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Rare Previous Broadcasts

KQED Plus: Sun, Sep 9, 2012 -- 7:00 PM

This documentary follows an inspiring and extraordinary mother in a race against time as she unites a group of isolated people from around the world in a quest to cure her daughter's rare genetic disease. Together, they discover that community, laughter and hope are some of the greatest therapies.
When Donna Appell learned that her baby daughter Ashley suffered from a rare genetic disorder that would kill her in 30 years, she was told there were less than 30 people in the US who had been diagnosed with it and no one knew where to find them. Realizing that no one was going to help cure "just one child," Donna set about forming an advocacy group and harnessing the internet to gather as many patients as possible who suffered from Hermansky-Pudlak Syndrome (HPS), which includes albinism, blindness, a bleeding disorder and often a fatal pulmonary fibrosis.
Filmed with intimate access over 3 years, as the clock ticks and the stakes get higher, this film follows Donna and her advocacy group as they travel to Puerto Rico and throughout the US in a race to fill a drug trial they hope could prolong her daughter's life. Along the way we become part of a sweet love story when Donna's daughter Ashley falls for an earnest young man who has the same fatal disease.

Repeat Broadcasts:

  • KQED Plus: Wed, Sep 12, 2012 -- 5:00 AM
  • KQED Plus: Tue, Sep 11, 2012 -- 11:00 PM
  • KQED Plus: Mon, Sep 10, 2012 -- 1:00 AM
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TV Technical Issues

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    TV Technical Issues
    • KQET (DT25) Over the Air: Wed 8/27

      We are aware of the break-up issues for our DT25 Over the Air signal in the Monterey/Salinas area. This will also affect viewers of any cable or satellite signal provider using that transmitter as their source. Engineers are working on the problem.

    • Week of 8/25: Sutro Tower work (including KQED 9 Over the Air)

      (Affects several San Francisco TV & Radio stations, including KQED 9.1, 9.2 & 9.3) During the week of August 25, Monday through Friday, between 9am and 4pm, several TV and radio stations will be switching to their Auxiliary antennas. This is being done so that the tower crew can perform routine maintenance on the regular […]

    • KQET Off Air Sun 8/03 morning

      (DT25.1, 25.2, 25.3) KQET DT25 was off the air for a portion of Sunday morning, due to the transmitter taking a power hit. The signal has been restored. Most receivers should have re-acquired our signal once it returned, but a few Over the Air viewers may need to do a rescan in order to restore […]

To view previous issues and how they were resolved, go to our TV Technical Issues page.

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