Donate

Rare Previous Broadcasts

KQED Plus: Sun, Sep 9, 2012 -- 7:00 PM

This documentary follows an inspiring and extraordinary mother in a race against time as she unites a group of isolated people from around the world in a quest to cure her daughter's rare genetic disease. Together, they discover that community, laughter and hope are some of the greatest therapies.
When Donna Appell learned that her baby daughter Ashley suffered from a rare genetic disorder that would kill her in 30 years, she was told there were less than 30 people in the US who had been diagnosed with it and no one knew where to find them. Realizing that no one was going to help cure "just one child," Donna set about forming an advocacy group and harnessing the internet to gather as many patients as possible who suffered from Hermansky-Pudlak Syndrome (HPS), which includes albinism, blindness, a bleeding disorder and often a fatal pulmonary fibrosis.
Filmed with intimate access over 3 years, as the clock ticks and the stakes get higher, this film follows Donna and her advocacy group as they travel to Puerto Rico and throughout the US in a race to fill a drug trial they hope could prolong her daughter's life. Along the way we become part of a sweet love story when Donna's daughter Ashley falls for an earnest young man who has the same fatal disease.

Repeat Broadcasts:

  • KQED Plus: Wed, Sep 12, 2012 -- 5:00 AM
  • KQED Plus: Tue, Sep 11, 2012 -- 11:00 PM
  • KQED Plus: Mon, Sep 10, 2012 -- 1:00 AM
Become a KQED sponsor

TV Technical Issues

TV

To view previous issues and how they were resolved, go to our TV Technical Issues page.

KQED DTV Channels

KQED 9, KQET

KQED 9 / KQET

Channels 9.1, 54.2, 25.1
XFINITY 9 and HD 709
Wave, DirecTV, Dish Network, AT&T U-verse: Channel # may vary, labeled as KQED, or as KQET in the 831 area code.
Outstanding PBS programming, KQED original productions, and more.

All HD programs

KQED Plus, KQET

KQED Plus / KQEH

Channels 54.1, 9.2, 25.2
XFINITY 10 and HD 710
Wave, DirecTV, Dish Network, AT&T U-verse: Channel # may vary, labeled as KQEH
KQED Plus, formerly KTEH.
Unique programs including the best British dramas, mysteries, and comedies.

PBS Kids

PBS Kids

Channel 54.4, 25.4, and 9.4
XFINITY 192 (Monterey/Salinas 372 and Sacramento/Fairfield 391)
Wave: Channel # may vary.
Quality children's programming. Live streaming 24/7 at pbskids.org.

KQED World

KQED World

Channel 9.3, 54.3 and 25.3
XFINITY 190 Monterey/Salinas 371 and Sacramento/Fairfield 390)
Wave: Channel # may vary.
Thought-provoking television — public affairs, local and world events, nature, history, and science.