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Read the Patient
Rights Advocacy Manual produced by the California Association
of Mental Health Patient's Rights Advocates. It covers 20
topics, ranging from advocacy skills to seclusion and use
of restraints to patient's rights and confidentiality to
treatment of minors.
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If you have a complaint with services in the public or private
sector, contact a Patient's
Rights advocate through the California Office of Patient
Rights, which contracts with the California Department of
Mental Health to ensure adherence to mental health laws
and the rights of patients. The office has direct advocacy
services on-site at four state hospitals, and responds to
patients' complaints.
Some clients prepare a legal document, called a psychiatric
advance directive, to express their wishes in the event of
a future crisis or possible involuntary commitment. The Bazelon
Center for Mental Health Law offers a set of templates
for preparing a psychiatric advance directive.
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How do I find peer support/self-help services?
Sharing
stories gives clients concrete examples of how to reclaim
their lives despite the challenges of having a mental illness.
Many counties have client-run drop in centers that provide
opportunities for self-help and peer support from people who
have been through the mental health system. Many of these
client-run organizations have Web sites. A few California
self-help organizations are listed here.
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The California
Network of Mental Health Clients is the country's first
client-run state mental health organization. Search its
statewide directory of client-run groups to find a self-help
organization in your community. Read legislative action
alerts, policy papers and a calendar of upcoming events.
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The California Association of Mental Health Patients' Rights
Advocates provides access to general legal resources and
a patient advocacy manual. Find patient
advocates in your community.
-
The Mental
Health Client Action Network is a mutual support and
networking organization based in Santa Cruz.
-
Contra Costa-based Mental
Health Consumer Concerns is a nonprofit corporation
founded in 1976 by and for mental health clients. Its mission
is to advocate for the rights of mental health clients everywhere.
- The
United
Advocates for Children of California is a nonprofit
organization that offers help for parents of children with
severe emotional disturbances. Services include advocacy,
training, self-help, information and referrals.
National
Self-Help/Peer Support Training and Technical Assistance Organizations
- The
U.S.
Mental Health Information Center is a SAMHSA (Substance
Abuse and Mental Health Services Administration) information
clearinghouse. It has links to consumer self-help organizations
that provide national technical assistance, training and
information. Information on this site is written for a wide
range of clients and family members.
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The National
Empowerment Center provides support throughout the recovery
process for people who have been diagnosed with mental illness.
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The National
Mental Health Consumers' Self-Help Clearinghouse is
a consumer-run national technical assistance center committed
to helping mental health consumers improve their lives through
self-help and advocacy. The center helps consumers plan,
provide and evaluate mental health and community support
services.
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How
do I find self-help and support services for caregivers and
family members?
- Contact
the Mental Health
Association in California (MHAC) chapter in your community.
The MHAC sponsors support groups for family members and
provides information and referrals. MHAC chapters represent
diverse viewpoints on mental health issues.
-
Contact the National
Alliance for the Mentally Ill (NAMI) chapter in your
community. NAMI - California sponsors support groups and
training for family members. NAMI chapters generally view
mental illness as a "brain disorder."
-
Find NAMI-sponsored
"Family-to-Family" classes in your community. These
classes are taught by family members and share ways to take
care of yourself while supporting family members experiencing
psychiatric symptoms. "Family to Family" classes are a program
of the National Alliance for the Mentally Ill, an organization
that sponsors support groups and trainings for clients and
family members. NAMI chapters view mental illness as a "brain
disorder."
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How
do clients get information about supportive housing?
Find out about housing programs in your community that provide
support or services for people who have disabilities. There
is usually a waiting list for any kind of supportive or low-income
housing, so it's important to find out as soon as you can
what's available.
-
Find a list of PATH
(Projects Assistance in Transition From Homelessness) providers
in your county. This national program funds housing for
the homeless that includes community-based outreach, mental
health, substance abuse, case management and other support
services, as well as some housing services. PATH creates
collaborations between state and local agencies to provide
community-based services for people who are homeless and
have serious mental illnesses.
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Find federally funded housing assistance for the homeless
mentally ill. Use this Web site to find names of programs
and call your county 24-Hour Multilingual
Crisis Intervention and Assessment number to find out
if they are available. This is another service of the U.S.
Mental Health Information Center's Web site. The center
is an information clearinghouse that is part of the U.S.
Substance Abuse and Mental Health Services Administration
(SAMHSA).
- California
Department of Mental Health is the state agency that
oversees county mental health departments. Find here FAQs
on how to ask about supportive housing.
-
Find your community's Independent Living Center. Although
independent living centers primarily serve individuals with
physical disabilities, they have peer counselors who can
answer questions about employment and housing and offer
services useful to individuals with mental health issues.
