Rare Previous Broadcasts

KQED Plus: Sun, Sep 9, 2012 -- 7:00 PM

This documentary follows an inspiring and extraordinary mother in a race against time as she unites a group of isolated people from around the world in a quest to cure her daughter's rare genetic disease. Together, they discover that community, laughter and hope are some of the greatest therapies.
When Donna Appell learned that her baby daughter Ashley suffered from a rare genetic disorder that would kill her in 30 years, she was told there were less than 30 people in the US who had been diagnosed with it and no one knew where to find them. Realizing that no one was going to help cure "just one child," Donna set about forming an advocacy group and harnessing the internet to gather as many patients as possible who suffered from Hermansky-Pudlak Syndrome (HPS), which includes albinism, blindness, a bleeding disorder and often a fatal pulmonary fibrosis.
Filmed with intimate access over 3 years, as the clock ticks and the stakes get higher, this film follows Donna and her advocacy group as they travel to Puerto Rico and throughout the US in a race to fill a drug trial they hope could prolong her daughter's life. Along the way we become part of a sweet love story when Donna's daughter Ashley falls for an earnest young man who has the same fatal disease.

Repeat Broadcasts:

  • KQED Plus: Wed, Sep 12, 2012 -- 5:00 AM
  • KQED Plus: Tue, Sep 11, 2012 -- 11:00 PM
  • KQED Plus: Mon, Sep 10, 2012 -- 1:00 AM
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TV Technical Issues

    TV Technical Issues
    • Wed 11/10: KQEH Over The Air planned short outages

      (DT54-1 through 54-5) Wednesday 11/10, 11am The DT54 Over the Air signal will need to switch from main to auxiliary levels late Wednesday morning for the safety of the crew working on another station’s equipment on the tower, then back to the main antenna mid-afternoon when work is completed. The change should be for a […]

    • Tues 9/29: Planned outage for KQET DT25 Over the Air signal

      (DT25.1, 25.2 & 25.3) The Fremont Peak transmission tower will be undergoing one of its routine maintenance inspections Tuesday. We expect to shut down the KQET DT25 signal at approximately 2pm (along with other stations on the tower), and expect to return around 3pm. Most TVs will automatically recover the signals after an outage of […]

    • KQED DT9.1 ? 9.3, Sunday 9/20: Over the Air signal down

      UPDATE: KQED’s Sutro Tower signal was restored to full power shortly after 3pm on Monday. If your TV set has still not re-acquired the signal automatically, a rescan is probably in order. – – – – – – – – – UPDATE: Our over the air signal was restored at 50% power apx 4pm Sunday. […]

To view previous issues and how they were resolved, go to our TV Technical Issues page.

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Wave 9 and HD 164
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Wave 157

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KQED World

Channel 9.3
Wave 156

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Channel 54.5 & 25.3
XFINITY 191 & 621
Wave 154

24-hour national Spanish-language network



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Wave 155

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