wants other young women, including Asian American women like her, to be aware of their elevated risk.\u003c/p>\n\u003cp>“No matter how healthy you think you are, or you’re exercising, or whatever you’re doing, eating well, which is all the things I was doing — I would say it does not make you invincible or immune,” she said. “Not to say that you should be afraid of everything, but just be very in tune with your body and what your body’s telling you.”\u003c/p>\n\u003cp>\u003cem>Phillip Reese is a data reporting specialist and an associate professor of journalism at California State University-Sacramento.\u003c/em>\u003c/p>\n\u003cp>\u003cem>This article was produced by \u003c/em>\u003ca href=\"https://kffhealthnews.org/about-us\" target=\"_blank\" rel=\"noreferrer noopener\">\u003cem>KFF Health News\u003c/em>\u003c/a>\u003cem>, which publishes \u003c/em>\u003ca href=\"http://www.californiahealthline.org/\" target=\"_blank\" rel=\"noreferrer noopener\">\u003cem>California Healthline\u003c/em>\u003c/a>\u003cem>, an editorially independent service of the \u003c/em>\u003ca href=\"http://www.chcf.org/\" target=\"_blank\" rel=\"noreferrer noopener\">\u003cem>California Health Care Foundation\u003c/em>\u003c/a>\u003cem>.\u003c/em> \u003cem>Supplemental support comes from the \u003ca href=\"https://aaja-la.org/\" target=\"_blank\" rel=\"noreferrer noopener\">Asian American Journalists Association-Los Angeles\u003c/a> through \u003ca href=\"https://www.calendow.org/\" target=\"_blank\" rel=\"noreferrer noopener\">The California Endowment\u003c/a>.\u003c/em>\u003c/p>\n\u003cp>[ad floatright]\u003c/p>\n",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003cp>Christina Kashiwada was traveling for work during the summer of 2018 when she noticed a small, itchy lump in her left breast.\u003c/p>\n\u003cp>She thought little of it at first. She did routine self-checks and kept up with medical appointments. But a relative urged her to get a mammogram. She took the advice and learned she had stage 3 breast cancer, a revelation that stunned her.\u003c/p>\n\u003cp>“I’m 36 years old, right?” said Kashiwada, a civil engineer in Sacramento, California. “No one’s thinking about cancer.”\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>About 11,000 Asian American and Pacific Islander women were diagnosed with breast cancer in 2021 and about 1,500 died. The latest federal data shows the rate of new breast cancer diagnoses in Asian American and Pacific Islander women — a group that once had relatively low rates of diagnosis — is rising much faster than that of many other racial and ethnic groups. The trend is especially sharp among young women such as Kashiwada.\u003c/p>\n\u003cp>About 55 of every 100,000 Asian American and Pacific Islander women under 50 were diagnosed with breast cancer in 2021, surpassing the rate for Black and Hispanic women and on par with the rate for white women, according to \u003ca href=\"https://seer.cancer.gov/statistics-network/explorer/application.html?site=55&data_type=1&graph_type=2&compareBy=race&chk_race_4=4&rate_type=2&sex=3&age_range=9&stage=101&advopt_precision=1&advopt_show_ci=on&hdn_view=0&advopt_show_apc=on&advopt_display=2#resultsRegion0\">age-adjusted data\u003c/a> from the National Institutes of Health. (Hispanic people can be of any race or combination of races but are grouped separately in this data.)\u003c/p>\n\u003cp>The rate of new breast cancer cases among Asian American and Pacific Islander women under 50 grew by about 52% from 2000 through 2021. Rates for AAPI women 50 to 64 rose 33% and rates for AAPI women 65 and older grew by 43% during that period. By comparison, the rate for women of all ages, races, and ethnicities grew by 3%.\u003c/p>\n\u003cp>\u003c!-- iframe plugin v.4.3 wordpress.org/plugins/iframe/ -->\u003cbr>\n\u003ciframe loading=\"lazy\" src=\"https://datawrapper.dwcdn.net/VwlRg/12/\" width=\"800\" height=\"600\" scrolling=\"yes\" class=\"iframe-class\" frameborder=\"0\">\u003c/iframe>\u003c/p>\n\u003cp>Researchers have picked up on this trend and are racing to find out why it is occurring within this ethnically diverse group. They suspect the answer is complex, ranging from cultural shifts to pressure-filled lifestyles — yet they concede it remains a mystery and difficult for patients and their families to discuss because of cultural differences.\u003c/p>\n\u003cp>\u003ca href=\"https://health.ucdavis.edu/medical-center/team/646/helen-chew---cancer---hematology-oncology---internal-medicine-sacramento/\">Helen Chew\u003c/a>, director of the Clinical Breast Cancer Program at UC Davis Health, said the Asian American diaspora is so \u003ca href=\"https://data.census.gov/table/ACSDT1Y2022.B02015?q=B02015:%20Asian%20Alone%20by%20Selected%20Groups\">broad and diverse\u003c/a> that simple explanations for the increase in breast cancer aren’t obvious.\u003c/p>\n\u003cp>“It’s a real trend,” Chew said, adding that “it is just difficult to tease out exactly why it is. Is it because we’re seeing an influx of people who have less access to care? Is it because of many things culturally where they may not want to come in if they see something on their breast?”\u003c/p>\n\u003cp>There’s urgency to solve this mystery because it’s costing lives. While women in most ethnic and racial groups are experiencing sharp declines in breast cancer death rates, about \u003ca href=\"https://wonder.cdc.gov/controller/saved/D176/D401F928\">12 of every 100,000\u003c/a> Asian American and Pacific Islander women of any age died from breast cancer in 2023, essentially the same death rate as in 2000, according to age-adjusted, provisional data from the Centers for Disease Control and Prevention. The breast cancer death rate among all women during that period dropped 30%.\u003c/p>\n\u003cp>\u003c!-- iframe plugin v.4.3 wordpress.org/plugins/iframe/ -->\u003cbr>\n\u003ciframe loading=\"lazy\" src=\"https://datawrapper.dwcdn.net/vSr1U/13/\" width=\"800\" height=\"600\" scrolling=\"yes\" class=\"iframe-class\" frameborder=\"0\">\u003c/iframe>\u003c/p>\n\u003cp>The CDC does not break out breast cancer death rates for many different groups of Asian American women, such as those of Chinese or Korean descent. It has, though, begun distinguishing between Asian American women and Pacific Islander women.\u003c/p>\n\u003cp>Nearly 9,000 Asian American women died from breast cancer from 2018 through 2023, compared with about 500 Native Hawaiian and Pacific Islander women. However, breast cancer death rates were \u003ca href=\"https://wonder.cdc.gov/controller/saved/D176/D403F335\">116% higher\u003c/a> among Native Hawaiian and Pacific Islander women than among Asian American women during that period.\u003c/p>\n\u003cp>Rates of \u003ca href=\"https://seer.cancer.gov/statistics-network/explorer/application.html?site=40&data_type=1&graph_type=2&compareBy=race&chk_race_4=4&rate_type=2&sex=3&age_range=9&stage=101&advopt_precision=1&advopt_show_ci=on&hdn_view=0&advopt_show_apc=on&advopt_display=1#resultsRegion0\">pancreatic\u003c/a>, \u003ca href=\"https://seer.cancer.gov/statistics-network/explorer/application.html?site=80&data_type=1&graph_type=2&compareBy=race&chk_race_4=4&rate_type=2&sex=3&age_range=9&stage=101&advopt_precision=1&advopt_show_ci=on&hdn_view=0&advopt_show_apc=on&advopt_display=1\">thyroid\u003c/a>, \u003ca href=\"https://seer.cancer.gov/statistics-network/explorer/application.html?site=21&data_type=1&graph_type=2&compareBy=race&chk_race_4=4&rate_type=2&sex=3&age_range=9&stage=101&advopt_precision=1&advopt_show_ci=on&hdn_view=0&advopt_show_apc=on&advopt_display=1#resultsRegion0\">colon\u003c/a>, and \u003ca href=\"https://seer.cancer.gov/statistics-network/explorer/application.html?site=58&data_type=1&graph_type=2&compareBy=race&chk_race_4=4&rate_type=2&hdn_sex=3&age_range=9&stage=101&advopt_precision=1&advopt_show_ci=on&hdn_view=0&advopt_show_apc=on&advopt_display=1#resultsRegion0\">endometrial\u003c/a> cancer, along with \u003ca href=\"https://seer.cancer.gov/statistics-network/explorer/application.html?site=86&data_type=1&graph_type=2&compareBy=race&chk_race_4=4&rate_type=2&sex=3&age_range=9&stage=101&advopt_precision=1&advopt_show_ci=on&hdn_view=0&advopt_show_apc=on&advopt_display=1#resultsRegion0\">non-Hodgkin lymphoma\u003c/a> rates, have also recently risen significantly among Asian American and Pacific Islander women under 50, NIH data show. Yet breast cancer is much more common among young AAPI women than any of those other types of cancer — especially concerning because young women are \u003ca href=\"https://www.bcrf.org/blog/breast-cancer-young-women/\">more likely to \u003c/a>\u003ca href=\"https://www.bcrf.org/blog/breast-cancer-young-women/\">face\u003c/a> more aggressive forms of the disease, with high mortality rates.\u003c/p>\n\u003cp>“We’re seeing somewhere almost around a 4% per-year increase,” said \u003ca href=\"https://cancer.ucsf.edu/people/gomez.scarlett\">Scarlett Gomez\u003c/a>, a professor and epidemiologist at the University of California-San Francisco’s Helen Diller Family Comprehensive Cancer Center. “We’re seeing even more than the 4% per-year increase in Asian/Pacific Islander women less than age 50.”\u003c/p>\n\u003cp>Gomez is a lead investigator on a \u003ca href=\"https://www.ucsf.edu/news/2024/05/427586/new-ucsf-study-find-out-what-drives-cancer-asian-americans\">large study\u003c/a> exploring the causes of cancer in Asian Americans. She said there is not yet enough research to know what is causing the recent spike in breast cancer. The answer may involve multiple risk factors over a long period of time.\u003c/p>\n\u003cp>“One of the hypotheses that we’re exploring there is the role of stress,” she said. “We’re asking all sorts of questions about different sources of stress, different coping styles throughout the lifetime.”\u003c/p>\n\u003cp>It’s likely not just that there’s more screening. “We looked at trends by stage at diagnosis, and we are seeing similar rates of increase across all stages of disease,” Gomez said.\u003c/p>\n\u003cp>\u003ca href=\"https://keck.usc.edu/faculty-search/veronica-w-setiawan/\">Veronica Setiawan\u003c/a>, a professor and epidemiologist at the Keck School of Medicine of the University of Southern California, said the trend may be related to Asian immigrants adopting some lifestyles that put them at higher risk. Setiawan is a breast cancer survivor who was diagnosed a few years ago at the age of 49.\u003c/p>\n\u003cp>“Asian women, American women, they become more westernized, so they have their puberty younger now — having earlier age at [the first menstrual cycle] is \u003ca href=\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3488186/\">associated with increased risk\u003c/a>,” said Setiawan, who is working with Gomez on the cancer study. “Maybe \u003ca href=\"https://www.komen.org/breast-cancer/risk-factor/age-at-first-childbirth/#:~:text=Women%20who%20give%20birth%20to%20their%20first%20child%20at%20later,never%20give%20birth%20%5B12%5D.\">giving birth later\u003c/a>, we delay childbearing, \u003ca href=\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9972148/\">we don’t breastfeed\u003c/a> — those are all associated with breast cancer risks.”\u003c/p>\n\u003cp>\u003ca href=\"https://health.ucdavis.edu/medical-center/team/1129/moon-chen--jr----population-health---cancer/\">Moon Chen\u003c/a>, a professor at the University of California-Davis and an \u003ca href=\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9194616/\">expert on cancer health disparities\u003c/a>, added that only \u003ca href=\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3980490/\">a tiny fraction\u003c/a> of NIH funding is devoted to researching cancer among Asian Americans.