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Rare Previous Broadcasts

KQED Plus: Sun, Sep 9, 2012 -- 7:00 PM

This documentary follows an inspiring and extraordinary mother in a race against time as she unites a group of isolated people from around the world in a quest to cure her daughter's rare genetic disease. Together, they discover that community, laughter and hope are some of the greatest therapies.
When Donna Appell learned that her baby daughter Ashley suffered from a rare genetic disorder that would kill her in 30 years, she was told there were less than 30 people in the US who had been diagnosed with it and no one knew where to find them. Realizing that no one was going to help cure "just one child," Donna set about forming an advocacy group and harnessing the internet to gather as many patients as possible who suffered from Hermansky-Pudlak Syndrome (HPS), which includes albinism, blindness, a bleeding disorder and often a fatal pulmonary fibrosis.
Filmed with intimate access over 3 years, as the clock ticks and the stakes get higher, this film follows Donna and her advocacy group as they travel to Puerto Rico and throughout the US in a race to fill a drug trial they hope could prolong her daughter's life. Along the way we become part of a sweet love story when Donna's daughter Ashley falls for an earnest young man who has the same fatal disease.

Repeat Broadcasts:

  • KQED Plus: Wed, Sep 12, 2012 -- 5:00 AM
  • KQED Plus: Tue, Sep 11, 2012 -- 11:00 PM
  • KQED Plus: Mon, Sep 10, 2012 -- 1:00 AM
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TV Technical Issues

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    • Scheduled Maintenance 8/21-8/25

      Next week, Sutro Tower will be switching most stations to their auxiliary antennas. KQED TV will be at half power on the lower auxiliary antenna, this will affect some of our Over The Air viewers. Maintenance is scheduled on August 21-25 from 9am through 4pm daily. Thank you for your patience!

    • 6/22-23 Ch9 & Ch54 Virtual ID issues

      (DT9-1 thru 9-3, and DT54-1 thru 54-5) KQED experienced a major technical issue with our Virtual ID info in our signals for DT9 and DT54, beginning apx 4pm Thursday 6/22, which was resolved apx 11am Friday 6/23. As background, almost every TV station in the Bay Area now transmits on a frequency which is different […]

    • 2/22/17: Fremont Peak tower transmissions, including KQET DT25

      (DT25.1 through 25.3) Recent storms have taken out dozens of trees on Fremont Peak, which in turn have taken down power lines leading to the transmission tower located on the peak. It has been running on generators for several days, and regular trips are scheduled to re-fuel those generators with gas. However, the truck has […]

To view previous issues and how they were resolved, go to our TV Technical Issues page.

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