The
California Independent Living Council oversees Independent
Living Centers, commissions research and develops public
policy on behalf of people who have disabilities.
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How
do clients get information about job training that will lead
to paid or volunteer work?
Finding
ways to remain in the community via volunteer or paid work
is one pathway towards recovery.
-
Ask if your county mental health department has a "cooperative
contract" with the California Department of Rehabilitation.
You can work part time or full time and receive employment
training, placement and job coaching through this program.
Ask if your county has this program when you call its 24-Hour
Multilingual Crisis Intervention and Assessment number.
-
The U.S.
Center for Mental Health Services, part of the U.S.
Substance Abuse and Mental Health Services Administration
(SAMHSA), offers links about employment.
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What
if clients want to return to school?
The onset of psychiatric symptoms causes many teenagers
and young adults to drop out of school. Once symptoms are
understood and managed, clients often consider going back
to school and finishing their high school diploma or college
degree. Counties that contract with the Department of Rehabilitation/Department
of Mental Health's Cooperative Program have access to consultants
who can set up supportive services between mental health programs
and local schools. These programs provide on-site and off-site
counseling and support that help clients succeed when they
return to the classroom. Call your county's 24-Hour
Multilingual Crisis Intervention and Assessment number
and find out if "supportive" education services are offered
to clients who want to go back to school.
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Understanding
Mental Illness, Treatment and Wellness/Recovery
This
section provides information about diagnosis and treatment,
and how to use mental health services.
Understanding
the symptoms of mental illness
People
have a hard time seeing the difference between a rough patch
and the start of mental health symptoms. When do problems
become too difficult for you to handle alone?
Finding
help for yourself
Part of the Mental Health Association in California's web
series Reaching for the Light, this Web page "How
Do You Know When You Need Help?" lists signs and symptoms
to look for that signal the need for help.
When
mental illness is in your family
This factsheet from the National Mental Health Association
"Mental
Illness in the Family -- Recognizing the Warning Signs and
How to Cope" explains what mental illness may "look
like" in adults and youth and offers suggestions for family
members on how to recognize and cope with mental illness in
the family.
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Understanding
severe mental health symptoms
In
the Mental Health Association in California's (MHAC) Web series
Reaching for the Light, the page "Severe
Mental Disorders" provides descriptions of some severe
mental illnesses: schizophrenia; mood disorders; anxiety disorders;
obsessive/compulsive disorders; eating disorders; personality
disorders.
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How
to talk with your mental health clinician
Finding
a clinician
The MHAC booklet, "Finding
Help," suggests questions that will help you decide if
a mental health provider is the right one for you. The Mental
Health Association in California (MHAC) sponsors support groups
for clients and family members and provides information and
referrals. MHAC chapters represent diverse viewpoints on mental
health issues.
Building
a relationship with your clinician
The Mental Health Matters article "Looking
for a Therapist" includes suggestions about how to
talk with your mental health clinician. The Mental Health
Matters web site was founded by a client to bring technical
information and resources to clients, students and professionals.
Collaborating
with psychiatrists to find the right medication
The National Empowerment Center is a SAMHSA (Substance Abuse
and Mental Health Services Administration) Technical Assistance
Center. Its mission is to carry a message of recovery, empowerment,
hope and healing to people who have been diagnosed with mental
illness. The article, "Reclaiming
Your Power During Medication Appointments With Your Psychiatrist,"
written by Pat Deegan, Ph.D., talks about how to structure
your medication evaluation and follow-up appointments in order
to cultivate collaboration between you and your psychiatrist.
Tell me about
licensed mental health professionals in California
This one page document describes services provided by different
kinds of mental health professionals. The Mental
Health Association in California (MHAC) sponsors support
groups for clients and family members and provides information
and referrals. MHAC chapters represent diverse viewpoints
on mental health issues.
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Learning
about diagnosis
Diagnosis
is a tool used by clinicians to summarize symptoms and life
stressors. The following sites might help you understand how
the many mental illnesses are defined.
- The
Mental
Health Association in California (MHAC) Web site offers
information about diagnoses written by mental health professionals.
MHAC sponsors support groups for clients and family members
and provides information and referrals.
- The
Mental
Health Matters Web site was founded by a client to bring
technical information and resources to clients, students
and professionals. This Web page link to "Demystifying the
Diagnosis" is a one page description of the language used
by clinicians to describe mental illness -- the DSM-IV (Diagnostic
and Statistical Manual of Mental Disorders, 4th Edition).
This is just one of many technical briefs offered by this
Web site on a wide range of mental health issues, ranging
from treatment to self-help to advocacy to research.