\u003c/p>\n\u003cp>\u003c!-- iframe plugin v.4.3 wordpress.org/plugins/iframe/ -->\u003cbr>\n\u003ciframe loading=\"lazy\" src=\"https://datawrapper.dwcdn.net/5RYAR/10/\" width=\"800\" height=\"700\" scrolling=\"yes\" class=\"iframe-class\" frameborder=\"0\">\u003c/iframe>\u003c/p>\n\u003cp>Whatever its cause, the trend has created years of anguish for many patients.\u003c/p>\n\u003cp>Kashiwada underwent a mastectomy following her breast cancer diagnosis. During surgery, doctors at UC Davis Health discovered the cancer had spread to lymph nodes in her underarm. She underwent eight rounds of chemotherapy and 20 sessions of radiation treatment.\u003c/p>\n\u003cp>Throughout her treatments, Kashiwada kept her ordeal a secret from her grandmother, who had helped raise her. Her grandmother never knew about the diagnosis. “I didn’t want her to worry about me or add stress to her,” Kashiwada said. “She just would probably never sleep if she knew that was happening. It was very important to me to protect her.”\u003c/p>\n\u003cp>Kashiwada moved in with her parents. Her mom took a leave from work to help take care of her.\u003c/p>\n\u003cp>Kashiwada’s two young children, who were 3 and 6 at the time, stayed with their dad so she could focus on her recovery.\u003c/p>\n\u003cp>“The kids would come over after school,” she said. “My dad would pick them up and bring them over to see me almost every day while their dad was at work.”\u003c/p>\n\u003cfigure id=\"attachment_12003007\" class=\"wp-caption alignright\" style=\"max-width: 2560px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-12003007\" src=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/Kashiwada_01-resized-copy-scaled.jpg\" alt=\"\" width=\"2560\" height=\"1707\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/Kashiwada_01-resized-copy-scaled.jpg 2560w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/Kashiwada_01-resized-copy-800x533.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/Kashiwada_01-resized-copy-1020x680.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/Kashiwada_01-resized-copy-160x107.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/Kashiwada_01-resized-copy-1536x1024.jpg 1536w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/Kashiwada_01-resized-copy-2048x1365.jpg 2048w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/Kashiwada_01-resized-copy-1920x1280.jpg 1920w\" sizes=\"auto, (max-width: 2560px) 100vw, 2560px\">\u003cfigcaption class=\"wp-caption-text\">Kashiwada had to undergo eight rounds of chemotherapy and 20 sessions of radiation treatment to treat her breast cancer. \u003ccite>(Rich Pedroncelli for KFF Health News)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>Kashiwada spent months regaining strength after the radiation treatments. She returned to work but with a doctor’s instruction to avoid lifting heavy objects.\u003c/p>\n\u003cp>Kashiwada had her final reconstructive surgery a few weeks before COVID-19 lockdowns began in 2020. But her treatment was not finished.\u003c/p>\n\u003cp>Her doctors had told her that estrogen fed her cancer, so they gave her medicine to put her through early menopause. The treatment was not as effective as they had hoped. Her doctor performed surgery in 2021 to remove her ovaries.\u003c/p>\n\u003cp>More recently, she was diagnosed with osteopenia and will start injections to stop bone loss.\u003c/p>\n\u003cp>Kashiwada said she has moved past many of the negative emotions she felt about her illness and wants other young women, including Asian American women like her, to be aware of their elevated risk.\u003c/p>\n\u003cp>“No matter how healthy you think you are, or you’re exercising, or whatever you’re doing, eating well, which is all the things I was doing — I would say it does not make you invincible or immune,” she said. “Not to say that you should be afraid of everything, but just be very in tune with your body and what your body’s telling you.”\u003c/p>\n\u003cp>\u003cem>Phillip Reese is a data reporting specialist and an associate professor of journalism at California State University-Sacramento.\u003c/em>\u003c/p>\n\u003cp>\u003cem>This article was produced by \u003c/em>\u003ca href=\"https://kffhealthnews.org/about-us\" target=\"_blank\" rel=\"noreferrer noopener\">\u003cem>KFF Health News\u003c/em>\u003c/a>\u003cem>, which publishes \u003c/em>\u003ca href=\"http://www.californiahealthline.org/\" target=\"_blank\" rel=\"noreferrer noopener\">\u003cem>California Healthline\u003c/em>\u003c/a>\u003cem>, an editorially independent service of the \u003c/em>\u003ca href=\"http://www.chcf.org/\" target=\"_blank\" rel=\"noreferrer noopener\">\u003cem>California Health Care Foundation\u003c/em>\u003c/a>\u003cem>.\u003c/em> \u003cem>Supplemental support comes from the \u003ca href=\"https://aaja-la.org/\" target=\"_blank\" rel=\"noreferrer noopener\">Asian American Journalists Association-Los Angeles\u003c/a> through \u003ca href=\"https://www.calendow.org/\" target=\"_blank\" rel=\"noreferrer noopener\">The California Endowment\u003c/a>.\u003c/em>\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cp>Donald Trump and \u003ca href=\"https://calmatters.org/tag/Kamala-Harris/\" target=\"_blank\" rel=\"noreferrer noopener\">Kamala Harris\u003c/a> stand far apart on most issues, and health care is no exception. The \u003ca href=\"https://calmatters.org/tag/election-2024/\" target=\"_blank\" rel=\"noreferrer noopener\">November election\u003c/a> carries major implications for Californians’ access to health care and the cost they pay for it.\u003c/p>\n\u003cp>While neither candidate has put forth a comprehensive \u003ca href=\"https://calmatters.org/tag/health-care/\" target=\"_blank\" rel=\"noreferrer noopener\">health care\u003c/a> agenda, both have track records from their respective time in the White House or previous posts that offer a glimpse on where they might stand on key health issues.\u003c/p>\n\u003cp>The cost of health care is a top concern for Californians and voters across the nation, millions of whom are saddled with medical debt or take less medication than prescribed because of the cost. While both candidates have acknowledged that health costs are a major burden to Americans, the difference will be in how they go about providing relief.\u003c/p>\n\u003cp>How the next president goes about strengthening — or chipping away — at the Affordable Care Act and abortion rights will also directly affect voters’ lives. Below are examples of both candidates’ records on key health issues and what they’ve promised to voters so far.\u003c/p>\n\u003ch3>The future of the Affordable Care Act\u003c/h3>\n\u003cp>\u003cstrong>TRUMP.\u003c/strong> Trump, as president, tried and failed to repeal the Affordable Care Act, the signature legislative achievement of his predecessor, Barack Obama. As recently as last year, Trump \u003ca href=\"https://www.nbcnews.com/politics/congress/trump-doubles-saying-obamacare-sucks-must-replaced-rcna126978\" target=\"_blank\" rel=\"noreferrer noopener\">vowed to try again if he’s reelected\u003c/a>.\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>The idea of overhauling the health law would be a much harder sell today than in Trump’s presidency, some experts say, because the law is generally more popular. Some Republicans who opposed the law in the past have come to accept that it is here to stay or have moved on to other issues.\u003c/p>\n\u003cp>Nowadays, Trump says he \u003ca href=\"https://www.nytimes.com/2024/04/11/us/politics/trump-biden-affordable-care-act.html\" target=\"_blank\" rel=\"noreferrer noopener\">wants to “improve” the Affordable Care Act\u003c/a> and make it “less expensive.” He hasn’t offered any details as to what that would entail, but experts say any changes would likely come in the form of chipping away at certain provisions of the law.\u003c/p>\n\u003cp>Trump, as president, made one major change to the Affordable Care Act: He signed a tax cut law that also eliminated a penalty levied on people without health insurance. The idea behind this provision of the Affordable Care Act was that a penalty, charged when people filed their income taxes, would encourage people to sign up for health insurance. And getting more people insured, especially the young and healthy, drives down the cost of coverage for everyone. Today, uninsured \u003ca href=\"https://calmatters.org/health/2024/03/california-health-insurance-penalty/\">Californians still pay a penalty\u003c/a> of up to $850 per adult because Gov. Gavin Newsom enacted a state version of this mandate.\u003c/p>\n\u003cp>\u003cstrong>HARRIS.\u003c/strong> During \u003ca href=\"https://kamalaharris.medium.com/my-plan-for-medicare-for-all-7730370dd421\">her 2019 presidential campaign\u003c/a>, Harris promoted a version of Medicare for All, a government-run single-payer system. Today, health policy experts expect Harris to continue the current administration’s efforts to promote and build on the Affordable Care Act rather than move the country toward a new system.\u003c/p>\n\u003cp>Some California lawmakers are still interested in exploring a single-payer-like health care system. Last year, \u003ca href=\"https://digitaldemocracy.calmatters.org/bills/ca_202320240sb770\">Newsom signed a law\u003c/a> directing the state to map out the next \u003ca href=\"https://calmatters.org/health/2023/07/single-payer-health-care/\">steps in creating a “unified financing” system\u003c/a> that would cover all Californians. Getting anywhere near this goal will require federal permission and resources, which are more likely to happen under a Harris administration, experts involved in these discussions say.\u003c/p>\n\u003cp>“A Harris presidency, I think, is going to view a waiver application from the state of California favorably,” said Gerald Kominski, a senior fellow at the UCLA Center for Health Policy Research, who has served as a consultant to a state commission exploring this issue. “It’s not to say that it will sail through…getting a waiver to pool federal and state funding is still going to be a challenge, but I think her administration is going to find a way to work with California to make it happen.”\u003c/p>\n\u003cp>More people than ever, \u003ca href=\"https://www.kff.org/policy-watch/where-aca-marketplace-enrollment-is-growing-the-fastest-and-why/\">21 million\u003c/a>, signed up for health insurance under \u003ca href=\"https://calmatters.org/tag/affordable-care-act/\">Affordable Care Act \u003c/a>exchanges in 2024. Marketplace officials across the country say that’s in part because of the increased premium subsidies made available under the COVID-19 relief laws known as the American Rescue Plan and later the Inflation Reduction Act. That enhanced financial aid is currently set to expire at the end of 2025. About 90% of enrollees in Covered California receive financial assistance. The odds of continuing that enhanced aid are better under a Harris administration, experts say.\u003c/p>\n\u003ch3>The cost of health care\u003c/h3>\n\u003cp>\u003cstrong>HARRIS.\u003c/strong> As attorney general of California, Harris went after large health companies by moving to restrict mergers and investigate anti-competitive behaviors that research shows can drive up the cost of care.