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Rare Previous Broadcasts

KQED Plus: Sun, Sep 9, 2012 -- 7:00 PM

This documentary follows an inspiring and extraordinary mother in a race against time as she unites a group of isolated people from around the world in a quest to cure her daughter's rare genetic disease. Together, they discover that community, laughter and hope are some of the greatest therapies.
When Donna Appell learned that her baby daughter Ashley suffered from a rare genetic disorder that would kill her in 30 years, she was told there were less than 30 people in the US who had been diagnosed with it and no one knew where to find them. Realizing that no one was going to help cure "just one child," Donna set about forming an advocacy group and harnessing the internet to gather as many patients as possible who suffered from Hermansky-Pudlak Syndrome (HPS), which includes albinism, blindness, a bleeding disorder and often a fatal pulmonary fibrosis.
Filmed with intimate access over 3 years, as the clock ticks and the stakes get higher, this film follows Donna and her advocacy group as they travel to Puerto Rico and throughout the US in a race to fill a drug trial they hope could prolong her daughter's life. Along the way we become part of a sweet love story when Donna's daughter Ashley falls for an earnest young man who has the same fatal disease.

Repeat Broadcasts:

  • KQED Plus: Wed, Sep 12, 2012 -- 5:00 AM
  • KQED Plus: Tue, Sep 11, 2012 -- 11:00 PM
  • KQED Plus: Mon, Sep 10, 2012 -- 1:00 AM
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TV Technical Issues

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    TV Technical Issues
    • KQED DT9s Over the Air: beginning Wed 7/09

      (DT9.1, 9.2, 9.3) The PSIP Info part of our Over the Air (OTA) signal for KQED DT9.1, 9.2, 9.3 dropped out of our overall signal early Wednesday 7/09. Once PSIP was restored most OTA receivers moved our signal back to the correct channel locations. However, for some viewers, it appears as if they have lost […]

    • KQED FM 88.1 translator off air Tues 6/03

      The Martinez translator for KQED-FM will be off the air all day Tuesday June 3rd. We are rebuilding the 25 year old site with all new antennas and cabling. This should only affect people listening on 88.1MHz in the Martinez/Benicia area.

    • KQET planned overnight outage: early Tues 5/13

      (DT25.1, 25.2, 25.3) KQET’s Over The Air (OTA) signal will shut down late May 12/early Tues 5/13 shortly after midnight to allow for extensive electrical maintenance work at the transmitter. Engineers will do their best to complete the work by 6am Tuesday morning. This will affect OTA viewers of the DT25 channels, and signal providers […]

To view previous issues and how they were resolved, go to our TV Technical Issues page.

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Digital 9.3

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Digital 54.4

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