- Diagnosis
and treatment links from a client-managed Web site.
The California Association of Mental Health Patient's Rights
Advocates promotes public policy to further the rights and
well-being of mental health consumers.
-
The
Mental
Health Matters Web site was founded by a client to bring
technical information and resources to clients, students
and professionals. Find technical briefs on a wide range
of mental health issues, ranging from treatment to self-help
to advocacy to research as well as summaries of major diagnoses.
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Learning
about medications
With
recent advances in science and technology, clients now have
more and better psychotropic drug options than in previous
generations. Finding the right balance in medication can be
a lengthy process for some clients. Here are resources that
will help you understand how medications work, written by
mental health professionals from organizations representing
families, clients and researchers.
What
is a formulary?
It is often difficult to discern whether certain medications
are covered by insurance. The California Internet Formulary
Reference guide, created by Citizens for the Right to Know
and linked from the Mental Health Association of California,
helps consumers research coverage.
Fact
sheets about medications from NAMI
Each fact sheet on this "Information about illnesses
and treatments" webpage includes links to organizations
that provide support for people with specific diagnoses. The
National Alliance for Mental Illness (NAMI) is a national
research and advocacy organization that views mental illness
as a "brain disorder."
Links
about medications -The Mental Health Association of California
This is a portal to information on the Web about mental health
medications. This page provides links to resources about medications,
adverse reactions, California's formulary, and information
from the Food and Drug Administration.
A
booklet about medications from the National Institute of Mental
Health
This resource provides easy-to-understand information about
medications used for treating mental health problems. The
site describes what different medications are used for, what
their effects are and which medications are used for specific
groups, and it offers an alphabetical index of medications.
Included is information about effects on children, the elderly
and women of childbearing years.
A
self-help resource to assist you with medications
The U.S. Mental Health Information Center is an information
clearinghouse that is part of the U.S. Substance Abuse and
Mental Health Services Administration (SAMHSA). The brochure,
"A Self-Help Guide to Using Medications," was written for
clients and family members. Included is a list of questions
to help you develop a collaborative relationship with your
clinician.
Working
with your psychiatrist
The National Empowerment Center is a SAMHSA Technical Assistance
Center. Its mission is to carry a message of recovery, empowerment,
hope and healing to people who have been diagnosed with mental
illness. Find information on how to structure medication evaluation
and follow-up appointments in order to cultivate collaboration
between you and your psychiatrist.
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Dual
diagnosis: When alcohol and drugs compound mental illness
Without
diagnosis and treatment, many people with mental illness use
alcohol and other substances to control symptoms, and they
sometimes become addicted. Alcohol and drug dependence can
exacerbate mental illness, resulting in some clients having
"dual diagnosis" or "dual recovery," as they attempt to recover
from both symptoms of mental illness and addiction. Here are
some resources for treating dual-diagnosis.
- Find
treatment in your community. The SAMHSA, in collaboration
with the state of California, has a service
locator that will identify programs in your community
for alcohol and substance abuse. The site will tell you
if these programs have a dual recovery emphasis, what languages
are spoken and what forms of payment are accepted.
- Through
this link, you can find sources for information on being
in recovery from mental illness and alcohol/substance abuse,
like the Dual Diagnosis Recovery Network.
-
Find peer support groups for individuals facing recovery
from psychiatric symptoms and alcohol/substances. Dual Recovery
Anonymous is a 12-step program for individuals facing recovery
from psychiatric symptoms and alcohol/substances.
Northern
California meetings
Southern
California meetings
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Understanding
wellness and recovery
According
the U.S. Surgeon General's report on mental health, recovery
is a journey hallmarked by hope and expansion, despite the
day-to-day challenges of having mental health symptoms. Recovery
is about understanding and managing these symptoms and regaining
one's sense of self. It's also about recovering from the stigma
of having a mental illness. Clients view the process of recovery
as unique for each person, depending on their strengths, life
situations and culture...The guides listed below will explain
the many different paths that lead towards recovery.
- The
U.S. Mental Health Information Center is an information
clearinghouse that is part of the U.S. Substance Abuse and
Mental Health Services Administration (SAMHSA). The site
includes nine downloadable how-to publications about mental
health recovery. Topics include dealing with trauma, speaking
out for yourself, making friends, building self-esteem,
self-help, client rights, and action-planning for recovery.
- Mary
Ellen Copeland's Web site provides various methods for
nurturing wellness/recovery, including an explanation of
Wellness Recovery Action Planning (WRAP). Resources include
seminars, correspondence courses, workbooks, videos, publications,
and newsletters. Copeland used her experience with manic
depression to develop the WRAP tool, which aims to bring
insight into staying well and what to do when symptoms become
difficult.
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