\u003c/p>\n\u003cp>She launched an investigation into several California health systems, examining their market power and their influence on prices. That investigation led her successor, Attorney General Xavier Becerra, to file a lawsuit against Sutter Health, a nonprofit hospital and clinic system in Northern California. In the lawsuit, Becerra accused Sutter of using its market power to drive up prices in Northern California. In 2019, \u003ca href=\"https://californiahealthline.org/news/california-ag-details-historic-settlement-agreement-in-sutter-health-antitrust-case/\" target=\"_blank\" rel=\"noreferrer noopener\">Sutter settled the case for $575 million\u003c/a>, although it did not admit wrongdoing.\u003c/p>\n\u003cp>Harris has also taken a leading role in the current administration’s efforts to address the medical debt that burdens millions of families. In June, she proposed rules to remove medical debt from credit reports. California lawmakers \u003ca href=\"https://calmatters.org/health/2024/08/medical-debt-credit-score/\" target=\"_blank\" rel=\"noreferrer noopener\">have a similar proposal\u003c/a> currently sitting on Newsom’s desk. About 4 in 10 Californians report having some type of medical debt, according to the California Health Care Foundation.\u003c/p>\n\u003cp>Among Harris’ campaign promises: “Work with states to cancel medical debt for millions of Americans.” While she hasn’t said how exactly she plans to do this, her work with North Carolina Gov. Roy Cooper may offer a preview: Starting next year, North Carolina will roll out a program that incentivizes hospitals to forgive patients’ medical debt in exchange for additional Medicaid dollars.\u003c/p>\n\u003cp>\u003cstrong>TRUMP.\u003c/strong> Perhaps some of Trump’s most significant contributions to reining in health care costs came in the form of price transparency rules. He signed an executive order that led to requirements for hospitals to disclose prices for common services on their websites. And in 2020, Trump signed the \u003ca href=\"https://www.cms.gov/newsroom/fact-sheets/no-surprises-understand-your-rights-against-surprise-medical-bills\">No Surprises Act\u003c/a>, a law designed to protect consumers against surprise medical bills when receiving care from out-of-network providers. This often happens when people receive emergency care and are not in a position to choose their providers. Surprise medical bills\u003ca href=\"https://www.kff.org/health-costs/press-release/a-polling-surprise-americans-rank-unexpected-medical-bills-at-top-of-family-budget-worries/\" target=\"_blank\" rel=\"noreferrer noopener\"> tend to rank among the public’s top concerns\u003c/a>.\u003c/p>\n\u003cp>The Trump administration greenlit some major health care mergers, but it did so with certain conditions signaling some caution in approving such deals. One example — CVS Health’s $69 billion acquisition of insurance giant Aetna, one of the biggest health mergers of all time. Aetna and CVS Health were competitors in the sale of Medicare drug plans. As a condition to approve the merger, Trump’s Department of Justice required that Aetna sell part of its Medicare drug business to another company as a way to preserve competition.\u003c/p>\n\u003cp>“That one was really contentious, and it took a long time, but we definitely didn’t see a rubber stamp,” said Rachel Nuzum, senior vice president of policy at The Commonwealth Fund. “There was an acknowledgment that the size and scope of these mergers could be problematic for consumers.”\u003c/p>\n\u003ch3>Abortion in the 2024 election\u003c/h3>\n\u003cfigure id=\"attachment_12003015\" class=\"wp-caption aligncenter\" style=\"max-width: 2000px\">\u003ca href=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/Roe-Wade-Abortion-Protest-MG-07-CM-2.jpg\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-12003015\" src=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/Roe-Wade-Abortion-Protest-MG-07-CM-2.jpg\" alt=\"A crowd of people on the street march holding pink signs above their heads.\" width=\"2000\" height=\"1333\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/Roe-Wade-Abortion-Protest-MG-07-CM-2.jpg 2000w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/Roe-Wade-Abortion-Protest-MG-07-CM-2-800x533.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/Roe-Wade-Abortion-Protest-MG-07-CM-2-1020x680.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/Roe-Wade-Abortion-Protest-MG-07-CM-2-160x107.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/Roe-Wade-Abortion-Protest-MG-07-CM-2-1536x1024.jpg 1536w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/Roe-Wade-Abortion-Protest-MG-07-CM-2-1920x1280.jpg 1920w\" sizes=\"auto, (max-width: 2000px) 100vw, 2000px\">\u003c/a>\u003cfigcaption class=\"wp-caption-text\">Pro-abortion rights supporters marched in protest of a Supreme Court ruling that overturned Roe vs. Wade in Sacramento on June 25, 2022. \u003ccite>(Miguel Gutierrez Jr./CalMatters)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>\u003cstrong>TRUMP.\u003c/strong> No other health issue has received as much attention this election cycle as \u003ca href=\"https://calmatters.org/tag/abortion\">abortion and reproductive health\u003c/a>. In California, Democrats have tried to cement abortion rights into state law, and this is often the first issue they use to go after Trump. That’s because the Supreme Court justices he appointed made the difference in overturning the 1973 ruling that had protected abortion rights, Roe v. Wade.\u003c/p>\n\u003cp>Trump has given inconsistent messages about abortion rights. Earlier this year, Trump made headlines for suggesting that if he were reelected, he’d support \u003ca href=\"https://apnews.com/article/trump-abortion-ban-15-weeks-91a9e0ce87d11dff0fa761f327bd0566\">a national ban on abortion\u003c/a> at 15 weeks of pregnancy. A few weeks later, he changed his tune, saying abortion \u003ca href=\"https://www.politico.com/news/2024/04/08/trump-says-abortion-is-up-to-the-states-declines-to-endorse-national-limit-00151022\">should be left up to the states\u003c/a>. He has indicated that he would not ban mail delivery of medication abortion pills and has said he wants insurance \u003ca href=\"https://www.latimes.com/politics/story/2024-08-29/trump-calls-for-universal-coverage-of-ivf-treatment-with-no-specifics-on-how-his-plan-would-work\">to cover the cost of in vitro fertilization treatment, or IVF\u003c/a>, “because we want more babies.”\u003c/p>\n\u003cp>\u003cstrong>HARRIS. \u003c/strong>Harris has leaned heavily into\u003ca href=\"https://calmatters.org/explainers/abortion-in-california-laws/\"> abortion and reproductive rights\u003c/a>, an issue she has remained consistent on throughout her career. She is often the voice and face for reproductive health in Biden’s administration and has expressed support for restoring abortion access through federal law.\u003c/p>\n\u003cp>As vice president, she launched a nationwide tour to promote reproductive rights with events across the country. It included a visit to a Planned Parenthood clinic, reportedly\u003ca href=\"https://www.plannedparenthoodaction.org/tipsheets/the-quickie-kamala-harris-makes-history-as-first-vice-president-to-tour-a-planned-parenthood-health-center\"> the first ever such visit\u003c/a> by a sitting VP or president.\u003c/p>\n\u003cp>As attorney general in California, Harris sponsored state law that aimed to regulate crisis pregnancy centers. These are often religiously affiliated and known for trying to prevent women from getting abortions. The law required these centers to display a notice letting people know that comprehensive family planning services, including contraception and abortion, were available through state programs. The U.S. Supreme Court eventually overturned that law.\u003c/p>\n\u003ch3>How they’d curb prescription drug prices\u003c/h3>\n\u003cfigure id=\"attachment_12003013\" class=\"wp-caption aligncenter\" style=\"max-width: 2000px\">\u003ca href=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/092619_laclinica_AW_CM_05.jpg\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-12003013\" src=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/092619_laclinica_AW_CM_05.jpg\" alt=\"A view of various medications in a pharmacy with a person wearing a lab coat in the background.\" width=\"2000\" height=\"1333\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/092619_laclinica_AW_CM_05.jpg 2000w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/092619_laclinica_AW_CM_05-800x533.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/092619_laclinica_AW_CM_05-1020x680.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/092619_laclinica_AW_CM_05-160x107.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/092619_laclinica_AW_CM_05-1536x1024.jpg 1536w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/092619_laclinica_AW_CM_05-1920x1280.jpg 1920w\" sizes=\"auto, (max-width: 2000px) 100vw, 2000px\">\u003c/a>\u003cfigcaption class=\"wp-caption-text\">Shelves full of prescription medication at La Clinic pharmacy in Oakland on Sept. 26, 2019. \u003ccite>(Anne Wernikoff/CalMatters)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>\u003cstrong>TRUMP. \u003c/strong>Trump often takes credit for lowering the price of insulin for millions of Americans — \u003ca href=\"https://www.politifact.com/factchecks/2024/jul/12/donald-trump/trump-wrong-in-claiming-full-credit-for-lowering-i/\">but that’s not totally accurate\u003c/a>. What his administration did was establish a temporary program known as the \u003ca href=\"https://www.cms.gov/priorities/innovation/innovation-models/part-d-savings-model\">Part D Senior Savings Model\u003c/a>. This program reduced copayments for insulin to $35 a month for about 800,000 seniors on certain Medicare plans. It lasted two years, expiring at the end of 2023. \u003ca href=\"https://www.kff.org/policy-watch/the-facts-about-the-35-insulin-copay-cap-in-medicare/\">The Biden administration went further\u003c/a> in the Inflation Reduction Act, which included a provision that capped insulin copay prices at $35 a month for about 3.3 million Medicare beneficiaries.[aside postID=\"news_12001799,news_11997351,news_12002132\" label=\"Related Stories\"]\u003c/p>\n\u003cp>Trump also took the first steps to allow states \u003ca href=\"https://www.nytimes.com/2019/12/18/health/drug-prices-imports-canada.html\">to import prescription drugs from Canada\u003c/a> as a way to increase competition and lower drug prices. The pharmaceutical industry and \u003ca href=\"https://www.reuters.com/business/healthcare-pharmaceuticals/canada-says-bulk-importation-not-an-effective-solution-high-drug-prices-us-2024-01-08/\">the Canadian government heavily opposed this move\u003c/a>. This idea came to fruition earlier this year when the FDA approved Florida’s plan to import prescription drugs to treat HIV/AIDS, mental illness and prostate cancer. Florida Gov. Ron DeSantis said that importing medications from Canada will \u003ca href=\"https://www.flgov.com/2024/01/05/florida-becomes-first-in-the-nation-to-have-canadian-drug-importation-program-approved-by-fda/\">save the state about $180 million\u003c/a> in year one.\u003c/p>\n\u003cp>\u003cstrong>HARRIS. \u003c/strong>In addition to expanding insulin copay caps to more seniors, Biden-Harris’ Inflation Reduction Act also directed the agency to negotiate drug prices with manufacturers for certain high-cost drugs covered under Medicare. The \u003ca href=\"https://www.cms.gov/files/document/fact-sheet-medicare-selected-drug-negotiation-list-ipay-2026.pdf\">10 drugs in the first round of negotiations\u003c/a> included medications to treat diabetes, heart failure, blood clots and rheumatoid arthritis. The negotiations resulted in discounts between 38% to 79%. The new negotiated prices are set to go into effect in 2026.\u003c/p>\n\u003cp>The Inflation Reduction Act — for which Harris likes to remind voters she cast the tie-breaking vote — also caps the total annual out-of-pocket drug spending for people on Medicare. This means that starting in 2025, seniors will pay no more than $2,000 a year for all their medications. About 3.2 million Medicare beneficiaries are expected to reach this limit in 2025, \u003ca href=\"https://states.aarp.org/california/new-aarp-report-impact-of-historic-medicare-rx-out-of-pocket-spending-cap-on-california-seniors\">including 271,000 in California\u003c/a>, according to recent estimates from the AARP.\u003c/p>\n\u003cp>Harris has said she wants to expand these cost-saving efforts to everyone, not just seniors. \u003ca href=\"https://mailchi.mp/press.kamalaharris.com/vice-president-harris-lays-out-agenda-to-lower-costs-for-american-families\">She has also pledged\u003c/a> to go after drug companies and \u003ca href=\"https://calmatters.org/health/2024/08/pharmacy-benefit-manager/\">pharmaceutical middlemen\u003c/a> that thwart competition and drive up costs.\u003c/p>\n\u003cp>[ad floatright]\u003c/p>\n\u003cp>\u003cem>Supported by the California Health Care Foundation (CHCF), which works to ensure that people have access to the care they need, when they need it, at a price they can afford. Visit www.chcf.org to learn more.\u003c/em>\u003c/p>\n\n",
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"excerpt": "Kamala Harris investigated the market power of huge California health care companies. Donald Trump compelled hospitals to disclose prices. Here’s a look at their 2024 priorities on health.",
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"title": "How Will California Health Care Change Under Trump or Harris? Here’s What Their Records Show | KQED",
"description": "Kamala Harris investigated the market power of huge California health care companies. Donald Trump compelled hospitals to disclose prices. Here’s a look at their 2024 priorities on health.",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003cp>Donald Trump and \u003ca href=\"https://calmatters.org/tag/Kamala-Harris/\" target=\"_blank\" rel=\"noreferrer noopener\">Kamala Harris\u003c/a> stand far apart on most issues, and health care is no exception. The \u003ca href=\"https://calmatters.org/tag/election-2024/\" target=\"_blank\" rel=\"noreferrer noopener\">November election\u003c/a> carries major implications for Californians’ access to health care and the cost they pay for it.\u003c/p>\n\u003cp>While neither candidate has put forth a comprehensive \u003ca href=\"https://calmatters.org/tag/health-care/\" target=\"_blank\" rel=\"noreferrer noopener\">health care\u003c/a> agenda, both have track records from their respective time in the White House or previous posts that offer a glimpse on where they might stand on key health issues.\u003c/p>\n\u003cp>The cost of health care is a top concern for Californians and voters across the nation, millions of whom are saddled with medical debt or take less medication than prescribed because of the cost. While both candidates have acknowledged that health costs are a major burden to Americans, the difference will be in how they go about providing relief.\u003c/p>\n\u003cp>How the next president goes about strengthening — or chipping away — at the Affordable Care Act and abortion rights will also directly affect voters’ lives. Below are examples of both candidates’ records on key health issues and what they’ve promised to voters so far.\u003c/p>\n\u003ch3>The future of the Affordable Care Act\u003c/h3>\n\u003cp>\u003cstrong>TRUMP.\u003c/strong> Trump, as president, tried and failed to repeal the Affordable Care Act, the signature legislative achievement of his predecessor, Barack Obama. As recently as last year, Trump \u003ca href=\"https://www.nbcnews.com/politics/congress/trump-doubles-saying-obamacare-sucks-must-replaced-rcna126978\" target=\"_blank\" rel=\"noreferrer noopener\">vowed to try again if he’s reelected\u003c/a>.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>The idea of overhauling the health law would be a much harder sell today than in Trump’s presidency, some experts say, because the law is generally more popular. Some Republicans who opposed the law in the past have come to accept that it is here to stay or have moved on to other issues.\u003c/p>\n\u003cp>Nowadays, Trump says he \u003ca href=\"https://www.nytimes.com/2024/04/11/us/politics/trump-biden-affordable-care-act.html\" target=\"_blank\" rel=\"noreferrer noopener\">wants to “improve” the Affordable Care Act\u003c/a> and make it “less expensive.” He hasn’t offered any details as to what that would entail, but experts say any changes would likely come in the form of chipping away at certain provisions of the law.\u003c/p>\n\u003cp>Trump, as president, made one major change to the Affordable Care Act: He signed a tax cut law that also eliminated a penalty levied on people without health insurance. The idea behind this provision of the Affordable Care Act was that a penalty, charged when people filed their income taxes, would encourage people to sign up for health insurance. And getting more people insured, especially the young and healthy, drives down the cost of coverage for everyone. Today, uninsured \u003ca href=\"https://calmatters.org/health/2024/03/california-health-insurance-penalty/\">Californians still pay a penalty\u003c/a> of up to $850 per adult because Gov. Gavin Newsom enacted a state version of this mandate.\u003c/p>\n\u003cp>\u003cstrong>HARRIS.\u003c/strong> During \u003ca href=\"https://kamalaharris.medium.com/my-plan-for-medicare-for-all-7730370dd421\">her 2019 presidential campaign\u003c/a>, Harris promoted a version of Medicare for All, a government-run single-payer system. Today, health policy experts expect Harris to continue the current administration’s efforts to promote and build on the Affordable Care Act rather than move the country toward a new system.\u003c/p>\n\u003cp>Some California lawmakers are still interested in exploring a single-payer-like health care system. Last year, \u003ca href=\"https://digitaldemocracy.calmatters.org/bills/ca_202320240sb770\">Newsom signed a law\u003c/a> directing the state to map out the next \u003ca href=\"https://calmatters.org/health/2023/07/single-payer-health-care/\">steps in creating a “unified financing” system\u003c/a> that would cover all Californians. Getting anywhere near this goal will require federal permission and resources, which are more likely to happen under a Harris administration, experts involved in these discussions say.\u003c/p>\n\u003cp>“A Harris presidency, I think, is going to view a waiver application from the state of California favorably,” said Gerald Kominski, a senior fellow at the UCLA Center for Health Policy Research, who has served as a consultant to a state commission exploring this issue. “It’s not to say that it will sail through…getting a waiver to pool federal and state funding is still going to be a challenge, but I think her administration is going to find a way to work with California to make it happen.”\u003c/p>\n\u003cp>More people than ever, \u003ca href=\"https://www.kff.org/policy-watch/where-aca-marketplace-enrollment-is-growing-the-fastest-and-why/\">21 million\u003c/a>, signed up for health insurance under \u003ca href=\"https://calmatters.org/tag/affordable-care-act/\">Affordable Care Act \u003c/a>exchanges in 2024. Marketplace officials across the country say that’s in part because of the increased premium subsidies made available under the COVID-19 relief laws known as the American Rescue Plan and later the Inflation Reduction Act. That enhanced financial aid is currently set to expire at the end of 2025. About 90% of enrollees in Covered California receive financial assistance. The odds of continuing that enhanced aid are better under a Harris administration, experts say.\u003c/p>\n\u003ch3>The cost of health care\u003c/h3>\n\u003cp>\u003cstrong>HARRIS.\u003c/strong> As attorney general of California, Harris went after large health companies by moving to restrict mergers and investigate anti-competitive behaviors that research shows can drive up the cost of care.\u003c/p>\n\u003cp>She launched an investigation into several California health systems, examining their market power and their influence on prices. That investigation led her successor, Attorney General Xavier Becerra, to file a lawsuit against Sutter Health, a nonprofit hospital and clinic system in Northern California. In the lawsuit, Becerra accused Sutter of using its market power to drive up prices in Northern California. In 2019, \u003ca href=\"https://californiahealthline.org/news/california-ag-details-historic-settlement-agreement-in-sutter-health-antitrust-case/\" target=\"_blank\" rel=\"noreferrer noopener\">Sutter settled the case for $575 million\u003c/a>, although it did not admit wrongdoing.\u003c/p>\n\u003cp>Harris has also taken a leading role in the current administration’s efforts to address the medical debt that burdens millions of families. In June, she proposed rules to remove medical debt from credit reports. California lawmakers \u003ca href=\"https://calmatters.org/health/2024/08/medical-debt-credit-score/\" target=\"_blank\" rel=\"noreferrer noopener\">have a similar proposal\u003c/a> currently sitting on Newsom’s desk. About 4 in 10 Californians report having some type of medical debt, according to the California Health Care Foundation.\u003c/p>\n\u003cp>Among Harris’ campaign promises: “Work with states to cancel medical debt for millions of Americans.” While she hasn’t said how exactly she plans to do this, her work with North Carolina Gov. Roy Cooper may offer a preview: Starting next year, North Carolina will roll out a program that incentivizes hospitals to forgive patients’ medical debt in exchange for additional Medicaid dollars.\u003c/p>\n\u003cp>\u003cstrong>TRUMP.\u003c/strong> Perhaps some of Trump’s most significant contributions to reining in health care costs came in the form of price transparency rules. He signed an executive order that led to requirements for hospitals to disclose prices for common services on their websites. And in 2020, Trump signed the \u003ca href=\"https://www.cms.gov/newsroom/fact-sheets/no-surprises-understand-your-rights-against-surprise-medical-bills\">No Surprises Act\u003c/a>, a law designed to protect consumers against surprise medical bills when receiving care from out-of-network providers. This often happens when people receive emergency care and are not in a position to choose their providers. Surprise medical bills\u003ca href=\"https://www.kff.org/health-costs/press-release/a-polling-surprise-americans-rank-unexpected-medical-bills-at-top-of-family-budget-worries/\" target=\"_blank\" rel=\"noreferrer noopener\"> tend to rank among the public’s top concerns\u003c/a>.\u003c/p>\n\u003cp>The Trump administration greenlit some major health care mergers, but it did so with certain conditions signaling some caution in approving such deals. One example — CVS Health’s $69 billion acquisition of insurance giant Aetna, one of the biggest health mergers of all time. Aetna and CVS Health were competitors in the sale of Medicare drug plans. As a condition to approve the merger, Trump’s Department of Justice required that Aetna sell part of its Medicare drug business to another company as a way to preserve competition.\u003c/p>\n\u003cp>“That one was really contentious, and it took a long time, but we definitely didn’t see a rubber stamp,” said Rachel Nuzum, senior vice president of policy at The Commonwealth Fund. “There was an acknowledgment that the size and scope of these mergers could be problematic for consumers.”\u003c/p>\n\u003ch3>Abortion in the 2024 election\u003c/h3>\n\u003cfigure id=\"attachment_12003015\" class=\"wp-caption aligncenter\" style=\"max-width: 2000px\">\u003ca href=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/Roe-Wade-Abortion-Protest-MG-07-CM-2.jpg\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-12003015\" src=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/Roe-Wade-Abortion-Protest-MG-07-CM-2.jpg\" alt=\"A crowd of people on the street march holding pink signs above their heads.\" width=\"2000\" height=\"1333\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/Roe-Wade-Abortion-Protest-MG-07-CM-2.jpg 2000w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/Roe-Wade-Abortion-Protest-MG-07-CM-2-800x533.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/Roe-Wade-Abortion-Protest-MG-07-CM-2-1020x680.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/Roe-Wade-Abortion-Protest-MG-07-CM-2-160x107.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/Roe-Wade-Abortion-Protest-MG-07-CM-2-1536x1024.jpg 1536w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/Roe-Wade-Abortion-Protest-MG-07-CM-2-1920x1280.jpg 1920w\" sizes=\"auto, (max-width: 2000px) 100vw, 2000px\">\u003c/a>\u003cfigcaption class=\"wp-caption-text\">Pro-abortion rights supporters marched in protest of a Supreme Court ruling that overturned Roe vs. Wade in Sacramento on June 25, 2022. \u003ccite>(Miguel Gutierrez Jr./CalMatters)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>\u003cstrong>TRUMP.\u003c/strong> No other health issue has received as much attention this election cycle as \u003ca href=\"https://calmatters.org/tag/abortion\">abortion and reproductive health\u003c/a>. In California, Democrats have tried to cement abortion rights into state law, and this is often the first issue they use to go after Trump. That’s because the Supreme Court justices he appointed made the difference in overturning the 1973 ruling that had protected abortion rights, Roe v. Wade.\u003c/p>\n\u003cp>Trump has given inconsistent messages about abortion rights. Earlier this year, Trump made headlines for suggesting that if he were reelected, he’d support \u003ca href=\"https://apnews.com/article/trump-abortion-ban-15-weeks-91a9e0ce87d11dff0fa761f327bd0566\">a national ban on abortion\u003c/a> at 15 weeks of pregnancy. A few weeks later, he changed his tune, saying abortion \u003ca href=\"https://www.politico.com/news/2024/04/08/trump-says-abortion-is-up-to-the-states-declines-to-endorse-national-limit-00151022\">should be left up to the states\u003c/a>. He has indicated that he would not ban mail delivery of medication abortion pills and has said he wants insurance \u003ca href=\"https://www.latimes.com/politics/story/2024-08-29/trump-calls-for-universal-coverage-of-ivf-treatment-with-no-specifics-on-how-his-plan-would-work\">to cover the cost of in vitro fertilization treatment, or IVF\u003c/a>, “because we want more babies.”\u003c/p>\n\u003cp>\u003cstrong>HARRIS. \u003c/strong>Harris has leaned heavily into\u003ca href=\"https://calmatters.org/explainers/abortion-in-california-laws/\"> abortion and reproductive rights\u003c/a>, an issue she has remained consistent on throughout her career. She is often the voice and face for reproductive health in Biden’s administration and has expressed support for restoring abortion access through federal law.\u003c/p>\n\u003cp>As vice president, she launched a nationwide tour to promote reproductive rights with events across the country. It included a visit to a Planned Parenthood clinic, reportedly\u003ca href=\"https://www.plannedparenthoodaction.org/tipsheets/the-quickie-kamala-harris-makes-history-as-first-vice-president-to-tour-a-planned-parenthood-health-center\"> the first ever such visit\u003c/a> by a sitting VP or president.\u003c/p>\n\u003cp>As attorney general in California, Harris sponsored state law that aimed to regulate crisis pregnancy centers. These are often religiously affiliated and known for trying to prevent women from getting abortions. The law required these centers to display a notice letting people know that comprehensive family planning services, including contraception and abortion, were available through state programs. The U.S. Supreme Court eventually overturned that law.\u003c/p>\n\u003ch3>How they’d curb prescription drug prices\u003c/h3>\n\u003cfigure id=\"attachment_12003013\" class=\"wp-caption aligncenter\" style=\"max-width: 2000px\">\u003ca href=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/092619_laclinica_AW_CM_05.jpg\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-12003013\" src=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/092619_laclinica_AW_CM_05.jpg\" alt=\"A view of various medications in a pharmacy with a person wearing a lab coat in the background.\" width=\"2000\" height=\"1333\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/092619_laclinica_AW_CM_05.jpg 2000w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/092619_laclinica_AW_CM_05-800x533.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/092619_laclinica_AW_CM_05-1020x680.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/092619_laclinica_AW_CM_05-160x107.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/092619_laclinica_AW_CM_05-1536x1024.jpg 1536w, https://cdn.kqed.org/wp-content/uploads/sites/10/2024/09/092619_laclinica_AW_CM_05-1920x1280.jpg 1920w\" sizes=\"auto, (max-width: 2000px) 100vw, 2000px\">\u003c/a>\u003cfigcaption class=\"wp-caption-text\">Shelves full of prescription medication at La Clinic pharmacy in Oakland on Sept. 26, 2019. \u003ccite>(Anne Wernikoff/CalMatters)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>\u003cstrong>TRUMP. \u003c/strong>Trump often takes credit for lowering the price of insulin for millions of Americans — \u003ca href=\"https://www.politifact.com/factchecks/2024/jul/12/donald-trump/trump-wrong-in-claiming-full-credit-for-lowering-i/\">but that’s not totally accurate\u003c/a>. What his administration did was establish a temporary program known as the \u003ca href=\"https://www.cms.gov/priorities/innovation/innovation-models/part-d-savings-model\">Part D Senior Savings Model\u003c/a>. This program reduced copayments for insulin to $35 a month for about 800,000 seniors on certain Medicare plans. It lasted two years, expiring at the end of 2023. \u003ca href=\"https://www.kff.org/policy-watch/the-facts-about-the-35-insulin-copay-cap-in-medicare/\">The Biden administration went further\u003c/a> in the Inflation Reduction Act, which included a provision that capped insulin copay prices at $35 a month for about 3.3 million Medicare beneficiaries.\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>Trump also took the first steps to allow states \u003ca href=\"https://www.nytimes.com/2019/12/18/health/drug-prices-imports-canada.html\">to import prescription drugs from Canada\u003c/a> as a way to increase competition and lower drug prices. The pharmaceutical industry and \u003ca href=\"https://www.reuters.com/business/healthcare-pharmaceuticals/canada-says-bulk-importation-not-an-effective-solution-high-drug-prices-us-2024-01-08/\">the Canadian government heavily opposed this move\u003c/a>. This idea came to fruition earlier this year when the FDA approved Florida’s plan to import prescription drugs to treat HIV/AIDS, mental illness and prostate cancer. Florida Gov. Ron DeSantis said that importing medications from Canada will \u003ca href=\"https://www.flgov.com/2024/01/05/florida-becomes-first-in-the-nation-to-have-canadian-drug-importation-program-approved-by-fda/\">save the state about $180 million\u003c/a> in year one.\u003c/p>\n\u003cp>\u003cstrong>HARRIS. \u003c/strong>In addition to expanding insulin copay caps to more seniors, Biden-Harris’ Inflation Reduction Act also directed the agency to negotiate drug prices with manufacturers for certain high-cost drugs covered under Medicare. The \u003ca href=\"https://www.cms.gov/files/document/fact-sheet-medicare-selected-drug-negotiation-list-ipay-2026.pdf\">10 drugs in the first round of negotiations\u003c/a> included medications to treat diabetes, heart failure, blood clots and rheumatoid arthritis. The negotiations resulted in discounts between 38% to 79%. The new negotiated prices are set to go into effect in 2026.\u003c/p>\n\u003cp>The Inflation Reduction Act — for which Harris likes to remind voters she cast the tie-breaking vote — also caps the total annual out-of-pocket drug spending for people on Medicare. This means that starting in 2025, seniors will pay no more than $2,000 a year for all their medications. About 3.2 million Medicare beneficiaries are expected to reach this limit in 2025, \u003ca href=\"https://states.aarp.org/california/new-aarp-report-impact-of-historic-medicare-rx-out-of-pocket-spending-cap-on-california-seniors\">including 271,000 in California\u003c/a>, according to recent estimates from the AARP.\u003c/p>\n\u003cp>Harris has said she wants to expand these cost-saving efforts to everyone, not just seniors. \u003ca href=\"https://mailchi.mp/press.kamalaharris.com/vice-president-harris-lays-out-agenda-to-lower-costs-for-american-families\">She has also pledged\u003c/a> to go after drug companies and \u003ca href=\"https://calmatters.org/health/2024/08/pharmacy-benefit-manager/\">pharmaceutical middlemen\u003c/a> that thwart competition and drive up costs.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>\u003cem>Supported by the California Health Care Foundation (CHCF), which works to ensure that people have access to the care they need, when they need it, at a price they can afford. Visit www.chcf.org to learn more.\u003c/em>\u003c/p>\n\n\u003c/div>\u003c/p>",
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"slug": "san-francisco-breaks-the-zyn-ternet-with-lawsuit-against-flavored-nicotine-sales",
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"content": "\u003cp>\u003ca href=\"https://www.kqed.org/news/tag/san-francisco\">San Francisco\u003c/a> is killing tobacco sellers’ buzz with a new lawsuit over the sale of flavored Zyns and other smokeless tobacco pouches that users tuck between their lips and gums for a nicotine fix.\u003c/p>\n\u003cp>The lawsuit targets several online vendors that the city attorney’s office accuses of flouting state and local laws aimed at preventing kids from getting hooked on tobacco products. Unflavored nicotine pouches, which are sold at corner stores and head shops throughout the city, are still available for online purchase.\u003c/p>\n\u003cp>“We will not allow decades of progress reducing youth tobacco to be unraveled. These products are not welcome here. We are taking decisive action against these retailers for selling these products to San Franciscans,” City Attorney David Chiu said.\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>The suit, filed Tuesday in San Francisco County Superior Court, alleges that Northerner Scandinavia, Lucy Goods, Rogue Holdings and Swisher International sell flavored nicotine products online to San Franciscans despite the ban, which the city began enforcing in 2019. California followed suit \u003ca href=\"https://www.kqed.org/news/11972039/californias-ban-on-flavored-tobacco-upheld-by-u-s-supreme-court\">with a statewide ban\u003c/a> in 2022.\u003c/p>\n\u003cp>“Tobacco products are much more attractive to young people when they are flavored,” the complaint argues. “And teenagers believe that it is easy to access flavored tobacco products from the internet.”\u003c/p>\n\u003cp>Nicotine pouches are particularly appealing to youth given the low cost and attractive flavors, and recent studies have found that more children are trying and using them. The 2023 California Youth Tobacco Survey found nicotine pouches are the second most common form of tobacco use among California eighth-graders.\u003c/p>\n\u003cp>[aside postID=news_11983224 hero='https://cdn.kqed.org/wp-content/uploads/sites/10/2024/04/GettyImages-1486127435-1020x680.jpg']\u003c/p>\n\u003cp>“While the products evolve, the strategy is the same: targeting young people to be their next generation of consumers using bright colors and sweet flavors,” said Fahad Qurashi, chief program officer of the Bay Area-based Youth Leadership Institute.\u003c/p>\n\u003cp>The lawsuit also cites a\u003ca href=\"https://tobaccocontrol.bmj.com/content/early/2023/11/01/tc-2023-058269\"> November 2023 report\u003c/a> from researchers at UC San Diego that suggests action by California and local jurisdictions to prohibit the sale of flavored tobacco products at brick-and-mortar retailers has led to increased online sales of the products.\u003c/p>\n\u003cp>“This is why we want to make it very clear that we will enforce these laws against online retailers to stop their sales into San Francisco,” Chiu said. “We think that is key to protecting our next generation from these dangerous products.”\u003c/p>\n\u003cp>The companies cited in the lawsuit did not respond to requests for comment.\u003c/p>\n\u003cp>San Francisco has a history of being at the forefront of flavored tobacco prohibition. In 2019, the city became \u003ca href=\"https://www.kqed.org/futureofyou/441395/sf-voters-may-ban-vape-flavors-menthol-cigarettes\">the first in the nation\u003c/a> to ban all flavored tobacco products from store shelves, including the formerly popular Juul vape, as well as conventional menthol cigarettes.\u003c/p>\n\u003cp>In 2018, about 11% of high school students in San Francisco were regular users of vapes, according to the California Youth Tobacco Survey.\u003c/p>\n\u003cp>San Francisco Unified was among thousands of cities, counties and other school districts \u003ca href=\"https://www.kqed.org/news/11787277/california-sues-e-cigarette-maker-juul-alleges-it-deliberately-marketed-to-teens\">to sue tobacco companies over marketing\u003c/a> and advertising e-cigarettes to youth in 2019, with many of the cases merging into a class-action suit and leading to a $1.2 billion settlement nationwide.\u003c/p>\n\u003cp>Following the citywide ban and lawsuit, vaping among youth in the city declined. By 2022, less than 6% of high school students were vaping regularly, the survey found.\u003c/p>\n\u003cp>\u003cem>KQED’s \u003c/em>\u003ca href=\"https://www.kqed.org/author/ahall\">\u003cem>Alex Hall\u003c/em>\u003c/a>\u003cem> contributed to this report.\u003c/em>\u003c/p>\n\u003cp>\u003c/p>\n",
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"excerpt": "The city attorney is suing four tobacco retailers accused of selling Zyns and other flavored nicotine pouches online to San Franciscans in violation of the city’s ban.",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003cp>\u003ca href=\"https://www.kqed.org/news/tag/san-francisco\">San Francisco\u003c/a> is killing tobacco sellers’ buzz with a new lawsuit over the sale of flavored Zyns and other smokeless tobacco pouches that users tuck between their lips and gums for a nicotine fix.\u003c/p>\n\u003cp>The lawsuit targets several online vendors that the city attorney’s office accuses of flouting state and local laws aimed at preventing kids from getting hooked on tobacco products. Unflavored nicotine pouches, which are sold at corner stores and head shops throughout the city, are still available for online purchase.\u003c/p>\n\u003cp>“We will not allow decades of progress reducing youth tobacco to be unraveled. These products are not welcome here. We are taking decisive action against these retailers for selling these products to San Franciscans,” City Attorney David Chiu said.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>The suit, filed Tuesday in San Francisco County Superior Court, alleges that Northerner Scandinavia, Lucy Goods, Rogue Holdings and Swisher International sell flavored nicotine products online to San Franciscans despite the ban, which the city began enforcing in 2019. California followed suit \u003ca href=\"https://www.kqed.org/news/11972039/californias-ban-on-flavored-tobacco-upheld-by-u-s-supreme-court\">with a statewide ban\u003c/a> in 2022.\u003c/p>\n\u003cp>“Tobacco products are much more attractive to young people when they are flavored,” the complaint argues. “And teenagers believe that it is easy to access flavored tobacco products from the internet.”\u003c/p>\n\u003cp>Nicotine pouches are particularly appealing to youth given the low cost and attractive flavors, and recent studies have found that more children are trying and using them. The 2023 California Youth Tobacco Survey found nicotine pouches are the second most common form of tobacco use among California eighth-graders.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>“While the products evolve, the strategy is the same: targeting young people to be their next generation of consumers using bright colors and sweet flavors,” said Fahad Qurashi, chief program officer of the Bay Area-based Youth Leadership Institute.\u003c/p>\n\u003cp>The lawsuit also cites a\u003ca href=\"https://tobaccocontrol.bmj.com/content/early/2023/11/01/tc-2023-058269\"> November 2023 report\u003c/a> from researchers at UC San Diego that suggests action by California and local jurisdictions to prohibit the sale of flavored tobacco products at brick-and-mortar retailers has led to increased online sales of the products.\u003c/p>\n\u003cp>“This is why we want to make it very clear that we will enforce these laws against online retailers to stop their sales into San Francisco,” Chiu said. “We think that is key to protecting our next generation from these dangerous products.”\u003c/p>\n\u003cp>The companies cited in the lawsuit did not respond to requests for comment.\u003c/p>\n\u003cp>San Francisco has a history of being at the forefront of flavored tobacco prohibition. In 2019, the city became \u003ca href=\"https://www.kqed.org/futureofyou/441395/sf-voters-may-ban-vape-flavors-menthol-cigarettes\">the first in the nation\u003c/a> to ban all flavored tobacco products from store shelves, including the formerly popular Juul vape, as well as conventional menthol cigarettes.\u003c/p>\n\u003cp>In 2018, about 11% of high school students in San Francisco were regular users of vapes, according to the California Youth Tobacco Survey.\u003c/p>\n\u003cp>San Francisco Unified was among thousands of cities, counties and other school districts \u003ca href=\"https://www.kqed.org/news/11787277/california-sues-e-cigarette-maker-juul-alleges-it-deliberately-marketed-to-teens\">to sue tobacco companies over marketing\u003c/a> and advertising e-cigarettes to youth in 2019, with many of the cases merging into a class-action suit and leading to a $1.2 billion settlement nationwide.\u003c/p>\n\u003cp>Following the citywide ban and lawsuit, vaping among youth in the city declined. By 2022, less than 6% of high school students were vaping regularly, the survey found.\u003c/p>\n\u003cp>\u003cem>KQED’s \u003c/em>\u003ca href=\"https://www.kqed.org/author/ahall\">\u003cem>Alex Hall\u003c/em>\u003c/a>\u003cem> contributed to this report.\u003c/em>\u003c/p>\n\u003cp>\u003c/p>\n\u003c/div>\u003c/p>",
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"content": "\u003cp>\u003cem>Updated 1:50 p.m. Wednesday\u003c/em>\u003c/p>\n\u003cp>After a handful of people initially reported getting \u003ca href=\"https://www.kqed.org/news/12001154/valley-fever-rises-after-california-music-festival-experts-warn-of-climate-change-link\">valley fever at a Kern County music festival\u003c/a> in May, California public health officials say the number of cases linked to the event nearly quadrupled in a month.\u003c/p>\n\u003cp>In late July, the California Department of Public Health announced that five attendees of Lightning in a Bottle tested positive, and three were hospitalized with symptoms. Last week, the department said that \u003ca href=\"https://www.cdph.ca.gov/Programs/OPA/Pages/NR24-22.aspx\">as of Aug. 21\u003c/a>, the number of confirmed cases linked to the festival is at least 19, including eight hospitalizations.\u003c/p>\n\u003cp>The actual number of people infected is likely higher since \u003ca href=\"https://www.kqed.org/news/12001920/valley-fever-in-california-symptoms-protecting-yourself-and-why-cases-are-way-up\">valley fever symptoms\u003c/a> — cough, fever, chest pain and fatigue — can be confused with other common respiratory infections and COVID-19.\u003c/p>\n\u003cp>Valley fever is not contagious from person to person but infects people and animals who breathe in dust or dirt that contains fungal spores of coccidioides, or “cocci.” When this dust is blown up into the air, people in the area can inhale the cocci spores, which can infect the lungs.\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>State officials have warned that \u003ca href=\"https://www.kqed.org/news/12001920/valley-fever-in-california-symptoms-protecting-yourself-and-why-cases-are-way-up\">valley fever is on the rise\u003c/a> this year and being reported outside the Central Valley and Central Coast areas where it is traditionally most common. A music festival is somewhat of a perfect storm for the infection — dancing kicks loose dust containing the soil-dwelling fungus, and singing festival-goers breathe in the spores.\u003c/p>\n\u003cp>More than 20,000 people traveled from across the state and beyond to attend Lightning in a Bottle between May 22 and 27. Health officials are continuing to investigate the cases linked to the festival.\u003c/p>\n\u003cp>Following news stories about the cases, multiple \u003ca href=\"https://www.reddit.com/r/LightningInABottle/comments/1efxmgw/festival_is_hit_with_deadly_fungus_outbreak_that/\">Reddit users\u003c/a> discussing the festival reported feeling sick, and some say that getting a test for the infection has been difficult.\u003c/p>\n\u003cp>Lightning in a Bottle organizers told KQED that health and safety are a primary concern and that the festival adheres to guidance from the Centers for Disease Control and Prevention, CDPH and local authorities.\u003c/p>\n\u003cp>“We, like other large scale gatherings in the region, will continue to seek out the most up to date health and safety guidance made available to us as we plan for future events,” organizers said in a statement.\u003c/p>\n\u003cp>“You really have to advocate to get tested,” one said. Another reported having symptoms since two weeks after the festival but said they were turned away from the doctor’s office without a test.\u003c/p>\n\u003cp>[aside postID=news_12001920 hero='https://cdn.kqed.org/wp-content/uploads/sites/10/2024/08/GettyImages-1386022781.jpg']\u003c/p>\n\u003cp>State medical officials are warning of an increased risk of valley fever infection this fall, the high season throughout Central California. The disease has spread more rapidly this year so far than in previous years, with \u003ca href=\"https://www.cdph.ca.gov/Programs/CID/DCDC/CDPH%20Document%20Library/CocciinCAProvisionalMonthlyReport.pdf\">6,280 suspected, probable or confirmed infections through the end of July\u003c/a> — about 2,500 more than in the same period in 2023.\u003c/p>\n\u003cp>The disease is prevalent only in a few areas, including the San Joaquin Valley and desert regions of Arizona, but experts say that California’s \u003ca href=\"https://www.kqed.org/news/12001154/valley-fever-rises-after-california-music-festival-experts-warn-of-climate-change-link\">changing weather patterns\u003c/a> could make the climate here even more conducive to the fungus.\u003c/p>\n\u003cp>A recent study by Alexandra Heaney, an assistant professor of public health at UC San Diego, hypothesizes that the state’s flip-flopping heavy rain and drought periods fuel the fungus.\u003c/p>\n\u003cp>She and her co-authors believe extensive fungus grows during wet, rainy periods, while dry spells allow the fungus to form and release infectious spores into the air. Cocci can also withstand extremely dry, harsh conditions allowing it to outlast much of its competition during droughts.\u003c/p>\n\u003cp>“If this is going to continue to become more common due to climate change, it’s something that might be contributing to the increases we’ve seen and may actually promote increases in the future as well,” Heaney told KQED in August.\u003c/p>\n\u003cp>CDPH Director Dr. Tomás Aragón warns that the state is preparing for “another possible increase,” and Californians should be aware of valley fever symptoms to catch it early.\u003c/p>\n\u003cp>“If you have a lingering cough and fatigue, please talk to a doctor about valley fever, especially if you’ve been outdoors in dusty air in the Central Valley or Central Coast regions,” Aragón said in a statement.\u003c/p>\n\u003cp>\u003c/p>\n",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003cp>\u003cem>Updated 1:50 p.m. Wednesday\u003c/em>\u003c/p>\n\u003cp>After a handful of people initially reported getting \u003ca href=\"https://www.kqed.org/news/12001154/valley-fever-rises-after-california-music-festival-experts-warn-of-climate-change-link\">valley fever at a Kern County music festival\u003c/a> in May, California public health officials say the number of cases linked to the event nearly quadrupled in a month.\u003c/p>\n\u003cp>In late July, the California Department of Public Health announced that five attendees of Lightning in a Bottle tested positive, and three were hospitalized with symptoms. Last week, the department said that \u003ca href=\"https://www.cdph.ca.gov/Programs/OPA/Pages/NR24-22.aspx\">as of Aug. 21\u003c/a>, the number of confirmed cases linked to the festival is at least 19, including eight hospitalizations.\u003c/p>\n\u003cp>The actual number of people infected is likely higher since \u003ca href=\"https://www.kqed.org/news/12001920/valley-fever-in-california-symptoms-protecting-yourself-and-why-cases-are-way-up\">valley fever symptoms\u003c/a> — cough, fever, chest pain and fatigue — can be confused with other common respiratory infections and COVID-19.\u003c/p>\n\u003cp>Valley fever is not contagious from person to person but infects people and animals who breathe in dust or dirt that contains fungal spores of coccidioides, or “cocci.” When this dust is blown up into the air, people in the area can inhale the cocci spores, which can infect the lungs.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>State officials have warned that \u003ca href=\"https://www.kqed.org/news/12001920/valley-fever-in-california-symptoms-protecting-yourself-and-why-cases-are-way-up\">valley fever is on the rise\u003c/a> this year and being reported outside the Central Valley and Central Coast areas where it is traditionally most common. A music festival is somewhat of a perfect storm for the infection — dancing kicks loose dust containing the soil-dwelling fungus, and singing festival-goers breathe in the spores.\u003c/p>\n\u003cp>More than 20,000 people traveled from across the state and beyond to attend Lightning in a Bottle between May 22 and 27. Health officials are continuing to investigate the cases linked to the festival.\u003c/p>\n\u003cp>Following news stories about the cases, multiple \u003ca href=\"https://www.reddit.com/r/LightningInABottle/comments/1efxmgw/festival_is_hit_with_deadly_fungus_outbreak_that/\">Reddit users\u003c/a> discussing the festival reported feeling sick, and some say that getting a test for the infection has been difficult.\u003c/p>\n\u003cp>Lightning in a Bottle organizers told KQED that health and safety are a primary concern and that the festival adheres to guidance from the Centers for Disease Control and Prevention, CDPH and local authorities.\u003c/p>\n\u003cp>“We, like other large scale gatherings in the region, will continue to seek out the most up to date health and safety guidance made available to us as we plan for future events,” organizers said in a statement.\u003c/p>\n\u003cp>“You really have to advocate to get tested,” one said. Another reported having symptoms since two weeks after the festival but said they were turned away from the doctor’s office without a test.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>State medical officials are warning of an increased risk of valley fever infection this fall, the high season throughout Central California. The disease has spread more rapidly this year so far than in previous years, with \u003ca href=\"https://www.cdph.ca.gov/Programs/CID/DCDC/CDPH%20Document%20Library/CocciinCAProvisionalMonthlyReport.pdf\">6,280 suspected, probable or confirmed infections through the end of July\u003c/a> — about 2,500 more than in the same period in 2023.\u003c/p>\n\u003cp>The disease is prevalent only in a few areas, including the San Joaquin Valley and desert regions of Arizona, but experts say that California’s \u003ca href=\"https://www.kqed.org/news/12001154/valley-fever-rises-after-california-music-festival-experts-warn-of-climate-change-link\">changing weather patterns\u003c/a> could make the climate here even more conducive to the fungus.\u003c/p>\n\u003cp>A recent study by Alexandra Heaney, an assistant professor of public health at UC San Diego, hypothesizes that the state’s flip-flopping heavy rain and drought periods fuel the fungus.\u003c/p>\n\u003cp>She and her co-authors believe extensive fungus grows during wet, rainy periods, while dry spells allow the fungus to form and release infectious spores into the air. Cocci can also withstand extremely dry, harsh conditions allowing it to outlast much of its competition during droughts.\u003c/p>\n\u003cp>“If this is going to continue to become more common due to climate change, it’s something that might be contributing to the increases we’ve seen and may actually promote increases in the future as well,” Heaney told KQED in August.\u003c/p>\n\u003cp>CDPH Director Dr. Tomás Aragón warns that the state is preparing for “another possible increase,” and Californians should be aware of valley fever symptoms to catch it early.\u003c/p>\n\u003cp>“If you have a lingering cough and fatigue, please talk to a doctor about valley fever, especially if you’ve been outdoors in dusty air in the Central Valley or Central Coast regions,” Aragón said in a statement.\u003c/p>\n\u003cp>\u003c/p>\n\u003c/div>\u003c/p>",
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"content": "\u003cp>State \u003ca href=\"https://www.kqed.org/news/tag/health\">health\u003c/a> regulators have fined Blue Shield of California $250,000 for illegally charging hundreds of its members for contraceptive health care services.\u003c/p>\n\u003cp>The insurance company also paid $228,254 in reimbursements to the members who were incorrectly billed, the California Department of Managed Health Care announced on Thursday.\u003c/p>\n\u003cp>Under state law, health insurance companies must cover contraceptive drugs, devices and products such as birth control and intrauterine devices (IUDs) at no cost to the patient. The Department of Managed Health Care found that from 2016 through 2019, Blue Shield had charged more than 330 members for those services.\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>“We always encourage health plan members who are having issues with their health plan — including billing issues like this, any kind of denials of healthcare services — file a complaint with your plan,” said Kevin Durawa, a spokesperson for the Department of Managed Health Care.\u003c/p>\n\u003cp>[aside postID=news_12001214 hero='https://cdn.kqed.org/wp-content/uploads/sites/10/2024/08/240524-REGIONALMEDICAL-JG-1-KQED-1020x680.jpg']\u003c/p>\n\u003cp>Blue Shield of California, based in Oakland, has over 4.8 million members across the state. The department started its investigation after receiving a complaint from a member who was charged for an IUD removal.\u003c/p>\n\u003cp>In October 2017, the member requested the device to be removed after experiencing complications with it. Doctors were unable to remove it during a routine office visit and had to perform an outpatient surgery to pull out the device.\u003c/p>\n\u003cp>The patient was billed $3,439 after the procedure. After Blue Shield denied a grievance filed by the patient, they turned to state regulators.\u003c/p>\n\u003cp>“The member did the right thing — they filed a complaint with the Department of Managed Health Care help center, which led to a broader investigation by the DMHC, which uncovered a much bigger issue,” Durawa said.\u003c/p>\n\u003cp>A Blue Shield spokesperson said the company has been “cooperative throughout the process of this investigation” and has taken steps to correct the issue but did not respond to a KQED inquiry into why the members were charged for contraceptive health care services in the first place.\u003c/p>\n\u003cp>\u003c/p>\n",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003cp>State \u003ca href=\"https://www.kqed.org/news/tag/health\">health\u003c/a> regulators have fined Blue Shield of California $250,000 for illegally charging hundreds of its members for contraceptive health care services.\u003c/p>\n\u003cp>The insurance company also paid $228,254 in reimbursements to the members who were incorrectly billed, the California Department of Managed Health Care announced on Thursday.\u003c/p>\n\u003cp>Under state law, health insurance companies must cover contraceptive drugs, devices and products such as birth control and intrauterine devices (IUDs) at no cost to the patient. The Department of Managed Health Care found that from 2016 through 2019, Blue Shield had charged more than 330 members for those services.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>",
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"content": "\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>Blue Shield of California, based in Oakland, has over 4.8 million members across the state. The department started its investigation after receiving a complaint from a member who was charged for an IUD removal.\u003c/p>\n\u003cp>In October 2017, the member requested the device to be removed after experiencing complications with it. Doctors were unable to remove it during a routine office visit and had to perform an outpatient surgery to pull out the device.\u003c/p>\n\u003cp>The patient was billed $3,439 after the procedure. After Blue Shield denied a grievance filed by the patient, they turned to state regulators.\u003c/p>\n\u003cp>“The member did the right thing — they filed a complaint with the Department of Managed Health Care help center, which led to a broader investigation by the DMHC, which uncovered a much bigger issue,” Durawa said.\u003c/p>\n\u003cp>A Blue Shield spokesperson said the company has been “cooperative throughout the process of this investigation” and has taken steps to correct the issue but did not respond to a KQED inquiry into why the members were charged for contraceptive health care services in the first place.\u003c/p>\n\u003cp>\u003c/p>\n\u003c/div>\u003c/p>",
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"id": "baycurious",
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"tagline": "Exploring the Bay Area, one question at a time",
"info": "KQED’s new podcast, Bay Curious, gets to the bottom of the mysteries — both profound and peculiar — that give the Bay Area its unique identity. And we’ll do it with your help! You ask the questions. You decide what Bay Curious investigates. And you join us on the journey to find the answers.",
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},
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},
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"info": "KQED’s statewide radio news program providing daily coverage of issues, trends and public policy decisions.",
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"order": 8
},
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"airtime": "SUN 1pm-2pm, TUE 10pm, WED 1am",
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"source": "City Arts & Lectures"
},
"link": "https://www.cityarts.net",
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"order": 1
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"info": "\u003cem>Code Switch\u003c/em>, which listeners will hear in the first part of the hour, has fearless and much-needed conversations about race. Hosted by journalists of color, the show tackles the subject of race head-on, exploring how it impacts every part of society — from politics and pop culture to history, sports and more.\u003cbr />\u003cbr />\u003cem>Life Kit\u003c/em>, which will be in the second part of the hour, guides you through spaces and feelings no one prepares you for — from finances to mental health, from workplace microaggressions to imposter syndrome, from relationships to parenting. The show features experts with real world experience and shares their knowledge. Because everyone needs a little help being human.\u003cbr />\u003cbr />\u003ca href=\"https://www.npr.org/podcasts/510312/codeswitch\">\u003cem>Code Switch\u003c/em> offical site and podcast\u003c/a>\u003cbr />\u003ca href=\"https://www.npr.org/lifekit\">\u003cem>Life Kit\u003c/em> offical site and podcast\u003c/a>\u003cbr />",
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"id": "commonwealth-club",
"title": "Commonwealth Club of California Podcast",
"info": "The Commonwealth Club of California is the nation's oldest and largest public affairs forum. As a non-partisan forum, The Club brings to the public airwaves diverse viewpoints on important topics. The Club's weekly radio broadcast - the oldest in the U.S., dating back to 1924 - is carried across the nation on public radio stations and is now podcasting. Our website archive features audio of our recent programs, as well as selected speeches from our long and distinguished history. This podcast feed is usually updated twice a week and is always un-edited.",
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"source": "Commonwealth Club of California"
},
"link": "/radio/program/commonwealth-club",
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"google": "https://podcasts.google.com/feed/aHR0cDovL3d3dy5jb21tb253ZWFsdGhjbHViLm9yZy9hdWRpby9wb2RjYXN0L3dlZWtseS54bWw",
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"tagline": "The conversation starts here",
"info": "KQED’s live call-in program discussing local, state, national and international issues, as well as in-depth interviews.",
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"imageSrc": "https://cdn.kqed.org/wp-content/uploads/2024/04/Forum-Podcast-Tile-703x703-1.jpg",
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"order": 9
},
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"info": "A live production of NPR and WBUR Boston, in collaboration with stations across the country, Here & Now reflects the fluid world of news as it's happening in the middle of the day, with timely, in-depth news, interviews and conversation. Hosted by Robin Young, Jeremy Hobson and Tonya Mosley.",
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"hidden-brain": {
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"info": "Shankar Vedantam uses science and storytelling to reveal the unconscious patterns that drive human behavior, shape our choices and direct our relationships.",
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"airtime": "SUN 7pm-8pm",
"meta": {
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"source": "NPR"
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"how-i-built-this": {
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"info": "Guy Raz dives into the stories behind some of the world's best known companies. How I Built This weaves a narrative journey about innovators, entrepreneurs and idealists—and the movements they built.",
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"airtime": "SUN 7:30pm-8pm",
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"hyphenacion": {
"id": "hyphenacion",
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"tagline": "Where conversation and cultura meet",
"info": "What kind of no sabo word is Hyphenación? For us, it’s about living within a hyphenation. Like being a third-gen Mexican-American from the Texas border now living that Bay Area Chicano life. Like Xorje! Each week we bring together a couple of hyphenated Latinos to talk all about personal life choices: family, careers, relationships, belonging … everything is on the table. ",
"imageSrc": "https://cdn.kqed.org/wp-content/uploads/2025/03/Hyphenacion_FinalAssets_PodcastTile.png",
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"order": 15
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},
"jerrybrown": {
"id": "jerrybrown",
"title": "The Political Mind of Jerry Brown",
"tagline": "Lessons from a lifetime in politics",
"info": "The Political Mind of Jerry Brown brings listeners the wisdom of the former Governor, Mayor, and presidential candidate. Scott Shafer interviewed Brown for more than 40 hours, covering the former governor's life and half-century in the political game – and Brown has some lessons he'd like to share. ",
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"order": 18
},
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},
"latino-usa": {
"id": "latino-usa",
"title": "Latino USA",
"airtime": "MON 1am-2am, SUN 6pm-7pm",
"info": "Latino USA, the radio journal of news and culture, is the only national, English-language radio program produced from a Latino perspective.",
"imageSrc": "https://ww2.kqed.org/radio/wp-content/uploads/sites/50/2018/04/latinoUsa.jpg",
"officialWebsiteLink": "http://latinousa.org/",
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"source": "npr"
},
"link": "/radio/program/latino-usa",
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"apple": "https://itunes.apple.com/WebObjects/MZStore.woa/wa/viewPodcast?s=143441&mt=2&id=79681317&at=11l79Y&ct=nprdirectory",
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"rss": "https://feeds.npr.org/510016/podcast.xml"
}
},
"marketplace": {
"id": "marketplace",
"title": "Marketplace",
"info": "Our flagship program, helmed by Kai Ryssdal, examines what the day in money delivered, through stories, conversations, newsworthy numbers and more. Updated Monday through Friday at about 3:30 p.m. PT.",
"airtime": "MON-FRI 4pm-4:30pm, MON-WED 6:30pm-7pm",
"imageSrc": "https://cdn.kqed.org/wp-content/uploads/2024/04/Marketplace-Podcast-Tile-360x360-1.jpg",
"officialWebsiteLink": "https://www.marketplace.org/",
"meta": {
"site": "news",
"source": "American Public Media"
},
"link": "/radio/program/marketplace",
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"rss": "https://feeds.publicradio.org/public_feeds/marketplace-pm/rss/rss"
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},
"masters-of-scale": {
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"title": "Masters of Scale",
"info": "Masters of Scale is an original podcast in which LinkedIn co-founder and Greylock Partner Reid Hoffman sets out to describe and prove theories that explain how great entrepreneurs take their companies from zero to a gazillion in ingenious fashion.",
"airtime": "Every other Wednesday June 12 through October 16 at 8pm (repeats Thursdays at 2am)",
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"officialWebsiteLink": "https://mastersofscale.com/",
"meta": {
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"source": "WaitWhat"
},
"link": "/radio/program/masters-of-scale",
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"rss": "https://rss.art19.com/masters-of-scale"
}
},
"mindshift": {
"id": "mindshift",
"title": "MindShift",
"tagline": "A podcast about the future of learning and how we raise our kids",
"info": "The MindShift podcast explores the innovations in education that are shaping how kids learn. Hosts Ki Sung and Katrina Schwartz introduce listeners to educators, researchers, parents and students who are developing effective ways to improve how kids learn. We cover topics like how fed-up administrators are developing surprising tactics to deal with classroom disruptions; how listening to podcasts are helping kids develop reading skills; the consequences of overparenting; and why interdisciplinary learning can engage students on all ends of the traditional achievement spectrum. This podcast is part of the MindShift education site, a division of KQED News. KQED is an NPR/PBS member station based in San Francisco. You can also visit the MindShift website for episodes and supplemental blog posts or tweet us \u003ca href=\"https://twitter.com/MindShiftKQED\">@MindShiftKQED\u003c/a> or visit us at \u003ca href=\"/mindshift\">MindShift.KQED.org\u003c/a>",
"imageSrc": "https://cdn.kqed.org/wp-content/uploads/2024/04/Mindshift-Podcast-Tile-703x703-1.jpg",
"imageAlt": "KQED MindShift: How We Will Learn",
"officialWebsiteLink": "/mindshift/",
"meta": {
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"source": "kqed",
"order": 12
},
"link": "/podcasts/mindshift",
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"google": "https://podcasts.google.com/feed/aHR0cHM6Ly9mZWVkcy5tZWdhcGhvbmUuZm0vS1FJTkM1NzY0NjAwNDI5",
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"stitcher": "https://www.stitcher.com/podcast/kqed/stories-teachers-share",
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}
},
"morning-edition": {
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